Skip to main content

Abstract

Here, we illustrate what we mean by speaking of therapeutic futility and therapeutic fury. The latter concept is widely used in the Latin-speaking countries and is usually confused with the concept of futility; instead, it must be properly associated with the concept of damage or pain unfairily caused. Starting from these two definitions, let’s analyze the main criteria on which it is decided whether futility or fury are present: the principle of best interest, the harm principle, and the principle of double effect. Finally, we introduce a new concept, the pain principle. According to this principle, treatment is unfair when it is useless; but it is also unfair when it causes pain that can be objectively highlighted, is not required, and cannot be overcome; when this is present, the treatments currently in progress must be modulated or suspended. If pain is not present, treatment can be continued unless it is useless. Of course, we cannot accept the idea that a treatment is useless if it allows the life of a disabled child, though very damaged but without present or future pain. Nonetheless, severely mentally impaired children, who have no social interaction, will not enjoy the continuation of life at the cost of pain, so if any pain is present in these children, present treatments can be discontinued in favor of less invasive though less effective ones. This principle overcomes the risk of therapeutic abandonment and vitalism, and is simpler and more objective to apply than the principle of best interest.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Subscribe and save

Springer+ Basic
$34.99 /Month
  • Get 10 units per month
  • Download Article/Chapter or eBook
  • 1 Unit = 1 Article or 1 Chapter
  • Cancel anytime
Subscribe now

Buy Now

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  1. Bellieni CV, Buonocore G. Using the pain principle to provide a new approach to invasive treatments and end-of-life care. Acta Paediatr. 2019;108(2):206–7. https://doi.org/10.1111/apa.14535. Epub 2018 Sep 17.

    Article  PubMed  Google Scholar 

  2. Picozzi M, Pegoraro R. Taking care of the vulnerable: the criterion of proportionality. Am J Bioeth. 2017;17(8):44–5. https://doi.org/10.1080/15265161.2017.1340997.

    Article  PubMed  Google Scholar 

  3. Bellieni C. The pain principle: an ethical approach to end-of-life decisions. Ethics Med. 2020;36(1):41–9.

    Google Scholar 

  4. Spence K. The best interest principle as a standard for decision making in the care of neonates. J Adv Nurs. 2000;31(6):1286–92. https://doi.org/10.1046/j.1365-2648.2000.01402.x.

    Article  CAS  PubMed  Google Scholar 

  5. Jonas M, Ryan S. The discourse of dignity in the Charlie Gard, Alfie Evans and Isaiah Haastrup Cases. Med Law Rev. 2020;29(1):24–47. https://doi.org/10.1093/medlaw/fwaa038. Epub ahead of print.

    Article  Google Scholar 

  6. Janvier A, Farlow B, Verhagen E, Barrington K. End-of-life decisions for fragile neonates: navigating between opinion and evidence-based medicine. Arch Dis Child Fetal Neonatal Ed. 2017;102(2):F96–F97.

    Google Scholar 

  7. Potter J, Shields S, Breen R. Palliative sedation, compassionate extubation, and the principle of double effect: an ethical analysis. Am J Hosp Palliat Care. 2021;38(12):1536–40. https://doi.org/10.1177/1049909121998630. Epub ahead of print.

    Article  PubMed  Google Scholar 

  8. Reed PA. Opioids, double effect, and the prospects of hastening death. J Med Philos. 2021;46(5):505–15. https://doi.org/10.1093/jmp/jhab016. Epub ahead of print.

    Article  PubMed  Google Scholar 

  9. Diekema DS. Parental refusals of medical treatment: the harm principle as threshold for state intervention. Theor Med Bioeth. 2004;25(4):243–64. https://doi.org/10.1007/s11017-004-3146-6.

    Article  PubMed  Google Scholar 

  10. Kon AA, Shepard EK, Sederstrom NO, Swoboda SM, Marshall MF, Birriel B, Rincon F. Defining futile and potentially inappropriate interventions: a policy statement from the Society of Critical Care Medicine Ethics Committee. Crit Care Med. 2016;44(9):1769–74. https://doi.org/10.1097/CCM.0000000000001965.

    Article  PubMed  Google Scholar 

  11. Benoit B, Martin-Misener R, Newman A, Latimer M, Campbell-Yeo M. Neurophysiological assessment of acute pain in infants: a scoping review of research methods. Acta Paediatr. 2017;106(7):1053–66. https://doi.org/10.1111/apa.13839. Epub 2017 May 9.

    Article  CAS  PubMed  Google Scholar 

  12. Shetty V, Suresh LR, Hegde AM. Effect of virtual reality distraction on pain and anxiety during dental treatment in 5 to 8 year old children. J Clin Pediatr Dent. 2019;43(2):97–102. https://doi.org/10.17796/1053-4625-43.2.5. Epub 2019 Feb 7.

    Article  PubMed  Google Scholar 

  13. Beltramini A, Milojevic K, Pateron D. Pain assessment in newborns, infants, and children. Pediatr Ann. 2017;46(10):e387–95. https://doi.org/10.3928/19382359-20170921-03.

    Article  PubMed  Google Scholar 

  14. Jain AA, Yeluri R, Munshi AK. Measurement and assessment of pain in children—a review. J Clin Pediatr Dent. 2012;37(2):125–36. https://doi.org/10.17796/jcpd.37.2.k84341490806t770.

    Article  PubMed  Google Scholar 

  15. Chiera M, Cerritelli F, Casini A, Barsotti N, Boschiero D, Cavigioli F, Corti CG, Manzotti A. Heart rate variability in the perinatal period: a critical and conceptual review. Front Neurosci. 2020;14:561186. https://doi.org/10.3389/fnins.2020.561186.

    Article  PubMed  PubMed Central  Google Scholar 

  16. Strehle EM, Gray WK. Comparison of skin conductance measurements and subjective pain scores in children with minor injuries. Acta Paediatr. 2013;102(11):e502–6. https://doi.org/10.1111/apa.12382. Epub 2013 Aug 30.

    Article  PubMed  Google Scholar 

  17. Garcia-Larrea L, Bastuji H. Pain and consciousness. Prog Neuro-Psychopharmacol Biol Psychiatry. 2018;87(Pt B):193–9. https://doi.org/10.1016/j.pnpbp.2017.10.007. Epub 2017 Oct 12.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Carlo V. Bellieni .

Rights and permissions

Reprints and permissions

Copyright information

© 2022 The Author(s), under exclusive license to Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Bellieni, C.V. (2022). The Pain Principle. In: A New Holistic-Evolutive Approach to Pediatric Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-030-96256-2_14

Download citation

  • DOI: https://doi.org/10.1007/978-3-030-96256-2_14

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-96255-5

  • Online ISBN: 978-3-030-96256-2

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics