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Use of Health Registers

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Handbook of Epidemiology

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Abstract

Routine data are data collected continuously or at least repeatedly with some time intervals. They are collected in various ways, e.g., registration by the health services or by interviews with patients or population groups. The data could then be stored and administered in register format. Health registers contain data on persons with diseases or health-related events. The coverage can vary from a total registration to a population sample and from national to regional or local coverage. Data can be routinely collected for various reasons, from economic and administrative purposes to more strict epidemiological purposes.

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References

  • Allebeck P (2002) The revised Helsinki declaration: good for patients? Good for public health? Scand J Public Health 30:1–4

    Article  PubMed  Google Scholar 

  • Arffman M, Ilanne-Parikka P, Keskimäki I, Kurkela O, Lindström J, Sund R, Winell K (2020) FinDM database on diabetes in Finland. Discussion paper: 2020_019. Finnish Institute for Health and Welfare. https://urn.fi/URN:ISBN:978-952-343-492-9

  • Auvinen A, Hakama M, Arvela H, Hakulinen T, Rahola T, Suomela M, Söderman B, Rytömaa T (1994) Fallout from Chernobyl and incidence of childhood leukemia in Finland, 1976–92. BMJ 309:151–154

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Bergh T, Ericson A, Hillensjö T, Nygren K-G, Wennerholm UB (1999) Deliveries and children born after in-vitro fertilization in Sweden 1982–1995: a retrospective cohort study. Lancet 354:1579–1585

    Article  CAS  PubMed  Google Scholar 

  • Bigbee WL, Jensen RH, Veidebaum T, Tekkel M, Rahu M, Stengrevics A, Auvinen A, Hakulinen T, Servomaa K, Rytömaa T, Obrams GI, Boice JD Jr (1997) Biodosimetry of Chernobyl cleanup workers from Estonia and Latvia using the glycophorin A in vivo somatic cell mutation assay. Radiat Res 147:215–224

    Article  CAS  PubMed  Google Scholar 

  • Brenner H, Hakulinen T (2002) Up-to-date long-term survival curves of patients with cancer by period analysis. J Clin Oncol 20:826–832

    Article  PubMed  Google Scholar 

  • Bright RA, Avorn J, Everitt DE (1989) Medicaid data as a source for epidemiological studies: strengths and limitations. J Clin Epidemiol 42:937–945

    Article  CAS  PubMed  Google Scholar 

  • Capocaccia R, Gavin A, Hakulinen T, Lutz JM, Sant M (eds) (2009) Survival of cancer patients in Europe, 1995–2002: the EUROCARE 4 study. Eur J Cancer 45:901–1094

    Google Scholar 

  • Carstensen B, Kristensen JK, Marcussen MM, Borch-Johnsen K (2011) The national diabetes register. Scand J Public Health 39(Suppl 7):58–61

    Article  PubMed  Google Scholar 

  • Carstensen B, Read SH, Friis S, Sund R, Keskimäki I, Svensson AM, Ljung R, Wild SH, Kerssens JJ, Harding JL, Magliano DJ, Gudbjörnsdottir S, Diabetes and Cancer Research Consortium (2016) Cancer incidence in persons with type 1 diabetes: a five-country study of 9,000 cancers in type 1 diabetic individuals. Diabetologia 59(5):980–988. https://doi.org/10.1007/s00125-016-3884-9

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Cartwright DW, Armknecht PA (1980) Statistical uses of administrative records. Rev Public Data Use 8:13–27

    Google Scholar 

  • Cnattingius S, Haglund B (1997) Decreasing smoking prevalence during pregnancy in Sweden: the effect for small-for-gestational-age birth. Am J Public Health 87:410–413

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Colhoun HM, SDRN Epidemiology Group (2009) Use of insulin glargine and cancer incidence in Scotland: a study from the Scottish Diabetes Research Network Epidemiology Group. Diabetologia 52:1755–1765

