The psychosocial problems of sickle cell disease sufferers and their methods of coping
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Cited by (59)
Living with sickle cell disease and depression in Lagos, Nigeria: A mixed methods study
2016, Social Science and MedicineCitation Excerpt :Thirdly, there is a danger that items on diagnostic scales through which depression is identified might themselves reinforce societal prejudices. For example, the 12-item General Health Questionnaire, used in Ohaeri et al. (1995), contains an item on thinking of oneself as worthless, which as we shall see, is a key social feature of living with SCD in Nigeria, since family, friends, neighbours and strangers are reported to regularly tell people living with SCD precisely this. Fourthly, attempts to link to social variables produce associations but no real insights (see Pawson and Tilley, 1997, on the limitations of variables-based research in establishing plausible and transferable pathways to intervention).
Sickle Cell Disease in Sub-Saharan Africa
2016, Hematology/Oncology Clinics of North AmericaCitation Excerpt :Without appropriate monitoring through transcranial Doppler (TCD) ultrasonography coupled with lack of access to chronic blood transfusion or hydroxyurea therapy in the event of an abnormal TCD result, an increasing proportion of African patients with SCD will develop acute and chronic cerebrovascular events, with significant impacts on their quality of life.72 In addition, without appropriate monitoring and treatment, patients with SCD will also have an increased burden of many of the other chronic consequences of the condition, including mental health issues and depression,73,74 chronic pulmonary disease, renal failure, chronic bone diseases, and ocular complications.2 Given the virtual absence of data regarding the age-specific incidence of any of these complications from studies conducted anywhere in Africa, it is impossible to predict the precise burden of any of these sequelae going forward; however, the logic of simple arithmetic suggests that, in the absence of specific treatments, these chronic complications of SCD will have major implications for African societies and health systems in the years ahead.
Health-related stigma in young adults with sickle cell disease
2010, Journal of the National Medical AssociationHow Patients' self-disclosure about sickle cell pain episodes to significant others relates to living with sickle cell disease
2014, Pain Medicine (United States)Citation Excerpt :God was included as a “disclosure target” for our African American participants, given that religion and spirituality may play an important role in coping with health problems, including SCD, for this group of patients. Although some controversy exists [24], previous research suggests that SCD patients may be at increased risk for psychological problems [10,37–40]. For instance, the occurrence of painful and unpredictable pain episodes and intermittent hospitalizations associated with SCD may lead to a sense of hopelessness and loss of control in living with the disease.
Sexual maturation and psychiatric morbidity among persons with sickle cell Anaemia in a nigerian teaching hospital
2010, International Journal of Psychiatry in Medicine