Skip to main content

Chronic Health Among Those with an Intellectual Disability

  • Chapter
  • First Online:
Intellectual Disabilities: Health and Social Care Across the Lifespan

Abstract

This chapter explores the most prevalent chronic health conditions among those with an intellectual disability across their lifespan. Setting the scene with a brief overview of chronic health, the chapter explores in more depth epilepsy, musculoskeletal conditions particularly osteoporosis, cardiovascular disease, respiratory disease, gastrointestinal disease and sensory impairment. Throughout the chapter the reader is reminded of the health disparity experienced by individuals across their life course. The modifiable lifestyle behavioural factors to improve health are then explored followed by suggestions on improving health for those with intellectual disability. There is a need for more proactive action to address the health disparity, the risk being that without action disparity will continue and people with intellectual disability will continue to experience poorer health.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Notes

  1. 1.

    The Food Pyramid is a visual representation of how different foods and drinks contribute towards a healthy balanced diet. The Food Pyramid allows individuals the flexibility to choose foods and drinks from each shelf depending on their food preferences. It organises foods and drinks into 5 main shelves, starting from the most important shelf on the bottom’ (Department of Health 2020).

References

  • Adolfsson P, Fjellström C, Lewin B, Mattsson Sydner Y (2012) Foodwork among people with intellectual disabilities and dietary implications depending on staff involvement. Scand J Disabil Res 14(1):40–55

    Article  Google Scholar 

  • Al Mutairi H, O’Dwyer M, McCarron M, McCallion P, Henman MC (2018) The use of proton pump inhibitors among older adults with intellectual disability: a cross sectional observational study. Saudi Pharmac J 26(7):1012–1021

    Article  Google Scholar 

  • Al Mutairi H, O’Dwyer M, Burke E, McCarron M, McCallion P, Henman MC (2020) Laxative use among older adults with intellectual disability: a cross-sectional observational study. Int J Clin Pharm 42(1):89–99

    Article  Google Scholar 

  • Ali A, Scior K, Ratti V, Strydom A, King M, Hassiotis A (2013) Discrimination and other barriers to accessing health care: perspectives of patients with mild and moderate intellectual disability and their carers. PLoS One 8(8):e70855

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Altuna M, Giménez S, Fortea J (2021) Epilepsy in down syndrome: A highly prevalent comorbidity. J Clin Med 10(13):2776

    Article  PubMed  PubMed Central  Google Scholar 

  • American College of Sports Medicine (2021) ACSM’s guidelines for exercise testing and prescription, 11th edn. Lippincott Williams & Wilkins, Philadelphia, PA

    Google Scholar 

  • American College of Sports Medicine (2022) ACSM’s Guidelines for Exercise Testing and Prescription. 11th ed. Lippincott Williams & Wilkins, Philadelphia, PA

    Google Scholar 

  • Amiet C, Gourfinkel-An I, Bouzamondo A, Tordjman S, Baulac M, Lechat P, Mottron L, Cohen D (2008) Epilepsy in autism is associated with intellectual disability and gender: evidence from a meta-analysis. Biol Psychiatry 64(7):577–582

    Article  PubMed  Google Scholar 

  • Arshad S, Winterhalder R, Underwood L, Kelesidi K, Chaplin E, Kravariti E, Anagnostopoulos D, Bouras N, McCarthy J, Tsakanikos E (2011) Epilepsy and intellectual disability: does epilepsy increase the likelihood of co-morbid psychopathology? Res Dev Disabil 32(1):353–357

    Article  PubMed  Google Scholar 

  • Axmon A, Ahlström G, Höglund P (2017) Prevalence and treatment of diabetes mellitus and hypertension among older adults with intellectual disability in comparison with the general population. BMC Geriatr 17(1):1–12

    Article  Google Scholar 

  • Barrett A, Burke H, Cronin H, Hickey A, Kamiya Y, Kenny RA, Layte R, Maty S, McGee H, Morgan K, Mosca I (2011) Fifty plus in Ireland 2011: first results from the Irish longitudinal study on ageing (TILDA), vol 10. Trinity College Dublin, Dublin, pp 2011–2000

    Google Scholar 

  • Benfer KA, Weir KA, Bell KL, Ware RS, Davies PS, Boyd RN (2013) Oropharyngeal dysphagia and gross motor skills in children with cerebral palsy. Pediatrics 131(5):e1553–e1562

    Article  PubMed  Google Scholar 

  • Blickwedel J, Ali A, Hassiotis A (2019) Epilepsy and challenging behaviour in adults with intellectual disability: a systematic review. J Intellect Develop Disabil 44(2):219–231

    Article  Google Scholar 

  • Böhmer CJM, Klinkenberg-Knol EC, Niezen-de Boer MC, Meuwissen SGM (2000) Gastroesophageal reflux disease in intellectually disabled individuals: how often, how serious, how manageable? Am J Gastroenterol 95(8):1868–1872

    Article  PubMed  Google Scholar 

  • Bossink LW, van der Putten AA, Vlaskamp C (2017) Understanding low levels of physical activity in people with intellectual disabilities: A systematic review to identify barriers and facilitators. Res Dev Disabil 68:95–110

    Article  CAS  PubMed  Google Scholar 

  • Brameld K, Spilsbury K, Rosenwax L, Leonard H, Semmens J (2018) Use of health services in the last year of life and cause of death in people with intellectual disability: a retrospective matched cohort study. BMJ Open 8(2):e020268

    Article  PubMed  PubMed Central  Google Scholar 

  • Branford D, Gerrard D, Saleem N, Shaw C, Webster A (2018) Stopping over-medication of people with intellectual disability, autism or both (STOMP) in England part 1–history and background of STOMP. Adv Mental Health Intellect Disabil 13(1):31–40

    Article  Google Scholar 

  • Briggs AM, Cross MJ, Hoy DG, Sanchez-Riera L, Blyth FM, Woolf AD, March L (2016) Musculoskeletal health conditions represent a global threat to healthy aging: a report for the 2015 World Health Organization world report on ageing and health. The Gerontologist 56(suppl_2):S243–S255

