The Experiences of Families on the Autism Spectrum in Rural Coastal Communities in England ¹

Research regarding life in rural coastal communities in England has been limited, while the experience of families further marginalised by disability has been unresearched. To address this topic, a qualitative study was undertaken to explore the lives of families living with autism in rural coastal England. Twenty-two families from Cornwall and West Norfolk were interviewed in early 2019, including young people on the autism spectrum, their siblings, parents (some of whom were themselves also on the spectrum) and grandparents.

Perceived benefits of living in a rural coastal space were identified. These included the location, the sense of community and the sense of ‘going back in time’ as a positive experience. However, families also spoke of barriers and challenges associated with negative aspects of the location, the experience of stigma and intersectionality in relation to autism and rural coastal spaces. Difficulties concerning education, health and social care support were worsened by poor local infrastructure and the impact of a decade of austerity.

The qualitative methodology involving collaboration with families with autism in developing the research tools, participant recruitment and stakeholder validation is considered.

This research explored the intersecting impacts of rurality, coastality and disability to provide a novel and more nuanced understanding of such families' experiences. As such, it contributes to our understanding of those living ‘on the edge’ – regarding physical location, societal and educational marginalisation.