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Improving quality of life for older people in the community: findings from a local Partnerships for Older People Project innovation and evaluation

Published online by Cambridge University Press:  11 March 2011

Brenda Roe*
Affiliation:
Professor of Health Research, Evidence-based Practice Research Centre, Edge Hill University, UK Honorary Fellow, Personal Social Services Research Unit, University of Manchester, UK
Roger Beech
Affiliation:
Reader in Health Services Research, Primary Care Sciences, Keele University, UK
Michelle Harris
Affiliation:
Development Manager, NHS Stoke on Trent, Wigan Council, UK
Bernard Beech
Affiliation:
Senior Lecturer, School of Nursing and Midwifery, Keele University, UK
Wanda Russell
Affiliation:
Formerly Research Fellow, Centre for Health Planning and Management, Keele University, UK
Deborah Gent
Affiliation:
Project Manager, Wigan Council, UK
Kathryn Lord
Affiliation:
Research Worker, Formerly Centre for Research in Primary and Community Care, University of Hertfordshire, UK now Old Age Psychiatry, Institute of Psychiatry, King's College, London, UK
Angela Dickinson
Affiliation:
Senior Research Fellow, Centre for Research in Primary and Community Care, University of Hertfordshire, UK
*
Correspondence to: Professor Brenda Roe, Evidence-based Practice Research Centre, Faculty of Health, Edge Hill University, Ormskirk, Lancs L39 4QP, UK. Email: bhroe@aol.co.uk or brenda.roe@edehill.c.uk
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Abstract

Background

Partnerships for Older People Projects (POPP) was a national initiative in England aimed at improving health, well-being and quality of life (QoL) for older people by developing local services. This development paper reports the key findings of a local evaluation in relation to quality of life, well-being and health-related QoL to provide practical understanding at the local level about what this means in relation to the schemes delivered.

Objectives

To identify the impact of POPP schemes received by older people in Wigan on their QoL and well-being; and establish their feedback on services using local indicators.

Methods

Convenience samples of older people receiving services from three selected ‘community facing low level’ schemes were recruited over a two-month period. They completed a semi-structured questionnaire at baseline (T1) and at follow-up 6 weeks later (T2). Information was collected on health status and health-related QoL using the EQ-5D, biographical information, overall QoL and well-being as part of the national evaluation and a local indicator, feedback on services.

Results

Response rates were 70% (T1 45/64, mean age 72 years) and 43% at T2 (25/58, mean age 55 years). Following receipt of these schemes improvements were found for self care, anxiety and depression, health status and QoL although these differences were not statistically significant due to the small sample size and loss to follow-up. Feedback on local service use related to schemes ‘being fit for purpose’ and ‘aspects of service delivery’.

Conclusion

This local evaluation illustrates a pragmatic approach to service development and delivery of preventative services, with potential to benefit health and well-being of older people and support their continued living independently in the community. It provides detail and better understanding of what this means locally to people in context of national findings.

Type
Development
Copyright
Copyright © Cambridge University Press 2011

Introduction

Partnerships for Older People Projects (POPP) was an innovation funded by the Department of Health in England aimed at developing services for older people to promote their health, well-being and independent living in the community. The purpose was to make sustainable shifts in resources and culture away from institutional or hospital-based high-intensity crisis care towards earlier, better-targeted preventive interventions by offering a range of local person-centred schemes and integrated services (DH, 2006). The POPP projects and initiatives underwent local evaluations to inform local service developments, their sustainability and commissioning as well as a national evaluation (Windle et al., Reference Windle, Wagland, Lord, Dickinson, Knapp, Forder, Henderson, Wistow, Beech, Roe and Bowling2007; Reference Windle, Wagland, Lord, Dickinson, Knapp, Forder, Henderson, Wistow, Beech, Roe and Bowling2008; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b). The purpose of this paper is to report the local Wigan POPP evaluation, findings for improvements in health status, quality of life (QoL) and well-being and feedback on service users’ experience. It discusses developments and implications locally, and in context with the national evaluation (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b).

Background

POPP comprised a £60 million programme led by the Department of Health (DH), England and involved 29 local authority-led partnerships including health and third sector organisations (voluntary, community and independent organisations). There were 29 DH designated pilot sites from May 2006 to March 2009 (19 from May 2006 and 10 from May 2007). Local evaluations of the projects were undertaken and the DH commissioned a national evaluation of the whole programme. The national evaluation identified 146 core local projects or schemes comprising individual services with the aim of improving health and well-being and reducing social exclusion and isolation with the involvement of older people locally in the initiatives. Two thirds were ‘community facing’ directed at promoting healthy living or reducing social isolation or exclusion, while the remainder were ‘hospital facing’ developed to avoid hospital admission or facilitate early discharge from acute or institutional care. Older people volunteers made important contributions as part of POPP delivery and evaluation (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b).