    Article  PubMed  PubMed Central  Google Scholar 

  • Connell FA, Diehr P, Hart LG (1987) The use of large data bases in health care studies. Annu Rev Public Health 8:51–74

    Article  CAS  PubMed  Google Scholar 

  • Currie CJ, Poole CD, Gale EA (2009) The influence of glucose-lowering therapies on cancer risk in type 2 diabetes. Diabetologia 52:1766–1777

    Article  CAS  PubMed  Google Scholar 

  • David M (1980) Access to data: the frustration and utopia of the researchers. Rev Public Data Use 8:327–337

    Google Scholar 

  • Dickman PW, Gibberd RW, Hakulinen T (1997) Estimating potential savings in cancer deaths by eliminating regional and social class variation in cancer survival in the Nordic countries. J Epidemiol Community Health 51:289–298

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Dickman PW, Hakulinen T, Luostarinen T, Pukkala E, Sankila R, Söderman B, Teppo L (1999) Survival of cancer patients in Finland 1955–1994. Acta Oncol 38(Suppl 12):1–103

    Article  PubMed  Google Scholar 

  • Dunn HL (1946) Record linkage. Am J Public Health 36:1412–1416

    Article  Google Scholar 

  • EIT Health Scandinavia (2022). https://www.eithealth-scandinavia.eu/biobanksregisters/registers/

  • Ekblad M, Gissler M, Lehtonen L, Korkeila J (2010) Prenatal smoking exposure and the risk of psychiatric morbidity into young adulthood. Arch Gen Psychiatry 67:841–849

    Article  PubMed  Google Scholar 

  • Ekelund H, Finnström O, Gunnarskog J, Källén B, Larsson Y (1993) Administration of vitamin K to newborn infants and childhood cancer. BMJ 307:89–91

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • EpC, Centre for Epidemiology, National Board of Health and Welfare (2003) A finger on the pulse. Monitoring public health and social conditions in Sweden 1992–2002. EpC, Stockholm

    Google Scholar 

  • Ericson A, Källén B (1994) Pregnancy outcome in Sweden after the Chernobyl accident. Environ Res 67:149–159

    Article  CAS  PubMed  Google Scholar 

  • Ericson A, Gunnarskog J, Källén B, Otterblad Olausson P (1991) Surveillance of smoking during pregnancy in Sweden, 1983–1987. Acta Obstet Gynaecol Scand 70:111–117

    Article  CAS  Google Scholar 

  • European Commission (2015) Special Eurobarometer 431. Data protection. Survey conducted by TNS opinion & social at the request of the European Commission, Directorate-General for Justice and Consumers (DG JUST). Survey coordinated by the Directorate-General Communication ‘Strategy, Corporate Communication Actions and Eurobarometer’ Unit. Brussels, June 2015. https://doi.org/10.2838/552336

  • European Union (1995) Directive 95/46/EC of the European Parliament and of the Council of 24 October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data. http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=CELEX:31995L0046:EN:HTML

  • European Union (2016) Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation). http://data.europa.eu/eli/reg/2016/679/oj https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=CELEX:32016R0679

  • Feychting M, Ahlbom A (1993) Magnetic fields and cancer in children residing near Swedish high voltage power lines. Am J Epidemiol 138:467–481

    Article  CAS  PubMed  Google Scholar 

  • Finnish Cancer Registry – Institute for Statistical and Epidemiological Cancer Research (2011) Cancer incidence in Finland 2008 and 2009. Cancer Society of Finland Publication No. 84. Finnish Cancer Registry, Helsinki

    Google Scholar 

  • Furu K, Wettermark B, Andersen M, Martikainen JE, Almarsdottir AB, Sørensen HT (2010) The Nordic countries as a cohort for pharmacoepidemiological research. Basic Clin Pharmacol Toxicol 106:86–94

    Article  CAS  PubMed  Google Scholar 

  • Garpenby P, Carlsson P (1994) The role of national quality registers in the Swedish health service. Health Policy 29(3):183–195

