Abstract
The Joint Congenital Cardiac Anesthesia Society-Society of Thoracic Surgeons Congenital Cardiac Anesthesia Database is a multi-institutional registry that tracks variables related to the anesthetic management of patients with pediatric and congenital cardiac disease. This registry is an optional module of The Society of Thoracic Surgeons Congenital Heart Surgery Database and is part of the Congenital Cardiac Anesthesia Society’s commitment to patient care and research on outcomes improvement. Patients in the registry include not only cardiac surgical patients but also those with pediatric and congenital cardiac disease undergoing procedures in locations other than the operating room, including in the cardiac catheterization laboratory, intensive care unit, general operating room, and radiology suite. Because of the relative infrequency of anesthesia-related events in this low-volume procedure, a multi-institutional database is the most reasonable approach to capture a sufficient number of patient encounters in a timely manner to support outcomes analysis, quality assessment, and quality improvement.
Children undergoing repair of congenital heart defects are among the sickest population treated by anesthesiologists. The incidence of complications such as cardiac arrest related to anesthesia is proportionally much higher, the difficulties associated with airway and vascular access are well known, and the time and money spent on their care is substantial. To date there have been no systematic reviews of their anesthetic care and the associated complications, particularly those that do not result in cardiac arrest. The Joint Congenital Cardiac Anesthesia Society-Society of Thoracic Surgeons Congenital Cardiac Anesthesia Database marks the first real-time picture of the “state-of-the-art” of anesthetic care for patient with pediatric and congenital cardiac disease. This information will help guide future care as well as provide better information for the patients and their families.
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References
Flick RP, Sprung J, Harrison TE. Perioperative cardiac arrests in children between 1988 and 2005 at a tertiary referral center: a study of 92,881 patients. Anesthesiology. 2007;106:226–37.
Ramamoorthy C, et al. Anesthesia-related cardiac arrest in children with congenital heart disease: data from the Pediatric Periooperative Cardiac Arrest (POCA) registry. Anesth Analg. 2010;110(5):1376–82.
Odegard KC, et al. The frequency of anesthesia-related cardiac arrests in patients with congenital heart disease undergoing cardiac surgery. Anesth Analg. 2007;105:335–43.
Bhananker SM, et al. Anesthesia-related cardiac arrest in children: update from the pediatric perioperative cardiac arrest registry. Anesth Analg. 2007;105(2):344–50.
Gupta P, et al. Sudden cardiac death under anesthesia in pediatric patient with Williams syndrome: a case report and review of the literature. Ann Card Anaesth. 2010;13(1):44–8.
Odegard KC, et al. The frequency of cardiac arrests in patients with congenital heart disease undergoing cardiac catheterization. Anes Analg. 2014;118(1):175–82.
Morray JP, et al. Anesthesia-related cardiac arrest in children: initial findings of the Pediatric Perioperative Cardiac Arrest (POCA) registry. Anesthesiology. 2000;93(1):6–14.
Caplan L, Vener DF. Databases and outcomes in congenital cardiac anesthesia. World J Pediatr Congenit Heart Surg. 2011;2(4):586–92.
Burch TM, et al. Congenital supravalvar aortic stenosis and sudden death associated with anesthesia: what’s the mystery? Anesth Analg. 2008;107(6):1848–54.
Pahl E, et al. Incidence and risk factors for sudden cardiac death in children with dilated cardiomyopathy: a report from the pediatric cardiomyopathy registry. J Am Coll Cardiol. 2012;59(6):607–15.
Dutton RP, DuKatz A. Quality improvement using automated data sources: the anesthesia quality institute. Anesthesiol Clin. 2011;29:439–54.
Freundlich RE, Kheterpal S. Perioperative effectiveness research using large databases. Best Pract Res Clin Anesthesiol. 2011;25:489–98.
Ramachandran SK, Kheterpal S. Outcomes research using quality improvement databases: evolving opportunities and challenges. Anesthesiol Clin. 2011;29:71–81.
International Society for Nomenclature of Paediatric and Congenital Heart Disease. International Pediatric and Congenital Cardiac Code. IPCCC. [Online] [Cited 9 Apr 2012]. www.ipccc.net.
Jacobs JP, et al. The nomenclature of safety and quality of care for patients with congenital cardiac disease: a report of the Society of Thoracic Surgeons Congenital Database Taskforce Subcommittee on patient safety. Cardiol Young. 2008;13 Suppl 2:81–91.
Jacobs JP, et al. What is operative mortality? Defining complications in a surgical registry database: a report of the STS congenital database taskforce and the joint EACTS-STS congenital database committee. Ann Thorac Surg. 2006;81:1937–41.
Vener DF, et al. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – the perspective of anaesthesia. Cardiol Young. 2008;18 Suppl 2:124–9.
Jacobs JP, et al. The current status and future direction of efforts to create a global database for the outcomes of therapy for congenital heart surgery. Cardiol Young. 2005;1(Suppl):190–7.
Bergersen L, et al. Report from the International Society for Nomenclature of Paediatric and Congenital Heart Disease: cardiovascular catheterisation for congenital and paediatric cardiac disease (part 1 – procedureal nomenclature). Cardiol Young. 2011;21(3):252–9.
Bergersen L, et al. Report from the International Society for Nomenclature of Paediatric and Congenital Heart Disease: cardiovascular catheterisation for congenital and paediatric cardiac disease (part 2 – nomenclature of complications associated with interventional cardiolo. Cardiol Young. 2011;13(1):260–5.