Health-related QoL

Measuring and improving QoL and health-related QoL (HRQoL) in older people are important research and policy agendas due in part to increases in ageing populations, their requirements for care and implications for resources (Walker, Reference Walker2004; Bowling, Reference Bowling2005a: 1–43). QoL as a construct and measure is complex due to the many aspects included, resulting in a taxonomy of models (Bowling, Reference Bowling2005a: 9) and resultant instruments available (Bowling, Reference Bowling2005b). Improving health, QoL, well-being and services for older people is a feature of international and government policies (Stein and Moritz, Reference Stein and Moritz1999; Philp, Reference Philp2004; Reference Philp2006; Welsh Assembly Government, 2008; WHO, 2010). There is increased emphasis on targeting integrated health and social care services in the community to maintain older people living independently rather than moving into institutional care and avoiding unplanned hospital admissions (DH, 2008). Involving older people in the development of services and research is also a recent feature of policy (Ross et al., Reference Ross, Donovan, Brearley, Victor, Cottee, Crowther and Clark2005; INVOLVE, 2009a; 2009b).

Wigan POPP

This paper reports on a local evaluation of POPP, HRQoL findings and feedback on service use experiences. It sets outcomes in context with specific POPP services delivered and provides additional evidence to support and inform service development for older people in the community. POPP schemes and the POPP forum were developed by Wigan Council in partnership with local organisations 12 months prior to the successful Wigan POPP (http://www.wiganpopp.org) and formed part of the first wave of initiatives in May 2006 (Beech et al., Reference Beech, Roe, Russell, Russell, Beech and Gent2008; Reference Beech, Roe, Russell, Beech and Gent2010). Fifteen POPP schemes were developed in Wigan and were accessed either by provider or self-referral to a central call centre Starting Point (run by Age Concern Wigan; Box 1). Starting Point acts as a co-ordinating centre, broker and central point of contact for referral and information and schemes could also be contacted directly by users and professionals. The local evaluation also reported on the nature of POPP schemes, client access, resources and outcomes as well as impacts on partnership working between organisations and the involvement of older people and service users in the delivery and evaluation of POPP (Beech et al., Reference Beech, Roe, Russell, Russell, Beech and Gent2008; Reference Beech, Roe, Russell, Beech and Gent2010).

Box 1 Wigan POPP schemes

Methods

Objectives

To identify the impact of POPP schemes received by older people in Wigan on their health status, QoL and well-being.

To establish older people's feedback on Wigan POPP services and their experiences using local indicators.

Design

Evaluation research using mixed methods was adopted to generate information on the impact of the local POPP schemes on service users (Beech et al., Reference Beech, Roe, Russell, Beech and Gent2010: 271). This drew on guidance related to the phases for the development and evaluation of complex interventions; developing the intervention, piloting and assessment of feasibility, formal evaluation and reporting of the results (Medical Research Council, 2008).

Samples and data collection

Iterative approaches were adopted with schemes selected by agreement between the POPP Project Manager and scheme leads as part of the Wigan POPP Forum. The schemes were ‘community facing’ aimed at providing ‘low level’ intensity care, help or community support to prevent or delay older people requiring access to higher intensity and more costly forms of care (Beech et al., Reference Beech, Roe, Russell, Beech and Gent2010: 270). Three schemes (gardening, assistive technology and counselling) were selected as feasible for this aspect of the evaluation reported in this paper and were judged as having the most potential impact on health status, QoL and well-being. Data collection, including the local indicator questions were presented as part of the research partnership for discussion with the Wigan POPP Forum and older people volunteers at Age Concern Wigan. Following a further presentation and discussion at an action-learning event, there was agreement to use the national HRQoL questionnaire, excluding questions on benefits and income, and local indicators – feedback on service use.

Convenience samples of clients from three schemes were targeted and included, gardening (253 clients referred up to 31 March 2007, 43 declined uptake and 210 received the scheme), counselling (30 clients referred up to 31 March 2007) and assistive technology (commenced from April 2007). Measures of HRQoL and well-being were obtained via quantitative data as part of the national evaluation (NE) of POPP and qualitative data for local indicators provided feedback on these services. Self-completion questionnaires were issued to new clients over a two-month period (during March–April 2007), as this was judged feasible by scheme leads at two time points, on initial receipt of the POPP scheme (T1) and again six weeks later (T2) once they had completed use of the scheme to capture change over time. Questionnaires and information on the POPP evaluation and instructions for completion were issued to clients along with reply paid envelopes for their return by either the scheme leads or co-workers.

Data collected

Data were collected on health status, HRQoL, overall QoL and well-being using the questionnaire developed by the national team (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b). Data included HRQoL (EQ-5D; Dolan et al., Reference Dolan, Gudex, Kind and William1995), overall QoL and well-being using a single self-rating question (Bowling, Reference Bowling2005a) and biographical information. In addition, local indicators capturing qualitative data on clients’ service use and feedback on Wigan POPP schemes comprised three open-ended questions with free text responses developed as part of the earlier Innovations Forum Initiative evaluation (Beech et al., Reference Beech, Roe, Russell, Russell, Beech and Gent2008; Box 2). The same data were collected at T1 and again at T2.

Box 2 Local indicators – feedback on service use questions

Data analysis

Quantitative data were analysed to provide frequencies, simple relationships and before and after measures for health status, QoL, utility scores for health status and biographical information. Data were compared at T1 and T2 for all respondents and then for matched pairs (those who responded at T1 and again at T2) using simple inferential statistics; means, ranges, t-tests and χ 2's in SPSS. Qualitative data were read verbatim independently by two members of the team and content analysis performed to identify potential themes and sub-themes for each of the responses (Miles and Huberman, Reference Miles and Huberman1994). Responses to the local indicator questions were compared across the schemes at times T1 and T2 to compare and contrast responses.

