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Quantifying and Predicting Mental Illness Severity in Online Pro-Eating Disorder Communities

Published:27 February 2016Publication History

ABSTRACT

Social media sites have struggled with the presence of emotional and physical self-injury content. Individuals who share such content are often challenged with severe mental illnesses like eating disorders. We present the first study quantifying levels of mental illness severity (MIS) in social media. We examine a set of users on Instagram who post content on pro-eating disorder tags (26M posts from 100K users). Our novel statistical methodology combines topic modeling and novice/clinician annotations to infer MIS in a user's content. Alarmingly, we find that proportion of users whose content expresses high MIS have been on the rise since 2012 (13%/year increase). Previous MIS in a user's content over seven months can predict future risk with 81% accuracy. Our model can also forecast MIS levels up to eight months in the future with performance better than baseline. We discuss the health outcomes and design implications as well as ethical considerations of this line of research.

References

  1. Sofiane Abbar, Yelena Mejova, and Ingmar Weber. 2015. You Tweet What You Eat: Studying Food Consumption Through Twitter. In Proc. CHI. Google ScholarGoogle ScholarDigital LibraryDigital Library
  2. Nazanin Andalibi, Pinar Ozturk, and Andrea Forte. 2015. Depression-related Imagery on Instagram. In Proc. CSCW'15 Companion. 231–234. Google ScholarGoogle ScholarDigital LibraryDigital Library
  3. Jon Arcelus, Alex J Mitchell, Jackie Wales, and Sren Nielsen. 2011. Mortality rates in patients with anorexia nervosa and other eating disorders: a meta-analysis of 36 studies. Archv. Gen. Psychiatry 68, 7 (2011), 724–731.Google ScholarGoogle ScholarCross RefCross Ref
  4. American Psychiatric Association and others. 2013. Diagnostic and statistical manual of mental disorders, (DSM-5). American Psychiatric Pub.Google ScholarGoogle Scholar
  5. Jin Yeong Bak, Suin Kim, and Alice Oh. 2012. Self-disclosure and relationship strength in twitter conversations. In Proc. ACL. 60–64. Google ScholarGoogle ScholarDigital LibraryDigital Library
  6. Anna M Bardone-Cone and Kamila M Cass. 2006. Investigating the impact of pro-anorexia websites: A pilot study. European Eating Disorders Review 14, 4 (2006), 256–262.Google ScholarGoogle ScholarCross RefCross Ref
  7. David M Blei, Andrew Y Ng, and Michael I Jordan. 2003. Latent dirichlet allocation. Journal of Machine Learning Research (JMLR) 3 (2003), 993–1022. Google ScholarGoogle ScholarDigital LibraryDigital Library
  8. Dina LG Borzekowski, Summer Schenk, Jenny L Wilson, and Rebecka Peebles. 2010. e-Ana and e-Mia: A content analysis of pro–eating disorder web sites. American journal of public health 100, 8 (2010), 1526.Google ScholarGoogle Scholar
  9. Leo Breiman. 2001. Random forests. Machine learning 45, 1 (2001), 5–32. Google ScholarGoogle ScholarDigital LibraryDigital Library
  10. Jay Callahan. 1996. A specific therapeutic approach to suicide risk in borderline clients. Clinical Social Work Journal 24, 4 (1996), 443–459.Google ScholarGoogle ScholarCross RefCross Ref
  11. Richard F Catalano and J David Hawkins. 1996. A Theory of Antisocial Behavior. Delinquency and crime: Current theories (1996), 149.Google ScholarGoogle Scholar
  12. Laurence Claes, Koen Luyckx, Patricia Bijttebier, Brianna Turner, Amarendra Ghandi, Jos Smets, Jan Norre, Leen Van Assche, Els Verheyen, Yvienne Goris, and others. 2015. Non-Suicidal Self-Injury in Patients with Eating Disorder: Associations with Identity Formation Above and Beyond Anxiety and Depression. European Eating Disorders Review 23, 2 (2015), 119–125.Google ScholarGoogle ScholarCross RefCross Ref
