Open Access, Peer-reviewed
eISSN 2093-758X
    J Korean Acad Nurs. 2010 Jun;40(3):411-422. Korean.
    Published online Jun 30, 2010.
    https://doi.org/10.4040/jkan.2010.40.3.411
    Copyright © 2010 Korean Society of Nursing Science
    Original Article

    The Life of Adolescent Patients with Complex Congenital Heart Disease

    Sunhee Lee,1 and So-Sun Kim2
      • 1Instructor, College of Nursing, Eulji University, Seongnam, Korea.
      • 2Professor, College of Nursing · Researcher, The Nursing Policy Research Institute, Yonsei University, Seoul, Korea.
    • Address reprint requests to: Kim, So-Sun. College of Nursing, Yonsei University, 134 Sinchon-dong, Seodaemun-gu, Seoul 120-752, Korea. Tel: 82-2-2228-3254, Fax: 82-2-392-5440, Email: soskim@yuhs.ac
    Received February 01, 2010; Accepted June 09, 2010.

    Abstract

    Purpose

    In the present study, an analysis of the life of adolescents with complex congenital heart disease (CHD) was done using grounded theory. Consideration was given to the socio-cultural context of Korea.

    Methods

    After approval from the institutional review board of Y hospital, 12 patients ranging in age from 14 to 35 were recruited. Data were gathered using in-depth interviews. Theoretical sampling was performed until the concepts were saturated.

    Results

    The results confirmed the life of adolescents with complex CHD as a 'journey to finding uniqueness of oneself as a person with CHD'. The life consisted of 3 stages. In the crisis stage, participants had a feeling of threat to self-existence, and made an effort to be the same as others. In the self-recognition stage, participants who had sufficient role-performance built self-esteem while those who did not fell into self-accusation. In the self-establishment stage, participants who reached sufficiency in independence and knowledge planned the future, whereas those who did not conformed to the realities of life.

    Conclusion

    The results of present study provide help in understanding the experiences of adolescents with CHD and provide a basis for developing nursing intervention strategies for these patients.

    Keywords
    Adolescent; Congenital heart defect; Grounded theory; Life

    Figures

    Figure 1
    Paradigm of life of adolescent with complex congenital heart disease.

    Figure 2
    Journey to finding uniqueness of oneself as a person with CHD.

    Tables

    Table 1
    Demographic Characteristics of the Participants

    Table 2
    Categories and Concepts

    Notes

    This article is based on a part of the first author's doctoral thesis from Yonsei University.

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    MeSH Terms
    Adolescent Psychology*
    Adolescent
    Adult
    Female
    Heart Defects, Congenital/psychology*
    Humans
    Interviews as Topic
    Male
    Perception
    Quality of Life
    Self Concept
    Metrics
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