Overview
- First book to cover the full range of ethical issues related to a variety of different forms of stakeholder engagement
- Contains case studies highlighting unique issues that arise in stakeholder engagement relevant to different populations
- Synthesizes current conversations, best practices, and future directions in stakeholder–engaged health research
Part of the book series: Philosophy and Medicine (PHME, volume 146)
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Table of contents (20 chapters)
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Front Matter
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Theory
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Front Matter
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In the Field
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Front Matter
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Unique Ethical Considerations
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Front Matter
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Keywords
About this book
This book provides in-depth analyses of a wide range of topics surrounding ethical issues in community and patient stakeholder–engaged health research, and highlights where consensus exists, is emerging, or remains elusive. Topics in this book cover the history of stakeholder engagement in health research; how codes of ethics and regulations have (or have not) addressed stakeholder engagement; how to promote equitable collaboration; the ethical perspectives of different stakeholders; and the unique challenges posed by stakeholder- engaged research to the protection of human research participants and the research ethics review process. The book includes discussion of unique issues that arise in stakeholder engagement relevant to different populations, settings, and research designs. This book is relevant for anyone with a role or interest in stakeholder-engaged research, including patient and community research partners; academic researchers; research ethics scholars and educators; and funders.
Editors and Affiliations
About the editor
Emily E. Anderson, PhD, MPH, is Professor in the Neiswanger Institute for Bioethics and Healthcare Leadership at Loyola University Chicago’s Stritch School of Medicine. Dr. Anderson holds a PhD in health care ethics from Saint Louis University and an MPH from University of Illinois Chicago. She teaches courses on research ethics and responsible conduct of research to bioethics and biomedical sciences graduate students as well as medical students. In addition to the ethics of stakeholder engagement in research, her areas of interest and expertise include researcher and physician professionalism and misconduct; ethical issues in research with vulnerable populations; informed consent; institutional review board (IRB) policy; and the application of qualitative research techniques to the study of research ethics. She has published over 50 articles in top journals including the American Journal of Bioethics, Journal of Law, Medicine, and Ethics, Academic Medicine, and IRB: Ethics & Human Research. Dr. Anderson currently serves as associate editor of Narrative Inquiry in Bioethics. Dr. Anderson has been a co-investigator on several federally-funded research and educational projects and recently co-authored the book 100 Questions and Answers about Research Ethics (Sage Publications, 2018) with Dr. Amy Corneli (at Duke University).
Bibliographic Information
Book Title: Ethical Issues in Community and Patient Stakeholder–Engaged Health Research
Editors: Emily E. Anderson
Series Title: Philosophy and Medicine
DOI: https://doi.org/10.1007/978-3-031-40379-8
Publisher: Springer Cham
eBook Packages: Religion and Philosophy, Philosophy and Religion (R0)
Copyright Information: The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Switzerland AG 2023
Hardcover ISBN: 978-3-031-40378-1Published: 02 October 2023
Softcover ISBN: 978-3-031-40381-1Due: 31 October 2023
eBook ISBN: 978-3-031-40379-8Published: 29 September 2023
Series ISSN: 0376-7418
Series E-ISSN: 2215-0080
Edition Number: 1
Number of Pages: XVI, 327
Number of Illustrations: 1 b/w illustrations
Topics: Ethics, Medicine/Public Health, general, Public Health, Community and Environmental Psychology