Scientific Value of the Sub-Cohort of Children in the World Trade Center Health Registry
Abstract
:1. Introduction
- Identifying individuals present during and in the aftermath of the disaster;
- Assessing the occurrence of various health effects among survivors;
- Following participants to determine if the occurrence of health effects changes over time;
- Generating hypotheses for future studies;
- Providing health education and other information related to the aftermath of the disaster to reduce future morbidity and mortality and inform public policy [1].
- Workers and volunteers involved in rescue, recovery, or clean-up at the WTC site any time from 11 September 2001, through 30 June 2002, and/or in debris handling at the Staten Island Landfill any time from 12 September 2001, through 30 June 2002.
- Residents as of 11 September 2001, at addresses located south of Canal Street.
- Students and school staff enrolled/employed in schools or daycares south of Canal Street on 11 September 2001; and
2. Materials and Methods
2.1. Data Sources
2.2. Analysis
3. Results
3.1. Overall Youth Enrollment
3.2. Comparisons to Census
3.2.1. Household Size
3.2.2. Age
3.2.3. Race/Ethnicity
3.2.4. Sex
3.2.5. Income
4. Discussion
4.1. WTCHR Child Cohort in Context
4.2. Is the WTCHR Youth Cohort Representative?
4.3. Is the WTCHR’s Youth Cohort Sufficiently Large to Detect Health Associations?
4.4. Would Establishing a New Youth Cohort of Survivors Be Feasible?
5. Limitations and Strengths
6. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
NIOSH Disclaimer
References
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Source of Enrollment | |||||
---|---|---|---|---|---|
Total | List | Self-Identified | |||
N | n | % | n | % | |
Residents south of Canal St enrolled in the WTCHR | 12,861 | 3555 | 27.6 | 9306 | 72.4 |
Residents < 18 years old on 11 September 2001 | 1864 | 105 | 5.6 | 1759 | 94.4 |
Group 1: South of Chambers St 1 | 844 | 7 | 0.8 | 837 | 99.2 |
Group 2: North of Chambers and South of Canal Street 2 | 1020 | 98 | 9.6 | 922 | 90.4 |
Non-resident students < 18 years | 1032 | 190 | 18.4 | 842 | 81.6 |
Non-resident non-students < 18 years | 351 | 73 | 20.8 | 278 | 79.2 |
Overall Total < 18 years in the WTCHR | 3247 | 368 | 11.3 | 2879 | 88.7 |
Subpopulation | Age Group (Years) | |||||||||
---|---|---|---|---|---|---|---|---|---|---|
Total (All Residents) | Total (Youth) | 0–4 | 5–9 | 10–14 | 15–17 | |||||
N | N | n | % | n | % | n | % | n | % | |
Group 1 | ||||||||||
WTCHR | 7460 | 844 | 321 | 4.3 | 267 | 3.6 | 204 | 2.7 | 52 | 0.7 |
Census | 22,400 | 2390 | 1033 | 4.6 | 705 | 3.1 | 441 | 2.0 | 211 | 0.9 |
Group 2 | ||||||||||
WTCHR | 5401 | 1020 | 317 | 5.9 | 291 | 5.4 | 304 | 5.6 | 108 | 2.0 |
Census | 34,779 | 5849 | 1542 | 4.4 | 1582 | 4.5 | 1736 | 5.0 | 989 | 2.8 |
Residents * | ||||||||||
WTCHR | 12,861 | 1864 | 638 | 5.0 | 558 | 4.3 | 508 | 4.0 | 160 | 1.2 |
Census | 57,179 | 8239 | 2575 | 4.5 | 2287 | 4.0 | 2177 | 3.8 | 1200 | 2.1 |
Race/Ethnic Group | |||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|
Total | White | Black | Hispanic | Asian | Other | ||||||
N | n | % | n | % | n | % | n | % | n | % | |
Group 1 | |||||||||||
WTCHR | 7460 | 547 | 7.3 | 25 | 0.3 | 88 | 1.2 | 109 | 1.5 | 75 | 1.0 |
Census | 22,400 | 1581 | 7.1 | 82 | 0.4 | 183 | 0.8 | 377 | 1.7 | 167 | 0.7 |
Group 2 | |||||||||||
WTCHR | 5401 | 388 | 7.2 | 87 | 1.6 | 225 | 4.2 | 272 | 5.0 | 48 | 0.9 |
Census | 34,779 | 1275 | 3.7 | 372 | 1.1 | 806 | 2.3 | 3238 | 9.3 | 158 | 0.5 |
Residents * | |||||||||||
WTCHR | 12,861 | 935 | 7.3 | 112 | 0.9 | 313 | 2.4 | 381 | 3.0 | 123 | 1.0 |
Census | 57,179 | 2856 | 5.0 | 454 | 0.8 | 989 | 1.7 | 3615 | 6.3 | 325 | 0.6 |
Youth Residents | |||||
---|---|---|---|---|---|
Total | Male | Female | |||
N | n | % | n | % | |
Group 1 | |||||
WTCHR | 7460 | 424 | 5.7 | 420 | 5.6 |
Census | 44,377 | 1185 | 2.7 | 1205 | 2.7 |
Group 2 | |||||
WTCHR | 5401 | 497 | 9.2 | 523 | 9.7 |
Census | 34,779 | 3006 | 8.6 | 2843 | 8.2 |
Residents * | |||||
WTCHR | 12,861 | 921 | 7.2 | 943 | 7.3 |
Census | 57,179 | 4191 | 7.3 | 4048 | 7.1 |
Income Group (Annual Household Income) | Chi Square (p-Value) | |||||||
---|---|---|---|---|---|---|---|---|
Total | <$25,000 | $25,000 to $49,999 | $50,000 or More | |||||
N | n | % | n | % | n | % | ||
WTCHR * | 10,775 | 3106 | 28.8 | 1665 | 15.5 | 6004 | 55.7 | 171.83 |
Census | 57,341 | 17,630 | 30.8 | 11,348 | 19.8 | 28,335 | 49.4 | (p < 0.0001) |
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Brackbill, R.M.; Butturini, E.; Cone, J.E.; Ahmadi, A.; Daniels, R.D.; Farfel, M.R.; Kubale, T. Scientific Value of the Sub-Cohort of Children in the World Trade Center Health Registry. Int. J. Environ. Res. Public Health 2022, 19, 12461. https://doi.org/10.3390/ijerph191912461
Brackbill RM, Butturini E, Cone JE, Ahmadi A, Daniels RD, Farfel MR, Kubale T. Scientific Value of the Sub-Cohort of Children in the World Trade Center Health Registry. International Journal of Environmental Research and Public Health. 2022; 19(19):12461. https://doi.org/10.3390/ijerph191912461
Chicago/Turabian StyleBrackbill, Robert M., Emma Butturini, James E. Cone, Ayda Ahmadi, Robert D. Daniels, Mark R. Farfel, and Travis Kubale. 2022. "Scientific Value of the Sub-Cohort of Children in the World Trade Center Health Registry" International Journal of Environmental Research and Public Health 19, no. 19: 12461. https://doi.org/10.3390/ijerph191912461