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Australian Health Review Australian Health Review Society
Journal of the Australian Healthcare & Hospitals Association
RESEARCH FRONT (Open Access)

Risk factors for non-participation in a universal developmental surveillance program in a population in Australia

Chandra Ayer A B R , Valsamma Eapen https://orcid.org/0000-0001-6296-8306 C D E , Bronwyn Overs F , Joseph Descallar E G , Bin Jalaludin G H , John Graeme Eastwood G I J K L , Cheryl Dissanayake M , Katrina Williams N O , Elisabeth Murphy P , Susan Woolfenden L Q and for the Watch Me Grow Study Group*
+ Author Affiliations
- Author Affiliations

A Royal Far West, PO Box 52, Manly, NSW 1655, Australia.

B Kogarah Diagnostic Assessment Service, St George Hospital, 90 Railway Parade, Kogarah, NSW 2217, Australia.

C Psychiatry Research and Teaching Unit, School of Psychiatry, UNSW, Level 1, Mental Health Centre, Liverpool Hospital, corner Forbes and Campbell Streets, Liverpool, NSW 2170, Australia. Email: v.eapen@unsw.edu.au

D Academic Unit of Child Psychiatry, Ingham Institute of Applied Medical Research, PO Box 3151 (Westfields), Liverpool, NSW 2170, Australia.

E South Western Sydney Clinical School, Faculty of Medicine, UNSW, Liverpool Hospital, Liverpool, NSW 2170, Australia.

F NeuRA, PO Box 1165, Randwick, NSW 2031, Australia. Email: bronwyn.overs@gmail.com

G Ingham Institute of Applied Medical Research, PO Box 3151 (Westfields), Liverpool, NSW 2170, Australia. Email: joseph.descallar@sswahs.nsw.gov.au; b.jalaludin@unsw.edu.au

H School of Public Health and Community Medicine, UNSW, Sydney, NSW 2052, Australia.

I Community Paediatrics, Sydney Local Health District, Level 11 KGV Building, Missenden Road, Camperdown, NSW 2050, Australia. Email: j.eastwood@unsw.edu.au

J School of Public Health, Menzies Centre for Health Policy, University of Sydney, Edward Ford Building, A27 Fisher Road, Sydney, NSW 2006, Australia.

K School of Medicine, Griffith University, Parklands Drive, Southport, Gold Coast, Qld 4222, Australia.

L School of Women’s and Children’s Health, UNSW, Sydney, NSW 2052, Australia.

M Olga Tennison Autism Research Centre, La Trobe University, Kingsbury Drive, Bundoora, Vic. 3083, Australia. Email: c.dissanayake@latrobe.edu.au

N Department of Paediatrics, Melbourne Medical School, The University of Melbourne, Melbourne, Vic. 3010, Australia.

O Present address: Department of Paediatrics, Monash University, School of Clinical Sciences, Level 5, Monash Children’s Hospital, 246 Clayton Road, Clayton, Vic. 3168, Australia. Email: Katrina.Williams@monash.edu

P NSW Ministry of Health, Child, Youth and Family Health Services, PO Box 4007, Royal North Shore LPO, St Leonards, NSW 2065, Australia. Email: lmurp@doh.health.nsw.gov.au

Q Department of Community Paediatrics, Sydney Children’s Hospital Network, High Street, Randwick, NSW 2031, Australia. Email: susan.woolfenden@health.nsw.gov.au

R Corresponding author. Email: chandraa@royalfarwest.org.au

Australian Health Review 44(4) 512-520 https://doi.org/10.1071/AH18236
Submitted: 18 January 2019  Accepted: 9 May 2019   Published: 31 July 2020

Journal Compilation © AHHA 2020 Open Access CC BY-NC-ND

Abstract

Objectives This study examined the risk factors for non-participation in a developmental surveillance program in a population in south-west Sydney with a high proportion of culturally diverse and socioeconomically disadvantaged people.

Methods Data from 850 and 625 12- and 18-month-old children respectively from the Watch Me Grow (WMG) birth cohort were used for this study. Logistic regression models were used to assess risk factors for 12- and 18-month non-attendance at Well Child Visits, as well as non-completion of the developmental surveillance questionnaire Parents’ Evaluation of Developmental Status (PEDS) in the child’s personal health record (PHR).

Results Independent risk factors for non-attendance at Well Child Visits were female sex of the child (odds ratio (OR) 12 months 1.5; 95% confidence interval (CI) 1.0–2.3), mother’s country of birth Australia (OR 18 months 1.8; 95% CI 1.2–2.7), annual household income less than A$25 001 (OR 12 months 1.8; 95% CI 1.0–3.2) and residing in a socioeconomically disadvantaged neighbourhood (OR 12 months 1.7; 95% CI 1.1–2.5). Independent risk factors for non-completion of PEDS in those who did not attend the Well Child Visit compared with those who did attend and did complete PEDS were household annual income at birth less than A$25 001 (OR 12 months 3.9; 95% CI 1.9–8.1) and residing in a socioeconomically disadvantaged neighbourhood (OR 12 months 2.1 (95% CI 1.2–3.7) and OR 18 months 2.0 (95% CI 1.2–3.6)).