    Article  CAS  PubMed  Google Scholar 

  • Gissler M (2010) Registration of births and induced abortions in the Nordic countries. In: Finnish demographic yearbook XLV 2010. The Population Research Institute. Vammalan Kirjapaino Oy, Vammala, pp 171–178

    Google Scholar 

  • Gissler M, Louhiala P, Hemminki E (1997) Nordic medical birth registers in epidemiological research. Eur J Epidemiol 13:169–175

    Article  CAS  PubMed  Google Scholar 

  • Golding J, Greenwood R, Birmingham K, Mott M (1992) Childhood cancer, intramuscular vitamin K, and pethidine given during labour. BMJ 305:341–346

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Häkkinen U (2011) The PERFECT project: measuring performance of health care episodes. Ann Med 43(Suppl 1):S1–S3

    Article  PubMed  Google Scholar 

  • Häkkinen U, Sund R (2021) What works? The association of organisational structure, reforms and interventions on efficiency in treating hip fractures. Soc Sci Med 274:113611. https://doi.org/10.1016/j.socscimed.2020.113611

    Article  PubMed  Google Scholar 

  • Häkkinen U, Malmivaara A, Sund R (2011) PERFECT-conclusions and future developments. Ann Med 43(Suppl 1):S54–S57

    Article  PubMed  Google Scholar 

  • Hallqvist J, Lundberg M, Diderichsen F, Ahlbom A (1998) Socioeconomic differences in risk of myocardial infarction 1971–1994 in Sweden: time trends, relative risks and population attributable risks. Int J Epidemiol 27:410–415

    Article  CAS  PubMed  Google Scholar 

  • Hannan EL, Kilburn JF, Racz M, Shields E, Chassin MR (1994) Improving the outcomes of coronary artery bypass surgery in New York State. JAMA 271:761–766

    Article  CAS  PubMed  Google Scholar 

  • Hannan EL, Siu AL, Kumar D, Kilburn H Jr, Chassin MR (1995) The decline in coronary bypass surgery mortality in New York State. The role of surgeon volume. JAMA 273:209–213

    Article  CAS  PubMed  Google Scholar 

  • Hemkens LG, Grouven U, Bender R, Günster C, Gutschmidt S, Selke GW, Sawicki PT (2009) Risk of malignancies in patients with diabetes treated with human insulin or insulin analogues: a cohort study. Diabetologia 52:1732–1744

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Hemminki K, Li X (2001) Familial colorectal adenocarcinoma from the Swedish Family-Cancer database. Int J Cancer 94:743–748

    Article  CAS  PubMed  Google Scholar 

  • Hemminki K, Vaittinen P (1998) National database of familial cancer in Sweden. Genet Epidemiol 15:225–236

    Article  CAS  PubMed  Google Scholar 

  • Henningsen A-K, Romundstad LB, Gissler M, Nygren K-G, Lidegaard Ø, Skjaerven R, Tiitinen A, Nyboe Andersen A, Wennerholm U-B, Pinborg A (2011) Infant and maternal health monitoring using a combined Nordic database on ART and safety. Acta Obstet Gynaecol Scand 90:683–691

    Article  Google Scholar 

  • Henriksson G, Weitoft GR, Allebeck P (2010) Associations between income inequality at municipality level and health depend on context – a multilevel analysis on myocardial infarction in Sweden. Soc Sci Med 71:1141–1149

    Article  PubMed  Google Scholar 

  • Hogervorst MA, Pontén J, Vreman RA, Mantel-Teeuwisse AK, Goettsch WG (2022) Real world data in health technology assessment of complex health technologies. Front Pharmacol 13:837302. https://doi.org/10.3389/fphar.2022.837302

    Article  PubMed  PubMed Central  Google Scholar 

  • International Association for Cancer Registries (1992) Guidelines on confidentiality in the Cancer Registry. International Agency for Research on Cancer IARC internal report no. 92/003, Lyon

