Skip to main content Accessibility help
×
Hostname: page-component-8448b6f56d-tj2md Total loading time: 0 Render date: 2024-04-19T10:16:30.634Z Has data issue: false hasContentIssue false

15 - Needs assessment in cancer

Published online by Cambridge University Press:  18 December 2009

David H. Gustafson Ph.D.
Affiliation:
Professor of Industrial Engineering University of Wisconsin-Madison, Madison, WI
Joseph Lipscomb
Affiliation:
National Cancer Institute, Bethesda, Maryland
Carolyn C. Gotay
Affiliation:
Cancer Research Center, Hawaii
Claire Snyder
Affiliation:
National Cancer Institute, Bethesda, Maryland
Get access

Summary

Introduction

The needs of a person facing a serious illness such as cancer are very complex. Maslow argues that human needs arrange themselves in “hierarchies of pre-potency” such that the appearance of one depends upon prior satisfaction of more pre-potent needs. The most pre-potent of Maslow's needs are the physiological (e.g., maintaining homeostasis of oxygen, water). When these are not satisfied, as may be the case in a terminal cancer patient, no other needs are important. As long as those needs are satisfied, a patient or family member may be concerned about higher order needs such as the “safety” needs for predictability and orderliness that underlie the fear of the unknown often faced by newly diagnosed cancer patients. As long as these needs are met, one can hope that providers (as well as family and friends) will satisfy needs for affection and caring. And if these needs are met, one can seek to satisfy “esteem” needs such as the need for respect sought by many health care consumers today. Thus needs change as a patient's condition changes.

What are needs?

As discussed in Langley et al., Kano suggests that needs fall into three categories: expected, desired, and unexpected. And different types of needs have different effects on satisfaction. For instance, most patients and family members expect that they will be given the proper medication. Avoiding medication errors will not improve satisfaction, but making errors could devastate satisfaction.

Type
Chapter
Information
Outcomes Assessment in Cancer
Measures, Methods and Applications
, pp. 305 - 328
Publisher: Cambridge University Press
Print publication year: 2004

