Skip to main content

CBPR to Prevent HIV within Racial/Ethnic, Sexual, and Gender Minority Communities: Successes with Long-Term Sustainability

  • Chapter
  • First Online:

Abstract

HIV disproportionately affects racial/ethnic, sexual, and gender minority and economically disadvantaged communities. Our community-based participatory research (CBPR) approach to HIV prevention has more than a decade-long history of sustained success. Our CBPR partnership comprises scientists and lay-experts from academic, government, and nongovernment institutions, including community-based organizations and businesses, and the community at large. We focus on developing, implementing, and evaluating prevention interventions to reduce HIV and sexually transmitted infections and increase access to health services among immigrant Latinos, including Latino men and women; and African-American/black, Latino, and white gay and bisexual men, men who have sex with men, and transgender persons. In this chapter, we identify and describe our partnership’s underlying values; predisposing, enabling, and reinforcing factors that influence and sustain our approach to CBPR; and our own real-world challenges to engagement, partnership, and CBPR.

This is a preview of subscription content, log in via an institution.

Buying options

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   84.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   109.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD   109.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

References

  1. Rhodes SD, Malow RM, Jolly C. Community-based participatory research: a new and not-so-new approach to HIV/AIDS prevention, care, and treatment. AIDS Educ Prev. 2010;22(3):173–83.

    Article  PubMed Central  PubMed  Google Scholar 

  2. Minkler M, Wallerstein N. Introduction to community based participatory research. In: Minkler M, Wallerstein N, editors. Community-based participatory research for health. San Francisco: Jossey-Bass; 2003. p. 3–26.

    Google Scholar 

  3. Cashman SB, Adeky S, Allen AJ, Corburn J, Israel BA, Montaño J, et al. The power and the promise: working with communities to analyze data, interpret findings, and get to outcomes. Am J Public Health. 2008;98(8):1407–17.

    Article  PubMed Central  PubMed  Google Scholar 

  4. Israel BA, Eng E, Schulz AJ, Parker EA. Introduction to methods in community-based participatory research for health. In: Israel BA, Eng E, Schulz AJ, Parker EA, editors. Methods in community-based participatory research. San Francisco: Jossey-Bass; 2005.

    Google Scholar 

  5. Israel BA, Krieger J, Vlahov D, Ciske S, Foley M, Fortin P, et al. Challenges and facilitating factors in sustaining community-based participatory research partnerships: lessons learned from the Detroit, New York City and Seattle Urban Research Centers. J Urban Health. 2006;83(6):1022–40.

    Article  PubMed Central  PubMed  Google Scholar 

  6. Rhodes SD, Hergenrather KC, Vissman AT, Stowers J, Davis AB, Hannah A, et al. Boys must be men, and men must have sex with women: a qualitative CBPR study to explore sexual risk among African American, Latino, and white gay men and MSM. Am J Mens Health. 2011;5(2):140–51.

    Article  PubMed Central  PubMed  Google Scholar 

  7. Wallerstein N, Oetzel J, Duran B, Tafoya G, Belone L, Rae R. What predicts outcomes in CBPR? In: Minkler M, Wallerstein N, editors. Community-based participatory research: from process to outcomes. San Francisco: Wiley; 2008. p. 371–92.

    Google Scholar 

  8. Rhodes SD, Duck S, Alonzo J, Downs M, Aronson RE. Intervention trials in community-based participatory research. In: Blumenthal D, DiClemente RJ, Braithwaite RL, Smith S, editors. Community-based participatory research: issues, methods, and translation to practice. New York: Springer; 2013. p. 157–80.

    Google Scholar 

  9. Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: assessing partnership approaches to improve public health. Annu Rev Public Health. 1998;19:173–202.

    Article  CAS  PubMed  Google Scholar 

  10. Seifer SD. Building and sustaining community-institutional partnerships for prevention research: findings from a national collaborative. J Urban Health. 2006;83(6):989–1003.

    Article  PubMed Central  PubMed  Google Scholar 

  11. Viswanathan M, Eng E, Ammerman A, Gartlehner G, Lohr KN, Griffith D, et al. Community-based participatory research: assessing the evidence. Evidence Report/Technology Assessment. Rockville, MD: Agency for Healthcare Research and Quality, 2004 July. Report No.: 99.