    Google Scholar 

  • IPHECA (International Programme on the Health Effects of the Chernobyl Accident) (1996) Health consequences of the Chernobyl accident. Results of the IPHECA pilot projects and related national programmes. World Health Organization, Geneva

    Google Scholar 

  • Jensen OM, Whelan S (1991) Chapter 4: planning a cancer registry. In: Jensen OM, Parkin DM, Maclennan R, Muir CS, Skeet RG (eds) Cancer registration: principles and methods. IARC scientific publications no. 95. IARC, Lyon, pp 22–28

    Google Scholar 

  • Jonasson JM, Ljung R, Talbäck M, Haglund B, Gudbjörnsdòttir S, Steineck G (2009) Insulin glargine use and short-term incidence of malignancies-a population-based follow-up study in Sweden. Diabetologia 52:1745–1754

    Article  CAS  PubMed  Google Scholar 

  • Kahila H, Gissler M, Sarkola T, Autti-Rämö I, Halmesmäki E (2010) Maternal welfare, morbidity and mortality 6–15 years after a pregnancy complicated by alcohol and substance abuse: a register-based case-control follow-up study of 524 women. Drug Alcohol Depend 111:215–221

    Article  PubMed  Google Scholar 

  • Kärrholm J (2010) The Swedish Hip Arthroplasty Register (www.shpr.se). Acta Orthop 81:3–4

    Article  PubMed  PubMed Central  Google Scholar 

  • Kazakov VS, Demidchik EP, Astakhova LN (1992) Thyroid cancer after Chernobyl. Nature 359:21

    Article  CAS  PubMed  Google Scholar 

  • Kieler H, Artama M, Engeland A, Ericsson Ö, Furu K, Gissler M, Nørgaard M, Beck Nielsen R, Stephansson O, Valdimarsdóttir U, Zoega H, Haglund B (2012) Selective serotonin-reuptake inhibitors during pregnancy and risks of persistent pulmonary hypertension of the newborn: population based cohort study from the five Nordic countries. BMJ 344:d8012

    Article  PubMed  Google Scholar 

  • Kiivet R, Sund R, Linna M, Silverman B, Pisarev H, Friedman N (2013) Methodological challenges in international performance measurement using patient-level administrative data. Health Policy 112(1–2):110–121. https://doi.org/10.1016/j.healthpol.2013.05.011

    Article  PubMed  Google Scholar 

  • Klemetti R, Gissler M, Sevón T, Koivurova S, Ritvanen A, Hemminki E (2005) Children born after assisted fertilization have an increased rate of major congenital anomalies. Fertil Steril 84:1300–1307

    Article  PubMed  Google Scholar 

  • Koponen AM, Nissinen NM, Gissler M, Sarkola T, Autti-Rämö I, Kahila H (2020) Cohort profile: ADEF Helsinki – a longitudinal register-based study on exposure to alcohol and drugs during foetal life. Nordisk Alkohol Nark 37(1):32–42. https://doi.org/10.1177/1455072519885719

    Article  PubMed  Google Scholar 

  • Lampi P, Hakulinen T, Luostarinen T, Pukkala E, Teppo L (1992) Cancer incidence following chlorophenol exposure in a community in Southern Finland. Arch Environ Health 47:167–175

    Article  CAS  PubMed  Google Scholar 

  • Langefors B (1993) Essays on Infology. Summing up and planning for the future. Department of Information Systems, University of Göteborg, Gothenburg

    Google Scholar 

  • Last JM (1988) A dictionary of epidemiology. International Epidemiological Association, 2nd edn. Oxford University Press, New York

    Google Scholar 

  • Leinonen MK, Miettinen J, Heikkinen S, Pitkäniemi J, Malila N (2017) Quality measures of the population-based Finnish Cancer Registry indicate sound data quality for solid malignant tumours. Eur J Cancer 77:31–39. https://doi.org/10.1016/j.ejca.2017.02.017