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Maslow, A. (1943). A theory of human motivationPsychology Review 50:370–96CrossRefGoogle Scholar
Langley, G., Nolan, K., Nolan, T. et al. (1996). The Improvement Guide. San Francisco: Jossey-Bass
Berwick, D. (1997). The total customer relationship in health care: broadening the bandwidthThe Joint Commission Journal On Quality Improvement 23:245–50CrossRefGoogle ScholarPubMed
Ross, C., Steward, C., Sinacore, J. M. (1993). The importance of patient preferences in the measurement of health care satisfactionMedical Care 31:138–49CrossRefGoogle ScholarPubMed
Suchman, A. L., Markakis, K., Beckman, H. B.et al. (1997). A model of empathic communication in the medical interviewJournal of the American Medical Association 277:678–82CrossRefGoogle ScholarPubMed
Guadagnoli, E., Ward, P. (1998). Patient participation in decision-makingSocial Science and Medicine 47:329–39CrossRefGoogle ScholarPubMed
Frosch, D. L., Kaplan, R. M. (1999). Shared decision making in clinical medicine: past research and future directionsAmerican Journal of Preventive Medicine 17:285–94CrossRefGoogle ScholarPubMed
Charles, C., Gafni, A., Whelan, T. (1999). Decision making in the physician-patient encounter: revisiting the shared treatment decision-making modelSocial Science and Medicine 49:651–61CrossRefGoogle ScholarPubMed
Maguire, P. (1999). Improving communication with cancer patientsEuropean Journal of Cancer 35:1415–22CrossRefGoogle ScholarPubMed
Cull, A., Stewart, M., Altman, D. (1995). Assessment of and intervention for psychosocial problems in routine oncology practiceBritish Journal of Cancer 72:229–35CrossRefGoogle ScholarPubMed
Osoba, D. (1996). Rationale for the timing of health related HRQOL assessments in oncological palliative therapyCancer Treatment Review 22A:69–73CrossRefGoogle Scholar
Ford, S., Fallowfield, L., Lewis, S. (1996). Doctor-patient interactions in oncologySocial Science and Medicine 42:1511–19CrossRefGoogle Scholar
Holland, J. C., Almanza, J. (1999). Giving bad news: is there a kinder, gentler way?Cancer 86:738–403.0.CO;2-L>CrossRefGoogle Scholar
Kim, M. K., Alvi, A. (1999). Breaking the bad news of cancer: the patient's perspectiveLaryngoscope 109:1064–7CrossRefGoogle ScholarPubMed
Sabo, D. (1990). Men, death anxiety and denial. In Clinical Sociological Perspectives of Illness and Loss, ed. D. Clark, J. Fritz, P. Rieder, pp. 71–84. Philadelphia, PA: Charles Press
Peters-Golden, H. (1982). Varied perceptions of social support in the illness experienceSocial Science and Medicine 16:463–91CrossRefGoogle ScholarPubMed
Northouse, L.Peters-Golden, H. (1993). Cancer and the family: strategies to assist spousesSeminars in Oncology Nursing 9:74–82CrossRefGoogle ScholarPubMed
Cegala, D. J. (1997). A study of doctors' and patients' communication during a primary care consultation: implications for communication trainingJournal of Health Communication 2:169–94CrossRefGoogle ScholarPubMed
Northouse, L. (1988). Social support in patients and husbands adjustment to breast cancerNursing Research 37:91–5CrossRefGoogle ScholarPubMed
Northouse, P., Northouse, L. (1987). Communication and cancer: Issues confronting patients, health professionals and caregiversJournal of Psychosocial Oncology 5:17–46CrossRefGoogle Scholar
Vitaliano, P. (1997). Physiological and physical concomitants of caregiving; introduction to special issueAnnals of Behavioral Medicine 19:75–7CrossRefGoogle Scholar
Schulz, R., Beach, S. (1999). Caregiving as a risk factor for mortalityJournal of the American Medical Association 282:2215–19CrossRefGoogle ScholarPubMed
Morris, J., Sussa, S., Sherwood, S.et al. (1986). Last days: a study of the HRQOL of terminally ill cancer patientsJournal of Chronic Disease 39:47–62CrossRefGoogle ScholarPubMed
Ward, S., Goldberg, N., Miller-McCauley, V.et al. (1993). Patient-related barriers to management of cancer painPain 52:319–24CrossRefGoogle ScholarPubMed
Bretsher, M., Rummons, R., Sloan, J.et al. (1999). HRQOL in hospice patientsPsychosomatics 40:309–13CrossRefGoogle Scholar
Silveira, M., Piero, A., Gerrity, M.et al. (2000). Patients knowledge of options at the end of lifeJournal of the American Medical Association 284:2483–8CrossRefGoogle ScholarPubMed
Institute of Medicine (1997). Approaching Death: Improving Care at the End of Life, ed. M. Field, C. Cassel. Washington, DC: Institute of Medicine
Lawton, M. (2000). The End of Life: Scientific and Social Issues (Annual Review of Gerontology and Geriatrics). New York: Springer
Mor, V., Masterson-Allen, S., Houts, P.et al. (1992). The changing needs of patients with cancer at homeCancer 69:829–383.0.CO;2-I>CrossRefGoogle ScholarPubMed
Northouse, L. (1988). A longitudinal study of the adjustment of patients and husbands to breast cancerOncology Nurses Forum 16:511–16Google Scholar