    Article  PubMed  Google Scholar 

  • British Thoracic Society (2018) British Guideline on the Management of Asthma. British Thoracic Society, Scottish Intercollegiate Guidelines Network. Thorax 63(Suppl 4).: iv1–121

    Google Scholar 

  • Brizard BA, Limbu B, Baeza-Velasco C, Deb S (2021) Association between epilepsy and psychiatric disorders in adults with intellectual disabilities: systematic review and meta-analysis. BJPsych open 7(3):e95

    Article  Google Scholar 

  • Burke EA, McCallion P, McCarron M (2014) Advancing years, different challenges: wave 2 IDS-TILDA: findings on the ageing of people with an intellectual disability: an intellectual disability supplement to the Irish longitudinal study on ageing. Dublin: Trinity College Dublin

    Google Scholar 

  • Burke EA, McGlinchey E, O’Dwyer M, Foran S, Mac Giolla Phadraig C, O’Connell J, Yan J, McCallion P, McCarron M (2017) Physical health IN: Health, Wellbeing and Social Inclusion: Ageing with an Intellectual Disability in Ireland Evidence from the First Ten Years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA). Trinity College Dublin, Dublin

    Google Scholar 

  • Burke EA, Carroll R, O’Dwyer M, Walsh JB, McCallion P, McCarron M (2019) Quantitative examination of the bone health status of older adults with intellectual and developmental disability in Ireland: a cross-sectional nationwide study. BMJ Open 9(4):e026939

    Article  PubMed  PubMed Central  Google Scholar 

  • Burke EA, Carroll R, Ding AW, Yaman M, Walsh JB, McCallion P, McCarron M (2021) Men’s bones matter too, a cross sectional study examining bone health among men with intellectual disability in Ireland. OBM Geriatr 5(4):1–1

    Google Scholar 

  • Campbell NL, Maidment I, Fox C, Khan B, Boustani M (2013) The 2012 update to the anticholinergic cognitive burden scale. J Am Geriatr Soc 61(S1):S142–S143

    Google Scholar 

  • Carli M, Kolachalam S, Longoni B, Pintaudi A, Baldini M, Aringhieri S, Fasciani I, Annibale P, Maggio R, Scarselli M (2021) Atypical antipsychotics and metabolic syndrome: from molecular mechanisms to clinical differences. Pharmaceuticals 14(3):238

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Chaidez V, Hansen RL, Hertz-Picciotto I (2014) Gastrointestinal problems in children with autism, developmental delays or typical development. J Autism Dev Disord 44(5):1117–1127

    Article  PubMed  PubMed Central  Google Scholar 

  • Curtis JS, Kennedy SE, Attarha B, Edwards L, Jacob R (2021) Upper gastrointestinal disorders in adult patients with intellectual and developmental disabilities. Cureus 13(6):e15384

    PubMed  PubMed Central  Google Scholar 

  • Dahlgren G, Whitehead M (1993) Tackling inequalities in health: what can we learn from what has been tried? Working paper, London: King’s Fund, accessible in: Dahlgren G, Whitehead M. (2007) European strategies for tackling social inequities in health: Levelling up Part 2. WHO Regional office for Europe, Copenhagen. http://www.euro.who.int/__data/assets/pdf_file/0018/103824/E89384.pdf

    Google Scholar 

  • Dahlgren G, Whitehead M (2021) The Dahlgren-Whitehead model of health determinants: 30 years on and still chasing rainbows. Public Health 199:20–24

    Article  PubMed  Google Scholar 

  • Dairo YM, Collett J, Dawes H, Oskrochi GR (2016) Physical activity levels in adults with intellectual disabilities: A systematic review. Prev Med Rep 4:209–219

    Article  PubMed  PubMed Central  Google Scholar 

  • Davis S, Durvasula S, Merhi D, Young P, Traini D, Bosnic-Anticevich S (2016) The ability of people with intellectual disability to use inhalers–an exploratory mixed methods study. J Asthma 53(1):86–93

    Article  PubMed  Google Scholar 

  • de Castilho LS, de Menezes Rampi C, Cruz AJS, Lages FS, Leão DM, Abreu MHNG (2020) Gastroesophageal reflux disease in patients with developmental disabilities. Extensio 17(36):22–32

    Google Scholar 

  • de Leeuw MJ, Oppewal A, Elbers RG, Knulst MW, van Maurik MC, van Bruggen MC, Hilgenkamp TI, Bindels PJ, Maes-Festen DA (2022) Healthy ageing and intellectual disability study: summary of findings and the protocol for the 10-year follow-up study. BMJ Open 12(2):e053499

    Article  PubMed  PubMed Central  Google Scholar 

  • de Vries PJ, Belousova E, Benedik MP, Carter T, Cottin V, Curatolo P, Dahlin M, D’Amato L, d’Augères GB, Ferreira JC, Feucht M (2018) TSC-associated neuropsychiatric disorders (TAND): findings from the TOSCA natural history study. Orphanet J Rare Dis 13(1):1–13

    Article  Google Scholar 

  • de Winter CF, Evenhuis HM (2014) Cardiovascular disease risks in people with an intellectual disability: causes and interventions. Ned Tijdschr Geneeskd 158:A8002–A8002

    PubMed  Google Scholar 

  • de Winter CF, Bastiaanse LP, Hilgenkamp TIM, Evenhuis HM, Echteld MA (2012) Cardiovascular risk factors (diabetes, hypertension, hypercholesterolemia and metabolic syndrome) in older people with intellectual disability: results of the HA-ID study. Res Dev Disabil 33(6):1722–1731

    Article  PubMed  Google Scholar 

  • de Winter CF, Bastiaanse LP, Kranendonk SE, Hilgenkamp TIM, Evenhuis HM, Echteld MA (2013) Peripheral arterial disease in older people with intellectual disability in The Netherlands using the ankle-brachial index: results of the HA-ID study. Res Dev Disabil 34(5):1663–1668