    Article  PubMed  Google Scholar 

  • Levin D, Bell S, Sund R, Hartikainen SA, Tuomilehto J, Pukkala E, Keskimäki I, Badrick E, Renehan AG, Buchan IE, Bowker SL, Minhas-Sandhu JK, Zafari Z, Marra C, Johnson JA, Stricker BH, Uitterlinden AG, Hofman A, Ruiter R, de Keyser CE, MacDonald TM, Wild SH, McKeigue PM, Colhoun HM, Scottish Diabetes Research Network Epidemiology Group; Diabetes and Cancer Research Consortium (2015) Pioglitazone and bladder cancer risk: a multipopulation pooled, cumulative exposure analysis. Diabetologia 58(3):493–504. https://doi.org/10.1007/s00125-014-3456-9

    Article  CAS  PubMed  Google Scholar 

  • Li J, Vestergaard M, Obel C, Christensen J, Precht DH, Lu M, Olsen J (2009) A nationwide study on the risk of autism after prenatal stress exposure to maternal bereavement. Pediatrics 123:1102–1107

    Article  PubMed  Google Scholar 

  • Li G, Sajobi TT, Menon BK, Korngut L, Lowerison M, James M, Wilton SB, Williamson T, Gill S, Drogos LL, Smith EE, Vohra S, Hill MD, Thabane L, 2016 Symposium on Registry-Based Randomized Controlled Trials in Calgary (2016) Registry-based randomized controlled trials- what are the advantages, challenges, and areas for future research? J Clin Epidemiol 80:16–24. https://doi.org/10.1016/j.jclinepi.2016.08.003

    Article  PubMed  Google Scholar 

  • Lindström P, Janzon L, Sternby NH (1997) Declining autopsy rate in Sweden: a study of causes and consequences in Malmö, Sweden. J Int Med 50:367–375

    Google Scholar 

  • Ludvigsson JF, Otterblad-Olausson P, Pettersson BU, Ekbom A (2009) The Swedish personal identity number: possibilities and pitfalls in healthcare and medical research. Eur J Epidemiol 24(11):659–667

    Article  PubMed  PubMed Central  Google Scholar 

  • Ludvigsson JF, Andersson E, Ekbom A, Feychting M, Kim JL, Reuterwall C, Heurgren M, Olausson PO (2011) External review and validation of the Swedish national inpatient register. BMC Public Health 11:450

    Article  PubMed  PubMed Central  Google Scholar 

  • Manderbacka K, Arffman M, Leyland A, McCallum A, Keskimäki I (2009) Change and persistence in healthcare inequities: access to elective surgery in Finland in 1992–2003. Scand J Public Health 37:131–138

    Article  PubMed  Google Scholar 

  • Mattsson B (1984) Cancer registration in Sweden. Studies on completeness and validity of incidence and mortality registers. Thesis. Karolinska Institutet, Stockholm

    Google Scholar 

  • McDonald CJ, Hui SL (1991) The analysis of humungous databases: problems and promises. Stat Med 10:511–520

    Article  CAS  PubMed  Google Scholar 

  • Miettunen J, Suvisaari J, Haukka J, Isohanni M (2011) Use of register data for psychiatric epidemiology in the Nordic countries. In: Tsuang MT, Tohen M, Jones PB (eds) Textbook in psychiatric epidemiology, 3rd edn. Wiley-Blackwell, Chichester, pp 117–131

    Chapter  Google Scholar 

  • Mortensen LH, Helweg-Larsen K, Andersen AM (2011) Socioeconomic differences in perinatal health and disease. Scand J Public Health 39(Suppl 7):110–114

    Article  PubMed  Google Scholar 

  • Motheral B, Brooks J, Clark MA, Crown WH, Davey P, Hutchins D, Martin BC, Stang P (2003) A checklist for retrospective database studies-report of the ISPOR Task Force on Retrospective Databases. Value Health 6:90–97