Ell, K., Nishimoto, R., Mantell, J.et al. (1988). Longitudinal analysis of psychological adaptation among family members of patients with cancerJournal of Psychosomatic Research 32:429–38CrossRefGoogle ScholarPubMed
Wilson, S., Morse, J. (1991). Living with a wife undergoing chemotherapyImage 23: 78–84Google ScholarPubMed
Wilkerson, S. (1991). Factors which influence how nurses communicate with cancer patientsJournal of Advanced Nursing 16:677–88CrossRefGoogle Scholar
Gustafson, D. (1991). Expanding on the role of patient as customerQuality Review Bulletin 17:324–5CrossRefGoogle Scholar
Ferrans, this volume, Chapter 2
Marvel, M. K., Epstein, R. M., Flowers, K.et al. (1999). Soliciting the patient's agenda: have we improved?Journal of the American Medical Association 281:283–7CrossRefGoogle ScholarPubMed
Grobe, M. E., Ahmann, D. L., Ilstrup, D. M. (1982). Needs assessment for advance cancer patients and their familiesOncology Nursing Forum 9:26–30Google Scholar
Longman, A. J., Atwood, J. R., Sherman, J. B.et al. (1992). Care needs of home-based cancer patients and their caregiversCancer Nursing 15:182–90CrossRefGoogle ScholarPubMed
Thomas, S., Jones, Glynne R., Chait, I. (1997). Is it worth the wait? A survey of patients' satisfaction with an oncology outpatient clinicEuropean Journal of Cancer Care in England 6:50–8CrossRefGoogle Scholar
Davis, S. W., Quinn, S., Fox, L.et al. (1988). Satisfaction among cancer outpatientsPrograms for Clinical Biological Research 278:227–32Google ScholarPubMed
Darby, this volume, Chapter 14
Schag, C. C., Heinrich, R. L., Ganz, P. A. (1983). Cancer Inventory of Problem Situations: an instrument for assessing cancer patients' rehabilitation needsJournal of Psychosocial Oncology 1:11–24CrossRefGoogle Scholar
Schag, C. C., Ganz, P. A., Heinrich, R. L. (1991). Cancer Rehabilitation Evaluation System-Short Form (CARES-SF). A cancer specific rehabilitation and quality of life instrumentCancer 15:1406–133.0.CO;2-2>CrossRefGoogle Scholar
Gates, M. F., Lackey, N. R., White, M. R. (1995). Needs of hospice and clinic patients with cancerCancer Practice 3:226–32Google ScholarPubMed
Foot, G., Sanson-Fisher, R. (1995). Measuring the unmet needs of people living with cancerCancer Forum 19:131–5Google Scholar
Bonevski, B., Sanson-Fisher, R., Girgis, A.et al. (2000). Evaluation of an instrument to assess the needs of patients with cancerCancer 88:217–253.0.CO;2-Y>CrossRefGoogle ScholarPubMed
McCusker, J. (1984). Development of scales to measure satisfaction and preferences regarding long-term and terminal careMedical Care 22:476–93CrossRefGoogle ScholarPubMed
Tamburini, M., Gangeri, L., Brunelli, C.et al. (2000). Assessment of hospitalized cancer patients' needs by the Needs Evaluation QuestionnaireAnnals of Oncology 11:31–7CrossRefGoogle Scholar
Coyle, N., Goldstein, L., Passik, S.et al. (1996). Development and validation of a patient needs assessment tool (PNAT) for oncology cliniciansCancer Nursing 19:81–92CrossRefGoogle ScholarPubMed
Derdiarian, A. K. (1986). Informational needs of recently diagnosed cancer patientsNursing Research 36:276–81Google Scholar
Mesters, I., Borne, B., Boer, M. D.et al. (2001). Measuring information needs among cancer patientsPatient Education and Counseling 43:253–62CrossRefGoogle ScholarPubMed
Boberg, E., Gustafson, D., Hawkins, R. (2002). Assessing the unmet information, support and care delivery needs of men with prostate cancerPatient Education and Counseling 49 (3):233–42CrossRefGoogle Scholar
Galloway, S., Graydon, J., Harrison, D.et al. (1997). Informational needs of women with a recent diagnosis of breast cancer: development and initial testing of a toolJournal of Advanced Nursing 25:1175–83CrossRefGoogle Scholar
McCarthy, M., Higginson, I. (1991). Clinical audit by a palliative care teamPalliative Medicine 5:215–21CrossRefGoogle Scholar
Ellershaw, J. E., Peat, S. J., Boys, L. C. (1995). Assessing the effectiveness of a hospital palliative care teamPalliative Medicine 9:145–52CrossRefGoogle ScholarPubMed
Emanuel, L. L., Alpert, H. R., Baldwin, D. C.et al. (2000). What terminally ill patients care about: toward a validated construct of patients' perspectivesJournal of Palliative Medicine 3:419–31CrossRefGoogle Scholar
Kristjanson, L. J., Atwood, J., Degner, L. F. (1995). Validity and reliability of the Family Inventory of Needs (FIN): measuring the care needs of families of advanced cancer patientsJournal of Nursing Measurement 3:109–26Google ScholarPubMed
Kipatrick, M. G., Kristjanson, L. J., Tataryn, D. (1998). Measuring the information needs of husbands of women with breast cancer: validity and reliability of the Family Inventory of Needs-HusbandsOncology Nursing Forum 25:1347–51Google Scholar
Kristjanson, L. J. (1993). Validity and reliability testing of the FAMCARE scale: Measure Family Satisfaction with Advance Cancer CareSocial Science and Medicine 36:693–701CrossRefGoogle Scholar
