International Stroke Conference Poster Abstracts
Session Title: Nursing Posters II
Abstract TP385: A Mobile-Friendly Website to Reduce Stroke Caregiver Burden: A Qualitative and Pilot Study
Abstract
Background: Researchers estimate the prevalence of stroke caregiver burden to be 25-50%. Currently, there are no feasible, user-centered interventions in practice to improve stroke caregiver burden.
Objectives: To refine the Stroke Caregiver Support System, a mobile-friendly website, with feedback from structured interviews, and to test the feasibility of the Stroke Caregiver Support System with a small pilot study.
Methods: We employed a user-centered design framework for the development of our intervention, which includes 9 topical modules with brief introductory videos and curated resources from publically available sources. To refine the intervention, we used feedback from structured qualitative interviews with stroke caregivers for each aspect of the intervention. We then enrolled 8 stroke caregivers in a pilot study to measure baseline caregiver burden and depressive symptoms and test the feasibility of the intervention. All descriptive statistics were computed using SAS 9.4.
Results: In structured qualitative interviews (N=4), stroke caregivers were aged 53-59 years; 3 of these caregivers were daughters of stroke survivors, and 2 identified as Hispanic/Latino. The main criticisms of the website included: a) low volume on videos, b) the need for more specific information for the physical challenges of caregiving, and c) the need to improve the language to make it less “scientific.” Generally, caregivers found the modules relevant and the content useful. The pilot study included 8 caregivers (mean [SD] age = 45 [17]), including 7 females, 5 who identified as Hispanic/Latino, and 6 who had a college education or greater. These caregivers had a mean (SD) Zarit burden score of 17 (8) and mean (SD) 10-item CES-D score of 14 (5). In general, caregivers found the website content and organization helpful, but the design and layout needed improvement. Caregivers emphasized that each “caregiver journey” was different, so tailored intervention is needed.
Conclusions: Caregivers provided important feedback for the design of this mobile-friendly, educational intervention. Post-intervention measures will give insight into the feasibility and potential efficacy of the Stroke Caregiver Support System to attenuate caregiver burden.
eLetters(0)
eLetters should relate to an article recently published in the journal and are not a forum for providing unpublished data. Comments are reviewed for appropriate use of tone and language. Comments are not peer-reviewed. Acceptable comments are posted to the journal website only. Comments are not published in an issue and are not indexed in PubMed. Comments should be no longer than 500 words and will only be posted online. References are limited to 10. Authors of the article cited in the comment will be invited to reply, as appropriate.
Comments and feedback on AHA/ASA Scientific Statements and Guidelines should be directed to the AHA/ASA Manuscript Oversight Committee via its Correspondence page.