Abstract
This study aimed to examine the associations among variables related to the sociocultural context (including social support, parenting stress, and parents’ perceived severity of their child’s condition), the ease or difficulty of family management, and psychosocial outcomes of children with chronic conditions. This cross-sectional study analyzed a convenience sample of 277 parents of children with chronic diseases who had been receiving follow-up care for at least 6 months at a university hospital located in a metropolitan area. Family members answered a questionnaire on demographics, illness characteristics, perceived severity of the child’s chronic condition, social support, the Parenting Stress Index, the Pediatric Symptom Checklist, and the Korean version of the Family Management Measure (FaMM). The six scales of the FaMM were divided into two domains, corresponding to ease and difficulty of family management, respectively. PASW version 18.0 and AMOS version 22.0 with bootstrapping analysis were used. Social support, parenting stress, and perceived disease severity significantly affected both ease and difficulty of family management. Sufficient social support, low parenting stress, and a less severe chronic condition of the child were associated with ease of family management. Both ease and difficulty of family management explained 73.9% of the variance in children’s psychosocial problems and showed significant direct effects. Care plans for chronically ill children and their families should be designed to promote positive aspects of family management by decreasing parenting stress and enhancing social support, thereby making family management easier and reducing the risk of psychosocial problems in children with chronic conditions.
Highlights
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Ease of family management was associated with high social support, less stressful parenting, and a less severe condition of the child.
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Difficulty of family management was associated with low social support, high parenting stress, and a severe condition of the child.
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Ease of family management had a positive impact on children’s psychosocial health.
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Both family management scales explained 73.9% of psychosocial problems in children with chronic conditions.
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Y.J.I. collaborated with the design of the study, conducted data analyses, and wrote the paper. D.H.K. collaborated with the design of the study, conducted data collection and writing of the paper.
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The Institutional Review Board (IRB) approval was obtained from the S Hospital Institutional Review Board (4-2010-0579). Written consent from the children’s family members were obtained after they were informed of the purpose and process of the study and the risks and benefits of participating in this study as well as the right to discontinue participate at any time during the study.
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Informed consent was obtained from all individual participants included in the study.
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Im, Y., Kim, D.H. Family Management Style and Psychosocial Health of Children with Chronic Conditions. J Child Fam Stud 30, 483–492 (2021). https://doi.org/10.1007/s10826-020-01870-7
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DOI: https://doi.org/10.1007/s10826-020-01870-7