Abstract
The purpose of this study was to examine the effectiveness of evidence-based recruitment and retention strategies for a longitudinal, family-based HIV prevention intervention study targeting adolescents in psychiatric care by (1) determining consent rate (recruitment), rate of participation at the first intervention session (retention), and follow-up attendance rate (retention); and (2) examining socio-demographic factors, family-level processes, sexual risk-related indices, and intervention factors (i.e., treatment arm) associated with study retention. Only one-third of the families contacted ultimately enrolled in the study. 81% of those enrolled participated in the workshop and 72% attended the booster sessions with no significant differences between families on any variable based on attendance. Retention over 1 year was 85% and did not differ by treatment arm. Strategies employed were successful at retaining families once they were enrolled. Findings highlight barriers to enrollment for adolescents in psychiatric care and suggest that it may be critical to integrate HIV prevention programs within community-based mental health services in order to counteract recruitment challenges.
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Beadnell, B., Baker, S., Knox, K., Stielstra, S., Morrison, D. M., DeGooyer, E., et al. (2003). The influence of psychosocial difficulties on women’s attrition in an HIV/STD prevention programme. AIDS Care, 15, 807–820.
Bird, H., Shaffer, D., Fisher, P., Gould, M., Staghezza, B., Chen, J. Y., et al. (1993). The Columbia Impairment Scales (CIS): Pilot findings on a measure of global impairment for children and adolescents. International Journal of Methods in Psychiatric Research, 3, 167–176.
Brown, L. K., Danovsky, M. B., Lourie, K. J., DiClemente, R. J., & Ponton, L. E. (1997). Adolescents with psychiatric disorders and the risk of HIV. Journal of the American Academy of Child and Adolescent Psychiatry, 36, 1609–1617.
Corbie-Smith, G., Viscoli, C. M., Kernan, W. N., Brass, L. M., Sarrel, P., & Horwitz, R. I. (2003). Influences of race, clinical, and other socio-demographic features on trial participation. Journal of Clinical Epidemiology, 56, 304–309.
Derogatis, L. R. (1993). Brief symptom inventory: Administration, scoring and procedures manual (4th ed.). Minneapolis, MN: NCS, Pearson, Inc.
DiFranceisco, W. M., Kelly, J. A., Sikkema, K. J., Somlai, A., Murphy, D., & Stevenson, L. Y. (1998). Differences between completers and early dropouts from 2 HIV intervention trials: A health belief approach to understanding prevention program attrition. American Journal of Public Health, 88, 1068–1073.
Donenberg, G. R., Emerson, E., Bryant, F. B., Wilson, H., & Weber-Shifrin, E. (2001). Understanding AIDS-risk behavior among adolescents in psychiatric care: Links to psychopathology and peer relationships. Journal of the American Academy of Child and Adolescent Psychiatry, 40, 642–653.
Donenberg, G. R., & Pao, M. (2005). Youths and HIV/AIDS: Psychiatry’s role in a changing epidemic. Journal of the American Academy of Child and Adolescent Psychiatry, 44, 728–747.
Donenberg, G., Wilson, H., Emerson, E., & Bryant, F. (2002). Holding the line with a watchful eye: The impact of perceived parental monitoring and parental permissiveness on risky sexual behavior among adolescents in psychiatric care. AIDS Education Prevention, 14, 138–157.
Dudley, C., O’Sullivan, L. F., & Moreau, D. (2002). Does familiarity breed complacency? HIV knowledge, personal contact, and sexual risk behavior of psychiatrically-referred Latino adolescent girls. Hispanic Journal of Behavioral Sciences, 24, 353–368.
Fox, D. P., & Gottfredson, D. C. (2003). Differentiating completers from non-completers in a family-based prevention program. Journal of Primary Prevention, 24, 111–124.
Gifford, A. L., Cunningham, W. E., Heslin, K. C., Andersen, R. M., Nakazono, T., Lieu, D. K., et al. (2002). Participation in research and access to experimental treatments by HIV-infected patients. New England Journal of Medicine, 346, 1373–1382.
Haggerty, K. P., MacKenzie, E. P., Skinner, M. L., Harachi, T. W., & Catalano, R. F. (2006). Predicting participation in parents who care: Program initiation and exposure in two different formats. Journal of Primary Prevention, 27, 47–65.
Haller, D. L., Miles, D. R., & Dawson, K. S. (2002). Psychopathology influences treatment retention among drug-dependent women. Journal of Substance Abuse Treatment, 23, 431–436.
Heinrichs, N., Bertram, H., Kuschel, A., & Hahlweg, K. (2005). Parent recruitment and retention in a universal prevention program for child behavior and emotional problems: Barriers to research and program participation. Prevention Science, 6, 275–286.
Hough, R., Tarke, H., Renker, V., Shields, P., & Glatstein, J. (1996). Recruitment and retention of homeless mentally ill participants in research. Journal of Consulting and Clinical Psychology, 64, 881–891.
Kapungu, C., Baptiste, D., Holmbeck, G., McBride, C., Robinson, M., Sturdivant, A., et al. (2010). Beyond the “birds and the bees”: Gender differences in sex-related communication among urban African American adolescents. Family Process, 49, 251–264.
Kapungu, C., Holmbeck, G. N., & Paikoff, R. L. (2006). Longitudinal association between parenting practices and early sexual risk behaviors among urban African American adolescents: The moderating role of gender. Journal of Youth and Adolescence, 35, 787–798.
Leonard, N. R., Lester, P., Rotheram-Borus, M. J., Mattes, K., Gwadz, M., & Ferns, B. (2003). Successful recruitment and retention of participants in longitudinal behavioral research. AIDS Education and Prevention, 15, 269–281.
McCormick, A., McKay, M., Wilson, M., McKinney, L., Paikoff, R., Bell, C., et al. (2000). Involving families in an urban HIV preventive intervention: How community collaboration addresses barriers to participation. AIDS Education and Prevention, 12, 299–307.
McDonald, P. W. (1999). Population-based recruitment for quit-smoking programs: An analytic review of communication variables. Preventive Medicine: An International Journal Devoted to Practice & Theory, 28, 545–557.
McKay, M., McCadam, K., & Gonzales, J. (1996). Addressing the barriers to mental health services for inner-city children and their caregivers. Community Mental Health Journal, 32, 353–361.
Miller, K. S., Kotchick, B. A., Dorsey, S., Forehand, R., & Ham, A. Y. (1998). Family communication about sex: What are parents saying and are their adolescents listening? Family Planning Perspectives, 30, 218–222, 235.
Nappi, C. M., McBride, C. K., & Donenberg, G. R. (2007). HIV/AIDS communication among adolescents in psychiatric care and their parents. Journal of Family Psychology, 21, 637–644.
Nappi, C., Thakral, C., Kapungu, C., Donenberg, G., Hasselquist, E., Brown, L., et al. (2009). Parental monitoring as a moderator of the effect of family sexual communication on sexual risk behavior among adolescents in psychiatric care. AIDS and Behavior, 13, 1012–1020.
NIMH Multisite HIV Prevention Trial. (1997). Screening, recruiting and predicting retention of participants in a multisite HIV prevention trial. AIDS, 11, S13–S19.
Oregon Social Learning Center. (1990). Parental monitoring and supervision constructs. Technical reports. Eugene: Oregon Social Learning Center.
Orr, P. R., Blackhurst, D. W., & Hawkins, B. S. (1992). Patient and clinic factors predictive of missed visits and inactive status in a multicenter clinical trial. The Macular Photocoagulation Study Group. Controlled Clinical Trials, 13, 40–49.
Pequegnat, E., & Szapocznik, J. (Eds.). (2000). Working with families in the era of HIV. Thousand Oaks: Sage Publication.
Perrino, T., Coatsworth, D., Briones, E., Pantin, H., & Szapocznik, J. (2001). Initial engagement in parent-centered preventive interventions: A family systems perspective. The Journal of Primary Prevention, 22, 21–44.
Prado, G., Pantin, H., Schwartz, S., Lupei, N., & Szapocznik, J. (2006). Predictors of engagement and retention in a family-centered substance abuse and HIV preventive intervention for Hispanic adolescents. Journal of Pediatric Psychology, 31(9), 874–890.
Prado, G., Szapocznik, J., Mitrani, V. B., Mauer, M. H., Smith, L., & Feaster, D. (2002). Factors influencing engagement into interventions for adaptation to HIV in African American women. AIDS and Behavior, 6, 141–151.
Prinz, R. J., Smith, E. P., Dumas, J. E., Laughlin, J. E., White, D. W., & Barrón, R. (2001). Recruitment and retention of participants in prevention trials involving family-based interventions. American Journal of Preventive Medicine, 20, 31–37.
Rutledge, S. E., Roffman, R. A., Picciano, J. F., Kalichman, S. C., & Berghuis, J. P. (2002). HIV prevention and attrition: Challenges and opportunities. AIDS Behavior, 6, 69–82.
Saunders, S. D., Greaney, M. L., Lees, F. D., & Clark, P. G. (2003). Achieving recruitment goals through community partnerships: The SENIOR project. Family and Community Health, 26, 194–202.
Shaffer, D. (1991). Diagnostic Interview for Children (DISC 2.3)-child version. New York: Columbia University.
Silva, M. (2002). The effectiveness of school-based sex education programs in the promotion of abstinent behavior: A meta-analysis. Health Education Research, 17, 471–481.
Smith, M. D. (2001). HIV risk in adolescents with severe mental illness: Literature review. Journal of Adolescent Health, 29, 320–329.
Spoth, R., Clair, S., Greenberg, M., Redmond, C., & Shin, C. (2007). Toward dissemination of evidence-based family interventions: Maintenance of community-based partnership recruitment results and associated factors. Journal of Family Psychology, 21, 137–146.
Spoth, R. L., Goldberg, C., & Redmond, C. (1999). Engaging families in longitudinal preventive intervention research: Discrete-time survival analysis of socioeconomic and social-emotional risk factors. Journal of Consulting and Clinical Psychology, 67(10), 157–163.
Spoth, R., & Redmond, C. (2000). Research on family engagement in preventive interventions: Toward improved use of scientific findings in primary prevention practice. The Journal of Primary Prevention, 21, 267–284.
Spoth, R., Redmond, C., & Shin, C. (2000). Modeling factors influencing enrollment in family-focused preventive intervention research. Prevention Science, 1, 213–225.
Trauth, J. M., Musa, D., Siminoff, L., Jewell, I. K., & Ricci, E. (2000). Public attitudes regarding willingness to participate in medical research studies. Journal of Health & Social Policy, 12, 23–43.
Vaughn, T., Sarrazin, M. V., Saleh, S. S., Huber, D. L., & Hall, J. A. (2002). Participation and retention in drug abuse treatment services research. Journal of Substance Abuse Treatment, 23, 387–397.
Wu, E., El-Bassel, N., Witte, S. S., Gilbert, L., Chang, M., & Morse, P. (2005). Enrollment of minority women and their main sexual partners in an HIV/STI prevention trial. AIDS Education and Prevention, 17, 41–52.
Zand, D. H., Thomson, N. R., Dugan, M., Braun, J., Holterman-Hommes, P., & Hunter, P. (2004). The recruitment process: Factors that predict African American adolescents’ initial engagement into an alcohol, tobacco, and other drug prevention study. Journal of Ethnicity in Substance Abuse, 3, 43–54.
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Kapungu, C.T., Nappi, C.M., Thakral, C. et al. Recruiting and Retaining High-Risk Adolescents into Family-Based HIV Prevention Intervention Research. J Child Fam Stud 21, 578–588 (2012). https://doi.org/10.1007/s10826-011-9510-z
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DOI: https://doi.org/10.1007/s10826-011-9510-z