    Article  PubMed  Google Scholar 

  • de Winter CF, Van den Berge APJ, Schoufour JD, Oppewal A, Evenhuis HM (2016) A 3-year follow-up study on cardiovascular disease and mortality in older people with intellectual disabilities. Res Dev Disabil 53:115–126

    Article  PubMed  Google Scholar 

  • Dean S, Marshall J, Whelan E, Watson J, Zorbas C, Cameron AJ (2021) A systematic review of health promotion programs to improve nutrition for people with intellectual disability. Curr Nutrit Rep 10(4):255–266

    Article  Google Scholar 

  • Deb S, Brizard BA, Limbu B (2020a) Association between epilepsy and challenging behaviour in adults with intellectual disabilities: systematic review and meta-analysis. BJPsych Open 6(5):e114

    Article  PubMed  PubMed Central  Google Scholar 

  • Deb S, Nancarrow T, Limbu B, Sheehan R, Wilcock M, Branford D, Courtenay K, Perera B, Shankar R (2020b) UK psychiatrists’ experience of withdrawal of antipsychotics prescribed for challenging behaviours in adults with intellectual disabilities and/or autism. BJPsych open 6(5):e112

    Article  PubMed  PubMed Central  Google Scholar 

  • Dellon ES, Liacouras CA, Molina-Infante J, Furuta GT, Spergel JM, Zevit N, Spechler SJ, Attwood SE, Straumann A, Aceves SS, Alexander JA (2018) Updated international consensus diagnostic criteria for eosinophilic esophagitis: proceedings of the AGREE conference. Gastroenterology 155(4):1022–1033

    Article  PubMed  Google Scholar 

  • Department of Health (2020) Healthy Ireland, Healthy Eating Guidelines. Government of Ireland. https://www.gov.ie/en/publication/70a2e4-the-food-pyramid/

  • Dijkhuizen A, Hilgenkamp TI, Krijnen WP, van der Schans CP, Waninge A (2016) The impact of visual impairment on the ability to perform activities of daily living for persons with severe/profound intellectual disability. Res Dev Disabil 48:35–42

    Article  PubMed  Google Scholar 

  • Doherty AJ, Atherton H, Boland P, Hastings R, Hives L, Hood K, James-Jenkinson L, Leavey R, Randell E, Reed J, Taggart L (2020) Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review. BJGP open 4(3):bjgpopen20X101030

    Article  PubMed  PubMed Central  Google Scholar 

  • Dolan E, Lane J, Hillis G, Delanty N (2019) Changing trends in life expectancy in intellectual disability over time. Ir Med J 112(9):1006

    CAS  PubMed  Google Scholar 

  • Doyle A, O’Sullivan M, Craig S, McConkey R (2021) People with intellectual disability in Ireland are still dying young. J Appl Res Intellect Disabil 34(4):1057–1065

    Article  PubMed  Google Scholar 

  • Evenhuis HM, Sjoukes L, Koot HM, Kooijman AC (2009) Does visual impairment lead to additional disability in adults with intellectual disabilities? J Intellect Disabil Res 53(1):19–28

    Article  CAS  PubMed  Google Scholar 

  • Fellinger J (2022) Intellectual disability and sensory impairment. In Textbook of psychiatry for intellectual disability and autism Spectrum disorder. Springer, Cham, pp 849–867

    Google Scholar 

  • Forty L (2021) How early childhood events impact upon adult health. In A prescription for healthy living. Academic Press, Elsevier, UK, pp 17–29. https://doi.org/10.1016/B978-0-12-821573-9.00002-3

  • Franz DN, Bissler JJ, McCormack FX (2010) Tuberous sclerosis complex: neurological, renal and pulmonary manifestations. Neuropediatrics 41(05):199–208

    Article  CAS  PubMed  Google Scholar 

  • Gale L, Naqvi H, Russ L (2009) Asthma, smoking and BMI in adults with intellectual disabilities: a community-based survey. J Intellect Disabil Res 53(9):787–796

    Article  CAS  PubMed  Google Scholar 

  • Gerber PJ (2012) The impact of learning disabilities on adulthood: A review of the evidenced-based literature for research and practice in adult education. J Learn Disabil 45(1):31–46

    Article  PubMed  Google Scholar 

  • Gidding SS, Allen NB (2019) Cholesterol and atherosclerotic cardiovascular disease: a lifelong problem. J Am Heart Assoc 8(11):e012924

    Article  PubMed  PubMed Central  Google Scholar 

  • Gidding SS, Rana JS, Prendergast C, McGill H, Carr JJ, Liu K, Colangelo LA, Loria CM, Lima J, Terry JG, Reis JP (2016) Pathobiological determinants of atherosclerosis in youth (PDAY) risk score in young adults predicts coronary artery and abdominal aorta calcium in middle age: the CARDIA study. Circulation 133(2):139–146

    Article  PubMed  Google Scholar 

  • Gössler A, Schalamon J, Huber-Zeyringer A, Höllwarth ME (2007) Gastroesophageal reflux and behavior in neurologically impaired children. J Pediatr Surg 42(9):1486–1490

    Article  PubMed  Google Scholar 

  • Guthrie S, Lecko C, Roddam H (2015) Care staff perceptions of choking incidents: what details are reported? J Appl Res Intellect Disabil 28(2):121–132

    Article  PubMed  Google Scholar 

  • Haider SI, Ansari Z, Vaughan L, Matters H, Emerson E (2014) Prevalence and factors associated with polypharmacy in Victorian adults with intellectual disability. Res Dev Disabil 35(11):3071–3080

    Article  PubMed  Google Scholar 

  • Harper L, Ooms A, Tuffrey Wijne I (2021) The impact of nutrition on sleep in people with an intellectual disability: An integrative literature review. J Appl Res Intellect Disabil 34(6):1393–1407