Rigour and trustworthiness

The EQ-5D is a standardised generic multi-dimensional non-specific disease health profile that can provide a single index value for HRQoL and health status and is used for economic evaluation (see EuroQol Group http://www.euroqol.org; Dolan et al., Reference Dolan, Gudex, Kind and William1995; Kind et al., Reference Kind, Hardman and Macran1999; Bowling, Reference Bowling2005a: 75; Sculpher, Reference Sculpher2006). There is an emerging evidence of its use, suitability and sensitivity along with test and r-test scores compared with other QoL measures (Bowling, Reference Bowling2005b: 77). The questionnaire used as part of the NE team was piloted initially with users from the Public Involvement in Research Group, Centre for Research in Primary and Community Care, University of Hertfordshire and also received wider comment, discussion and agreement with subsequent revision (Windle, Reference Windle2006). The local indicator questions – feedback on service use, previously developed and used (Beech et al., Reference Beech, Roe, Russell, Russell, Beech and Gent2008) are open ended, practical and easy to complete. The themes and sub-themes emerging from the qualitative data were identified independently by two members of the team, and any differences were discussed and agreement reached by consensus.

Ethical approval

Ethics approval for the local evaluation of Wigan POPP use of the QoL questionnaire was obtained from the Multi-Research Ethics Committee by the NE team (no. 06/Q41/60) and for the QoL and local indicators – satisfaction with services questionnaire from Wigan Local Research Ethics Committee (LREC RMG/06/076) and Wigan Council Governance Committee.

Results

Response rates and demographics

The response rates were 70% for T1 (45/64) and 43% for the T2 (25/58) providing 70 questionnaires for analysis (Table 1), with only 21 from gardening and counselling being able to measure before and after for matched pairs at the individual level. A majority completed the questionnaires themselves (Table 1). The majority of respondents were women (T1 28, 62% versus 17, 38%; T2 18, 72% versus 6, 24%) and from one ethnic group (White). The mean ages were 72 years at T1 (range 50–95) and 55 years at T2 (range 50–86). A wide variation in mean age for males responding at T1 and T2 due to higher proportions of males 80 years and above responding to T1 accounted for this difference (mean age 76 years T1 and 42 years T2). Mean ages for women were similar at T1 and T2 (70 versus 68 years). The majority of respondents lived in domestic housing (T1, 93%, 42) with nearly half living alone or with another adult (T1 47%, 21 for each category). Nearly half of respondents were widowed, a third were married and the majority were retired (Table 2).

Table 1 Response rates

a9.5% of total sample in receipt of gardening scheme.

b57% of total sample in receipt of counselling scheme.

Table 2 Demographics

Health status

Data for initial and follow-up health status are reported in Table 3. A majority reported some problems in walking about (T1 69%, 31), performing usual activities (T1 56%, 25) with 42% (T1 19) having some problems washing and dressing themselves. Proportionally more people reported problems or were unable to perform their usual activities at T1 than at T2.This difference was upheld for self-care when matched pairs were examined (T1 versus T2 no problems 68%, 13 versus 74%, 14 with self-care; some or unable to self-care 32%, 6 versus 24%, 5), indicating a positive relationship between participation in the POPP scheme and an improved ability to self-care.

Table 3 Health status

Sixty-seven percent of people receiving services from POPP reported moderate or extreme anxiety or depression at T1 compared with only 60% of people at T2 (Table 3). Around 57% (17/30) experiencing anxiety or depression at T1 were in receipt of the counselling scheme. The matched pair data also found a positive but non-significant relationship between receipt of a POPP scheme and reduced feelings of anxiety and depression with proportionally more at T2 reporting they were not anxious or depressed (T1 24% versus T2 29%) and fewer reporting moderate feelings (T1 57% versus T2 52%) or extreme feelings of anxiety or depression (T1 19% versus T2 14%).

Higher proportions of people aged 70 years and over compared to those aged 50–69 years reported problems with mobility (51%, 23 versus 20%, 9), self-care (36%, 16 versus 8%, 4), performing usual activities (49%, 22 versus 22%, 10), experiencing pain (56%, 25 versus 3%, 15) and anxiety or depression (40%, 18 versus 27%, 12).

Proportionally fewer respondents described their health today as being worse than in the previous 12 months at T2 than at T1 (Table 4). When only matched pairs data were examined, proportionally more people reported their health status as being better at T2 and fewer the same or worse (better T1 19% versus T2 30%; same T1 48% versus T2 45%; worse T1 33% versus T2 25%). Proportionally more people aged 70 years and above compared to those aged between 50 and 59 years described their health as being worse (T1 24%, 11 versus 13%, 6).

Table 4 Own health – self-rating

aCompared with the previous 12 months.

b0 = worst possible health state and 100 is the best imaginable.

Self-reported health status for those people in receipt of the three POPP schemes using the ‘thermometer’ scale where a score of 0 is the worst possible health state and 100 the best imaginable is reported in Table 4. When the mid point of 50 is used as a cut-off, proportionally more people rated their health today between 51 and 85 at T2 compared to T1 (T2 76%, 16 versus T1 63%, 26) with a proportional positive difference in health status of 13%. This proportional difference in subjective self-reported ‘own health’ status remained when only matched pairs data were examined and nearly doubled to 24% (0–50 T1 57% versus T2 29%; 51–85 T1 33% versus T2 57%; missing data n = 4), although these differences were not significant.

QoL and well-being

The scores for the EQ-5D related to mobility, self-care, usual activities, pain or discomfort and anxiety or depression, are collated to provide a total utility score for overall QoL ranging between <0 and 1. Scores of 0.3 or below represent extreme problems and poor QoL with 1 being the best and 0 and minus scores the worst possible. Total QoL scores were available for 43 respondents for T1 and 22 for T2 (Table 5). Proportionally fewer people scored 0 or less than 0 at follow-up than on initial receipt of POPP and this difference was also found with the matched pairs. The proportion of scores ranging from 0.1 to 1.0 increased at follow-up for the total sample (T2 91% 20/22 versus T1 86% 37/43; Table 5) but remained unchanged for the matched pairs (T2 versus T1 86%, 18 with 57%, 12 scoring between 0.501 and 1.00).

Table 5 QoL and well-being

QoL = quality of life.

A total utility score for overall QoL ranging between <0 to 1.0. Scores of 0.3 or below represent extreme problems and poor QoL with 1.0 being the best and 0 and minus scores the worst possible.

Overall self-reported QoL and well-being indicated a positive change in proportions at follow-up (Table 5) that was also found with the matched pairs data (QoL: alright, good or very good T1 66%, 14 versus T2 75%, 16). A higher proportion of people aged 70 years and above rated their QoL as bad, very bad or so bad it could not be worse compared to those aged 50–59 years on initial assessment (T1 23%, 10 versus T2 9%, 4). However, none of these differences were significant.

Local indicators – feedback on service use

Two main themes were identified ‘schemes being fit for purpose’, which related to meeting the intended needs of clients, were positive and had a beneficial outcome. And, ‘aspects of service delivery’ that related to clients’ views on staff, friendliness, communication and timeliness. Across all three schemes positive comments were reported (Box 3). On identifying how schemes have helped them, the majority of comments were positive and related to the counselling and gardening schemes, which reflects that more people received those schemes than assistive technology. Thematically, this related to what the scheme provided and how it benefited them in terms of activities of daily living, independence, QoL and well-being and peace of mind for them and their families. In addition, data in the theme related to ‘aspects of service delivery’ described how the scheme or services were delivered in relation to staff manner, communication, ease of access and referral, timely responsiveness and access to other schemes (Box 3). Individual deviant cases were not found although it was notable that clients had less experience of schemes at T1 versus T2 due to being in initial receipt of the schemes, and reflected in their comments ‘Not sure yet, equipment not fitted’ and ‘We hope so’.

Box 3 Identified themes and quotes for feedback on POPP schemes and suggestions for improvement

Counselling was targeted at older people who had experienced bereavement, depression, loneliness and isolation and their typical quotes provide examples of positive benefits from receiving the POPP scheme. Comments related to gardening highlighted that gardening had been made easier and manageable, relieved anxiety and it was reassuring knowing there were people who could help along with providing access by referral to other POPP schemes and services.

Suggestions were given as to how POPP schemes could be improved or developed and related to service delivery and expansion of schemes (Box 3). Of the 253 referrals to the gardening service, up until the end of March 2007, 43 people refused the scheme because of the financial implications. It is unknown whether this was because people felt they could not afford it or that they felt it was not value for money or at the right price. Of the three schemes, it was only the gardening scheme that had a co-payment element to it. It would appear that finance is an important issue for future analysis and consideration. There was a general expression that the POPP schemes continue and that schemes involving younger people make a difference to older people's lives.

Discussion

Limitations and strengths of the evaluation of QoL and local indicators

This local evaluation of POPP and QoL adopted a pragmatic approach and was restricted to three ‘community facing low level’ preventive schemes that related to ‘well-being – practical or emotional/social isolation’ (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 149; Beech et al., Reference Beech, Roe, Russell, Beech and Gent2010: 270). Consequently, only small numbers were included in the total sample and matched pairs analyses. Loss to follow-up is not uncommon with repeated measures surveys. These schemes were judged as having the most potential impact on QoL and health status by the POPP forum and leads. The duration of recruitment for data collection was also deemed most feasible. Despite not achieving statistical significance and largely self-reported results, the findings do provide indicators of benefit to individuals and have contributed to the development of services for older people locally. The project also demonstrates the importance of having local stakeholder involvement in evaluation for the sustainability and future development projects. The findings also informed the local evaluation related to service provision, processes of care, outcomes and costs (Beech et al., Reference Beech, Roe, Russell, Russell, Beech and Gent2008; Reference Beech, Roe, Russell, Beech and Gent2010) as well as the national evaluation of POPP on HRQoL, QoL and well-being (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b).

