Kristine Holbø
ABSTRACT
This paper presents an attempt to understand how safe walking technology can be designed to fit the needs of people with dementia. Taking inspiration from modern dementia care philosophy, and its emphasis on the individual with dementia, we have performed in-depth investigations of three persons' experiences of living with early-stage dementia. From interviews and co-design workshops with them and their family caregivers, we identified several factors that influence people with dementia's attitudes toward safe walking technology, and how they want the technology to assist them. Relevant factors include: The desire for control and self-management, the subjective experiences of symptoms, personal routines and skills, empathy for care-givers, and the local environment in which they live. Based on these findings, we argue there is a need to reconsider "surveillance" as a concept on which to base design of safe walking technology. We also discuss implications for design ethics.
- Astell, A. et al. 2008. Involving older people with dementia and their carers in designing computer based support systems: some methodological considerations. Universal Access in the Information Society. 8, 1, 49--58. Google Scholar
Digital Library
- Astell, A. 2006. Technology and personhood in dementia care. Quality in Ageing and Older Adults. 7, 1, 15--25.Google ScholarCross Ref
- Baldwin, C. 2005. Technology, Dementia and Ethics: Rethinking the Issues. Disability Studies Quarterly. 25, 3.Google ScholarCross Ref
- Brandt, E. and Pope, A. 1997. Models of disability and rehabilitation. Enabling America: Assessing the role of rehabilitation science and engineering (1997), 62--80.Google Scholar
- Chang, W. C. 2008. CATPro: context-aware task prompting system with multiple modalities for individuals with cognitive impairments. Proc. of the 10th international ACM SIGACCESS conference on Computers and accessibility - Assets '08 (Halifax, Canada, 2008), 301. Google ScholarDigital Library
- Dahl, Y. and Holbø, K. 2012. Value biases of sensor-based assistive technology: case study of a GPS tracking system used in dementia care. Proc. of the Designing Interactive Systems Conference (New York, NY, USA, 2012), 572--581. Google ScholarDigital Library
- Epp, T. D. 2003. Person-centred dementia care: A vision to be refined. The Canadian Alzheimer Disease Review. 5, 3, 14--19.Google Scholar
- Essén, A. 2008. The two facets of electronic care surveillance: An exploration of the views of older people who live with monitoring devices. Soc Sci Med. 67, 1, 128--136.Google ScholarCross Ref
- Green, R. C. 2004. Diagnosis and management of Alzheimer's disease and other dementias. Professional Communications.Google Scholar
- Gurley, K. and Norcio, A. F. 2009. A Systematic Review of Technologies Designed to Improve and Assist Cognitive Decline for Both the Current and Future Aging Populations. Internationalization, Design and Global Development. N. Aykin, ed. Springer Berlin Heidelberg. 156--163. Google ScholarDigital Library
- Hawkey, K. et al. 2005. Requirements gathering with alzheimer's patients and caregivers. Proceedings of the 7th int. ACM SIGACCESS conference on Computers and accessibility (Baltimore, MD, USA, 2005), 142--149. Google ScholarDigital Library
- Hughes, J. C. and Louw, S. J. 2002. Electronic tagging of people with dementia who wander. BMJ. 325, 7369, 847--848.Google ScholarCross Ref
- Johnson, J. and Henderson, A. 2002. Conceptual models: begin by designing what to design. Interactions. 9, 1, 25--32. Google ScholarDigital Library
- Kitwood, T. 1997. Dementia reconsidered: The person comes first. Adult Lives: A Life Course Perspective. The Policy Press.Google Scholar
- Landau, R. et al. 2011. Who should make the decision on the use of GPS for people with dementia? Aging Ment Health. 15, 1 (2011), 78--84.Google ScholarCross Ref
- Lauriks, S. et al. 2007. Review of ICT-based services for identified unmet needs in people with dementia. Ageing Res Rev. 6, 3, 223--246.Google ScholarCross Ref
- Lindsay, S. et al. 2012. Empathy, participatory design and people with dementia. Proc. of the 2012 ACM annual conference on Human Factors in Computing Systems (New York, NY, USA, 2012), 521--530. Google ScholarDigital Library
- Meiland, F. et al. 2010. Identifying User Needs and the Participative Design Process. Supporting People with Dementia Using Pervasive Health Technologies., 79--100.Google Scholar
- Müller, C. et al. 2010. Dealing with wandering: a case study on caregivers' attitudes towards privacy and autonomy when reflecting the use of LBS. Proc. of the 16th ACM int. conference on Supporting group work (New York, NY, USA, 2010), 75--84. Google ScholarDigital Library
- Orpwood, R. et al. 2004. User Involvement in Dementia Product Development. Dementia. 3, 3, 263--279.Google ScholarCross Ref
- Prince, M. and Jackson, J. 2009. World Alzheimer Report 2009. Alzheimer's Disease International.Google Scholar
- Robinson, L. et al. 2007. Balancing rights and risks: Conflicting perspectives in the management of wandering in dementia. Health, Risk & Society. 9, 4, 389--406.Google ScholarCross Ref
- Robinson, L. et al. 2009. Keeping In Touch Everyday (KITE) Project: Developing Assistive Technologies with People with Dementia and Their Carers to Promote Independence. Int Psychogeriatr. 21, 03, 494--502.Google ScholarCross Ref
- Span, M. et al. 2013. Involving people with dementia in the development of supportive IT applications: A systematic review. Ageing Res Rev 12, 2, 535--551.Google ScholarCross Ref
- Yuce, Y. K. et al. 2012. An alternative approach to overcome ethical issues of geotracking patients with Alzheimer's disease. 2012 7th Int. Symposium on Health Informatics and Bioinformatics (HIBIT), 11--17.Google Scholar
Index Terms
- Safe walking technology for people with dementia: what do they want?
Recommendations
Empathy, participatory design and people with dementia
CHI '12: Proceedings of the SIGCHI Conference on Human Factors in Computing SystemsWe describe the development, application and evaluation of a design method tailored for working with people with mild to moderate dementia. Our experiences with the approach highlighted areas where designers and participants held radically different ...
Development of Robotic Care for Older Adults with Dementia: Focus Group and Survey Study
Social RoboticsAbstractThe number of people with dementia has been growing worldwide. The cognitive deficits in people with dementia usually lead to lower independence and quality of life. Socially assistive robots (SARs) have demonstrated potential to assist dementia ...
Technological opportunities for supporting people with dementia who are living at home
Recent advances in pervasive computing raise new possibilities for supporting people with dementia who wish to live in their own homes. Interviews were conducted in order to identify the daily activities of people living at home that might most usefully ...
Comments