Abstract
Background
Parents of children with metabolic diseases report more parenting stress, anxiety, depression and dysfunctional parenting styles than parents of children without metabolic diseases. In addition, their children have more behavioral problems. Beside the fact that metabolic diseases are rare, they form a relatively large proportion in the morbidity and mortality of chronically ill children.
Methods
In this pilot study 14 parents of children with metabolic diseases, aged between 2.5 and 13 years, participated in a quasi-experimental pre-post-follow-up study.
Results
After participating in the Level 4 Group Triple P-program there were small effects in decreasing child behavioral problems and large effects in decreasing dysfunctional parenting styles. There was a moderate to large reduction of parental stress and a large reduction of parental anxiety. Only the effects on the behavioral problems and the parenting style ‘laxness’ were no longer significant at 6 months follow-up.
Conclusions
In summary it can be said that the existing Triple P-program has good effects, with a great degree of satisfaction, for parents of children with metabolic diseases in reducing dysfunctional parenting styles, parenting stress and behavioral problems of their children. One should not wait for a specialized program to reach these parents, but further research is necessary as a greater effect can be expected when this program is adapted to these parents.
Author contributions: All the authors have accepted responsibility for the entire content of this submitted manuscript and approved submission. Karen Van Mechelen: conception and design, analysis and interpretation of data. Most of the drafting and revising of the article. Ilse Kessels: conception and design, analysis and interpretation of data. Annik Simons: applying research topic, delivering patients and program, revising of the article. Inge Glazemakers: conception and design, analysis and interpretation of data. Critically drafting and revising of the article. Inge Glazemakers is the guarantor of the work and, as such, had full access to all data in the study, and takes responsibility for the integrity of the data and accuracy of the data analysis.
Research funding: None declared.
Employment or leadership: None declared.
Honorarium: None declared.
Competing interests: The funding organization(s) played no role in the study design; in the collection, analysis, and interpretation of data; in the writing of the report; or in the decision to submit the report for publication.
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