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Establishing a Spanish-Focused Advance Care Planning Educational Session for Latina Breast Cancer Survivors

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Abstract

Minoritized groups including Latinos are less engaged in awareness and discussion of advance care planning (ACP) due to the United States English-dominated healthcare system that contributes to systemic inequities related to language and cultural barriers. Explicit interventions, such as a sole Spanish-speaking educational session, may begin discussions of ACP among Latina breast cancer survivors. However, what constitutes a culturally sensitive Spanish-language ACP educational session is currently unknown. To address this need, this current project (1) presented a nurse-led ACP educational session and (2) held a focus group to assess the acceptability of the Spanish-focused ACP educational session to a Spanish-speaking group of Latina breast cancer survivors. Thematic analysis revealed four themes: (1) familial involvement, (2) need for advance care planning education, (3) addressing language and cultural barriers, and (4) culturally sensitive and informative resources. Features of a culturally sensitive Spanish-focused ACP educational session were identified and found to reduce current barriers that hinder ACP conversations in Latina breast cancer survivors.

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Data Availability

The data that support the findings of this study are available within the article and its supplementary materials. The data are not publicly available due to the risk of loss of confidentiality.

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Acknowledgements

We thank Sarah Carbajal Salisbury and Jeannette Villalta from Alliance Community Services for assistance with support and for providing translation services for this project.

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Authors and Affiliations

  1. NYU Rory Meyers College of Nursing, 433 1st Ave, New York, NY, 10010, USA

    Moroni Fernandez Cajavilca

  2. College of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA

    Kara Dassel, Rebecca Utz & Katherine Supiano

  3. Alliance Community Services, 5286 Commerce Dr, Murray, UT, 84107, USA

    Gabriela Portugal-Bouza

Authors
  1. Moroni Fernandez Cajavilca
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  2. Kara Dassel
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  3. Gabriela Portugal-Bouza
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  4. Rebecca Utz
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  5. Katherine Supiano
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Correspondence to Moroni Fernandez Cajavilca.

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Cajavilca, M.F., Dassel, K., Portugal-Bouza, G. et al. Establishing a Spanish-Focused Advance Care Planning Educational Session for Latina Breast Cancer Survivors. J Canc Educ 39, 147–152 (2024). https://doi.org/10.1007/s13187-023-02387-5

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  • DOI: https://doi.org/10.1007/s13187-023-02387-5

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