  13. Michael Collins, Robert E Schapire, and Yoram Singer. 2002. Logistic regression, AdaBoost and Bregman distances. Machine Learning 48, 1-3 (2002), 253–285. Google ScholarGoogle ScholarDigital LibraryDigital Library
  14. Karen Conterio, W Lader, and JK Bloom. 1998. Bodily harm: The breakthrough treatmentprogramfor self-injurers. (1998).Google ScholarGoogle Scholar
  15. Glen Coppersmith, Mark Dredze, and Craig Harman. 2014. Quantifying mental health signals in twitter. In Proc. ACL CLCP Workshop.Google ScholarGoogle ScholarCross RefCross Ref
  16. Munmun De Choudhury. 2015. Anorexia on Tumblr: A Characterization Study. In Proc. Digital Health. Google ScholarGoogle ScholarDigital LibraryDigital Library
  17. Munmun De Choudhury, Scott Counts, Eric Horvitz, and Aaron Hoff. 2014. Characterizing and Predicting Postpartum Depression from Facebook Data. In Proc. CSCW. Google ScholarGoogle ScholarDigital LibraryDigital Library
  18. Munmun De Choudhury, Michael Gamon, Scott Counts, and Eric Horvitz. 2013. Predicting depression via social media. In Proc. ICWSM.Google ScholarGoogle Scholar
  19. Sharon K Farber, Craig C Jackson, Johanna K Tabin, and Eytan Bachar. 2007. Death and annihilation anxieties in anorexia nervosa, bulimia, and self-mutilation. Psychoanalytic Psych 24, 2 (2007), 289.Google ScholarGoogle ScholarCross RefCross Ref
  20. Angela Favaro and Paolo Santonastaso. 1998. Impulsive and compulsive self-injurious behavior in bulimia nervosa: Prevalence and psychological correlates. The Journal of Nervous and Mental Disease 186, 3 (1998), 157–165.Google ScholarGoogle ScholarCross RefCross Ref
  21. Armando R Favazza, Lori DeRosear, and K Conterio. 1989. Self-Mutilation and Eating Disorders. Suicide & Life-Threatening Behavior 19, 4 (1989), 352–361.Google ScholarGoogle Scholar
  22. Rachel A Fleming-May and Laura E Miller. 2010. I'm scared to look. But I'm dying to know: Information seeking and sharing on Pro-Ana weblogs. Proc. ASIST 47, 1 (2010), 1–9. Google ScholarGoogle ScholarDigital LibraryDigital Library
  23. Yoav Freund, Robert E Schapire, and others. 1996. Experiments with a new boosting algorithm. In ICML, Vol. 96. 148–156.Google ScholarGoogle ScholarDigital LibraryDigital Library
  24. W Gaebel, H Zäske, and AE Baumann. 2006. The relationship between mental illness severity and stigma. Acta Psychiatrica Scandinavica 113, s429 (2006), 41–45.Google ScholarGoogle ScholarCross RefCross Ref
  25. Sarah A St Germain and Jill M Hooley. 2012. Direct and indirect forms of non-suicidal self-injury: Evidence for a distinction. Psychiatry research 197, 1 (2012), 78–84.Google ScholarGoogle Scholar
  26. Erving Goffman and others. 1959. The presentation of self in everyday life. (1959).Google ScholarGoogle Scholar
  27. Kim L Gratz, Sheree Dukes Conrad, and Lizabeth Roemer. 2002. Risk factors for deliberate self-harm among college students. American Journal of Orthopsychiatry 72, 1 (2002), 128.Google ScholarGoogle ScholarCross RefCross Ref
  28. P Hasking, R Momeni, S Swannell, and S Chia. 2008. The nature and extent of non-suicidal self-injury in a non-clinical sample of young adults. Archives of Suicide Research 12, 3 (2008), 208–218.Google ScholarGoogle ScholarCross RefCross Ref
  29. Matthew Hoffman, Francis R Bach, and David M Blei. 2010. Online learning for latent dirichlet allocation. In Proc. NIPS.Google ScholarGoogle Scholar
  30. Christopher M Homan, Ravdeep Johar, Tong Liu, Megan Lytle, Vincent Silenzio, and Cecilia Alm. 2014a. Toward Macro-Insights for Suicide Prevention: Analyzing Fine-Grained Distress at Scale. ACL 2014 (2014), 107.Google ScholarGoogle ScholarCross RefCross Ref
