Abstract
In this commentary on Karla Stroud and Kieran O’Doherty’s ‘Ethically Sustainable Governance in the Biobanking of Eggs and Embryos for Research’ (2015) I call into question the need for good governance to overcome the challenges facing biobanking of eggs and embryos. I argue that the principles of good governance for biobanking that Stroud and O’Doherty outline come up short in providing concrete normative guidance to resolve the challenges associated with a biobank for eggs and embryos.
This is a preview of subscription content, log in via an institution to check access.
Similar content being viewed by others
References
Budimir, D., O. Polasek, A. Marusic, I. Kolcic, T. Zemunik, V. Boraska, A. Jeroncic, M. Boban, H. Campbell, and I. Rudan. 2011. Ethical aspects of human biobanks: A systematic review. Croatian Medical Journal 52(3): 262–279.
Cambon-Thomsen, A. 2004. The social and ethical issues of post-genomic human biobanks. Nature Reviews Genetics 5(11): 866–873.
Caulfield, T., A.L. McGuire, M. Cho, J.A. Buchanan, M.M. Burgess, U. Danilczyk, C.M. Diaz, K. Fryer-Edwards, S.K. Green, M.A. Hodosh, J. Kaye, L. Kedes, B.M. Knoppers, T. Lemmens, E.M. Meslin, J. Murphy, R.L. Nussbaum, M. Otlowski, D. Pullman, P.N. Ray, J. Sugarman, and M. Timmons. 2008. Research ethics recommendations for whole-genome research: Consensus statement. PLoS Biology 6: 73.
Cohen, J. 1989. Deliberation and Democratic Legitimacy 1997: 67–92.
Graham, J., B. Amos, and T. Plumptre. 2003. Principles for good governance in the 21st century. Policy Brief 15: 1–6.
Greely, H.T. 2007. The uneasy ethical and legal underpinnings of large-scale genomic biobanks. Annual Review of Genomics and Human Genetics 8: 343–364.
Lang, A. 2007. But is it for real? The British Columbia Citizens’ Assembly as a model of state-sponsored citizen empowerment. Politics and Society 35(1): 35–70.
O’Doherty, K.C., and M.M. Burgess. 2013. Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining. Research Ethics 9(2): 55–77.
O’Doherty, K.C., M.M. Burgess, K. Edwards, R.P. Gallagher, A.K. Hawkins, J. Kaye, V. McCaffrey, and D.E. Winickoff. 2011. From consent to institutions: Designing adaptive governance for genomic biobanks. Social Science and Medicine 73(3): 367–374.
Rawls, J. 1993. Political Liberalism. Columbia University Press.
Stroud, K., and K. O’Doherty. 2015. Ethically sustainable governance in the biobanking of eggs and embryos for research. Monash Bioethics Review. 1–18
Warren, M. E., and H. Pearse, eds. 2008. Designing deliberative democracy: the British Columbia Citizens’ Assembly. Cambridge University Press.
Author information
Authors and Affiliations
Corresponding author
Additional information
This comment refers to the article available at doi:10.1007/s40592-015-0047-6
Rights and permissions
About this article
Cite this article
Browne, K. Why governance? A challenge to good governance of biobanks. Monash Bioeth. Rev. 33, 295–300 (2015). https://doi.org/10.1007/s40592-016-0055-1
Published:
Issue Date:
DOI: https://doi.org/10.1007/s40592-016-0055-1