Skip to main content
SpringerLink
Log in

Clinical Record Systems in Oncology. Experiences and Developments on Cancer Registers in Eastern Germany

  • Chapter
Personal Medical Information

Abstract

Healthcare information systems have to guarantee quality and efficiency of the medical maintenance. The basis of such information systems is an good medical and caring documentation. The labour-shared, cooperative care for cancer patients as “Shared Care” requires a complete, distributed cancer documentation, summarized in clinical cancer registers. The information of those registers are also a basis for a population-related epidemiological registry. Cancer registers must meet all demands in data protection.

This paper deals with the security architecture of distributed information systems. Organizational as well as technical problems are discussed. Essential attention is paid to security modelling and access rights. The actual structure of the regional Clinical Cancer Register Magdeburg/Saxony-Anhalt and the existing as well as the planned register security mechanisms are presented.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Log in via an institution
Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Arbeitsgemeinschaft, Karten im Gesundheitswesen“, GMD – Forschungszentrum Informationstechnik GmbH: Multifunktionale KartenTerminals (MKT) für das Gesundheitswesen und andere Anwendungsgebiete. Spezifikation Version 0.9, August 1995.

    Google Scholar 

  2. Arbeitskreis,.Health Professional Card“ der Arbeitsgemeinschaft, Karten im Gesundheitswesen”: Deutscher Modellversuch,Health Professional Card (HPC)“, Göttingen, 13.3.1996.

    Google Scholar 

  3. Bundesministerium für Gesundheit: Anforderungen für Modellvorhaben zur Verbesserung der regionalen onkologischen Zusammenarbeit. Bonn, 13.6.1991.

    Google Scholar 

  4. Bundesministerium für Gesundheit: Grundsätze für den Aufbau und Betrieb Klinischer Krebsregister in Behandlungsschwerpunkten zur flächendeckenden regionalen onkologischen Versorgung. Bonn, 17.6.1991.

    Google Scholar 

  5. Council of Europe: EU Directive on the Protection of Individuals with Regard to the Processing of Personal Data and on the Free Movement of such Data. Strassbourg 1995.

    Google Scholar 

  6. Gesetz zur Sicherung und vorläufigen Fortfithrung der Datensammlung des „Nationalen Krebsregisters“ der ehemaligen Deutschen Demokratischen Republik (Krebsregistersicherungsgesetz) vom 29.12.1992, BGBl I, 2335.

    Google Scholar 

  7. Gesetz über Krebsregister (Krebsregistergesetz, -KRG) vom 4.11.1994, BGBl I, 3351.

    Google Scholar 

  8. Institut für Medizinische Statistik und Datenverarbeitung Berlin (Hrsg.): Das Gesundheitswesen der Deutschen Demokratischen Republik 1989. 24. Jahrgang, Berlin 1989.

    Google Scholar 

  9. SEISMED Consortium: European Health Data Security Guidelines. IT and Security Personnel. Birmingham 1995.

    Google Scholar 

  10. TRUSTHEALTH1 Consortium - German Group: German Recommendations to the TIP Functional Specification (Draft). Göttingen 1996.

    Google Scholar 

  11. H.-J. Appelrath, J. Michaelis, I. Schntidtmann, W. Thoben: Empfehlung an die Bundesländer zur technischen Umsetzung der Verfahrensweise gemäß Gesetz über Krebsregister (KRG). Technischer Bericht, Tumorzentrum Rheinland-Pfalz, Mainz 1995.

    Google Scholar 

  12. A.R. Bakker: Security in Medical Information Systems. In: J.H. van Bemmel and A.T. McCray (Edrs.): Yearbook of Medical Informatics, pp 52–60. Schattauer, Stuttgart 1993.

    Google Scholar 

  13. B. Barber, J. Davey: The Use of the CCTA Risk Analysis and Management Methodology [CRAMM] in Health Information Systems. In: K.C. Lun, P. Degoulet, T.E. Piemme, O. Rienhoff (Edrs.): MEDINFO 92, pp. 1589–1593. North Holland, Amsterdam 1992.

    Google Scholar 

  14. B. Barber, G. Bleumer, J. Davey, K. Louwerse: How to Achieve Secure Environments for Information Systems in Medicine. In: R.A. Greenes. H.E. Peterson, D.J. Protti (Edrs.): MEDINFO 96, pp. 635639. North Holland, Amsterdam 1996.

    Google Scholar 

  15. B. Blobel: Datensicherheitsprobleme und -Lösungen in offenen medizinischen Informationssystemen. In: B. Blobel (Hrsg.): Datenschutz in medizinischen Informationssystemen, S. 123–138. Verlag Vieweg, Braunschweig - Wiesbaden 1995.

    Google Scholar 

  16. B. Blobel: Open Information Systems and Data Security in Medicine. In: B. Barber, A. Trencher and K. Louwerse (Edrs.): Towards Security in Medical Telematics, pp 168–182. IOS Press, Amsterdam - Oxford - Tokyo - Washington/DC 1996.