  31. Christopher M Homan, Naiji Lu, Xin Tu, Megan C Lytle, and Vincent Silenzio. 2014b. Social structure and depression in TrevorSpace. In Computer-Supported Cooperative Work and Social Computing (CSCW). Google ScholarGoogle ScholarDigital LibraryDigital Library
  32. James I Hudson, Eva Hiripi, Harrison G Pope, and Ronald C Kessler. 2007. The prevalence and correlates of eating disorders in the National Comorbidity Survey Replication. Biological psychiatry 61, 3 (2007), 348–358.Google ScholarGoogle Scholar
  33. Grace J Johnson and Paul J Ambrose. 2006. Neo-tribes: The power and potential of online communities in health care. Commun. ACM 49, 1 (2006), 107–113. Google ScholarGoogle ScholarDigital LibraryDigital Library
  34. Adrienne S Juarascio, Amber Shoaib, and C Alix Timko. 2010. Pro-eating disorder communities on social networking sites: a content analysis. Eating disorders 18, 5 (2010), 393–407.Google ScholarGoogle Scholar
  35. Kelly L Klump, Cynthia M Bulik, Walter H Kaye, Janet Treasure, and Edward Tyson. 2009. Academy for eating disorders position paper: eating disorders are serious mental illnesses. Int J Eat Disord 42, 2 (2009), 97–103.Google ScholarGoogle ScholarCross RefCross Ref
  36. Katrina Kostro, Jessica B Lerman, and Evelyn Attia. 2014. The current status of suicide and self-injury in eating disorders: a narrative review. Journal of Eating Disorders 2, 1 (2014), 19.Google ScholarGoogle ScholarCross RefCross Ref
  37. Reeva Lederman, Greg Wadley, John Gleeson, Sarah Bendall, and Mario Álvarez-Jiménez. 2014. Moderated online social therapy: Designing and evaluating technology for mental health. ACM Transactions on Computer-Human Interaction (TOCHI) 21, 1 (2014), 5. Google ScholarGoogle ScholarDigital LibraryDigital Library
  38. Stephen P Lewis and Alexis E Arbuthnott. 2012. Searching for thinspiration: the nature of internet searches for pro-eating disorder websites. Cyberpsychology, Behavior, and Social Networking 15, 4 (2012), 200–204.Google ScholarGoogle ScholarCross RefCross Ref
  39. Rebecca MacKinnon. 2008. Flatter world and thicker walls? Blogs, censorship and civic discourse in China. Public Choice 134, 1-2 (2008), 31–46.Google ScholarGoogle Scholar
  40. Diana MacLean, Sonal Gupta, Anna Lembke, Christopher Manning, and Jeffrey Heer. 2015. Forum77: An Analysis of an Online Health Forum Dedicated to Addiction Recovery. In Proc. CSCW. Google ScholarGoogle ScholarDigital LibraryDigital Library
  41. Jeanne B Martin. 2010. The development of ideal body image perceptions in the United States. Nutrition Today 45, 3 (2010), 98–110.Google ScholarGoogle ScholarCross RefCross Ref
  42. Terence C Mills. 1991. Time series techniques for economists. Cambridge University Press.Google ScholarGoogle Scholar
  43. Paul Moran, Carolyn Coffey, Helena Romaniuk, Craig Olsson, Rohan Borschmann, John B Carlin, andGoogle ScholarGoogle Scholar
  44. ge C Patton. 2012. The natural history of self-harm from adolescence to young adulthood: a population-based cohort study. The Lancet 379, 9812 (2012), 236–243.Google ScholarGoogle Scholar
  45. Elizabeth L Murnane and Scott Counts. 2014. Unraveling abstinence and relapse: smoking cessation reflected in social media. In Proc. CHI. Google ScholarGoogle ScholarDigital LibraryDigital Library
  46. Matthew K Nock and Mitchell J Prinstein. 2004. A functional approach to the assessment of self-mutilative behavior. Journal of consulting and clinical psychology 72, 5 (2004), 885.Google ScholarGoogle ScholarCross RefCross Ref
  47. Mark L Norris, Katherine M Boydell, Leora Pinhas, and Debra K Katzman. 2006. Ana and the Internet: A review of pro-anorexia websites. International Journal of Eating Disorders 39, 6 (2006), 443–447.Google ScholarGoogle ScholarCross RefCross Ref