    Article  PubMed  Google Scholar 

  • Haveman M, Perry J, Salvador-Carulla L, Walsh PN, Kerr M, van Schrojenstein Lantman-de Valk H, Van Hove G, Berger DM, Azema B, Buono S, Cara AC (2011) Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. J Intellect Dev Disabil 36(1):49–60

    Article  PubMed  Google Scholar 

  • Häβler F, Thome J, Reis O (2015) Polypharmacy in the treatment of subjects with intellectual disability. J Neural Transm 122(1):93–100

    Article  Google Scholar 

  • Health Service Executive (2008) Strategy to Prevent Falls and Fractures in Ireland’s Ageing Population. Report of the National Steering Group on the Prevention of Falls in Older People and the Prevention and Management of Osteoporosis throughout Life. In: Strategic Health Planning. Dr Steeven’s Hospital, Dublin 8

    Google Scholar 

  • Heslop P, Blair P, Fleming P, Hoghton M, Marriott A, Russ L (2013) Confidential inquiry into premature deaths of people with learning disabilities (CIPOLD). Norah Fry Research Centre, Bristol

    Google Scholar 

  • Hilgenkamp TI, van Wijck R, Evenhuis HM (2012) Low physical fitness levels in older adults with ID: results of the HA-ID study. Res Dev Disabil 33(4):1048–1058

    Article  PubMed  Google Scholar 

  • Hill A (2018) ‘Gross failure’ in man’s care led to death from constipation. The Guardian online https://www.theguardian.com/uk-news/2018/feb/08/gross-failure-in-mans-care-led-to-death-from-constipation

  • Jackson CF, Makin SM, Marson AG, Kerr M (2015) Pharmacological interventions for epilepsy in people with intellectual disabilities. Cochrane Database Syst Rev 2015(9):CD005399

    PubMed  PubMed Central  Google Scholar 

  • Jansen J, Rozeboom W, Penning C, Evenhuis HM (2013) Prevalence and incidence of myocardial infarction and cerebrovascular accident in ageing persons with intellectual disability. J Intellect Disabil Res 57(7):681–685

    Article  CAS  PubMed  Google Scholar 

  • Kanis JA, McCloskey EV, Johansson H, Cooper C, Rizzoli R, Reginster JY (2013) European guidance for the diagnosis and management of osteoporosis in postmenopausal women. Osteoporos Int 24(1):23–57

    Article  CAS  PubMed  Google Scholar 

  • Kiani R, Miller H (2010) Sensory impairment and intellectual disability. Adv Psychiatr Treat 16(3):228–235

    Article  Google Scholar 

  • Kiani R, Tyrer F, Jesu A, Bhaumik S, Gangavati S, Walker G, Kazmi S, Barrett M (2014) Mortality from sudden unexpected death in epilepsy (SUDEP) in a cohort of adults with intellectual disability. J Intellect Disabil Res 58(6):508–520

    Article  CAS  PubMed  Google Scholar 

  • Kinnear D, Morrison J, Allan L, Henderson A, Smiley E, Cooper SA (2018) Prevalence of physical conditions and multimorbidity in a cohort of adults with intellectual disabilities with and without down syndrome: cross-sectional study. BMJ Open 8(2):e018292

    Article  PubMed  PubMed Central  Google Scholar 

  • Kolset SO, Nordstrøm M, Hope S, Retterstøl K, Iversen PO (2018) Securing rights and nutritional health for persons with intellectual disabilities–a pressing challenge. Food Nutr Res 62. https://doi.org/10.29219/fnr.v62.1268

  • Krahn GL, Fox MH (2014) Health disparities of adults with intellectual disabilities: what do we know? What do we do? J Appl Res Intellect Disabil 27(5):431–446

    Article  PubMed  Google Scholar 

  • Leader G, Francis K, Mannion A, Chen J (2018) Toileting problems in children and adolescents with parent-reported diagnoses of autism spectrum disorder. J Dev Phys Disabil 30(3):307–327

    Article  Google Scholar 

  • Leslie WD, Pahlavan PS, Roe EB, Dittberner K (2009) Bone density and fragility fractures in patients with developmental disabilities. Osteoporos Int 20(3):379–383

    Article  CAS  PubMed  Google Scholar 

  • Liao P, Vajdic CM, Reppermund S, Cvejic RC, Srasuebkul P, Trollor JN (2022) Mortality rate, risk factors, and causes of death in people with epilepsy and intellectual disability. Seizure 101:75–82

    Article  PubMed  Google Scholar 

  • Lin LP, Hsu SW, Yao CH, Lai WJ, Hsu PJ, Wu JL, Chu CM, Lin JD (2015) Risk for osteopenia and osteoporosis in institution-dwelling individuals with intellectual and/or developmental disabilities. Res Dev Disabil 36:108–113

    Article  Google Scholar 

  • Lott IT, Doran E, Nguyen VQ, Tournay A, Movsesyan N, Gillen DL (2012) Down syndrome and dementia: seizures and cognitive decline. J Alzheimers Dis 29(1):177–185

    Article  PubMed  PubMed Central  Google Scholar 

  • Lynch L, McCarron M, McCallion P, Burke E (2021) Sedentary behaviour levels in adults with an intellectual disability: a systematic review and meta-analysis. HRB Open Res 3:57

    Article  PubMed  PubMed Central  Google Scholar 

  • Mac Giolla Phadraig C, McCallion P, Cleary E, McGlinchey E, Burke E, McCarron M, Nunn J (2015) Total tooth loss and complete denture use in older adults with intellectual disabilities in Ireland. J Public Health Dent 75(2):101–108

    Article  PubMed  Google Scholar 

  • Manduchi B, Walshe M, Burke É, Carroll R, McCallion P, McCarron M (2021) Prevalence and risk factors of choking in older adults with intellectual disability: results from a national cross-sectional study. J Intellect Develop Disabil 46(2):126–137

