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The dangerous use of genetic information

David Eugene Johnson (TransformEd Consulting, San Antonio, Texas, USA)
Debora Jane Shaw (Department of Information and Library Science, Indiana University, Bloomington, Indiana, USA)

Journal of Information, Communication and Ethics in Society

ISSN: 1477-996X

Article publication date: 9 October 2023

Issue publication date: 7 November 2023

66

Abstract

Purpose

The purpose of this paper is to inform or alert readers to the extensive use and ready availability of genetic information that poses varying degrees of social and legal danger. The eugenics movement of the 1920s and the general acceptance of genetic essentialism provide context for considering contemporary examples of the problem.

Design/methodology/approach

This paper takes an argumentative approach, supporting proposals with ideas from historical and current research literature.

Findings

The limits of data protection, extensive use of direct-to-consumer genetic testing and use of genetic information in white nationalist circles portend a resurgence of eugenic beliefs from a century ago.

Social implications

Research-based recommendations may help to avoid extreme consequences by encouraging people to make informed decisions about the use of genetic information.

Originality/value

The paper counterposes contemporary understanding of genetic testing and data accessibility with the much older ideology of eugenics, leading to concerns about how white nationalists might further their aims with 21st century technology.

Keywords

Citation

Johnson, D.E. and Shaw, D.J. (2023), "The dangerous use of genetic information", Journal of Information, Communication and Ethics in Society, Vol. 21 No. 4, pp. 533-549. https://doi.org/10.1108/JICES-06-2023-0089

Publisher

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Emerald Publishing Limited

Copyright © 2023, Emerald Publishing Limited

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