Burden of Stroke Caregivers: Evidence from a Qualitative Study in Sarawak, Malaysia

Authors

  • Md Mizanur Rahman Professor, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Norlizabinti Suut Staff Nurse, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Zabidahbinti Putit Associate Professor, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Mohamad Taha Arif Professor, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Asri Bin Said Associate Professor, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Mohd Raili Bin Suhaili Professor, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Mohd Fadzillah Professor, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Florence AkBakon Senior Lecturer, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Zainab binti Tambi Senior Lecturer, Faculty of Medicine and Health Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak
  • Ling How Kee Associate Professor, Faculty of Social Sciences, Universiti Malaysia Sarawak, 94300, Kota Samarahan, Sarawak

DOI:

https://doi.org/10.3329/bjms.v17i4.38321

Keywords:

Burden, Caregivers, Qualitative, Stroke, Sarawak, Malaysia

Abstract

Background: Stroke survivors experience long-term physical, psychosocial and cognitive impairment that are formidable challenges to caregivers because caring for stroke survivors needs explicit knowledge and caregivers have to endure the stressfulness as a result of caring. In addition, little is known about perceived benefits of the stroke care giving experience.

Objectives: This study was aimed to determine the caregivers’ burden and challenges as reported by caregivers of stroke survivors.

Materials and Methods: This was a cross-sectional study involving 18 stroke caregivers. The data were collected from November 2015 to June 2016 at a conveniently selected community rehabilitation centre in Kuching, Sarawak.

Results: The qualitative data analysis revealed that the burden was aggravated by financial problems, multiple responsibilities hold by the caregivers, behavioural changes of the stroke survivors and lack of social support during care giving.

Conclusion: This study highlighted the experiences by the caregivers in caring for the stroke survivors that focused on the different needs of the caregivers. Understanding these experiences may help the service providers to provide better support and resources for caregivers in caring for stroke survivors.

Bangladesh Journal of Medical Science Vol.17(4) 2018 p.593-599

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Published

2018-09-19

How to Cite

Rahman, M. M., Suut, N., Putit, Z., Arif, M. T., Said, A. B., Suhaili, M. R. B., Fadzillah, M., AkBakon, F., Tambi, Z. binti, & Kee, L. H. (2018). Burden of Stroke Caregivers: Evidence from a Qualitative Study in Sarawak, Malaysia. Bangladesh Journal of Medical Science, 17(4), 593–599. https://doi.org/10.3329/bjms.v17i4.38321

Issue

Vol. 17 No. 4 (2018)

Section

Original Articles

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