    Article  Google Scholar 

  • Maslen C, Hodge R, Tie K, Laugharne R, Lamb K, Shankar R (2022) Constipation in autistic people and people with learning disabilities. Br J Gen Pract 72(720):348–351

    Article  PubMed  PubMed Central  Google Scholar 

  • Matthews T, Weston N, Baxter H, Felce D, Kerr M (2008) A general practice-based prevalence study of epilepsy among adults with intellectual disabilities and of its association with psychiatric disorder, behaviour disturbance and carer stress. J Intellect Disabil Res 52(2):163–173

    Article  CAS  PubMed  Google Scholar 

  • McBride O, Heslop P, Glover G, Taggart T, Hanna-Trainor L, Shevlin M, Murphy J (2021) Prevalence estimation of intellectual disability using national administrative and household survey data: the importance of survey question specificity. Int J Popul Data Sci 6(1):1342

    CAS  PubMed  PubMed Central  Google Scholar 

  • Burke, EA., McCallion, P., Carroll, R., Walsh, J.B. and McCarron, M. (2017) An exploration of the bone health of older adults with an intellectual disability in Ireland. J Intellect Disabil Res, 61(2), pp.99–114

    Google Scholar 

  • McCarron M, Swinburne J, Burke E, McGlinchey E, Andrews V, Mulryan N, Foran S, McCallion P (2011) Growing older with an intellectual disability in Ireland: first results from the intellectual disability supplement to the Irish longitudinal study on ageing (IDS-TILDA). School of Nursing and Midwifery, Trinity College Dublin, Dublin

    Google Scholar 

  • McCarron M, Swinburne J, Burke E, McGlinchey E, Carroll R, McCallion P (2013) Patterns of multimorbidity in an older population of persons with an intellectual disability: results from the intellectual disability supplement to the Irish longitudinal study on aging (IDS-TILDA). Res Dev Disabil 34(1):521–527

    Article  PubMed  Google Scholar 

  • McCarron M, Carroll R, Kelly C, McCallion P (2015) Mortality rates in the general Irish population compared to those with an intellectual disability from 2003 to 2012. J Appl Res Intellect Disabil 28(5):406–413

    Article  PubMed  Google Scholar 

  • McCarron M, McCallion P, Reilly E, Dunne P, Carroll R, Mulryan N (2017a) A prospective 20-year longitudinal follow-up of dementia in persons with down syndrome. J Intellect Disabil Res 61(9):843–852

    Article  CAS  PubMed  Google Scholar 

  • McCarron M, Haigh M, McCallion P, McCallion P, Carroll R, Burke E, McGlinchey E, O’Donovan MA, McCausland D, Sheerin F, O’Dwyer M (2017b) Health, wellbeing and social inclusion: ageing with an intellectual disability in Ireland. Evidence from the first ten years of The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing (IDS-TILDA). https://www.tcd.ie/tcaid/assets/pdf/wave3report.pdf

  • McGlinchey E, McCallion P, McDermott S, Foley M, Burke EA, O’Donovan M-A, McCausland D, Gibney S, McCarron M (2019) Positive ageing indicators for people with an intellectual disability 2018. Trinity Centre for Ageing and Intellectual Disability, Dublin

    Google Scholar 

  • McKenzie K, Milton M, Smith G, Ouellette-Kuntz H (2016) Systematic review of the prevalence and incidence of intellectual disabilities: current trends and issues. Curr Dev Disord Rep 3(2):104–115

    Article  Google Scholar 

  • McLeroy KR, Bibeau D, Steckler A, Glanz K (1988) An ecological perspective on health promotion programs. Health Educ Q 15(4):351–377

    Article  CAS  PubMed  Google Scholar 

  • Melville CA, Oppewal A, Elinder LS, Freiberger E, Guerra-Balic M, Hilgenkamp TI, Einarsson I, Izquierdo-Gomez RH, Sansano-Nadal O, Rintala P, Cuesta-Vargas A (2017) Definitions, measurement and prevalence of sedentary behaviour in adults with intellectual disabilities—A systematic review. Prev Med 97:62–71

    Article  PubMed  Google Scholar 

  • Michie S, Ashford S, Sniehotta FF, Dombrowski SU, Bishop A, French DP (2011) A refined taxonomy of behaviour change techniques to help people change their physical activity and healthy eating behaviours: the CALO-RE taxonomy. Psychol Health 26(11):1479–1498

    Article  PubMed  Google Scholar 

  • Moloney M, Hennessy T, Doody O (2021) Reasonable adjustments for people with intellectual disability in acute care: a scoping review of the evidence. BMJ Open 11(2):e039647

    Article  PubMed  PubMed Central  Google Scholar 

  • Monaghan R, O’Dwyer M, Luus R, Mulryan N, McCallion P, McCarron M, Henman MC (2021) Anti-epileptics, psychotropic drugs and seizures in adults with epilepsy and intellectual disability. J Appl Res Intellect Disabil 34(5):1316–1317. 111 Hoboken, NJ : Wiley

    Google Scholar 

  • Mula M (2017) Epilepsy and psychiatric comorbidities: drug selection. Curr Treat Options Neurol 19(12):1–11

    Article  Google Scholar 

  • National Health Service Scotland (2022) The 7-Steps medication review. https://managemeds.scot.nhs.uk/for-healthcare-professionals/principles/the-7-steps-medication-review/. Accessed 21 Nov 2022

  • NICE (2012) The epilepsies: the diagnosis and management of the epilepsies in adults and children in primary and secondary care. NICE clinical guideline 137 guidance.nice.org.uk/cg137

  • O’Brien F, McCallion P, Carroll R, O’Dwyer M, Burke E, McCarron M (2021) The prevalence, awareness, treatment, and control of hypertension in older adults with an intellectual disability in Ireland: a cross sectional study. Eur J Cardiovasc Nurs 20(4):315–323

