Abstract
Here, we illustrate what we mean by speaking of therapeutic futility and therapeutic fury. The latter concept is widely used in the Latin-speaking countries and is usually confused with the concept of futility; instead, it must be properly associated with the concept of damage or pain unfairily caused. Starting from these two definitions, let’s analyze the main criteria on which it is decided whether futility or fury are present: the principle of best interest, the harm principle, and the principle of double effect. Finally, we introduce a new concept, the pain principle. According to this principle, treatment is unfair when it is useless; but it is also unfair when it causes pain that can be objectively highlighted, is not required, and cannot be overcome; when this is present, the treatments currently in progress must be modulated or suspended. If pain is not present, treatment can be continued unless it is useless. Of course, we cannot accept the idea that a treatment is useless if it allows the life of a disabled child, though very damaged but without present or future pain. Nonetheless, severely mentally impaired children, who have no social interaction, will not enjoy the continuation of life at the cost of pain, so if any pain is present in these children, present treatments can be discontinued in favor of less invasive though less effective ones. This principle overcomes the risk of therapeutic abandonment and vitalism, and is simpler and more objective to apply than the principle of best interest.
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References
Bellieni CV, Buonocore G. Using the pain principle to provide a new approach to invasive treatments and end-of-life care. Acta Paediatr. 2019;108(2):206–7. https://doi.org/10.1111/apa.14535. Epub 2018 Sep 17.
Picozzi M, Pegoraro R. Taking care of the vulnerable: the criterion of proportionality. Am J Bioeth. 2017;17(8):44–5. https://doi.org/10.1080/15265161.2017.1340997.
Bellieni C. The pain principle: an ethical approach to end-of-life decisions. Ethics Med. 2020;36(1):41–9.
Spence K. The best interest principle as a standard for decision making in the care of neonates. J Adv Nurs. 2000;31(6):1286–92. https://doi.org/10.1046/j.1365-2648.2000.01402.x.
Jonas M, Ryan S. The discourse of dignity in the Charlie Gard, Alfie Evans and Isaiah Haastrup Cases. Med Law Rev. 2020;29(1):24–47. https://doi.org/10.1093/medlaw/fwaa038. Epub ahead of print.
Janvier A, Farlow B, Verhagen E, Barrington K. End-of-life decisions for fragile neonates: navigating between opinion and evidence-based medicine. Arch Dis Child Fetal Neonatal Ed. 2017;102(2):F96–F97.
Potter J, Shields S, Breen R. Palliative sedation, compassionate extubation, and the principle of double effect: an ethical analysis. Am J Hosp Palliat Care. 2021;38(12):1536–40. https://doi.org/10.1177/1049909121998630. Epub ahead of print.
Reed PA. Opioids, double effect, and the prospects of hastening death. J Med Philos. 2021;46(5):505–15. https://doi.org/10.1093/jmp/jhab016. Epub ahead of print.
Diekema DS. Parental refusals of medical treatment: the harm principle as threshold for state intervention. Theor Med Bioeth. 2004;25(4):243–64. https://doi.org/10.1007/s11017-004-3146-6.
Kon AA, Shepard EK, Sederstrom NO, Swoboda SM, Marshall MF, Birriel B, Rincon F. Defining futile and potentially inappropriate interventions: a policy statement from the Society of Critical Care Medicine Ethics Committee. Crit Care Med. 2016;44(9):1769–74. https://doi.org/10.1097/CCM.0000000000001965.
Benoit B, Martin-Misener R, Newman A, Latimer M, Campbell-Yeo M. Neurophysiological assessment of acute pain in infants: a scoping review of research methods. Acta Paediatr. 2017;106(7):1053–66. https://doi.org/10.1111/apa.13839. Epub 2017 May 9.
Shetty V, Suresh LR, Hegde AM. Effect of virtual reality distraction on pain and anxiety during dental treatment in 5 to 8 year old children. J Clin Pediatr Dent. 2019;43(2):97–102. https://doi.org/10.17796/1053-4625-43.2.5. Epub 2019 Feb 7.
Beltramini A, Milojevic K, Pateron D. Pain assessment in newborns, infants, and children. Pediatr Ann. 2017;46(10):e387–95. https://doi.org/10.3928/19382359-20170921-03.
Jain AA, Yeluri R, Munshi AK. Measurement and assessment of pain in children—a review. J Clin Pediatr Dent. 2012;37(2):125–36. https://doi.org/10.17796/jcpd.37.2.k84341490806t770.
Chiera M, Cerritelli F, Casini A, Barsotti N, Boschiero D, Cavigioli F, Corti CG, Manzotti A. Heart rate variability in the perinatal period: a critical and conceptual review. Front Neurosci. 2020;14:561186. https://doi.org/10.3389/fnins.2020.561186.
Strehle EM, Gray WK. Comparison of skin conductance measurements and subjective pain scores in children with minor injuries. Acta Paediatr. 2013;102(11):e502–6. https://doi.org/10.1111/apa.12382. Epub 2013 Aug 30.
Garcia-Larrea L, Bastuji H. Pain and consciousness. Prog Neuro-Psychopharmacol Biol Psychiatry. 2018;87(Pt B):193–9. https://doi.org/10.1016/j.pnpbp.2017.10.007. Epub 2017 Oct 12.
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Bellieni, C.V. (2022). The Pain Principle. In: A New Holistic-Evolutive Approach to Pediatric Palliative Care. Springer, Cham. https://doi.org/10.1007/978-3-030-96256-2_14
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