The national POPP examined the HRQoL and QoL data according to types of schemes (community facing or hospital facing) compared to a proxy control sample drawn from the British Household Panel Survey but urge caution, as it is not possible to attribute statistical significance with type of scheme due to wide groupings and variation. The local context reported here is able to provide useful indications of how individual schemes can contribute to older people's QoL and well-being, although the sample was small. The quantitative results did not achieve statistical significance but did demonstrate a positive direction and tendency. The qualitative findings have provided context of the benefits of the schemes to individuals and their families and relate to fitness of purpose and service delivery. Larger samples with long-term follow-up are warranted that control for age and gender differences.

Samples of service users

In Wigan between May 2007 and January 2008, 7577 referrals were made to POPP schemes, with 5429 (85.9%) receiving services (Beech et al., Reference Beech, Roe, Russell, Russell, Beech and Gent2008; Reference Beech, Roe, Russell, Beech and Gent2010). Over a quarter of a million people (264 000) received POPP services over the 3 years of the national evaluation (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b). The mean age of service users in the national sample was 75 years (range 40–101 years) with two-thirds being women (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b). In our sample reported here, the mean age was 72 years (range 50–95 years) with a similar majority being women (62%). In the national sample, almost two-thirds (63%) were aged 75 years and over, with 30% aged 85 years and over. In our sample, 62% were aged 70 years and above, with fewer being aged 80 and over compared to the national POPP indicating slightly higher proportions of people in the national sample were aged 75 years and above. Our sample was similar to the national POPP sample in terms of gender and mean age. One-third of our sample were married, similar to the national POPP. More of our sample lived in their own home or domestic housing than in the national sample (93%, 42 versus 81%), with 47% of our sample either living alone or with another adult or relative. The percentage living alone in our sample is lower than that reported for all those in Wigan POPP (63%, 3404). Nearly two-thirds of the national sample lived in designated deprived areas, which could account for the difference in accommodation. Nearly half of our sample were widowed or living alone, which are both indicators of potential need (Victor et al., Reference Victor, Scambler, Shah, Cook, Harris, Rink and Wilde2002; Reference Victor, Scambler, Bowling and Bond2005; Arber and Ginn, Reference Arber and Ginn2005; Phillips et al., Reference Phillips, Ajrouch and Hillcoat-Nalletamby2010: 150–151).

Health status

A majority reported some problem in walking, performing usual activities and reporting moderate or extreme pain and are comparable with the national POPP sample (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 142). Gender, living alone and lack of social relations are associated with disability and are risk factors (Lund et al., Reference Lund, Nilson and Avlund2010). Maintaining social relations is important for independence and participation in activities (Guralnik and Ferucci, Reference Guralnik and Ferucci2003). Being married or cohabiting is protective against disability for men and women (Mor et al., Reference Mor, Murphy, Masterson-Allen, Willey, Razmpour, Jackson, Greer and Katz1989; Waite and Hughes, Reference Waite and Hughes1999), men only (Nilsson et al., Reference Nilsson, Lund and Avlund2008; Lund et al., Reference Lund, Nilson and Avlund2010) and women only (Avlund et al., Reference Avlund, Due, Holstein, Sonn and Laukkanen2002).

In our sample, two-thirds reported moderate or extreme anxiety or depression that was reduced at follow-up and was also the case for the matched pairs. This was higher than for the national POPP sample (40%, Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 142). Social relations are associated with health outcomes (Mendes de Leon et al., Reference Mendes de Leon, Glass and Berkman2003; Avlund et al., Reference Avlund, Lund, Holstein and Due2004) and satisfaction with them suggested to influence mental well-being and depression (Clay et al., Reference Clay, Roth, Wadley and Haley2008). Although our sample was too small to achieve statistical significance, it is of note that more than half of those having anxiety or depression were in receipt of the counselling POPP scheme and a proportional reduction in these symptoms was reported. This would indicate a ‘fitness of purpose’ for the local POPP services received. In the national POPP, anxiety and depression were higher in the younger age range than older (53% age 50–64 years versus 44% aged 85 years and above; Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 143). This is contrary to studies that have found depression is more prevalent in older people, particularly those living alone (Wilson et al., Reference Wilson, Mottram and Sixsmith2007; Reference Wilson, Mottram and Vassilas2008; Chew Graham et al., Reference Chew Graham, Lovell, Roberts, Baldwin, Morley, Burns, Richards and Burroughs2007).

When asked to rate their own health today, proportionally fewer people described it as being worse at follow-up. This positive change in proportions for health status was also found for the matched pairs data and indicated proportionally more reporting feeling better having received POPP and fewer reporting their health as worse. This is a positive finding and while not statistically significant, it indicates a potential improvement in health status for people in receipt of POPP. Similarly, in the national sample, people perceived their health better following POPP (with 10% moving from much the same to better) although overall there was no significant change (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 146–147).