    Article  PubMed  Google Scholar 

  • O’Connor M, Hurley E, O’Connor T (2018) Respiratory health of the nation. Irish Thoracic Society. https://tinyurl.com/2p88b43e

  • O’Donovan MA, McCallion P, McCausland D, McCarron M (2020) Choice as people age with intellectual disability: An Irish perspective. In Choice, preference, and disability. Springer, Cham, pp 303–315

    Google Scholar 

  • O’Neill AC, Richter GT (2013) Pharyngeal dysphagia in children with down syndrome. Otolaryngol Head Neck Surg 149(1):146–150

    Article  PubMed  Google Scholar 

  • O’Dwyer M, Peklar J, McCallion P, McCarron M, Henman MC (2016) Factors associated with polypharmacy and excessive polypharmacy in older people with intellectual disability differ from the general population: a cross-sectional observational nationwide study. BMJ Open 6(4):e010505

    Article  PubMed  PubMed Central  Google Scholar 

  • O’Dwyer M, Peklar J, Mulryan N, McCallion P, McCarron M, Henman MC (2017) Prevalence, patterns and factors associated with psychotropic use in older adults with intellectual disabilities in Ireland. J Intellect Disabil Res 61(10):969–983

    Article  PubMed  Google Scholar 

  • O’Dwyer M, Peklar J, Mulryan N, McCallion P, McCarron M, Henman MC (2018) Prevalence and patterns of anti-epileptic medication prescribing in the treatment of epilepsy in older adults with intellectual disabilities. J Intellect Disabil Res 62(3):245–261

    Article  PubMed  Google Scholar 

  • O’Leary L, Cooper SA, Hughes-McCormack L (2018a) Early death and causes of death of people with intellectual disabilities: a systematic review. J Appl Res Intellect Disabil 31(3):325–342

    Article  PubMed  Google Scholar 

  • O’Leary L, Taggart L, Cousins W (2018b) Healthy lifestyle behaviours for people with intellectual disabilities: An exploration of organizational barriers and enablers. J Appl Res Intellect Disabil 31:122–135

    Article  PubMed  Google Scholar 

  • Oppewal A, Hilgenkamp TI (2019) Physical fitness is predictive for 5-year survival in older adults with intellectual disabilities. J Appl Res Intellect Disabil 32(4):958–966

    Article  PubMed  PubMed Central  Google Scholar 

  • Oppewal A, Hilgenkamp TI, van Wijck R, Schoufour JD, Evenhuis HM (2014) Physical fitness is predictive for a decline in daily functioning in older adults with intellectual disabilities: results of the HA-ID study. Res Dev Disabil 35(10):2299–2315

    Article  PubMed  Google Scholar 

  • Oppewal A, Hilgenkamp TI, van Wijck R, Schoufour JD, Evenhuis HM (2015) Physical fitness is predictive for a decline in the ability to perform instrumental activities of daily living in older adults with intellectual disabilities: results of the HA-ID study. Res Dev Disabil 41:76–85

    Article  PubMed  Google Scholar 

  • Oppewal A, Schoufour JD, van der Maarl HJ, Evenhuis HM, Hilgenkamp TI, Festen DA (2018) Causes of mortality in older people with intellectual disability: results from the HA-ID study. Am J Intellect Dev Disabil 123(1):61–71

    Article  PubMed  Google Scholar 

  • Oppewal A, Maes-Festen D, Hilgenkamp TIM (2020) Small steps in fitness, major leaps in health for adults with intellectual disabilities. Exerc Sport Sci Rev 48(2):92–97

    Article  PubMed  Google Scholar 

  • Pavlovic M, Berenji K, Bukurov M (2017) Screening of celiac disease in down syndrome-old and new dilemmas. World J Clin Cases 5(7):264

    Article  PubMed  PubMed Central  Google Scholar 

  • Peate I (2018) Anatomy and physiology, 5. The musculoskeletal system. Br J Healthcare Assist 12(1):6–9

    Article  Google Scholar 

  • Peklar J, Kos M, O’Dwyer M, McCarron M, McCallion P, Kenny RA, Henman MC (2017) Medication and supplement use in older people with and without intellectual disability: an observational, cross-sectional study. PLoS One 12(9):e0184390

    Article  PubMed  PubMed Central  Google Scholar 

  • Prasher VP, Janicki MP (eds) (2018) Physical health of adults with intellectual and developmental disabilities. Springer, New York

    Google Scholar 

  • Robertson J, Hatton C, Emerson E, Baines S (2015) Prevalence of epilepsy among people with intellectual disabilities: a systematic review. Seizure 29:46–62

    Article  PubMed  Google Scholar 

  • Robertson J, Chadwick D, Baines S, Emerson E, Hatton C (2018a) People with intellectual disabilities and dysphagia. Disabil Rehabil 40(11):1345–1360

    Article  PubMed  Google Scholar 

  • Robertson J, Baines S, Emerson E, Hatton C (2018b) Prevalence of constipation in people with intellectual disability: A systematic review. J Intellect Develop Disabil 43(4):392–406

    Article  Google Scholar 

  • Røstad-Tollefsen HK, Kolset SO, Retterstøl K, Hesselberg H, Nordstrøm M (2021) Factors influencing the opportunities of supporting staff to promote a healthy diet in adults with intellectual disabilities. J Appl Res Intellect Disabil 34(3):733–741

    Article  PubMed  Google Scholar 

  • Roth GA, Abate D, Abate KH, Abay SM, Abbafati C, Abbasi N, Abbastabar H, Abd-Allah F, Abdela J, Abdelalim A, Abdollahpour I (2018) Global, regional, and national age-sex-specific mortality for 282 causes of death in 195 countries and territories, 1980–2017: a systematic analysis for the global burden of disease study 2017. Lancet 392(10159):1736–1788

    Article  Google Scholar 

  • Ruiz-Giménez J, Sánchez-Alvarez JC, Cañadillas-Hidalgo F, Serrano-Castro PJ (2010) Antiepileptic treatment in patients with epilepsy and other comorbidities. Seizure 19(7):375–382

    Article  PubMed  Google Scholar 

  • Ryan J, McCallion P, McCarron M, Luus R, Burke EA (2021) Overweight/obesity and chronic health conditions in older people with intellectual disability in Ireland. J Intellect Disabil Res 65(12):1097–1109

    Article  CAS  PubMed  Google Scholar 

  • Rydzewska E, Hughes-McCormack LA, Gillberg C, Henderson A, MacIntyre C, Rintoul J, Cooper SA (2019) Prevalence of sensory impairments, physical and intellectual disabilities, and mental health in children and young people with self/proxy-reported autism: observational study of a whole country population. Autism 23(5):1201–1209

    Article  PubMed  Google Scholar 

  • Sallis JF, Cervero RB, Ascher W, Henderson KA, Kraft MK, Kerr J (2006) An ecological approach to creating active living communities. Annu Rev Public Health 27:297–322

    Article  PubMed  Google Scholar 

  • Sarmast ST, Abdullahi AM, Jahan N (2020) Current classification of seizures and epilepsies: scope, limitations and recommendations for future action. Cureus 12(9):e10549

    PubMed  PubMed Central  Google Scholar 

  • Sarna SK (2010) Colonic motility in health. In Colonic Motility: From Bench Side to Bedside. Morgan & Claypool Life Sciences, San Rafael, CA

    Google Scholar 

  • Schroeder EC, DuBois L, Sadowsky M, Hilgenkamp TI (2020) Hypertension in adults with intellectual disability: prevalence and risk factors. Am J Prev Med 58(5):630–637

    Article  PubMed  PubMed Central  Google Scholar 

  • Service Scotland (2022) https://managemeds.scot.nhs.uk/for-healthcare-professionals/principles/the-7-steps-medicationreview/

  • Shankar R, Rowe C, Van Hoorn A, Henley W, Laugharne R, Cox D, Pande R, Roy A, Sander JW (2018) Under representation of people with epilepsy and intellectual disability in research. PLoS One 13(6):e0198261

    Article  PubMed  PubMed Central  Google Scholar 

  • Shankar R, Wilcock M, Oak K, McGowan P, Sheehan R (2019) Stopping, rationalising or optimising antipsychotic drug treatment in people with intellectual disability and/or autism. Drug Ther Bull 57(1):10–13

    Article  PubMed  Google Scholar 

  • Sharr C, Lavigne J, Elsharkawi IM, Ozonoff A, Baumer N, Brasington C, Cannon S, Crissman B, Davidson E, Florez JC, Kishnani P (2016) Detecting celiac disease in patients with down syndrome. Am J Med Genet A 170(12):3098–3105

    Article  PubMed  Google Scholar 

  • Smith E, Stogios N, Au E, Maksyutynska K, De R, Ji A, Sørensen ME, John LS, Lin HY, Desarkar P, Lunsky Y (2022) The metabolic adverse effects of antipsychotic use in individuals with intellectual and/or developmental disability (IDD): A systematic review and meta-analysis. Acta Psychiatrica Scand 146(3):201–214

    Article  Google Scholar 

  • Somerville H, Tzannes G, Wood J, Shun A, Hill C, Arrowsmith F, Slater A, O’Loughlin EV (2008) Gastrointestinal and nutritional problems in severe developmental disability. Dev Med Child Neurol 50(9):712–716

    Article  PubMed  Google Scholar 

  • Steenbergen HA, Waninge A, van Wijck R, de Jong J, van der Schans CP (n.d.) Maintenance and quality assurance of a healthy lifestyle in an organization for people with intellectual disability

    Google Scholar 

  • Stevens A, Courtney-Long E, Gillespie C, Armour BS (2014) Peer reviewed: hypertension among US adults by disability status and type, national health and nutrition examination survey, 2001–2010. Prev Chronic Dis 11:E139

    Article  PubMed  PubMed Central  Google Scholar 

  • Straetmans JM, van Schrojenstein Lantman-de HM, Schellevis FG, Dinant GJ (2007) Health problems of people with intellectual disabilities: the impact for general practice. Br J Gen Pract 57(534):64–66

    PubMed  PubMed Central  Google Scholar 

  • Sumida K, Molnar MZ, Potukuchi PK, Thomas F, Lu JL, Yamagata K, Kalantar-Zadeh K, Kovesdy CP (2019) Constipation and risk of death and cardiovascular events. Atherosclerosis 281:114–120

    Article  CAS  PubMed  Google Scholar 

  • Swender SL, Matson JL, Mayville SB, Gonzalez ML, McDowell D (2006) A functional assessment of handmouthing among persons with severe and profound intellectual disability. J Intellect Dev Disabil 31(2):95–100

    Article  PubMed  Google Scholar 

  • Taylor D, Paton C, Kapur S (2015) The Maudsley prescribing guidelines in psychiatry. John Wiley and sons Ltd., Chichester

    Google Scholar 

  • Truesdale M, Melville C, Barlow F, Dunn K, Henderson A, Hughes-McCormack LA, McGarty A, Rydzewska E, Smith GS, Symonds J, Jani B (2021) Respiratory-associated deaths in people with intellectual disabilities: a systematic review and meta-analysis. BMJ Open 11(7):e043658

    Article  PubMed  PubMed Central  Google Scholar 

  • Tsou AY, Bulova P, Capone G, Chicoine B, Gelaro B, Harville TO, Martin BA, McGuire DE, McKelvey KD, Peterson M, Tyler C (2020) Medical care of adults with down syndrome: A clinical guideline. JAMA 324(15):1543–1556

    Article  PubMed  Google Scholar 

  • Turky A, Felce D, Jones G, Kerr M (2011) A prospective case control study of psychiatric disorders in adults with epilepsy and intellectual disability. Epilepsia 52(7):1223–1230

