Community-Based Participatory Intervention Research with American Indian Communities: What is the State of the Science?

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ABSTRACT

We conducted a 2-phase systematic review of the literature to examine the nature and outcomes of health research using a community-based participatory research (CBPR) approach with AI communities to assess both the value and the impact of CBPR, identify gaps in knowledge, and guide recommendations for AI research agendas. Using PRISMA guidelines, we searched the peer-reviewed literature published from 1995 to 2016 and identified and reviewed 42 unique intervention studies. We identified and catalogued key study characteristics, and using the Reliability-Tested Guidelines for Assessing Participatory Research Projects, we quantified adherence to participatory research principles across its four domains. Finally, we examined any association between community participation score and health outcomes. The majority of studies (76.7%) used an observational study design with diabetes, cancer, substance abuse, and tobacco being the most common topics. Half of the articles reported an increase in knowledge as the primary outcome. Our findings suggest that a CBPR orientation yields improved community outcomes. However, we could not conclude that community participation was directly associated with an improvement in health outcomes.

Keywords:

community-based participatory research
CBPR
systematic review
American Indian
Native American
intervention science

Abbreviations used:

AI
American Indian
CBPR
community-based participatory research
IHS
Indian Health Service
IRB
Institutional Review Board
RCT
randomized controlled trial.

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This paper summarizes proceedings from the first author’s presentation at the First Annual Conference on Native American Nutrition in 2016. These analyses were conducted as part of the first author’s doctoral dissertation.

None of the authors report a conflict of interest related to research presented in this article.

Published in a supplement to Current Developments in Nutrition. This article appears as part of the supplement “Proceedings of the First and Second Annual Conferences on Native American Nutrition,” sponsored by the Shakopee Mdewakanton Sioux Community’s Seeds of Native Health campaign through a gift to the University of Minnesota. The guest editors of the supplement, Treena Delormier and Mindy Kurzer, have no conflicts of interest. The opinions expressed in this publication are those of the authors and are not attributable to the sponsors or the publisher, Editor, or Editorial Board of Current Developments in Nutrition.

Online Supporting Material is available from the “Supplementary data” link in the online posting of the article and from the same link in the online table of contents at https://academic.oup.com/cdn/.