    Google Scholar 

  12. Reece M, Dodge B. A study in sexual health applying the principles of community-based participatory research. Arch Sex Behav. 2004;33(3):235–47.

    Article  PubMed Central  PubMed  Google Scholar 

  13. Reece M, Herbenick D, Sherwood-Puzzello C. Sexual health promotion and adult retail stores. J Sex Res. 2004;41(2):173–80.

    Article  PubMed  Google Scholar 

  14. Seifer SD, Maurana CA. Developing and sustaining community-campus partnerships: putting principles into practice. Partnersh Perspect. 2000;1(2):7–11.

    Google Scholar 

  15. Rhodes SD, Yee LJ. Public health and gay and bisexual men: A primer for practitioners, clinicians, and researchers. In: Shankle M, editor. The handbook of lesbian, gay, bisexual, and transgender public health: a practitioner’s guide to service. Binghamton: Haworth; 2006. p. 119–43.

    Google Scholar 

  16. Rhodes SD. Community-based participatory research. In Blessing JD, Forister JG, editors. Introduction to research and medical literature for health professionals. 3rd ed. Burlington: Jones & Bartlett; 2013. p. 167–87.

    Google Scholar 

  17. Rhodes SD, Duck S, Alonzo J, Daniel J, Aronson RE. Using community-based participatory research to prevent HIV disparities: assumptions and opportunities identified by the Latino partnership. J Acquir Immune Defic Syndr. 2013;63(Suppl 1):S32–5.

    Article  PubMed Central  PubMed  Google Scholar 

  18. Rhodes SD, McCoy TP, Hergenrather KC, Vissman AT, Wolfson M, Alonzo J, et al. Prevalence estimates of health risk behaviors of immigrant Latino men who have sex with men. J Rural Health. 2012;28(1):73–83.

    Article  PubMed Central  PubMed  Google Scholar 

  19. Rhodes SD, Hergenrather KC, Aronson RE, Bloom FR, Felizzola J, Wolfson M, et al. Latino men who have sex with men and HIV in the rural south-eastern USA: findings from ethnographic in-depth interviews. Cult Health Sex. 2010;12(7):797–812.

    Article  PubMed Central  PubMed  Google Scholar 

  20. Rhodes SD. Demonstrated effectiveness and potential of CBPR for preventing HIV in Latino populations. In: Organista KC, editor. HIV Prevention with Latinos: theory, research, and practice. New York: Oxford University Press; 2012. p. 83–102.

    Chapter  Google Scholar 

  21. Rhodes SD, Daniel J, Alonzo J, Duck S, Garcia M, Downs M, et al. A systematic community-based participatory approach to refining an evidence-based community-level intervention: the HOLA intervention for Latino men who have sex with men. Health Promot Pract. 2013;14(4):607–16.

    Article  PubMed Central  PubMed  Google Scholar 

  22. Rhodes SD, Mann L, Alonzo J, Simán M. F. Immigrant Latina transgender women: exploring health priorities through photovoice. In review.

    Google Scholar 

  23. Rhodes SD. Hookups or health promotion? An exploratory study of a chat room-based HIV prevention intervention for men who have sex with men. AIDS Educ Prev. 2004;16(4):315–27.

    Article  PubMed  Google Scholar 

  24. Rhodes SD, Hergenrather KC, Duncan J, Ramsey B, Yee LJ, Wilkin AM. Using community-based participatory research to develop a chat room-based HIV prevention intervention for gay men. Prog Community Health Partnersh. 2007;1(2):175–84.

    Article  PubMed  Google Scholar 

  25. Rhodes SD, Hergenrather KC, Duncan J, Vissman AT, Miller C, Wilkin AM, et al. A pilot intervention utilizing Internet chat rooms to prevent HIV risk behaviors among men who have sex with men. Pub Health Rep. 2010;125(Suppl 1):29–37.

    Google Scholar 

  26. Rhodes SD, Vissman AT, Stowers J, Miller C, McCoy TP, Hergenrather KC, et al. A CBPR partnership increases HIV testing among men who have sex with men (MSM): outcome findings from a pilot test of the CyBER/testing Internet intervention. Health Educ Behav. 2011;38(3):311–20.