Chalmers, K. I., Luker, K. A., Leinster, S. J.et al. (2001). Information and support needs of women with primary relatives with breast cancer: development of the Information and Support Needs QuestionnaireJournal of Advance Nursing 35:497–507CrossRefGoogle ScholarPubMed
Prigerson, H. G., Maciejewski, P. K., Reynolds, C. F.et al. (1995). Inventory of complicated grief: a scale to measure maladaptive symptoms of lossPsychiatry Research 59:65–79CrossRefGoogle ScholarPubMed
Lev, E. L., Munro, B. H., McCorkle, R. (1993). A shortened version of an instrument measuring bereavementInternational Journal of Nursing Studies 30:213–26CrossRefGoogle ScholarPubMed
Gustafson, D. H., Arora, N. K., Nelson, E. C.et al. (2001). Increasing understanding of patient needs during and after hospitalizationThe Joint Commission Journal on Quality Improvement 27:81–92CrossRefGoogle ScholarPubMed
Reise, this volume, Chapter 21
Miller, M. (1995). Coefficient alpha: a basic introduction from the perspectives of classical theory and structural equation modelingStructural Equation Modeling 2:255–73CrossRefGoogle Scholar
Novick, M., Lewis, C. (1967). Coefficient alpha and the reliability of composite measurementsPsychometrika 32:1–13CrossRefGoogle ScholarPubMed
Siegel, K., Palamara, M., Karus, D.et al. (1992). Reducing the prevalence of unmet needs for concrete services of patients with cancerCancer 69:1873–833.0.CO;2-O>CrossRefGoogle ScholarPubMed
Flanagan, J. (1954). The critical incident techniquePsychology Bulletin 51:327–58CrossRefGoogle ScholarPubMed
Craig, T. J., Comstock, G. W., Geiser, P. B. (1974). Quality of survival in breast cancer care — control comparisonCancer 33:1451–73.0.CO;2-G>CrossRefGoogle Scholar
Fieldman, J. G., Gardner, B., Carter, A. C.et al. (1989). Relationship of race to functional status among breast cancer patients after surgeryJournal of Surgical Oncology 11:333–9CrossRefGoogle Scholar
Lehmann, J. F., Delisa, J. A., Warren, C. G.et al. (1978). Cancer rehabilitation: assessment of need, development and evaluation of a model of careArchives of Physical Medicine and Rehabilitation 58:410–19Google Scholar
Mor, V., Guadagnoli, E., Wool, M. (1987). An examination of the concrete service needs of advanced cancer patientsJournal of Psychosocial Oncology 5:1–17CrossRefGoogle Scholar
Hilerman, J., Ackerman, N., Hassanein, R. (1992). Identifying the needs of home caregivers of patients with cancerOncology Nursing Forum 19:771–7Google Scholar
Leis, A., Kristjanson, L., Koop, P.et al. (1997). Family health and the palliative care trajectory: a cancer research agendaPrevention et Controle en Cancerologie 1:352–60Google ScholarPubMed
Galloway, S. (1994). Meeting information needs of women with breast cancer (Abstract)Canadian Oncology Nursing Journal 14:29Google Scholar
Graf, M. A., Tanner, D. D., Swinyard, W. R. (1993). Optimizing the delivery of patient and physician satisfaction: a conjoint analysis approachHealth Care Management Review 18:34–43CrossRefGoogle ScholarPubMed
Green, P. E., Srinivasan, V. (1978). Conjoint analysis in customer research: issues and outlookJournal of Customer Research 5:103–23Google Scholar
Green, P. E. (1974). On the design of choice experiments involving multifactor alternativesJournal of Customer Research 1:61–8Google Scholar
Huber, G. P. (1974). Multiattribute utility models: a review of field and field-like studiesManagement Science 20:1393–402CrossRefGoogle Scholar
Green, P. E. (1984). Hybrid conjoint analysis: an expository reviewJournal of Marketing Research 21:155–9CrossRefGoogle Scholar

Save book to Kindle

To save this book to your Kindle, first ensure coreplatform@cambridge.org is added to your Approved Personal Document E-mail List under your Personal Document Settings on the Manage Your Content and Devices page of your Amazon account. Then enter the ‘name’ part of your Kindle email address below. Find out more about saving to your Kindle.

Note you can select to save to either the @free.kindle.com or @kindle.com variations. ‘@free.kindle.com’ emails are free but can only be saved to your device when it is connected to wi-fi. ‘@kindle.com’ emails can be delivered even when you are not connected to wi-fi, but note that service fees apply.

Find out more about the Kindle Personal Document Service.

Available formats
×

Save book to Dropbox

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Dropbox.

Available formats
×

Save book to Google Drive

To save content items to your account, please confirm that you agree to abide by our usage policies. If this is the first time you use this feature, you will be asked to authorise Cambridge Core to connect with your account. Find out more about saving content to Google Drive.

Available formats
×