Oritsetimeyin Arueyingho
Nicola J Bidwell
Makuochi Samuel Nkwo
ABSTRACT
Non-communicable diseases e.g., diabetes, cardiovascular conditions, and cancers etc, are slowly becoming silent epidemics in African countries. Most of them are closely linked with unique clinical manifestations and could go undetected until there is a complication. Management of these diseases requires long-term informal care, and this has resulted in a complex network of relationships between patients, complementary care providers, informal and formal caregivers. Unfortunately, there are not many studies investigating these relationships from a decolonized perspective with the intention of co-designing interventions that are unique to their lived experiences. This workshop aims to bring together researchers working on digital health and care projects in Africa to discuss the implications of existing collaborative care structures and cultures for technology, as well as near future Afrocentric approaches to collaborative care. We aim to highlight existing challenges in technology enabled collaborative care, differentiate them from established challenges in the Global North and identify design opportunities. This workshop will contribute to the growing attention shown to the African continent in CSCW and HCI research more broadly.
- 2017. 2016 Year end funding report: A reality check for digital health | Rock Health. https://rockhealth.com/insights/2016-year-end-funding-report-a-reality-check-for-digital-health/Google Scholar
- Muhammad Sadi Adamu. 2020. Adopting an African Standpoint in HCI4D: A Provocation. Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems (04 2020). https://doi.org/10.1145/3334480.3382833Google ScholarDigital Library
- Samuel Ayofemi O. Adeyeye, Tolulope J. Ashaolu, Olusola T. Bolaji, Titilope A. Abegunde, and Adetola O. Omoyajowo. 2021. Africa and the Nexus of poverty, malnutrition and diseases. Critical Reviews in Food Science and Nutrition (07 2021), 1–16. https://doi.org/10.1080/10408398.2021.1952160Google Scholar
- Robert Beaglehole, Ruth Bonita, Richard Horton, Orvill Adams, and Martin McKee. 2004. Public health in the new era: improving health through collective action. The Lancet 363 (06 2004), 2084–2086. https://doi.org/10.1016/s0140-6736(04)16461-1Google Scholar
- Jennifer Benson, Tilman Brand, Lara Christianson, and Meret Lakeberg. 2023. Localisation of digital health tools used by displaced populations in low and middle-income settings: a scoping review and critical analysis of the Participation Revolution. Conflict and Health 17 (04 2023). https://doi.org/10.1186/s13031-023-00518-9Google Scholar
- Alexander Bischoff, Tetanye Ekoe, Nicolas Perone, Slim Slama, and Louis Loutan. 2009. Chronic Disease Management in Sub-Saharan Africa: Whose Business Is It?International Journal of Environmental Research and Public Health 6 (08 2009), 2258–2270. https://doi.org/10.3390/ijerph6082258Google Scholar
- LaPrincess C. Brewer, Karen L. Fortuna, Clarence Jones, Robert Walker, Sharonne N. Hayes, Christi A. Patten, and Lisa A. Cooper. 2020. Back to the Future: Achieving Health Equity Through Health Informatics and Digital Health. JMIR mHealth and uHealth 8 (2020), e14512. https://doi.org/10.2196/14512Google Scholar
- Ama de Graft Aikins, Petra Boynton, and Lem L Atanga. 2010. Developing effective chronic disease interventions in Africa: insights from Ghana and Cameroon. Globalization and Health 6 (2010), 6. https://doi.org/10.1186/1744-8603-6-6Google ScholarCross Ref
- Agata Ferretti, Effy Vayena, and Alessandro Blasimme. 2023. Unlock Digital Health Promotion in LMICs to Benefit the Youth. https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4338613Google Scholar
- Derek D. Headey, Olivier Ecker, Andrew R. Comstock, and Marie T. Ruel. 2023. Poverty, price and preference barriers to improving diets in sub-Saharan Africa. Global Food Security 36 (03 2023), 100664. https://doi.org/10.1016/j.gfs.2022.100664Google Scholar
- Jens Holst and Remco van de Pas. 2023. The biomedical securitization of global health. Globalization and Health 19 (03 2023). https://doi.org/10.1186/s12992-023-00915-yGoogle Scholar