    Article  PubMed  Google Scholar 

  • Nomesco (2017) Health Statistics for the Nordic Countries 2017. Nordic Medico-Statistical Committee. https://urn.kb.se/resolve?urn=urn%3Anbn%3Ase%3Anorden%3Aorg%3Adiva-4982

  • Nordtveit TI, Melve KK, Albrechtsen S, Skjaerven R (2008) Maternal and paternal contribution to intergenerational recurrence of breech delivery: population based cohort study. BMJ 336:872–876

    Article  PubMed  PubMed Central  Google Scholar 

  • OECD, Organisation for Economic Co-operation and Development (2002) Measuring up. Improving health system performance in OECD countries. OECD, Paris

    Google Scholar 

  • Opdahl S, Henningsen AA, Bergh C, Gissler M, Romundstad LB, Petzold M, Tiitinen A, Wennerholm UB, Pinborg AB (2020) Data Resource Profile: Committee of Nordic Assisted Reproductive Technology and Safety (CoNARTaS) cohort. Int J Epidemiol 49(2):365–366f. https://doi.org/10.1093/ije/dyz228

    Article  PubMed  Google Scholar 

  • Otterblad Olausson P, Cnattingius S, Haglund B (1999) Teenage pregnancies and risk of late fetal death and infant mortality. Br J Obstet Gynaecol 106:116–121

    Article  Google Scholar 

  • Paananen R, Gissler M (2011) Cohort profile: the 1987 Finnish Birth Cohort. Int J Epidemiol 41(4):941–945

    Article  PubMed  Google Scholar 

  • Padmanabhan S, Carty L, Cameron E et al (2019) Approach to record linkage of primary care data from Clinical Practice Research Datalink to other health-related patient data: overview and implications. Eur J Epidemiol 34:91–99. https://doi.org/10.1007/s10654-018-0442-4

    Article  PubMed  Google Scholar 

  • Parker MJ, Currie CT, Mountain JA, Thorngren K-G (1998) Standardised audit of hip fracture in Europe (SAHFE). Hip Int 8:10–15

    Article  Google Scholar 

  • Peltola M, Juntunen M, Häkkinen U, Rosenqvist G, Seppälä TT, Sund R (2011) A methodological approach for register-based evaluation of cost and outcomes in health care. Ann Med 43(Suppl 1):S4–S13

    Article  PubMed  Google Scholar 

  • Percy C, Muir C (1989) The international comparability of cancer mortality data. Results of an international certificate study. Am J Epidemiol 129:934–946

    Article  CAS  PubMed  Google Scholar 

  • Pershagen G, Åkerblom G, Axelson O, Clavensjö B, Damber L, Desai G, Enflo A, Lagarde F, Mellander H, Svartengren M, Swedjemark GA (1994) Residential radon exposure and lung cancer in Sweden. N Engl J Med 330:159–164

    Article  CAS  PubMed  Google Scholar 

  • Potvin L, Champagne F (1986) Utilization of administrative files in health research. Soc Indic Res 18:409–423

    Article  Google Scholar 

  • DVV (Digital and Population Data Services Agency) (2022) The personal identity code. https://dvv.fi/en/personal-identity-code

  • Pukkala E, Martinsen JI, Lynge E, Gunnarsdottir HK, Sparén P, Tryggvadottir L, Weiderpass E, Kjaerheim K (2009) Occupation and cancer – follow-up of 15 million people in five Nordic countries. Acta Oncol 48:646–790

    Article  CAS  PubMed  Google Scholar 

  • Rahu M, Tekkel M, Veidebaum T, Pukkala E, Hakulinen T, Auvinen A, Rytömaa T, Inskip PD, Boice JD Jr (1997) The Estonian study of Chernobyl cleanup workers: II. Incidence of cancer and mortality. Radiat Res 147:653–657

