Title: Online survey data relating to heart rhythm abnormalities in men and boys with X-linked ichthyosis (XLI) and female carriers of XLI-associated genetic deletions
Citation
Wren G, Humby T, Thompson A, et al. (2022). Online survey data relating to heart rhythm abnormalities in men and boys with X-linked ichthyosis (XLI) and female carriers of XLI-associated genetic deletions. Cardiff University. https://doi.org/10.17035/d.2022.0230251614
Access Rights: Creative Commons Attribution 4.0 International
Access Method: Click to email a request for this data to opendata@cardiff.ac.uk
Dataset Details
Publisher: Cardiff University
Date (year) of data becoming publicly available: 2022
Coverage start date: 02/09/2021
Coverage end date: 22/12/2021
Data format: .xlsx
Software Required: None
Estimated total storage size of dataset: Less than 100 megabytes
DOI : 10.17035/d.2022.0230251614
DOI URL: http://doi.org/10.17035/d.2022.0230251614
The data are archived in an Excel spreadsheet, with individual rows representing different participants, and columns representing participant responses to individual online survey questions (questions and response options are provided at the top of each column). Questions cover demographic variables, means of XLI diagnosis/carrier status, family history of cardiovascular issues, comorbid medical conditions, precipitants/nature/developmental course/severity of any self-reported heart arrhythmias and their treatments, and opinions relating to cardiac screening for individuals carrying XLI-associated genetic deletions.
Description
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