Using the thermometer scale for self-reported ‘own health’ status, proportionally more people rated their health better at follow-up compared to the initial assessment signifying improvement in health status from their perspective. When only the matched pairs data were examined this positive direction in ‘own health’ status increased in proportions by 24%. This is also a positive finding in the direction of self-reported health status for people in receipt of POPP. In comparison, the national sample ‘own health’ status was maintained and they argue that due to the nature of the population general health may remain stable but people could become frail over time (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 147). In relation to low-level POPP services (Wellbeing Practical, such as including fitting grab rails, gardening) there was a 6% improvement in health status, 16% greater than the ‘proxy control’ (P = 0.07, Friedman). They suggest such schemes may reduce anxiety but not impact on physical health. However, for projects classed as Wellbeing-emotional/social isolation (62 projects), they found a 3% deterioration in overall health status compared to the ‘proxy control’. Although, fewer people reported feeling anxious or depressed at follow-up (T1 63% versus T2 58%; Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 156–157). They suggest this indicates that interventions need to be targeted and that more specific health measures, rather than the EQ-5D should be used to evaluate outcomes on emotional well-being. However, Windle et al. (Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 159) report that the EQ-5D was appropriate for measuring change in physical health as indicated by reported benefit for people undergoing exercise classes.

Also of note in our study, is that more people aged 70 years and above reported problems with their mobility, self-care, performing usual activities, experience of pain/discomfort, anxiety or depression than people aged between 50 and 59 years. More people over 70 years rated their health as worse compared to those aged between 50 and 69 years, and again represents the fact that health status can diminish with increasing age and indicates an increase in potential care needs (Knodel and Ofstedal, Reference Knodel and Ofstedal2003; Arber and Ginn, Reference Arber and Ginn2005; Bowling and Dieppe, Reference Bowling and Dieppe2005). Windle et al. (Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 142) also found increased problems with age, although feelings of anxiety and depression were the exception.

QoL, well-being and POPP service use

Proportionally fewer people reported extreme problems and poor HRQoL at follow-up indicating a potential positive change for those in receipt of POPP. The proportion of scores ranging from 0.1 to 1.0 increased at follow-up although there was no difference for the matched pairs. Fewer people rated their overall QoL as being ‘bad, very bad or so bad it could not be worse’ for the total sample at follow-up compared to when they were in initial receipt of the POPP schemes. This self-reported improvement for QoL remained for the matched pairs with a 10% increase in proportions for categories ‘alright to very good’ than ‘bad/worse’ and is a potentially positive finding. More people aged 70 years and above recorded a poorer overall QoL score compared to people aged 50–69 years, and although the difference was not significant, it is in keeping with older populations having or rating impaired health or overall QoL, although reasons for this can be relative and multi-faceted (Bowling, Reference Bowling2005a).

Windle et al. (Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b) reported improvement in HRQoL for people receiving POPP services (‘hospital facing’ tertiary services (25%); ‘community facing’ low-level preventative projects 2%) compared to a ‘proxy control sample’. They urge caution due to the large variation in the types of POPP services compared, and the fact that service users were old and frail. As such, they were more likely to experience deteriorating well-being and reported that between a fifth and one quarter of the national sample had lower initial levels of overall QoL compared to the normal ‘proxy control’. Factors such as poverty, illness or bereavement may be more critical and have an impact on HRQoL than POPP services. Their HRQoL scores were substantially lower for those receiving POPP compared to the ‘normal population’ (MVH National Survey Data; Kind et al., Reference Kind, Hardman and Macran1999). In the national POPP sample, there were fewer people who reported perfect health compared to age matched controls. This was 54% for POPP and 73% for the ‘normal population’ for people aged 75 years and above (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 142). They also suggest that a single question to self-rated QoL is in itself multi-factorial (life is so good it could not be better or life is so bad it could not be worse) and open to individual interpretation, circumstances, preferences and beliefs. They argue low-level POPP services may not impact on such a wide measure in a short time frame. Windle et al. (Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a; Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b) found deterioration in QoL varied according to areas of deprivation and age. They also found that the higher the age range, the less overall QoL was perceived to have changed. A greater percentage of people aged 85 years and above reported their QoL remained the same compared to other age ranges and a greater number reported that it had improved. However, this could not be explained statistically (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 183). In our small sample, the 10% proportional change in positive direction for QoL and well-being for the matched pairs remained. It would seem that the POPP schemes (in particular, gardening and counselling) could potentially improve overall QoL and well-being and that specific targeted interventions may be of benefit. This was also inferred from the feedback on services using local indicators that provided qualitative evidence of POPP schemes being ‘fit for purpose’ and ‘aspects of service delivery’ which were appreciated. They clearly demonstrate the value of obtaining client feedback and context at a local level and not just relying on standardised health and QoL measures for informing the development and sustainability of local services. Windle et al. (Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009b: 261) also found that small services, low level preventive and community facing, providing practical help and emotional support to older people can significantly affect their health, QoL and well-being. They experienced improved outcomes and reported greater satisfaction as result of receiving POPP services. They also noted a reduction in hospital emergency bed days resulted in savings, which was also one of the intended outcomes of the national POPP initiative. They reported that gains in efficiency for health services use did not appear to adversely impact social care resources, and partnership working between local authorities, health agencies and the voluntary sectors improved local relationships (Windle et al., Reference Windle, Wagland, Forder, D'Amico, Janssen and Wistow2009a).