Society of thoracic surgeons. Database HIPAA FAQ. [Online] [Cited 9 Apr 2012.] http://sts.org/sites/default/files/documents/pdf/DCRI_FAQ-Technical_Document_re_Identifiers_in_Database_Final.pdf.
Zgleszewski SE, et al. Anesthesia-related cardiac arrest: five year analysis at an academic pediatric medical center. Anesthesiology. 2006;105:A134.
Strickland MJ, et al. The importance of nomenclature for congenital cardiac disease: implications for research and evaluation. In: Jacobs JP, editor. 2008 Cardiology in the Young Supplement: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease. Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease. Cardiology in the Young, vol. 18, issue S2 (Suppl 2), p. 92–100, December 9, 2008.
Pasquali SK, et al. Linking clinical registry data with administrative data using indirect identifiers: implementaion and validation in the congenital heart surgery population. Am Heart J. 2010;160(6):1099–104.
O’Brien SM, et al. An empirically based tool for analyzing mortality associated with congenital heart surgery. J Thorac Cardiovasc Surg. 2009;138(5):1139–53.
Jacobs ML, et al. Report of the 2010 Society of Thoracic Surgeons congenital heart surgery practice and manpower survey. Ann Thorac Surg. 2011;92(2):762–8.
Jacobs JP, et al. Successful linking of the Society of Thoracic Surgeons database to social security data to examine survival after cardiac operations. Ann Thorac Surg. 2011;92(1):32–7.
Patel A, et al. Impact of noncardiac congenital and genetic abnormalities on outcomes in hypoplastic left heart syndrome. Ann Thorac Surg. 2010;89:1805–14.
Johnson JN, et al. Center variation and outcomes associated with delayed sternal closure following stage 1 palliation for hypoplastic left heart syndrome. J Thorac Cardiovasc Surg. 2010;139:1205–10.
Fudge J, et al. Outcomes in patients with down syndrome undergoing congenital heart surgery: analysis of a national clinical database. Pediatrics. 2010;126:315–22.
Vener DF, Guzzetta N, Jacobs JP, Williams GD. Development and implementation of a new data registry in congenital cardiac anesthesia. Ann Thorac Surg. 2012;94(6):2159–65. doi:10.1016/j.athoracsur.2012.06.070. PMID: 23176940.
Society of Thoracic Surgeons Congenital Heart Surgery Database Executive Summary 2010. [Online] [Cited 28 Oct 2011] http://www.sts.org/sites/default/files/documents/STSCONG-%20Executive%20Summary-All%20patients-Spring2011.pdf.
STS database collection of protected health information FAQ for STS database participants. Society of Thoracic Surgery. [Online] [Cited: 19 Oct 2011] http://www.sts.org/sites/default/files/documents/pdf/DCRI_FAQ-Technical_Document_re_Identifiers_in_Database_Final.pdf.
Vener DF. Quality, outcomes and databases in congenital cardiac anesthesia. In: Andropoulos DB et al., editors. Anesthesia for congenital heart disease. 2nd ed. Chichester: Wiley; 2010. p. 29–36.
Society of Thoracic Surgeons. How to become a participant. [Online] [Cited 19 Mar 2012]. http://www.sts.org/sts-national-database/database-participants/how-become-participant.
STS congenital heart surgery database v3.0. [Online] 2010. [Cited 19, Mar 2012]. http://www.sts.org/sites/default/files/documents/pdf/ndb/CongenitalDataCollectionForm3_0_Annotated_20090916.pdf.
Heinrich S, et al. Incidence and predictors of difficult laryngoscopy in 11,219 pediatric anesthesia procedures. Paediatr Anaesth. 2012;22:729–36.
Akpek EA, Mutlu H, Kayhan Z. Difficult intubation in pediatric cardiac anesthesia. J Cardiothorac Vasc Anesth. 2004;18(5):610–2.
Elella RA, et al. Impact of bloodstream infection on the outcome of children undergoing cardiac surgery. Pediatr Cardiol. 2010;31:483–9.
King MA, et al. Complications associated with arterial catheterization in children. Pediatr Crit Care Med. 2008;9(4):367–71.
da Silva PSL, Waisberg J. Induction of life-threatening supraventricular tachycardia during central venous catheter placement: an unusual complication. J Pediatr Surg. 2010;45:E13–6.
Manlhiot C, et al. Risk, clinical features, and outcomes of thrombosis associated with pediatric cardiac surgery. Circulation. 2011;124:1511–9.
Vener DF. Mechanisms of reporting anesthesia information into the CCAS – STS database. [Abstract]. Las Vegas: Society of Pediatric Anesthesia Annual Meeting; 2013.
Rice-Townsend S, et al. Analysis of adverse events in pediatric surgery using criteria validated from the adult population: justifying the need for pediatric-focused outcome measures. J Pediatr Surg. 2010;45:1126–36.
Heinrichs J, et al. Ultrasonographically guided peripheral intravenous cannulation of children and adults: a systematic review and meta-analysis. Ann Emerg Med. 2013;61(4):444–54.
Vener DF, et al. Anaesthetic complications associated with the treatment of patients with congenital cardiac disease: consensus definitions from the multi-societal database committee for pediatric and congenital heart disease. Cardiol Young. 2008;18 Suppl 2:271–81.
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Vener, D.F. (2015). Databases for Assessing the Outcomes of the Treatment of Patients with Congenital and Pediatric Cardiac Disease: The Perspective of Anesthesia. In: Barach, P., Jacobs, J., Lipshultz, S., Laussen, P. (eds) Pediatric and Congenital Cardiac Care. Springer, London. https://doi.org/10.1007/978-1-4471-6587-3_10
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