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“A Good Death”: Role of Shared Decision Making and Palliative Care in Children with Cardiac Disease

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Fig. 1

References

  1. Moynihan KM, Ziniel SI, Johnston E, Morell E, Pituch K, Blume ED (2022) A “good death” for children with cardiac disease. Pediatr Cardiol 43(4):744–755. https://doi.org/10.1007/S00246-021-02781-0/FIGURES/2

    Article  PubMed  Google Scholar 

  2. Blume ED, Balkin EM, Aiyagari R, Ziniel S, Beke DM, Thiagarajan R, Taylor L, Kulik T, Pituch K, Wolfe J (2014) Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study. Pediatr Crit Care Med 15(4):336–342. https://doi.org/10.1097/PCC.0000000000000072

    Article  PubMed  Google Scholar 

  3. Moynihan KM, Heith CS, Snaman JM, Smith-Parrish M, Bakas A, Ge S, Cerqueira AV, Bailey V, Beke D, Wolfe J, Morell E, Gauvreau K, Blume ED (2021) Palliative care referrals in cardiac disease. Pediatrics. https://doi.org/10.1542/PEDS.2020-018580

    Article  PubMed  Google Scholar 

  4. Blume ED, Kirsch R, Cousino MK, Walter JK, Steiner JM, Miller TA, Machado D, Peyton C, Bacha E, Morell E (2023) Young on behalf of the AHAPHF and TC of the C on LCHD and HH in the. Palliative care across the life span for children with heart disease: a Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes 16:114. https://doi.org/10.1161/HCQ.0000000000000114

    Article  Google Scholar 

  5. Truog RD (1999) “Doctor, if this were your child, what would you do”? Pediatrics 103(1):153–154. https://doi.org/10.1542/PEDS.103.1.153

    Article  CAS  PubMed  Google Scholar 

  6. Tadros HJ, Saidi A, Rawlinson AR, Cattier C, Black EW, Rackley J, Breault L, Pietra BA, Fricker FJ, Gupta D (2023) Assessment of parental decision making in congenital heart disease, cardiomyopathy and heart transplantation: an observational study analysing decisional characteristics and preferences. Arch Dis Child. https://doi.org/10.1136/archdischild-2022-324373

  7. Kaufman BD, Hollander SA, Zhang Y, Chen S, Bernstein D, Rosenthal DN, Almond CS, Murray JM, Burgart AM, Cohen HJ, Kirkpatrick JN, Blume ED (2019) Compassionate deactivation of ventricular assist devices in children: a survey of pediatric ventricular assist device clinicians’ perspectives and practices. Pediatr Transpl. https://doi.org/10.1111/PETR.13359

    Article  Google Scholar 

  8. Hollander SA, Pyke-Grimm KA, Shezad MF, Zafar F, Cousino MK, Feudtner C, Char DS (2023) End-of-life in pediatric patients supported by ventricular assist devices: a network database cohort study. Pediatr Crit Care Med 24(1):41–50. https://doi.org/10.1097/PCC.0000000000003115

    Article  PubMed  Google Scholar 

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H.T and D.G wrote the manuscript text and prepared the figure. Both authors reviewed the final manuscript.

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Correspondence to Dipankar Gupta.

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The authors declare no competing interests.

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Tadros, H.J., Gupta, D. “A Good Death”: Role of Shared Decision Making and Palliative Care in Children with Cardiac Disease. Pediatr Cardiol 44, 958–959 (2023). https://doi.org/10.1007/s00246-023-03124-x

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  • DOI: https://doi.org/10.1007/s00246-023-03124-x

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