    Article  PubMed Central  PubMed  Google Scholar 

  27. Dolwick Grieb SM, Amutah N, J. S, Smith H, Hammonds K, Rhodes SD. Preventing HIV through social inclusion using community-based participatory research. In: Taket A, Crisp BR, Graham M, Hanna L, Goldingay S, Wilson L, editors. Practising social inclusion. Oxford: Routledge; 2014. p. 193–204.

    Google Scholar 

  28. Alinsky S. Rules for radicals. New York: Random House; 1971.

    Google Scholar 

  29. Minkler M. Community-based research partnerships: challenges and opportunities. J Urban Health. 2005;82(2 Suppl 2):ii3–i12.

    PubMed Central  PubMed  Google Scholar 

  30. Cornwall A, Jewkes R. What is participatory research? Soc Sci Med. 1995;41(12):1667–76.

    Article  CAS  PubMed  Google Scholar 

  31. Eng E, Moore KS, Rhodes SD, Griffith D, Allison L, Shirah K, et al. Insiders and outsiders assess who is “the community”: participant observation, key informant interview, focus group interview, and community forum. In: Israel BA, Eng E, Schulz AJ, Parker E, editors. Methods for conducting community-based participatory research for health. 2nd ed. San Francisco: Jossey-Bass; 2013. p. 133–60.

    Google Scholar 

  32. Rhodes SD, Daniel J, Alonzo J, Vissman AT, Duck S, Downs M, et al. A snapshot of how latino heterosexual men promote sexual health within their social networks: process evaluation findings from an efficacious community-level intervention. AIDS Educ Prev. 2012;24(6):514–26.

    Article  PubMed Central  PubMed  Google Scholar 

  33. Rhodes SD, Eng E, Hergenrather KC, Remnitz IM, Arceo R, Montano J, et al. Exploring latino men’s HIV risk using community-based participatory research. Am J Health Behav. 2007;31(2):146–58.

    Article  PubMed  Google Scholar 

  34. Rhodes SD, Hergenrather KC, Bloom FR, Leichliter JS, Montaño J. Outcomes from a community-based, participatory lay health advisor HIV/STD prevention intervention for recently arrived immigrant Latino men in rural North Carolina, USA. AIDS Educ Prev. 2009;21(Suppl 1):104–9.

    Google Scholar 

  35. Hergenrather KC, Rhodes SD, Cowan CA, Bardhoshi G, Pula S. Photovoice as community-based participatory research: a qualitative review. Am J Health Behav. 2009;33(6):686–98.

    Article  PubMed  Google Scholar 

  36. Streng JM, Rhodes SD, Ayala GX, Eng E, Arceo R, Phipps S. Realidad Latina: Latino adolescents, their school, and a university use photovoice to examine and address the influence of immigration. J Interprof Care. 2004;18(4):403–15.

    Article  PubMed  Google Scholar 

  37. Lopez EDS, Robinson N, Eng E. Photovoice as a CBPR method: a case study with African American breast cancer survivors in rural eastern North Carolina. In: Israel BA, Eng E, Schulz AJ, Parker EA, editors. Methods for community-based participatory research for health. 2nd ed. San Francisco: Jossey-Bass; 2013. p. 489–515.

    Google Scholar 

  38. Rhodes SD, Hergenrather KC, Griffith D, Yee LJ, Zometa CS, Montaño J, et al. Sexual and alcohol use behaviours of Latino men in the South-eastern USA. Cult Health Sex. 2009;11(1):17–34.

    Article  PubMed  Google Scholar 

  39. Rhodes SD, Hergenrather KC. Recently arrived immigrant Latino men identify community approaches to promote HIV prevention. Am J Public Health. 2007;97(6):984–5.

    Article  PubMed Central  PubMed  Google Scholar 

  40. Berry NS, McQuiston C, Parrado EA, Olmos-Muniz JC. CBPR and ethnogrpahy: the perfect union. In: Israel BA, Eng E, Schulz A, Parker EA, editors. Methods for community-based participatory research for health. 2nd ed. San Francisco: Jossey-Bass; 2013. p. 305–34.

    Google Scholar 

  41. Beebe J. Rapid assessment process: an introduction. Walnut Creek: AltaMira Press; 2001.

    Google Scholar 

  42. Bloom F. Research report. Rapid assessment and syphilis. Anthropology News. 2001;42(2):56.

    Google Scholar 

  43. Trotter RT, Needle RH, Goosby E, Bates C, Singer M. A methodological model for rapid assessment, response, and evaluation: the RARE program in public health. Field Method. 2001;13(2):137–59.

