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Optimizing Health While Aging with Developmental Disabilities

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Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

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Abstract

Optimum health in aging adults with intellectual and developmental disabilities (IDD) requires a healthcare workforce familiar with general principles of geriatric medicine integrated with specific knowledge about what diseases commonly occur in this population and how they manifest. Aging adults with IDD are at risk for undiagnosed disease, excessive pharmacotherapy, and inadequate preventive health care based on underestimation of life expectancy. This chapter provides a clinical framework for optimizing the health care of aging adults with IDD.

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Author information

Authors and Affiliations

  1. Geriatric Education and Research, Fairview Hospital/Cleveland Clinic Family Medicine Residency Program, Fairview Hospital, 18200 Lorain Ave, Cleveland, OH, 44111, USA

    Carl V. Tyler MD, MS, CAQ-Geriatrics, CMD & Joanne Wilkinson MD, MSc

Authors
  1. Carl V. Tyler MD, MS, CAQ-Geriatrics, CMD
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  2. Joanne Wilkinson MD, MSc
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Corresponding author

Correspondence to Carl V. Tyler MD, MS, CAQ-Geriatrics, CMD .

Editor information

Editors and Affiliations

  1. Innovative Solutions for Disadvantage and Disability and Department of Pediatrics, Morehouse School of Medicine, Atlanta, GA, USA

    I. Leslie Rubin

  2. National Institute of Child Health and Human Development and Medical Services, Division for Developmental and Developmental Disabilities, Ministry of Social Affairs and Social Services, Jerusalem, Israel

    Joav Merrick

  3. Department of Pediatric and Adolescent Medicine, Western Michigan University Homer Stryker MD School of Medicine, Western Michigan University, Kalamazoo, MI, USA

    Donald E. Greydanus  & Dilip R. Patel  & 

Appendix: Resources for Training and Publications

Appendix: Resources for Training and Publications

Nationally the Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) is a non-profit organization that promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC).

Many of these have programs related to aging with training and publications, etc.:

  • University of Illinois UCE

  • Institute on Disability and Human Development

  • Department of Disability and Human Development

  • The University of Illinois at Chicago

  • Suite 436 DHSP

  • 1640 West Roosevelt Road (M/C 626)

  • Chicago, IL 60608–6904

  • Main Phone: 312-413-1647

  • Website: http://www.ahs.uic.edu/dhd

  • The Rehabilitation Research and Training Center on Aging with Developmental Disabilities (RRTCADD)

  • RRTC Clearinghouse on Aging and Developmental Disabilities,

  • Institute on Disability & Human Development M/C 626

  • 1640 W. Roosevelt Road, Chicago, IL 60608–6904.

  • Phone: 312-413-1520

  • Website: http://www.rrtcadd.org

Others

  • Indiana Institute on Disability and Community

  • Indiana University

  • 2853 East Tenth Street

  • Bloomington, IN 47408–2696

  • Main Phone: 812-855-6508

  • Main Fax: 812-855-9630

  • http://iidc.indiana.edu/cac/

  • Interdisciplinary Training Center on Gerontology and Developmental Disabilities

  • UMKC Institute for Human Development (UCE)

  • 215W. Pershing Road

  • 4th and 6th floor

  • Kansas City, MO 64108

  • Main Phone: 816-235-1770

  • Website: http://www.ihd.umkc.edu

Other training programs, which are focused upon specific topics or issues, for example, dementia:

  • Dementia and ID Care Project

  • University at Albany

  • Richardson 280

  • 135 Western Avenue

  • Albany, NY 12222

  • Telephone: 1 (518) 442–3791

  • Fax: 1 (518) 442–3823

  • Email: dementcare@aol.com

  • For more information for arranging for the workshop in one’s community, contact the project principal investigator: Dr. Matthew Janicki at janickimp@aol.com.

Internet Resources

Additional Readings

Cotter VT, Strumpf NE, eds. Advanced practice nursing with older adults. New York: McGraw-Hill, Medical Pub Division; 2002.

Davidson PD, Prasher VP, Janicki MP, eds. Mental health, intellectual disabilities, and the aging process. Oxford: Blackwell; 2003.

Gallo JJ, Fulmer T, Paveza GJ, Reichel W. Handbook of geriatric assessment, 4th ed. Sudbury: Jones Bartlett Learning; 2006.

Ham RJ, Sloane PD, Warshaw GA. Primary care geriatrics: a case-based approach, 5th ed. Philadelphia: Elsevier Mosby; 2007.

Fordyce M. Geriatric pearls. Philadelphia: FA Davis; 1999.

Janicki MP, Ansello EF. Community supports for aging adults with lifelong disabilities. Baltimore: Paul H Brookes; 2000.

Janicki MP, Dalton AJ, eds. Dementia, aging, and intellectual disabilities: a handbook. Philadelphia: Psychology Press; 1999.

Kane RL, Ouslander JG, Resnick B, Abrass IB. Essentials of clinical geriatrics, 7th ed. New York: McGraw-Hill; 2013.

Kennedy-Malone L, Fletcher KR, Plank LM. Management guidelines for the gerontological nurse practitioner. Philadelphia: FA Davis; 2000.

Prasher VP, Janicki MP, eds. Physical health of adults with intellectual disabilities. Chichester: Wiley; 2008.

Reuben DB, Pacala JT, Heer KA. Geriatrics at your fingertips, 15th ed. New York: American Geriatrics Society; 2013.

Tyler CV. Medical issues for adults with mental retardation/developmental disabilities. Homewood: High Tide Press; 1999.

Tyler CV, Baker S. Intellectual disabilities at your fingertips: a health care resource. New Lenox: High Tide Press; 2009.

Walsh PN, Heller T, eds. Health of women with intellectual disabilities. Chichester: Wiley; 2008.

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Tyler, C.V., Wilkinson, J. (2016). Optimizing Health While Aging with Developmental Disabilities. In: Rubin, I.L., Merrick, J., Greydanus, D.E., Patel, D.R. (eds) Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Springer, Cham. https://doi.org/10.1007/978-3-319-18096-0_115

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  • DOI: https://doi.org/10.1007/978-3-319-18096-0_115

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-18095-3

  • Online ISBN: 978-3-319-18096-0

  • eBook Packages: MedicineMedicine (R0)

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