    Article  CAS  PubMed  Google Scholar 

  • Ringbäck Weitoft G, Gullberg A, Rosén M (1998) Avoidable mortality among psychiatric patients. Soc Psychiatry Psychiatr Epidemiol 33:430–437

    Article  PubMed  Google Scholar 

  • Ringbäck Weitoft G, Haglund B, Rosén M (2000) Mortality among lone mothers in Sweden: a population study. Lancet 355:1215–1219

    Article  PubMed  Google Scholar 

  • Ringbäck Weitoft G, Hjern A, Haglund B, Rosén M (2003) Mortality, severe morbidity and injury in children living with single parents in Sweden: a population-based study. Lancet 361:289–295

    Article  Google Scholar 

  • Ringbäck Weitoft G, Ericsson Ö, Jöfroth E, Rosén M (2008) Equal access to treatment? Population-based follow-up of drugs dispensed to patients after myocardial infarction in Sweden. Eur J Clin Pharmacol 64:417–424

    Article  PubMed  Google Scholar 

  • Rosén M, Alfredsson L, Hammar N, Kahan T, Spetz CL, Ysberg AS (2000) Attack rate, mortality and case fatality for acute myocardial infarction in Sweden 1987–1995. Results from the Swedish Myocardial Infarction Register. J Intern Med 248:159–164

    PubMed  Google Scholar 

  • Sarkola T, Gissler M, Kahila H, Autti-Rämö I, Halmesmäki E (2011) Early health care utilization and welfare interventions among children of mothers with alcohol and substance abuse: a retrospective cohort study. Acta Paediatr 100:1379–1385

    Article  PubMed  Google Scholar 

  • Shahar Y (1997) A framework for knowledge based temporal abstraction. Artif Intell 90:79–133

    Article  Google Scholar 

  • Smith U, Gale EA (2009) Does diabetes therapy influence the risk of cancer? Diabetologia 52:1699–1708

    Article  CAS  PubMed  Google Scholar 

  • Sørensen HT, Sabroe S, Olsen J (1996) A framework for evaluation of secondary data sources for epidemiological research. Int J Epidemiol 25:435–442

    Article  PubMed  Google Scholar 

  • Stenbeck M, Rosén M (eds) (1995) Cancer survival in Sweden in 1961–1991. Acta Oncol Suppl 4:1–124

    Google Scholar 

  • Storm HH, Engholm G, Hakulinen T, Tryggvadóttir L, Klint Å, Gislum M, Kejs AMT, Bray F (2010) Survival of patients diagnosed with cancer in the Nordic countries up to 1999–2003 followed to the end of 2006. A critical overview of the results. Acta Oncol 49:532–544

    Article  PubMed  Google Scholar 

  • Sund R (2003) Utilisation of administrative registers using scientific knowledge discovery. Intell Data Anal 7:501–519

    Article  Google Scholar 

  • Sund R (2007) Utilization of routinely collected administrative data in monitoring of aging dependent hip fracture incidence. Epidemiol Perspect Innov 4:2

    Article  PubMed  PubMed Central  Google Scholar 

  • Sund R (2008) Methodological perspectives for register-based health system performance assessment. Developing a hip fracture monitoring system in Finland. Stakes Research Report 174. National Research and Development Centre for Welfare and Health, Helsinki. http://urn.fi/URN:ISBN:978-951-33-2132-1

  • Sund R (2012) Quality of the Finnish Hospital Discharge Register: a systematic review. Scand J Public Health 40(6):505–515

    Article  PubMed  Google Scholar 

  • Sund R, Nurmi-Lüthje I, Lüthje P, Tanninen S, Narinen A, Keskimäki I (2007) Comparing properties of audit data and routinely collected register data in case of performance assessment of hip fracture treatment in Finland. Methods Inf Med 46:558–566

    Article  CAS  PubMed  Google Scholar 

  • Sund R, Juntunen M, Lüthje P, Huusko T, Häkkinen U (2011) Monitoring the performance of hip fracture treatment in Finland. Ann Med 43(Suppl 1):S39–S46

