References
Moynihan KM, Ziniel SI, Johnston E, Morell E, Pituch K, Blume ED (2022) A “good death” for children with cardiac disease. Pediatr Cardiol 43(4):744–755. https://doi.org/10.1007/S00246-021-02781-0/FIGURES/2
Blume ED, Balkin EM, Aiyagari R, Ziniel S, Beke DM, Thiagarajan R, Taylor L, Kulik T, Pituch K, Wolfe J (2014) Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study. Pediatr Crit Care Med 15(4):336–342. https://doi.org/10.1097/PCC.0000000000000072
Moynihan KM, Heith CS, Snaman JM, Smith-Parrish M, Bakas A, Ge S, Cerqueira AV, Bailey V, Beke D, Wolfe J, Morell E, Gauvreau K, Blume ED (2021) Palliative care referrals in cardiac disease. Pediatrics. https://doi.org/10.1542/PEDS.2020-018580
Blume ED, Kirsch R, Cousino MK, Walter JK, Steiner JM, Miller TA, Machado D, Peyton C, Bacha E, Morell E (2023) Young on behalf of the AHAPHF and TC of the C on LCHD and HH in the. Palliative care across the life span for children with heart disease: a Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes 16:114. https://doi.org/10.1161/HCQ.0000000000000114
Truog RD (1999) “Doctor, if this were your child, what would you do”? Pediatrics 103(1):153–154. https://doi.org/10.1542/PEDS.103.1.153
Tadros HJ, Saidi A, Rawlinson AR, Cattier C, Black EW, Rackley J, Breault L, Pietra BA, Fricker FJ, Gupta D (2023) Assessment of parental decision making in congenital heart disease, cardiomyopathy and heart transplantation: an observational study analysing decisional characteristics and preferences. Arch Dis Child. https://doi.org/10.1136/archdischild-2022-324373
Kaufman BD, Hollander SA, Zhang Y, Chen S, Bernstein D, Rosenthal DN, Almond CS, Murray JM, Burgart AM, Cohen HJ, Kirkpatrick JN, Blume ED (2019) Compassionate deactivation of ventricular assist devices in children: a survey of pediatric ventricular assist device clinicians’ perspectives and practices. Pediatr Transpl. https://doi.org/10.1111/PETR.13359
Hollander SA, Pyke-Grimm KA, Shezad MF, Zafar F, Cousino MK, Feudtner C, Char DS (2023) End-of-life in pediatric patients supported by ventricular assist devices: a network database cohort study. Pediatr Crit Care Med 24(1):41–50. https://doi.org/10.1097/PCC.0000000000003115
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H.T and D.G wrote the manuscript text and prepared the figure. Both authors reviewed the final manuscript.
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Tadros, H.J., Gupta, D. “A Good Death”: Role of Shared Decision Making and Palliative Care in Children with Cardiac Disease. Pediatr Cardiol 44, 958–959 (2023). https://doi.org/10.1007/s00246-023-03124-x
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DOI: https://doi.org/10.1007/s00246-023-03124-x