Abstract
The present study investigated the actor–partner effects of parenting stress (PS) on quality of life (QoL) among parents (96 couples) of children with autism spectrum disorder (ASD). Data were collected using the QoL Scale and the PS Index. Structural equation modeling was also utilized to test the hypothesis. The results revealed the effects of PS in each parent on mental QoL of that parent. Maternal PS further shaped physical QoL in mothers. However, PS in one parent did not influence QoL of his or her partner. Accordingly, mental QoL had a mediating role between PS and physical QoL. It was ultimately suggested to take account of QoL among parents in addition to the treatment of children with ASD.
Similar content being viewed by others
References
Aali, S., Aim yazdi, S. A., Abdkhodae, M., Ghanaee, A., & Moharari, F. (2015). Developmental function of families with autism spectrum disorder children compared with families with healthy children. Medical Journal of Mashhad University of Medical Sciences, 58(1), 32–41. https://doi.org/10.22038/mjms.2015.3768
Abidin, R. R., & Brunner, J. F. (1995). Development of a parenting alliance inventory. Journal of Clinical Child Psychology, 24(1), 31–40.
Al-Oran, H. M., & AL-Sagarat, A. Y. (2016). Parenting stress of children with autistic disorder. Open Access Library Journal, 3(7), 1–10.
Bashirian, S., Karami, M., Khazaei, S., & Jenabi, E. (2019). Predictors of quality of life for parents of children with autism disorders in Iran. Advances in Human Biology, 9(2), 108.
Calzada, L. R., Pistrang, N., & Mandy, W. P. (2012). High-functioning autism and asperger’s disorder: Utility and meaning for families. Journal of Autism and Developmental Disorders, 42(2), 230–243.
Cooper, C. E., McLanahan, S. S., Meadows, S. O., & Brooks-Gunn, J. (2009). Family structure transitions and maternal parenting stress. Journal of Marriage and Family, 71(3), 558–574.
Cruz, L. P., Camargos-Júnior, W., & Rocha, F. L. (2013). The broad autism phenotype in parents of individuals with autism: A systematic review of the literature. Trends in Psychiatry and Psychotherapy, 35(4), 252–263.
Dardas, L. A., & Ahmad, M. M. (2014a). Predictors of quality of life for fathers and mothers of children with autistic disorder. Research in Developmental Disabilities, 35(6), 1326–1333.
Dardas, L. A., & Ahmad, M. M. (2014b). Quality of life among parents of children with autistic disorder: A sample from the Arab world. Research in Developmental Disabilities, 35(2), 278–287.
Dardas, L. A., & Ahmad, M. M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress and Health, 31(1), 5–12.
Ellen Selman, L., et al. (2018). ‘You are labelled by your children’s disability’—A community-based, participatory study of stigma among Somali parents of children with autism living in the United Kingdom. Ethnicity & Health, 23(7), 781–796.
Framework, I. C. (1992). The MOS 36-item short-form health survey (SF-36). Medical Care, 30(6), 473–483.
Galletta, M., et al. (2019). Sense of coherence and physical health-related quality of life in Italian chronic patients: The mediating role of the mental component. British Medical Journal Open, 9(9), e030001.
Ghaffary, G., Karimi, A., & Nowzeri, H. (2012). Trend study of quality of life in Iran. Social Studies and Research in Iran, 1(3), 107–134.
Henseler, J., Ringle, C. M., & Sinkovics, R. R. (2009). The use of partial least squares path modeling in international marketing. In R. R. Sinkovics & P. N. Ghauri (Eds.), New challenges to international marketing. Bingley: Emerald Group Publishing Limited.
Hsiao, Y. J. (2016). Pathways to mental health-related quality of life for parents of children with autism spectrum disorder: Roles of parental stress, children’s performance, medical support, and neighbor support. Research in Autism Spectrum Disorders, 23, 122–130.
Hsiao, Y. J. (2018). Autism spectrum disorders: Family demographics, parental stress, and family quality of life. Journal of Policy and Practice in Intellectual Disabilities, 15(1), 70–79.
Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life. Families, Systems, & Health, 29(3), 232.
Johnson, N. L., & Simpson, P. (2013). Lack of father involvement in research on children with autism spectrum disorder: Maternal parenting stress and family functioning. Issues in Mental Health Nursing, 34(4), 220–228.
