Data and data illustrations supporting the analysis of transcripts from interviews exploring the views and experiences of young men and their parents/guardians regarding testicular health.

Evidence shows young men have poor outcomes from testicular torsion directly attributable to delay in presentation to hospital [1]. Only a third to a half of adolescents present within 6 h with testicular pain, [2,3] There is poor understanding of why adolescents delay in presenting with testicular pain. The authors started without an a-priori hypothesis and designed a thematic qualitative research protocol to explore the phenomena is a naturalistic setting [4,5] . Sixteen young men (11–19 years) and their parents or guardians underwent semi-structured interviews, directed by a topic guide which evolved with subsequent interview findings. Young men were recruited from out of school clubs to minimise the bias associated with schools or hospital recruitment, and were naïve to testicular disease. Verbatim transcriptions were coded, categories and themes formed and final concepts derived utilising a framework methodology. The figure included shows the initial topic guide. The data tables presented show the emergent themes and the final code book. The authors have utilised the analysis to explore the factors impeding young men in presenting early to hospital with testicular pain [6]. The authors feel the data tables and raw data will be of interest to other researchers interested in adolescent health, health access, public health, linguistics and healthcare qualitative methodology.

book. The authors have utilised the analysis to explore the factors impeding young men in presenting early to hospital with testicular pain [6] . The authors feel the data tables and raw data will be of interest to other researchers interested in adolescent health, health access, public health, linguistics and healthcare qualitative methodology.
© 2020 The Author(s). Published by Elsevier Inc. This is an open access article under the CC BY license.

Specifications Table Subject
Perinatology, Pediatrics and Child Health Specific subject area The views and experiences of young men and their parents regarding testicular health Type of data Figure, Table  How data were acquired Semi-structured interviews, recorded by electronic Dictaphone and transcribed verbatim. Inductive thematic analysis with one-sheet -of-paper, iterative reflexivity and framework methodology analysis. Informed consent and assent was obtained from parents and participants prior to interview.

Data format
Secondary and raw data. Raw data associated with Table 1 and 2 can be found at Mendeley Dataset: DOI: 10.17632/cvfxm2j3w8.2

Parameters for data collection
In order to explore the views and experiences of the normal young men regarding testicular health the authors purposefully did not recruit those who had torsion or other ailment of testis, or those with chronic disease. The target population was 11-19 year old young men, of mixed demographics. The authors chose not to recruit from schools as this is known to bias the responses. The young people were given £15 voucher as an incentive, and asked to choose a chaperone of their choice. All chose their parent or guardian. The initial protocol was for one young person with one or two chaperones, but two deviations off protocol occurred and gave depth to the data. As per standard qualitative methodology, the findings from data analysis and reflexive practice was feedback to altered and refine the topic guide as the interviews progressed. Recruitment and interviews continued until data saturation was achieved.

Description of data collection
Participants were recruited from out of hour clubs, such as football or weight loss clubs. Semi-structured interviews with the young men (aged 11-19 years) were undertaken at the club, hospital or home with their chosen chaperone present. All but one chose for the interviews to be undertaken at home. Consent for audio recording, transcription and publication was undertaken. The interviews followed a topic guide but allowed to run with breadth or depth of topic. The interviews were performed, recorded onto electronic Dictaphone and transcribed verbatim. They were then analysed using classic thematic techniques.

Data source location
City

Value of the data
• These data are important because they are the first to describe adolescent males' and their parents views and experiences of testicular health within naturalistic environments.
• Researchers interested in adolescent and family attitudes to health and access to health care will benefit from the data. • Whilst analysed in the context of delay in presentation to hospital with testicular pain, the data could be utilised to investigate huge ranges of different issues. For instance: adolescent acute health access, parental-adolescent views of healthcare, e-literacy, family use of the internet for health information or family response to interviewing with a doctor. • This data may be of value additionally to qualitative linguistic investigators and those investigating interview technique or the role of a doctor in healthcare qualitive research. Fig. 1 . describes the topic guide initially derived to explore the views and experiences of adolescents males regarding testicular pain. This underwent adaption with the iterative process. Table 1 . evidences the quotes within the transcript data which were utilised in developing the categories and themes within the associated manuscript, which focused on describing possible barriers to early presentation with testicular pain. This displays, in an auditable fashion, the closeness of the interpretation to the original data, and shows validity of theme development. Table 2 describes the main themes that were derived from the categories which came directly from the coded data. It gives granular detail of the topics revealed during the process of the interviews.

Population and recruitment
Adolescent males 11 to 19 years who had not experienced testicular torsion were recruited. Those who had experienced testicular health issues or had frequent visits to hospital were excluded. Participants were recruited through sports and out of school clubs. Purposive and snowball sampling was used. The Chief Investigator (CI) contacted the clubs and asked to advertise via their email and social media listings and attended practises to meet the young men and their families. Age appropriate information sheets were given to the young people and their families. Contact details were taken for the families and consent and assent forms were signed. The family were given two weeks before being contacted and an interview arranged at home, at the hospital or at the sports club. The young men were asked to choose a chaperone. The adolescents were given a gift voucher as an incentive to take part.
Recruitment occurred in two locations in the UK, and from a broad socioeconomic range. Recruitment continued until data saturation was achieved as defined by standard qualitative methodology [7] whereby the iterative analysis occurs alongside data collection and no further ideas are generated with further participant recruitment.

Probity and ethical issues
Significant considerations were made for care for the young men with age appropriate assent and consent forms, a chaperone at all times, and an offer to withdraw from the study up to four weeks from the interview. Interviews were recorded on an electronic device and transferred to an encrypted hard drive kept on NHS property. Transcriptions were anonymised. The project went through ethical review board (REC number 15/YH/0299, HRA registration 167713), with the research protocol (IRAS 167713) available from the corresponding author.

Data generation and analysis
A qualitative methodology was chosen, [ 5 , 8 ] utilising semi-structured interviews and thematic analysis using a framework approach. The CI performed all interviews with the young person and their chosen chaperones following an interview topic guide developed by the CI from previous knowledge of the clinical phenomena and with the expert families interviewed during pilot interviews (see Fig. 1 ).
The interviews were audio recorded and transcribed verbatim. Transcription was delayed four weeks post interview allowing families to withdraw from the study if they so wished. Transcription was undertaken by Chief Investigator (CI) Caroline MacDonald for the first 9 interviews and then by a professional transcription service. All were checked against the original recording by the CI. initial interviews and transcriptions were corroborated by supervisor Professor Collins and M. Burton.
Coding was undertaken by the CI, Caroline MacDonald. The first three transcripts were also co-coded by Prof Karen Collins, Academic supervisor, to confirm breadth and depth of coding and to support validity of the data analysis. NVivo 11 © QSR International 2017 was used for coding and data management.
Development of themes and concepts from the coded data took place alongside the collection of further data. Analysis began to move from descriptive to theoretical, allowing recognition of saturation of the material by the coding process, ie when no new insights and interpretations emerge from the data. A self-critical reflexive diary was kept during the interview, coding and analysis process as per recommendations to perform high quality qualitative research [9] .
The process of moving from the in-vivo data to themes took place in a systematic step wise fashion as described by Richie and Lewis et al. [4] and demonstrated by Smith and Firth [10] .The initial categories were then grouped into themes and a hierarchy began to appear from which an index was developed. All interview transcripts were then re-indexed. In this iterative process the authors tried moving towards explanations and descriptions of the experiences of the young men, which might explain the phenomenon of delay in presentation to hospital with severe testicular pain.
Multiple iterations of indexing were undertaken until all data fitted with the categories intuitively and a framework matrix was constructed. Any gaps or conflicts of data in individual or across cases were inspected with a return to data transcription to ensure no missing data or misunderstood coding. Cases were inspected for consistency and comparisons inspected. Literature review of the emerging themes was undertaken and added to the framework chart to contextualise understanding of the ideas and check validity of the themes in the adolescent social experience.

Declaration of Competing Interest
The authors declare that they have no known competing financial interests or personal relationships which have, or could be perceived to have, influenced the work reported in this article.

Funding
The project received funding from The Children's Hospital Charity ( CA14013 ). Funding was utilized to fund the practicalities of the project with no influence over study design, data analysis, report writing or decision for publication.