    Article  PubMed  Google Scholar 

  • Sundgren B (1996) Making statistical data more available. Int Stat Rev 64:23–28

    Article  Google Scholar 

  • Swedish Local Authorities and Regions (2022) Quality registers. https://www.kvalitetsregister.se/en/kvalitetsregister/omnationellakvalitetsregister.52218.html

  • Tarkiainen L, Martikainen P, Laaksonen M, Valkonen T (2012) Trends in life expectancy by income from 1988 to 2007: decomposition by age and cause of death. J Epidemiol Community Health 66(7):573–578

    Article  PubMed  Google Scholar 

  • Tehdas (2022) Joint Action Towards the European Health Data Space – TEHDAS. https://tehdas.eu/

  • Tibblin G, Wilhelmsen L, Werkö L (1975) Risk factors for myocardial infarction and death due to ischaemic disease and other causes. Am J Cardiol 35:514–522

    Article  CAS  PubMed  Google Scholar 

  • Tiihonen J, Lönnqvist J, Wahlbeck K, Klaukka T, Niskanen L, Tanskanen A, Haukka J (2009) 11-year follow-up of mortality in patients with schizophrenia: a population-based cohort study (FIN11 study). Lancet 374:620–627

    Article  PubMed  Google Scholar 

  • Tretli S, Engeland A, Haldorsen T, Hakulinen T, Hörte LG, Luostarinen T, Schou G, Sigvaldason H, Storm HH, Tulinius H, Vaittinen P (1996) Prostate cancer – look to Denmark? J Natl Cancer Inst 88:128

    Article  CAS  PubMed  Google Scholar 

  • Vågerö D, Persson G (1987) Cancer survival and social class in Sweden. J Epidemiol Community Health 41:204–209

    Article  PubMed  PubMed Central  Google Scholar 

  • Voss EA, Makadia R, Matcho A, Ma Q, Knoll C, Schuemie M, DeFalco FJ, Londhe A, Zhu V, Ryan PB (2015) Feasibility and utility of applications of the common data model to multiple, disparate observational health databases. J Am Med Inform Assoc 22(3):553–564. https://doi.org/10.1093/jamia/ocu023

    Article  PubMed  PubMed Central  Google Scholar 

  • Wahlbeck K, Westman J, Nordentoft M, Gissler M, Munk Laursen T (2011) Outcomes of Nordic mental health systems: life expectancy of patients with mental disorders. Br J Psychiatry 199:453–458

    Article  PubMed  Google Scholar 

  • Walsh PC (2002) Overdiagnosis due to prostate antigen screening: lessons from U.S. prostate cancer incidence trends. J Natl Cancer Inst 94:981–990

    Article  Google Scholar 

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Authors and Affiliations

  1. Faculty of Health Sciences, University of Eastern Finland, Kuopio, Finland

    Reijo Sund

  2. Knowledge Brokers, THL – Finnish Institute for Health and Welfare, Helsinki, Finland

    Mika Gissler

Authors
  1. Reijo Sund
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  2. Mika Gissler
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Correspondence to Reijo Sund .

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Editors and Affiliations

  1. Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS), Bremen, Germany

    Wolfgang Ahrens

  2. Bremer Institut für Präventionsforschung und Sozialmedizin (BIPS), Bremen, Germany

    Iris Pigeot

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Sund, R., Gissler, M. (2022). Use of Health Registers. In: Ahrens, W., Pigeot, I. (eds) Handbook of Epidemiology. Springer, New York, NY. https://doi.org/10.1007/978-1-4614-6625-3_5-1

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  • DOI: https://doi.org/10.1007/978-1-4614-6625-3_5-1

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  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4614-6625-3

  • Online ISBN: 978-1-4614-6625-3

  • eBook Packages: Springer Reference MedicineReference Module Medicine

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