- IDF. 2021. Diabetes in Africa. https://www.idf.org/our-network/regions-members/africa/diabetes-in-africa.html#: :text=24%20million%20adults%20%2820-79%29%20are%20living%20with%20diabetesGoogle Scholar
- Ronald Kiguba, Sten Olsson, and Catriona Waitt. 2022. Pharmacovigilance in low‐ and middle‐income countries: A review with particular focus on Africa. British Journal of Clinical Pharmacology (02 2022). https://doi.org/10.1111/bcp.15193Google Scholar
- Alain B. Labrique, Christina Wadhwani, Koku Awoonor Williams, Peter Lamptey, Cees Hesp, Rowena Luk, and Ann Aerts. 2018. Best practices in scaling digital health in low and middle income countries. Globalization and Health 14 (11 2018). https://doi.org/10.1186/s12992-018-0424-zGoogle Scholar
- Jacqueline Louise Mair, Alicia Salamanca-Sanabria, Bea Frese, Robert Jakob, Tobias Kowatsch, and Severin Haug. 2023. Effective behavior change techniques in digital health interventions targeting non-communicable diseases: an umbrella review. OSF Preprints (01 2023). https://doi.org/10.31219/osf.io/n4savGoogle ScholarCross Ref
- Tsegahun Manyazewal, Yimtubezinash Woldeamanuel, Henry M. Blumberg, Abebaw Fekadu, and Vincent C. Marconi. 2021. The potential use of digital health technologies in the African context: a systematic review of evidence from Ethiopia. npj Digital Medicine 4 (08 2021). https://doi.org/10.1038/s41746-021-00487-4Google Scholar
- Mokeira Masita-Mwangi, Faith Ronoh-Boreh, Nyambura Kimani, Nancy Mwakaba, Grace Kihumba, Imelda Mueni, and Jussi Impio. 2011. Designing an e-solution for linking informal self-help groups in Africa. CHI ’11 Extended Abstracts on Human Factors in Computing Systems (05 2011). https://doi.org/10.1145/1979742.1979675Google ScholarDigital Library
- Simon C. Mathews, Michael J. McShea, Casey L. Hanley, Alan Ravitz, Alain B. Labrique, and Adam B. Cohen. 2019. Digital health: a path to validation. npj Digital Medicine 2 (05 2019). https://doi.org/10.1038/s41746-019-0111-3Google Scholar
- Anicia Peters. 2023. HCI Fundamentals Adapted to African Contexts. Interactions 30 (02 2023), 35–35. https://doi.org/10.1145/3582195Google ScholarDigital Library
- Anicia N. Peters, Heike Winschiers-Theophilus, Kagonya Awori, Nicola J. Bidwell, Edwin Blake, Arun Kumar, and Shilumbe Chivuno-Kuria. 2014. Collaborating with communities in Africa. Proceedings of the extended abstracts of the 32nd annual ACM conference on Human factors in computing systems - CHI EA ’14 (2014). https://doi.org/10.1145/2559206.2581313Google ScholarDigital Library
- Jorge A. Rodriguez, Cheryl R. Clark, and David W. Bates. 2020. Digital Health Equity as a Necessity in the 21st Century Cures Act Era. JAMA 323 (05 2020). https://doi.org/10.1001/jama.2020.7858Google Scholar
- Max Roser and Hannah Ritchie. 2016. Burden of Disease. Our World in Data (01 2016). https://ourworldindata.org/burden-of-disease#the-global-distribution-of-the-disease-burdenGoogle Scholar
- Radhika Shrivastav, Tina Rawal, Ishu Kataria, Ravi Mehrotra, Shalini Bassi, and Monika Arora. 2022. Accelerating policy response to curb Non-Communicable Diseases: an imperative to mitigate the dual public health crises of Non-Communicable Diseases and COVID-19 in India.The Lancet Regional Health - Southeast Asia (12 2022), 100132. https://doi.org/10.1016/j.lansea.2022.100132Google Scholar
- WHO. 2015. WHO global strategy on people-centred and integrated health services Interim Report. https://apps.who.int/iris/bitstream/handle/10665/155002/WHO_HIS_SDS_2015.6_eng.pdfGoogle Scholar
- WHO. 2022. Deaths from noncommunicable diseases on the rise in Africa. https://www.afro.who.int/news/deaths-noncommunicable-diseases-rise-africa#: :text=Accra%2FBrazzaville%20%E2%80%93%20Noncommunicable%20diseases%20such%20as%20cancer%2C%20cardiovascularGoogle Scholar
Index Terms
- Afrocentric Collaborative Care: Supporting Context Specific Digital Health and Care
Recommendations
Current Issues in Health Care Informatics
Health care informatics has emerged as a diverse and important new field of study. The field can be very broadly defined as the science that addresses how best to use information to improve health care. The field includes the four areas of ...
Comments