ABSTRACT

This chapter is organized around three different versions of “patient experience” that variously operate in healthcare and design research. These different understandings of patient experience are demonstrated through practice-based design research projects to explore how these versions can be understood by design researchers. The chapter draws on examples of academic practice-based design research in the context of Multiple Sclerosis (MS) research and care based at Queen Mary University of London, in East London. Patient experience is a timely, complex and multifaceted object of study. It is not a topic of research restricted to healthcare, medicine nor design, but involves interconnected fields and practices. Design researchers can intervene and create opportunities to explore unique insights and raise new question about what it means to live with a chronic condition.