    Article  PubMed  Google Scholar 

  • Van De Louw J, Vorstenbosch R, Vinck L, Penning C, Evenhuis H (2009) Prevalence of hypertension in adults with intellectual disability in The Netherlands. J Intellect Disabil Res 53(1):78–84

    Article  PubMed  Google Scholar 

  • Van Den Akker M, Maaskant MA, Van der Meijden RJM (2006) Cardiac diseases in people with intellectual disability. J Intellect Disabil Res 50(7):515–522

    Article  PubMed  Google Scholar 

  • Van Naarden Braun K, Christensen D, Doernberg N, Schieve L, Rice C, Wiggins L, Schendel D, Yeargin-Allsopp M (2015) Trends in the prevalence of autism spectrum disorder, cerebral palsy, hearing loss, intellectual disability, and vision impairment, metropolitan Atlanta, 1991–2010. PLoS One 10(4):e0124120

    Article  PubMed  PubMed Central  Google Scholar 

  • van Schijndel-Speet M, Evenhuis HM, van Wijck R, Van Montfort KCAGM, Echteld MA (2017) A structured physical activity and fitness programme for older adults with intellectual disabilities: results of a cluster-randomised clinical trial. J Intellect Disabil Res 61(1):16–29

    Article  PubMed  Google Scholar 

  • Van Splunder JANG, Stilma JS, Bernsen RM, Evenhuis HM (2006) Prevalence of visual impairment in adults with intellectual disabilities in The Netherlands: cross-sectional study. Eye 20(9):1004–1010

    Article  PubMed  Google Scholar 

  • Van Timmeren EA, Van der Schans CP, Van der Putten AAJ, Krijnen WP, Steenbergen HA, van Schrojenstein Lantman-de Valk HMJ, Waninge A (2017) Physical health issues in adults with severe or profound intellectual and motor disabilities: a systematic review of cross-sectional studies. J Intellect Disabil Res 61(1):30–49

    Article  PubMed  Google Scholar 

  • Varley J, Delanty N, Normand C, Coyne I, McQuaid L, Collins C, Boland M, Grimson J, Fitzsimons M (2010) Epilepsy in Ireland: towards the primary–tertiary care continuum. Seizure 19(1):47–52

    Article  PubMed  Google Scholar 

  • Versacci P, Di Carlo D, Digilio MC, Marino B (2018) Cardiovascular disease in down syndrome. Curr Opin Pediatr 30(5):616–622

    Article  PubMed  Google Scholar 

  • Veugelers R, Benninga MA, Calis EA, Willemsen SP, Evenhuis H, Tibboel D, Penning C (2010) Prevalence and clinical presentation of constipation in children with severe generalized cerebral palsy. Dev Med Child Neurol 52(9):e216–e221

    Article  PubMed  Google Scholar 

  • Vis JC, de Bruin-Bon RH, Bouma BJ, Huisman SA, Imschoot L, van den Brink K, Mulder BJ (2010) Congenital heart defects are under-recognised in adult patients with Down’s syndrome. Heart 96(18):1480–1484

    Article  PubMed  Google Scholar 

  • Vlot-van Anrooij K, Hilgenkamp TI, Leusink GL, van der Cruijsen A, Jansen H, Naaldenberg J, van der Velden K (2020) Improving environmental capacities for health promotion in support settings for people with intellectual disabilities: inclusive design of the DIHASID tool. Int J Environ Res Public Health 17(3):794

    Article  PubMed  PubMed Central  Google Scholar 

  • Wallace RA, Schluter P (2008) Audit of cardiovascular disease risk factors among supported adults with intellectual disability attending an ageing clinic. J Intellect Dev Disabil 33(1):48–58

    Article  PubMed  Google Scholar 

  • Walsh J, Henry Y, Fatayerji D, Eastell R (2009) Lumbar spine peak bone mass and bone turnover in men and women: a longitudinal study. Osteoporos Int 20:355–362

    Article  CAS  PubMed  Google Scholar 

  • Watkins L, O’Dwyer M, Shankar R (2019) New anti-seizure medication for elderly epileptic patients. Expert Opin Pharmacother 20(13):1601–1608

    Article  PubMed  Google Scholar 

  • Weatherburn CJ, Heath CA, Mercer SW, Guthrie B (2017) Physical and mental health comorbidities of epilepsy: population-based cross-sectional analysis of 1.5 million people in Scotland. Seizure 45:125–131

    Article  PubMed  Google Scholar 

  • Wedemeyer RS, Blume H (2014) Pharmacokinetic drug interaction profiles of proton pump inhibitors: an update. Drug Saf 37(4):201–211

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • WHO Scientific Group on Prevention, Management of Osteoporosis and World Health Organization (2003) Prevention and management of osteoporosis: report of a WHO scientific group (No. 921). World Health Organization, Geneva

    Google Scholar 

  • Willems M, Hilgenkamp TI, Havik E, Waninge A, Melville CA (2017) Use of behaviour change techniques in lifestyle change interventions for people with intellectual disabilities: A systematic review. Res Dev Disabil 60:256–268

    Article  PubMed  Google Scholar 

  • Yang L, Wang Y, Chen X, Zhang C, Chen J, Cheng H, Zhang L (2021) Risk Factors for Epilepsy: A National Cross-Sectional Study from National Health and Nutrition Examination Survey 2013 to 2018. Int Gen Med 14:4405

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Eilish Burke .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2023 The Author(s), under exclusive license to Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Burke, E., O’Dwyer, M., Maes-Festen, D., Oppewal, A. (2023). Chronic Health Among Those with an Intellectual Disability. In: Sheerin, F., Doyle, C. (eds) Intellectual Disabilities: Health and Social Care Across the Lifespan. Springer, Cham. https://doi.org/10.1007/978-3-031-27496-1_9

Download citation

  • DOI: https://doi.org/10.1007/978-3-031-27496-1_9

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-031-27495-4

  • Online ISBN: 978-3-031-27496-1

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics