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Experience of meaning in life in bereaved informal caregivers of palliative care patients

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Abstract

Purpose

Providing care for terminally ill family members places an enormous burden on informal caregivers. Meaning in life (MiL) may be a protective factor, but is jeopardised in caregiving and bereavement. This study evaluates the following questions: To what extent do bereaved informal caregivers of palliative care (PC) patients experience meaning in their lives? What differences emerge in carers compared to the general German population? How does MiL relate to well-being in former caregivers?

Methods

Eighty-four bereaved PC caregivers completed the Schedule for Meaning in Life Evaluation, the Brief Symptom Inventory, the WHOQOL-BREF, a single-item numerical rating scale of quality of life, and the Satisfaction with Life Scale. The experience of MiL of bereaved caregivers was compared to a representative population sample (n = 977).

Results

The overall MiL fulfillment of bereaved caregivers (69 % female, age 55.5 ± 12.9 years) was significantly lower than in the general population (68.5 ± 19.2 vs. 83.3 ± 14, p < .001), as was the overall importance ascribed to their meaning framework (76.6 ± 13.6 vs. 85.6 ± 12.3, p < .001). PC caregivers are far more likely to list friends, leisure, nature/animals, and altruism. Higher MiL was correlated with better life satisfaction and quality of life.

Conclusion

Coping with the loss of a loved one is associated with changes in MiL framework and considerably impairs a carer's experience of MiL fulfillment. Individual MiL is associated with well-being in PC caregivers during early bereavement. Specific interventions for carers targeted at meaning reconstruction during palliative care and bereavement are needed to help individuals regain a sense of meaning and purpose.

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Acknowledgements

This research was supported by the Deutsche Krebshilfe e.V. (reference no. 107433).

Author disclosure statement

The authors declare that there is no conflict of interest. The funding source was not involved in study design, or data collection, analysis, interpretation or presentation of study results. The authors have full control of all primary data and agree to allow the journal to review their data if requested.

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Authors and Affiliations

  1. Department of Palliative Medicine, Ludwig-Maximilians-University, Marchioninistrasse 15, 81377, Munich, Germany

    Monika Brandstätter, Monika Kögler & Martin Johannes Fegg

  2. Department of Psychology, University of Salzburg, Salzburg, Austria

    Urs Baumann

  3. Statistical Consulting Unit, Department of Statistics, Ludwig-Maximilians-University, Munich, Germany

    Veronika Fensterer & Helmut Küchenhoff

  4. Centre Hospitalier Universitaire Vaudois, Service de Soins Palliatifs, University of Lausanne, Lausanne, Switzerland

    Gian Domenico Borasio

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  1. Monika Brandstätter
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  2. Monika Kögler
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  7. Martin Johannes Fegg
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Correspondence to Monika Brandstätter.

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Brandstätter, M., Kögler, M., Baumann, U. et al. Experience of meaning in life in bereaved informal caregivers of palliative care patients. Support Care Cancer 22, 1391–1399 (2014). https://doi.org/10.1007/s00520-013-2099-6

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  • DOI: https://doi.org/10.1007/s00520-013-2099-6

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