Abstract
In recent years, a growing body of work has developed that aims to ensure that people with intellectual disability are empowered to live their lives to the full even in the face of serious illness and to receive better care at the end of life. This chapter helps the reader recognise and understand the dying process as it affects people with intellectual disability. It describes the common signs of dying, considers barriers and facilitators to the recognition of these signs and reviews principles of best practice in end-of-life care provision. While home remains the preferred place of care for most people, the particular challenges associated with the providing end-of-life care in a group home setting are discussed and practical management strategies provided that encompass not only the care of the person who is dying, but also the support of fellow residents and care staff.
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Ryan, K. (2022). The Process of Dying. In: Stancliffe, R.J., Wiese, M.Y., McCallion, P., McCarron, M. (eds) End of Life and People with Intellectual and Developmental Disability. Palgrave Macmillan, Cham. https://doi.org/10.1007/978-3-030-98697-1_14
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