    Google Scholar 

  17. B. Blobel: Modelling for Design and Implementation of Secure Health Information Systems. In: A. R. Bakker et al. (Edrs.): Communicating Health Information in an Insecure World. Conference Preprint, pp 149–156. Data Protection and Security Working Conference, Helsinki 30 September - 3 October 1995.

    Google Scholar 

  18. B. Blobel: Konzeption für Telematikanwendungen im Gesundheitswesen sowie für ältere und behinderte Menschen. Zuarbeit zum Entwurf des Durchfihrungskonzeptes für eine TelematikInitiative Sachsen-Anhalt. Magdeburg, 19. Februar 1996.

    Google Scholar 

  19. B. Blobel: A Regional, Secure Cancer Documentation System for an Optimal “Shared Care” in Oncology. Presentation at the MIE `96, Copenhagen, August 1996.

    Google Scholar 

  20. K.-H. Ellsässer, C. O. Köhler: Shared Care: Konzept einer verteilten Pflege - Kurz-und langfristige Perspektiven in Europa. Informatik, Biometrie und Epidemiologie in Medizin und Biologie 24 (1993) H.4, S. 188–198.

    Google Scholar 

  21. F.M. Ferrara: The EDITH Approach: The Management Of Authorization And Security In Healthcare Information Systems. In: B. Barber, A Treacher and K. Louwerse (Edrs.): Toward Security in Medical Telematics - Legal and Technical Aspects, pp 200–213. IOS Press, Amsterdam - Oxford - Tokyo - Washington/DC 19%.

    Google Scholar 

  22. E. Flikkenschild, P.v.d. Sluijs, E. Buis, J. Verhage: SIDERO: a relational Database Application for Security Practitioners, supporting the implementation of SEISMED guidelines in Health Care Institutions. AIM SEISMED Deliverable. Leiden 1996.

    Google Scholar 

  23. E.-H.W. Kluge: Health Information, Privacy, Confidentiality and Ethics. B. Barber, A.R. Bakker, S. Bengtson (Edrs.): Caring for Health Information Safety, Security and Secrecy, pp.. Elsevier, Amsterdam 1994.

    Google Scholar 

  24. E.-H.W. Kluge: Health information, the fair information principles and ethics. In: J.H. van Bemmel and A.T. McCray (Edrs.): Yearbook of Medical Informatics, pp 255–264. Schattauer, Stuttgart 1995.

    Google Scholar 

  25. C.O. Köhler, W. Schuster: Informationelle Selbstbestimmung des Patienten durch die Patientenkarte. In: B. Blobel (Hrsg.): Datenschutz in medizinischen Informationssystemen, S. 93–122. Verlag Vieweg, Braunschweig - Wiesbaden 1995.

    Google Scholar 

  26. A. Krtschil, I. Schmidtmann, J. Schuz, J. Michaelis: Bericht über die Pilotstudie zum Krebsregister Rheinland-Pfalz. Technischer Bericht, Tumorzentrum Rheinland-Pfalz, Mainz 1994.

    Google Scholar 

  27. W.H. Mehnert, M. Smans, C.S. Muir, M. Möhner, D. Schön: Atlas der Krebsinzidenz in der ehemaligen Deutschen Demokratischen Republik. Atlas of Cancer Incidence in the Former German Democratic Republic 1978–1982. IARC Scientific Publications No. 106/BGA Schrift 4/92. International Agency for Research on Cancer, Lyon; Zentralinstitut für Krebsforschung, Berlin; Institut fir Sozialmedizin und Epidemiologie des Bundesgesundheitsamtes, Berlin. MMV Medizin Verlag, München 1992. Oxford University Press 1992.

    Google Scholar 

  28. G. Müller-Enrich (Hrsg.): Fachliche Modellierung von Informationssystemen. Addison-Wesley, Bonn 1993.

    Google Scholar 

  29. C.P. Weagemann: Strategy for Information and Image Management in the 1990s. Optical Disk Institute, Boston. Massachusetts 1992.

    Google Scholar 

Download references

Author information

Authors and Affiliations

  1. The Otto-von-Guericke University Magdeburg, Faculty of Medicine, Institute of Biometrics and Medical Informatics, Leipziger Strasse 44, D-39120, Magdeburg, Germany

    Bernd Blobel

Authors
  1. Bernd Blobel
    View author publications

    You can also search for this author in PubMed Google Scholar

Editor information

Editors and Affiliations

  1. University of Cambridge, Computer Laboratory, New Museums Site, Pembroke Street, Cambridge, CB2 3QG, UK

    Ross Anderson

Rights and permissions

Reprints and permissions

Copyright information

© 1997 Springer-Verlag Berlin Heidelberg

About this chapter

Cite this chapter

Blobel, B. (1997). Clinical Record Systems in Oncology. Experiences and Developments on Cancer Registers in Eastern Germany. In: Anderson, R. (eds) Personal Medical Information. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-59023-8_4

Download citation

  • DOI: https://doi.org/10.1007/978-3-642-59023-8_4

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-540-63244-3

  • Online ISBN: 978-3-642-59023-8

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics

Search

Navigation