  48. Minsu Park, David W McDonald, and Meeyoung Cha. 2013. Perception Differences between the Depressed and Non-depressed Users in Twitter. In Proc. ICWSM.Google ScholarGoogle Scholar
  49. Michael J Paul and Mark Dredze. 2011. You Are What You Tweet: Analyzing Twitter for Public Health. In Proc. ICWSM.Google ScholarGoogle Scholar
  50. Rebecka Peebles, Jenny L Wilson, and James D Lock. 2011. Self-injury in adolescents with eating disorders:Google ScholarGoogle Scholar
  51. elates and provider bias. Journal of Adolescent Health 48, 3 (2011), 310–313.Google ScholarGoogle Scholar
  52. Mirella Ruggeri, Morven Leese, Graham Thornicroft, Giulia Bisoffi, and Michele Tansella. 2000. Definition and prevalence of severe and persistent mental illness. The British Journal of Psychiatry 177, 2 (2000), 149–155.Google ScholarGoogle ScholarCross RefCross Ref
  53. Hansen Andrew Schwartz, Johannes C Eichstaedt, Margaret L Kern, and Lukasz et al. Dziurzynski. 2013. Characterizing Geographic Variation in Well-Being Using Tweets. In ICWSM.Google ScholarGoogle Scholar
  54. Yukari Seko. 2013. Picturesque Wounds: A Multimodal Analysis of Self-Injury Photographs on Flickr. In Forum Qualitative Sozialforschung/Forum: Qualitative Social Research, Vol. 14.Google ScholarGoogle Scholar
  55. Leslie Regan Shade. 2003. Weborexics: The Ethical Issues Surrounding Pro-Ana Websites. SIGCAS Comput. Soc. 33, 4 (Dec. 2003). Google ScholarGoogle ScholarDigital LibraryDigital Library
  56. Frédérique RE Smink, Daphne van Hoeken, and Hans W Hoek. 2012. Epidemiology of eating disorders: incidence, prevalence and mortality rates. Current psychiatry reports 14, 4 (2012), 406–414.Google ScholarGoogle Scholar
  57. John R Suler and Wende L Phillips. 1998. The bad boys of cyberspace: Deviant behavior in a multimedia chat community. CyberPsychology & Behavior 1, 3 (1998), 275–294.Google ScholarGoogle ScholarCross RefCross Ref
  58. Karen L Suyemoto. 1998. The functions of self-mutilation. Clinical psych rev 18, 5 (1998), 531–554.Google ScholarGoogle Scholar
  59. Brianna J Turner, Angelina Yiu, Brianne K Layden, Laurence Claes, Shannon Zaitsoff, and Alexander L. Chapman. 2015. Temporal associations between disordered eating and nonsuicidal self-injury: examining symptom overlap over 1 year. Behavior Therapy 46, 1 (2015), 125–138.Google ScholarGoogle ScholarCross RefCross Ref
  60. Robert F Valois, Keith J Zullig, and Amy A Hunter. 2013. Association between adolescent suicide ideation, suicide attempts and emotional self-efficacy. Journal of Child and Family Studies 24, 2 (2013), 237–248.Google ScholarGoogle ScholarCross RefCross Ref
  61. Markus Wolf, Florian Theis, and Hans Kordy. 2013. Language Use in Eating Disorder Blogs Psychological Implications of Social Online Activity. Journal of Language and Social Psychology 32, 2 (2013), 212–226.Google ScholarGoogle ScholarCross RefCross Ref
  62. Elad Yom-Tov, Luis Fernandez-Luque, Ingmar Weber, and P Steven Crain. 2012. Pro-Anorexia and Pro-Recovery Photo Sharing: A Tale of Two Warring Tribes. J Med Internet Res (2012).Google ScholarGoogle Scholar

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  • Published in

    cover image ACM Conferences
    CSCW '16: Proceedings of the 19th ACM Conference on Computer-Supported Cooperative Work & Social Computing
    February 2016
    1866 pages
    ISBN:9781450335928
    DOI:10.1145/2818048

    Copyright © 2016 ACM

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    Publication History

    • Published: 27 February 2016

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