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The Journey Through Illness of the Type 1 Diabetes Caregiver, from Disruption to Positive Coping

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Mobile and Ubiquitous Systems: Computing, Networking and Services (MobiQuitous 2022)

Abstract

Type 1 Diabetes is a chronic autoimmune disease that affects mainly children and teenagers. The life, feelings, thoughts and thinking patterns of their parental caregivers must be taken in consideration as they are severely affected by this illness. In the following qualitative study, we are drawing a timeline inspired by mythology aimed to locate the different phases in a universal narrative of the caregivers. Thus, this timeline is used to create a conceptual tool for understanding, forecasting, and designing technological devices for them.

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Acknowledgements

Acknowledgements. This work has been supported by the European Union’s Horizon 2020 FET Proactive project “WeNet - The Internet of us” grant agreement No 823783 and the “DELPhi - DiscovEring Life Patterns” project funded by the MIUR Progetti di Ricerca di Rilevante Interesse Nazionale (PRIN) 2017 - DD n. 1062 del 31.05.2019.

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Correspondence to Silvia Torsi .

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Torsi, S., Giunchiglia, F., Ayala, S., Rebek, C. (2023). The Journey Through Illness of the Type 1 Diabetes Caregiver, from Disruption to Positive Coping. In: Longfei, S., Bodhi, P. (eds) Mobile and Ubiquitous Systems: Computing, Networking and Services. MobiQuitous 2022. Lecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, vol 492. Springer, Cham. https://doi.org/10.1007/978-3-031-34776-4_32

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  • DOI: https://doi.org/10.1007/978-3-031-34776-4_32

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