Conclusion

Prevention is a continuum aimed at meeting high- and low-level needs. While acknowledging the small sample and therefore caution, this local evaluation of Wigan POPP indicates that low-level intensity community-based projects such as gardening and counselling that are targeted to needs have the potential to improve health, QoL and well-being for older people. POPP services were deemed appropriate, fit for purpose, met needs, maintained independence, provided peace of mind and reassurance to older people and their families. This was also borne out in the findings of the national evaluation that has evaluated the broader range of POPP initiatives available, although due to the large and varying nature of schemes and the study design it was not always possible to directly explain positive findings to ‘cause and effect’. This local evaluation has been able to explain some of the positive benefits and their contexts, which indicates the potential benefits of the development of such community schemes and the importance of client feedback. The challenge is to make such schemes widely available locally so that older people can benefit and remain in their homes and communities, which is increasingly important for ageing populations.

Acknowledgements

Wigan Council funded the local evaluation of Wigan POPP, which formed part of the National Evaluation of POPP funded by the Department of Health. Brenda Roe and Roger Beech were investigators and grant holders on the local evaluation of Wigan POPP and the National Evaluation of POPP. We are indebted to the Wigan POPP Partners and Forum who facilitated this work and to the older people of Wigan who participated. Wanda Russell was also part of the lcal evaluation team. Colleagues from the National Evaluation of POPP Team (Karen Windle, Anne Bowling, Angela Dickinson, Martin Knapp, Kathryn Lord, Richard Wagland) also informed the conduct of this work as part of the national evaluation.