    Article  Google Scholar 

  44. Sena AC, Hammer JP, Wilson K, Zeveloff A, Gamble J. Feasibility and acceptability of door-to-door rapid HIV testing among latino immigrants and their HIV risk factors in North Carolina. AIDS Patient Care STDS. 2010;24(3):165–73.

    Article  PubMed Central  PubMed  Google Scholar 

  45. Eng E, Blanchard L. Action-oriented community diagnosis: a health education tool. Int Q Community Health Educ. 1991;11(2):93–110.

    Article  Google Scholar 

  46. Green LW, Krueter M, Krueter MW. Health promotion planning: an educational and environmental approach. 3rd ed. Mountain View: Mayfield Publications; 1999.

    Google Scholar 

  47. Margolis LH, Stevens R, Laraia B, Ammerman A, Harlan C, Dodds J, et al. Educating students for community-based partnerships. J Community Pract. 2000;7(4):21–34.

    Article  Google Scholar 

  48. Parker EA, Eng E, Laraia B, Ammerman A, Dodds J, Margolis L, et al. Coalition building for prevention: lessons learned from the North Carolina community-based public health initiative. J Public Health Manag Pract. 1998;4(2):25–36.

    Article  CAS  PubMed  Google Scholar 

  49. Cuadros P. A home on the field: How one championship team inspires hope for the revival of small town America. New York: HarperCollins; 2006.

    Google Scholar 

  50. Rhodes SD, Hergenrather KC, Montano J, Remnitz IM, Arceo R, Bloom FR, et al. Using community-based participatory research to develop an intervention to reduce HIV and STD infections among Latino men. AIDS Educ Prev. 2006;18(5):375–89.

    Article  PubMed  Google Scholar 

  51. Rhodes SD, Hergenrather KC, Wilkin AM, Jolly C. Visions and voices: indigent persons living with HIV in the southern United States use photovoice to create knowledge, develop partnerships, and take action. Health Promot Pract. 2008;9(2):159–69.

    Article  PubMed  Google Scholar 

  52. Arnstein SR. A ladder of citizen participation. J Am Inst Plan. 1969;35:216–24.

    Article  Google Scholar 

  53. Rhodes SD, McCoy TP, Vissman AT, DiClemente RJ, Duck S, Hergenrather KC, et al. A randomized controlled trial of a culturally congruent intervention to increase condom use and HIV testing among heterosexually active immigrant Latino men. AIDS Behav. 2011;15(8):1764–75.

    Article  PubMed Central  PubMed  Google Scholar 

  54. Painter TM, Organista KC, Rhodes SD, Sañudo FM. Interventions to prevent HIV and other sexually transmitted diseases among Latino migrants. In: Organista KC, editor. HIV prevention with Latinos: theory, research, and practice. New York: Oxford University Press; 2012. p. 351–81.

    Chapter  Google Scholar 

  55. Rhodes SD, Tanner A, Duck S, Aronson RE, Alonzo J, Wilkin AM, et al. Female sex work within the Latino community in central North Carolina: an exploratory qualitative community-based participatory research study. Prog Community Health Partnersh. 2012;6(4):417–27.

    Article  PubMed Central  PubMed  Google Scholar 

  56. Catania DA. Damaging Whitman-Walker. The Washington Post. 2009 May 5, 2009.

    Google Scholar 

  57. Pollack H. In the US, the HIV prevention fight has stalled. The Washington Post. 2013.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Scott D. Rhodes PhD, MPH .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2014 Springer Science+Business Media New York

About this chapter

Cite this chapter

Rhodes, S. et al. (2014). CBPR to Prevent HIV within Racial/Ethnic, Sexual, and Gender Minority Communities: Successes with Long-Term Sustainability. In: Rhodes, S. (eds) Innovations in HIV Prevention Research and Practice through Community Engagement. Springer, New York, NY. https://doi.org/10.1007/978-1-4939-0900-1_7

Download citation

  • DOI: https://doi.org/10.1007/978-1-4939-0900-1_7

  • Published:

  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4939-0899-8

  • Online ISBN: 978-1-4939-0900-1

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics