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The S Words: Sexuality, Sensuality, Sexual Expression and People with Intellectual Disability

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Abstract

The history of sexual suppression of people with intellectual disability is extensive and derives from primal fear of difference. The human rights imperative requires appropriate responses from services to support the sexual expression of people with intellectual disability. Ideas about how to support people with intellectual disability are provided.

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References

  1. Newell, C.: Sexuality, disability and all! Aust. Disabil. Rev. 3, 52–58 (1997)

    Google Scholar 

  2. Block, P.: Sexuality, fertility and danger: twentieth-century images of women with cognitive disabilities. Sex. Disabil. 18(4), 239–254 (2000)

    Article  Google Scholar 

  3. Kempton, W., Kahn, E.: Sexuality and people with intellectual disabilities: a historical perspective. Sex. Disabil. 9(2), 93–111 (1991)

    Article  Google Scholar 

  4. Brodwin, M.G., Frederick, P.C.: Sexuality and societal beliefs regarding persons living with disabilities. J. Rehabil. 76(4), 37–41 (2010)

    Google Scholar 

  5. Cambridge, P., Mellan, B.: Reconstructing the sexuality of men with learning disabilities: empirical evidence and theoretical interpretations of need. Disabil. Soc. 15(2), 293–311 (2000)

    Article  Google Scholar 

  6. Carlson, G., Taylor, M., Wilson, J.: Sterilisation drugs which suppress sexual drive, and young men who have intellectual disability. J. Intellect. Dev. Disabil. 25(2), 91–104 (2000)

    Article  Google Scholar 

  7. Eastgate, G.: Sexual health for people with intellectual disability. Salud Publica Mexico 50(Suppl 2), S255–S259 (2008)

    Article  Google Scholar 

  8. McCabe, M.P.: Sexual knowledge, experience and feelings among people with disability. Sex. Disabil. 17(2), 157–170 (1999)

    Article  Google Scholar 

  9. Noonan, A., Taylor Gomez, M.: Who’s missing? awareness of lesbian, gay, bisexual and transgender people with intellectual disability. Sex. Disabil. 29(2), 175–180 (2010)

    Article  Google Scholar 

  10. Swango-Wilson, A.: Caregiver perceptions and implications for sex education for individuals with intellectual and developmental disabilities. Sex. Disabil. 26(2), 75–81 (2008)

    Article  Google Scholar 

  11. Addlakha, R.: Adolescents, youth with disabilities unable to access programmes targeting sexuality (2007). Available from: http://v1.dpi.org/lang-en/resources/details?page=375

  12. Brady, S.: The sterilisation of children with intellectual disabilities—defective law, unlawful activity and the need for a service oriented approach. Aust. J. Soc. Issues 33(2), 155–177 (1998)

    Google Scholar 

  13. Newell, C., Goggin, G.: Disability in Australia: Exposing a Social Apartheid. University of New South Wales, Sydney (2005)

    Google Scholar 

  14. Iezzoni, L.I., O’Day, B.L.: More than Ramps: A Guide to Improving Health Care Quality and Access for People with Disabilities. Oxford Books, London (2006)

    Google Scholar 

  15. Lippold, T., Burns, J.: Social support and intellectual disabilities: a comparison between social networks of adults with intellectual disability and those with physical disability. J. Intellect. Disabil. Res. 53(5), 463–473 (2009)

    Article  PubMed  Google Scholar 

  16. Tarnai, B.: Review of effective interventions for socially inappropriate masturbation in persons with cognitive disabilities. Sex. Disabil. 24, 151–168 (2006)

    Article  Google Scholar 

  17. Cuskelly, M., Gilmore, L.: Attitudes to sexuality questionnaire (individuals with an intellectual disability): scale development and community norms. J. Intellect. Dev. Disabil. 32(3), 214–221 (2007)

    Article  PubMed  Google Scholar 

  18. Maurer, L.: Positive Approaches: A Sexuality Guide for Teaching Cognitively Disabled Persons. Planned Parenthood, Delaware (1991)

    Google Scholar 

  19. Hamilton, C.A.: ‘Now I’d like to sleep with Rachael’—researching sexuality support in a service agency group home. Disabil. Soc. 24(3), 303–315 (2009)

    Article  Google Scholar 

  20. Koller, R.: Sexuality and adolescents with autism. Sex. Disabil. 18(2), 125–135 (2000)

    Article  Google Scholar 

  21. Karellou, J.: Development of the greek sexuality attitudes questionnaire- learning disabilities (GSAQ-LD). Sex. Disabil. 21(2), 113–135 (2003)

    Article  Google Scholar 

  22. Yool, L., Langdon, P.E., Garner, K.: The attitudes of medium-secure unit staff toward the sexuality of adults with learning disabilities. Sex. Disabil. 21(2), 137–150 (2003)

    Article  Google Scholar 

  23. Trudel, G., Desjardins, G.: Staff reaction toward the sexual behaviors of people living in institutional settings. Sex. Disabil. 10(3), 173–188 (1992)

    Article  Google Scholar 

  24. Bray, A.: Effective Communication for Adults with an Intellectual Disability. National Advisory Committee on Health and Disability, National Advisory Committee on Health and Disability and the Donald Beasley Institute Wellington, New Zealand (2003)

  25. Johnson, H., et al.: Maximizing community inclusion through mainstream communication services for adults with severe disabilities. Int. J. Speech Lang. Pathol. 11(3), 180–190 (2009)

    Article  Google Scholar 

  26. McVilly, K.R., et al.: Self-advocates have the last say on friendship. Disabil. Soc. 21(7), 693–708 (2006)

    Article  Google Scholar 

  27. Chivers, J., Mathieson, S.: Training in sexuality and relationships: an Australian model. Sex. Disabil. 18(1), 73–80 (2000)

    Article  Google Scholar 

  28. Davies, D.: Sex and relationship facilitation project for people with disabilities. Sex. Disabil. 18(3), 187–194 (2000)

    Article  Google Scholar 

  29. Fitzmaurice, S.: A mother’s narrative: reflections on life with disability. Sex. Disabil. 20(2), 117–123 (2002)

    Article  Google Scholar 

  30. Wiwanitkit, V.: Sexuality in Parkinsonism. Sex. Disabil. 26, 105–108 (2008)

    Article  Google Scholar 

  31. Kool, M.B., et al.: Low relationship satisfaction and high partner involvement predict sexual problems of women with fibromyalgia. Sex Marital Ther. 32(5), 409–423 (2006)

    Article  Google Scholar 

  32. Esmail, S., Munro, B., Gibson, N.: Couple’s experience with multiple sclerosis in the context of their sexual relationship. Sex. Disabil. 25, 163–177 (2007)

    Article  Google Scholar 

  33. Alexander, M.S., Alexander, C.J.: Recommendations for discussing sexuality after spinal cord injury/dysfunction in children, adolescents and adults. J. Spinal Cord Med. 30, S65–S70 (2007)

    PubMed  Google Scholar 

  34. Wright, E.R., et al.: Stigma and the sexual isolation of people with serious mental illness. Soc. Probl. 54(1), 78–98 (2007)

    Article  Google Scholar 

  35. Biswas, A.B., Furniss, F.G.: Life events and mental illness in people with learning disabilities. Psychiatry 8(11), 445–447 (2009)

    Article  Google Scholar 

  36. Jahoda, A., et al.: Depression, social context and cognitive behavioural therapy for people who have intellectual disabilities. J. Appl. Res. Intellect. Disabil. 19(1), 81–89 (2006)

    Article  Google Scholar 

  37. Shastri, M., Alla, L., Sabaratnam, M.: Aripiprazole use in individuals with intellectual disability and psychotic or behavioural disorders: a case series. J. Psychopharmacol. 20(6), 863–867 (2006)

    Article  PubMed  Google Scholar 

  38. Dyke, J.: Opening Doors to Life. QAI, Brisbane (2001)

  39. Ludlow, B.L.: Contemporary issues in sexuality and mental retardation. Adv. Mental Retard. Cogn. Disabil. 4, 1–26 (1991)

    Google Scholar 

  40. Moss, K., Blaha, R.: Looking at self-stimulation in the pursuit of leisure or I’m okay, you have a mannerism. See/Hear 3(Spring) (1993)

  41. Cambridge, P.: Considerations for informing safer sex education work with men with learning disabilities. Br. J. Learn. Disabil. 27(4), 123–126 (1999)

    Article  Google Scholar 

  42. Lofgren-Martenson, L.: The invisibility of young homosexual women and men with intellectual disabilities. Sex. Disabil. 27(1), 21–26 (2008)

    Article  Google Scholar 

  43. Addlakha, R.: How young people with disabilities conceptualize the body, sex and marriage in urban India: four case studies. Sex. Disabil. 25, 111–123 (2007)

    Article  Google Scholar 

  44. Steering Committee for the Evaluation of the Second National Mental Health Plan 1998–2003, Evaluation of the Second National Mental Health Plan, p. 37 Commonwealth of Australia, Canberra (2003)

  45. Australian Research Centre in Sex Health & Society: Sex in Australia: the Australian study of health and relationships. Aust. NZ J. Public Health 27(2), 106–117 (2003)

  46. Bernert, D.J.: Sexuality and disability in the lives of women with intellectual disabilities. Sex. Disabil. 29, 1–13 (2010)

    Google Scholar 

  47. Block, P.: Sexuality, parenthood, and cognitive disability in Brazil. Sex. Disabil. 20(1), 7–28 (2002)

    Article  Google Scholar 

  48. Di Nucci, E.: Sexual rights and disability. J. Med. Ethics 37, 158–161 (2010)

    Article  PubMed  Google Scholar 

  49. Eastgate, G.: Sex, consent and intellectual disability. Aust. Fam. Physician 34(3), 163–166 (2005)

    PubMed  Google Scholar 

  50. Healy, E., et al.: Sexuality and personal relationships for people with an intellectual disability Part I: service-user perspectives. J. Intellect. Disabil. Res. 53(11), 905–912 (2009)

    Article  PubMed  Google Scholar 

  51. Hingsburger, D., Tough, S.: Healthy sexuality: attitudes systems, and policies. Res. Pract. Pers. Severe Disabil. 27(1), 8–17 (2002)

    Article  Google Scholar 

  52. Katz, G., Lazcano-Ponce, E.: Sexuality in subjects with intellectual disability: an educational intervention proposal for parents and counselors in developing countries. Salud Publica De Mexico 50(Suppl 2), S239–S254 (2008)

    Article  PubMed  Google Scholar 

  53. AAIDD: Sexuality and intellectual disability. (2009). Available from: http://www.aamr.org/content_198.cfm

  54. Carter, W.C.: The Honourable, QC, Challenging Behaviour and Disability—A targetted response. Communities, Disability Services and Seniors, p. 183. Queensland Government, Brisbane (2006)

  55. Sobsey, D.: An international perspective on patterns of sexual assault and abuse of people with disabilities. Int. J. Adolesc. Med. Health 7(2), 153–178 (1994)

    Article  Google Scholar 

  56. Murphy, G., O’Callaghan, A.: Capacity of adults with intellectual disabilities to consent to sexual relationships. Psychol. Med. 34, 1347–1357 (2004)

    Article  PubMed  Google Scholar 

  57. Katz, G., Lazcano-Ponce, E.: Sexuality in subjects with intellectual disability: an educational intervention proposal for parents and counselors in developing countries. Salud Publica De Mexico 50(suppl 2), S2239–S2254 (2008)

    Google Scholar 

  58. Kaeser, F., O’Neill, J.: Task analyzed masturbation instruction for a profoundly mentally retarded adult male: a data based case study. Sex. Disabil. 8(1), 17–24 (1987)

    Article  Google Scholar 

  59. Pattullo, A.W.: The socio-sexual development of the handicapped child: a preventive care approach. Nurs Clin. N. Am. 10, 361–372 (1975)

    Google Scholar 

  60. Lyden, M.: Assessment of sexual consent capacity. Sex. Disabil. 25, 3–20 (2007)

    Article  Google Scholar 

  61. World Health Organisation: Declaration on the Rights of Disabled Persons Proclaimed by General Assembly Resolution 3447 of 9 December 1975. World Health Organisation (1975)

  62. American Association on Intellectual and Developmental Disabilities: Sexuality and Intellectual Disability. AAIDD (2008). [cited 2008]

  63. Elders, M.J.: Sex for health and pleasure throughout a lifetime. J. Sex. Med. 7(SUPPL. 5), 248–249 (2010)

    Article  PubMed  Google Scholar 

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Correspondence to Miriam Taylor Gomez.

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Taylor Gomez, M. The S Words: Sexuality, Sensuality, Sexual Expression and People with Intellectual Disability. Sex Disabil 30, 237–245 (2012). https://doi.org/10.1007/s11195-011-9250-4

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