References

Arber, S.Ginn, J. 2005: Gender dimensions and the age shift. In Johnson, M.L., editor, The Cambridge handbook of age and ageing. Cambridge: Cambridge University Press, 527538.CrossRefGoogle Scholar
Avlund, K., Due, P., Holstein, B.E., Sonn, U.Laukkanen, P. 2002: Changes in household composition as determinant of changes in functional ability among ld men and women. Aging Clinical and Clinical Experimental Research 14, 6574.Google Scholar
Avlund, K., Lund, R., Holstein, B.E.Due, P. 2004: Social relations as determinant of onset f disability in aging. Archives of Gerontology and Geriatrics 38, 8599.CrossRefGoogle Scholar
Beech, R., Roe, B., Russell, W., Russell, M., Beech, B.Gent, D.;Wigan POPP Forum and Wigan Age Concern Volunteers. 2008: Evaluating Wigan's partnerships for older people project. End of project report. Retrieved 12 May 2010 from http://www.dhcarenetworks.org.uk/library/Resources/Prevention/CSIP_Product/FINAL_EVALUATION_REPORT-3.pdfGoogle Scholar
Beech, R., Roe, B., Russell, M., Beech, B.Gent, D. 2010: Researching organizations: evaluating a partnership for older people project. In Roberts, P. and Priest, H., editors, Healthcare research. A textbook for students and practitioners. Chichester: Wiley-Blackwell, 269281.Google Scholar
Bowling, A. 2005a: Ageing well: quality of life in old age. Maidenhead: Open University Press.Google Scholar
Bowling, A. 2005b: Measuring health: a review of quality of life measurement scales, third edition. Maidenhead: Open University Press.Google Scholar
Bowling, A.Dieppe, P. 2005: What is successful ageing and who should define it? British Medical Journal 331, 15481551.CrossRefGoogle Scholar
Chew Graham, C.A., Lovell, K., Roberts, C., Baldwin, R., Morley, M., Burns, A., Richards, D.Burroughs, M. 2007: A randomised controlled trial to test the feasibility of a collaborative care model for the management of depression in older people. British Journal of General Practice 57, 364369.Google ScholarPubMed
Clay, O.J., Roth, D.L., Wadley, V.G.Haley, W.E. 2008: Changes in social support and their impact on psychosocial outcome over a 5 year period for African American and White dementia caregivers. International Journal of Geriatric Psychiatry 23, 857862.CrossRefGoogle Scholar
DH. 2006: Our health, our care, our say: a new direction for community services. London: The Stationery Office.Google Scholar
DH. 2008: Making a strategic shift to prevention and early intervention: a guide. London: Department of Health.Google Scholar
Dolan, P., Gudex, C., Kind, P., William, A. 1995: A social tariff for EuroQoL: results from a UK general population survey. Discussion paper 138. Centre for Health Economics, University of York, York.Google Scholar
Guralnik, J.M.Ferucci, L. 2003: Assessing the building blocks of function: utilizing measures of functional limitation. American Journal of Preventive Medicine 25, 112121.CrossRefGoogle ScholarPubMed
INVOLVE. 2009a: Senior investigators and public involvement. Eastleigh: INVOLVE.Google Scholar
INVOLVE. 2009b: Exploring impact: public involvement in NHS, public health and social care. Eastleigh: INVOLVE.Google Scholar
Kind, P., Hardman, G., Macran, S. 1999: Populations norms for EQ-5D. Discussion paper 172. Centre for Health Economics, University of York, York.Google Scholar
Knodel, J.Ofstedal, M.B. 2003: Gender and ageing in the developing world: where are the men? Populations and Development Review 29, 677704.CrossRefGoogle Scholar
Lund, R., Nilson, C.J.Avlund, K. 2010: Can higher risk of disability onset among older people who live alone be alleviated by strong social relations? A longitudinal study of non-disabled men and women. Age and Ageing 39, 319326.CrossRefGoogle ScholarPubMed
Medical Research Council. 2008: Developing and evaluating complex interventions: new guidance. London: Medical Research Council Retrieved 12 May 2010 from http://www.mrc.ac.uk/Utilities/Documentrecaord/index.htm?d=MRC004871Google Scholar
Mendes de Leon, C.F., Glass, T.A.Berkman, L.F. 2003: Social engagement and disability in a community population of older adults: the New Haven EPESE. American Journal of Epidemiology 157, 633642.CrossRefGoogle Scholar
Miles, M.B.Huberman, M. 1994: Qualitative data analysis: an expanded source book. London: Sage.Google Scholar
Mor, V., Murphy, J., Masterson-Allen, S., Willey, C., Razmpour, A., Jackson, M.E., Greer, D.Katz, S. 1989: Risk of functional decline among well elders. Journal of Clinical Epidemiology 42, 895904.CrossRefGoogle ScholarPubMed
Nilsson, C.J., Lund, R.Avlund, K. 2008: Cohabitation status and onset of disability among older Danes: is social participation a possible mediator? Journal of Aging and Health 20, 235253.CrossRefGoogle ScholarPubMed
Phillips, J., Ajrouch, K.Hillcoat-Nalletamby, S. 2010: Key concepts in social gerontology. London: Sage.CrossRefGoogle Scholar
Philp, I. 2004: Better health in old age. London: Department of Health.Google Scholar
Philp, I. 2006: A new ambition for old age. Next steps in implementing the national services framework for older people. London: Department of Health.Google Scholar
Ross, F., Donovan, S., Brearley, S., Victor, C., Cottee, M., Crowther, P.Clark, E. 2005: Involving older people in research: methodological issues. Health and Social Care in the Community 13, 268275.CrossRefGoogle ScholarPubMed
Sculpher, M. 2006: The use of quality-adjusted life years in cost-effectiveness. Allergy 61, 527530.CrossRefGoogle ScholarPubMed
Stein, C.Moritz, I. 1999: A life course perspective of maintaining independence in older age. Geneva: WHO.Google Scholar
Victor, C.R., Scambler, S.J., Shah, S., Cook, D.G., Harris, T., Rink, E.Wilde, S. 2002: Has loneliness amongst older people increased? An investigation into variations between cohorts. Ageing and Society 22, 585597.CrossRefGoogle Scholar
Victor, C., Scambler, S.J., Bowling, A.Bond, J. 2005: The prevalence of, and risk factors for loneliness in later life: a survey of older people in Britain. Ageing and Society 25, 357375.CrossRefGoogle Scholar
Walker, A. 2004: Understanding quality of life I old age. Ageing and Society 24, 657814.CrossRefGoogle Scholar
Waite, L.J.Hughes, M.E. 1999: At risk of on the cusp of old age: living arrangements and functional status among black, white and Hispanic adults. The Journals of Gerontology Series B Psychological Sciences and Social Sciences 54, S136S144.CrossRefGoogle ScholarPubMed
Welsh Assembly Government. 2008: The strategy for older people in Wales 2008–2013. Living longer, living better. Cardiff: Welsh Assembly Government.Google Scholar
WHO. 2010: Aging and the life course. Retrieved 20 April 2010 from http://www.who.int/ageing/Google Scholar
Wilson, K., Mottram, P.Sixsmith, A. 2007: Depressive symptoms in the very old living alone: prevalence, incidence and risk factors. International Journal of Geriatric Psychiatry 22, 361366.CrossRefGoogle ScholarPubMed
Wilson, K.C.M., Mottram, P.G.Vassilas, C.A. 2008: Psychotherapeutic treatments for older depressed people. Cochrane database of systematic reviews. Issue 1. Wiley, Chichester.CrossRefGoogle ScholarPubMed
Windle, K. 2006: National evaluation of partnerships for older people projects; Fanl discussion document: quality of life indicators. July 2008. CRIPACC, University of Hertfordshire, Hatfield.Google Scholar
Windle, K., Wagland, R., Lord, K., Dickinson, A., Knapp, M., Forder, J., Henderson, C., Wistow, G., Beech, R., Roe, B., Bowling, A. 2007: National evaluation of partnerships for older people projects: interim report of progress. October 2007. Report to Department of Health, London.Google Scholar
Windle, K., Wagland, R., Lord, K., Dickinson, A., Knapp, M., Forder, J., Henderson, C., Wistow, G., Beech, R., Roe, B., Bowling, A. 2008: National evaluation of partnerships for older people projects: interim report of progress. October 2008. Report to Department of Health, London.Google Scholar
Windle, K., Wagland, R., Forder, J., D'Amico, F., Janssen, D., Wistow, G. 2009a: The national evaluation of partnerships for older people projects. Research summary 53 October 2009. Kent: Personal Social Services Research Unit.Google Scholar
Windle, K., Wagland, R., Forder, J., D'Amico, F., Janssen, D., Wistow, G. 2009b: The national evaluation of partnerships for older people projects. Full report. October 2009. Kent: Personal Social Services Research Unit.Google Scholar
Figure 0

Table 1 Response rates

Figure 1

Table 2 Demographics

Figure 2

Table 3 Health status

Figure 3

Table 4 Own health – self-rating

Figure 4

Table 5 QoL and well-being