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Patient and Family Tools to Aid in Education and Decision-Making About Oncofertility

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Textbook of Oncofertility Research and Practice

Abstract

Adolescent and young adult patients diagnosed with cancer often respond by focusing more on immediate treatment needs, and not the potential consequences of late or long-term effects. However, addressing fertility preservation prior to the initiation of cancer treatment can help reduce the number of cancer survivors who experience infertility-related distress. Research has consistently shown that cancer patients and survivors desire discussion and disclosure regarding fertility risks even if they elect not to pursue fertility preservation. Decision-making in fertility preservation among cancer patients is complex and intricate, and tools to assist the healthcare professional or researcher in assessing the patient’s values and understanding of fertility are limited. Decisions about fertility preservation may be considered to have three components: risk appraisal, information integration, and long-term consideration. This chapter covers the criteria and framework for creating a patient decision aid and provides examples of currently available oncofertility-related educational materials and decision aids.

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References

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Author information

Authors and Affiliations

  1. Department of Obstetrics and Gynecology, New York University, New York, NY, USA

    Gwendolyn P. Quinn

  2. Department of Health Outcomes and Behavior, Moffitt Cancer Center, Tampa, FL, USA

    Susan Thomas Vadaparampil

  3. Department of Oncologic Sciences, Moffitt Cancer Center and Research Institute, Health Outcomes & Behavior Program, University of South Florida, Morsani College of Medicine, Tampa, FL, USA

    Susan Thomas Vadaparampil

  4. Department of Research Integrity & Compliance, University of South Florida, Tampa, FL, USA

    Ivana Sehovic-Neff

  5. Department of Health Care Research and Evaluation, American Institutes for Research, Chicago, IL, USA

    Marla L. Clayman

Authors
  1. Gwendolyn P. Quinn
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  2. Susan Thomas Vadaparampil
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  3. Ivana Sehovic-Neff
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  4. Marla L. Clayman
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Corresponding author

Correspondence to Gwendolyn P. Quinn .

Editor information

Editors and Affiliations

  1. Department of Obstetrics and Gynecology, Northwestern University , Chicago, IL, USA

    Teresa K. Woodruff

  2. Department of Obstetrics and Gynecology, University of Pennsylvania, Philadelphia, PA, USA

    Divya K. Shah

  3. Department of Obstetrics and Gynecology, University of Rochester, Rochester, NY, USA

    Wendy S. Vitek

Review Questions and Answers

Review Questions and Answers

  1. Q1.

    What are the three components of decision-making?

  2. A1.

    Risk appraisal, information integration, and long-term consideration.

  1. Q2.

    What are the three ways decision aids can assist patients?

  2. A2.

    Provide facts, clarify values, and share values with the provider.

  1. Q3.

    What is learner verification?

  2. A3.

    A framework for assessing health education materials.

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Quinn, G.P., Vadaparampil, S.T., Sehovic-Neff, I., Clayman, M.L. (2019). Patient and Family Tools to Aid in Education and Decision-Making About Oncofertility. In: Woodruff, T., Shah, D., Vitek, W. (eds) Textbook of Oncofertility Research and Practice. Springer, Cham. https://doi.org/10.1007/978-3-030-02868-8_26

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  • DOI: https://doi.org/10.1007/978-3-030-02868-8_26

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-02867-1

  • Online ISBN: 978-3-030-02868-8

  • eBook Packages: MedicineMedicine (R0)

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