Kerr, M. E. (1981). Family systems theory and therapy. Handbook of Family Therapy, 1, 226–264.
Lorem, G. F., Schirmer, H., Wang, C. E., & Emaus, N. (2017). Ageing and mental health: Changes in self-reported health due to physical illness and mental health status with consecutive cross-sectional analyses. British Medical Journal Open, 7(1), e013629.
Malhotra, S., Khan, W., & Bhatia, M. (2012). Quality of life of parents having children with developmental disabilities. Delhi Psychiatry Journal, 15(1), 171–176.
Marsack-Topolewski, C. N., & Church, H. L. (2019). Impact of caregiver burden on quality of life for parents of adult children with autism spectrum disorder. American Journal on Intellectual and Developmental Disabilities, 124(2), 145–156.
McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The double ABCX model of adjustment and adaptation. Marriage & Family Review, 6(1–2), 7–37.
McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44(12), 3101–3118.
Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting stress in mothers of children with autism without intellectual disability. Mediation of behavioral problems and coping strategies. Frontiers in Psychology, 10, 464.
Montazeri, A., Goshtasebi, A., Vahdaninia, M., & Gandek, B. (2005). The Short Form Health Survey (SF-36): Translation and validation study of the Iranian version. Quality of Life Research, 14(3), 875–882.
Özgür, B. G., Aksu, H., & Eser, E. (2018). Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder. Indian Journal of Psychiatry, 60(3), 278.
Podsakoff, N. P., Shen, W., & Podsakoff, P. M. (2006). The role of formative measurement models in strategic management research: Review, critique, and implications for future research. Research Methodology in Strategy and Management, 3(1), 197–252.
Ponnet, K., et al. (2013). The influence of mothers’ and fathers’ parenting stress and depressive symptoms on own and partner’s parent-child communication. Family Process, 52(2), 312–324.
Ribeiro, M. F. M., Vandenberghe, L., Prudente, C. O. M., & Porto, C. C. (2016). Cerebral Palsy: How the child’s age and severity of impairment affect the mother’s stress and coping strategies. Ciencia & Saude Coletiva, 21(10), 3203–3212.
Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620.
Salehi, F., Raji, P., Mahmoodian, M., Dadgar, H., & Baghestani, A. R. (2017). Quality of life of mothers of children with autism spectrum disorders and its relationship with severity of disorder and child’s occupational performance. Journal of Modern Rehabilitation, 11(3), 167–174.
Samadi, S., & McConkey, R. (2014). The impact on Iranian mothers and fathers who have children with an autism spectrum disorder. Journal of Intellectual Disability Research, 58(3), 243–254.
Shirzadi, P., Framarzi, S., Ghasemi, M., & Shafiee, M. (2015). Investigating validity and reliability of parenting stress index-short form among fathers of normal child under 7 years old. Rooyesh-e-Ravanshenasi Journal, 3, 91–110.
Taghizadeh, Z., et al. (2017). Individual consequences of having work and family roles simultaneously in Iranian married women. Women & Health, 57(1), 52–68.
Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49.
Acknowledgments
The study is supported and funded by Bushehr University of Medical Sciences as part of a MS thesis. The authors hereby extend their sincere gratitude to all fathers and mothers who cooperatively contributed to this study.
Funding
The study is supported and funded by Bushehr University of Medical Sciences as part of a MS thesis.
Author information
Authors and Affiliations
Contributions
HV, FJ and RB contributed substantially to the conception and designed of the study. SK contributed to the data collection. RB analyzed the data. HV and SK wrote the manuscript. RB prepared final version of manuscript. All authors provided critical feedback and helped shape the research.
Corresponding author
Ethics declarations
Conflict of interest
The authors declare that they have no conflict of interest.
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Rights and permissions
About this article
Cite this article
Vahedparast, H., Khalafi, S., Jahanpour, F. et al. The Actor–Partner Effects of Parenting Stress on Quality of Life Among Parents of Children with ASD: The Mediating Role of Mental Quality of Life. J Autism Dev Disord 52, 142–149 (2022). https://doi.org/10.1007/s10803-021-04919-8
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10803-021-04919-8