Conclusions In this population, children exposed to socioeconomic disadvantage are less likely to have attended a Well Child Visit and to have a completed PEDS in their PHR at 12 and/or 18 months of age.

What is known about the topic? Developmental problems are common in early childhood, and children from socioeconomically disadvantaged households are at higher risk. Universal developmental surveillance programs may be effective at early identification of children at risk of developmental problems. Early childhood interventions, when accessed, can lessen the effects of developmental problems in later years.

What does this paper add? This paper highlights that children exposed to socioeconomic disadvantage in early childhood who are at higher risk of having developmental problems are also at higher risk of missing out on early identification by non-participation in universal developmental surveillance.

What are the implications for practitioners? A more equitable model of developmental surveillance should include a framework of proportionate universalism to ensure optimal engagement of high-risk population groups.


References

[1]  Australian Bureau of Statistics. Disability, ageing and carers, Australia: summary of findings. Canberra: Commonwealth of Australia; 2009.

[2]  Boyle CA, Boulet S, Schieve LA, Cohen RA, Blumberg SJ, Yeargin-Allsopp M, Visser S, Kogan MD. Trends in the prevalence of developmental disabilities in US children. Pediatrics 2011; 127 1034–42.
Trends in the prevalence of developmental disabilities in US children.Crossref | GoogleScholarGoogle Scholar | 21606152PubMed |

[3]  Matson JL, Kozlowski AM. The increasing prevalence of autism spectrum disorders. Res Autism Spectr Disord 2011; 5 418–25.
The increasing prevalence of autism spectrum disorders.Crossref | GoogleScholarGoogle Scholar |

[4]  Oberklaid F, Baird G, Blair M, Melhuish E, Hall D. Children’s health and development: approaches to early identification and intervention. Arch Dis Child 2013; 98 1008–11.
Children’s health and development: approaches to early identification and intervention.Crossref | GoogleScholarGoogle Scholar | 23968776PubMed |

[5]  Australian Early Development Census. Australian Early Development Census (AEDC) national report 2015. A snapshot of early childhood development in Australia. Canberra: Commonwealth of Australia Department of Education and Training; 2015.

[6]  Einfeld SL, Tonge BJ, Clarke KS. Prevention and early intervention for behaviour problems in children with developmental disabilities. Curr Opin Psychiatry 2013; 26 263–9.
Prevention and early intervention for behaviour problems in children with developmental disabilities.Crossref | GoogleScholarGoogle Scholar | 23493133PubMed |

[7]  Guralnick MJ. Effectiveness of early intervention for vulnerable children: a developmental perspective. Am J Ment Retard 1998; 102 319–45.
Effectiveness of early intervention for vulnerable children: a developmental perspective.Crossref | GoogleScholarGoogle Scholar | 9475942PubMed |

[8]  Rogers SJ, Vismara L. Evidence-based comprehensive treatments for early autism. J Clin Child Adolesc Psychol 2008; 37 8–38.
Evidence-based comprehensive treatments for early autism.Crossref | GoogleScholarGoogle Scholar | 18444052PubMed |

[9]  Shaw M. A systematic review and analysis of long-term outcomes in attention deficit hyperactivity disorder: effects of treatment and non-treatment. BMC Med 2012; 10 99
| 22947230PubMed |

[10]  KPMG. Reviewing the evidence on the effectiveness of early childhood intervention. Melbourne: Department of Families, Housing, Community Services and Indigenous Affairs; 2011.

[11]  Ministry of Health, NSW. Child personal health record (blue book) release of revised version 2012/2013. 2013. Available at: https://www1.health.nsw.gov.au/pds/ActivePDSDocuments/IB2013_028.pdf [verified 2 July 2017].

[12]  Glascoe FP. Using parents’ concerns to detect and address developmental and behavioral problems. J Soc Pediatr Nurs 1999; 4 24–35.
Using parents’ concerns to detect and address developmental and behavioral problems.Crossref | GoogleScholarGoogle Scholar | 10334009PubMed |

[13]  Overs BJ, Woolfenden S, Williams K, Jalaludin B, Axelsson E, Dissanayake C, Descallar J, Harvey S, Beasley D, Murphy E, Eapen V; and the ‘Watch Me Grow’ Study Group Predictors of developmental surveillance completion at six months of age in south western Sydney. Child Care Health Dev 2017; 43 307–15.
| 27910128PubMed |

[14]  Chung PJ, Lee TC, Morrison JL, Schuster MA. Preventive care for children in the United States: quality and barriers. Annu Rev Public Health 2006; 27 491–515.
Preventive care for children in the United States: quality and barriers.Crossref | GoogleScholarGoogle Scholar | 16533127PubMed |

[15]  Eapen V, Woolfenden S, Williams K, Jalaludin B, Dissanayake C, Axelsson EL, Murphy E, Eastwood J, Descallar J, Beasley D, Črnčec R, Short K, Silove N, Einfeld S, Prior M. Are you available for the next 18 months? Methods and aims of a longitudinal birth cohort study investigating a universal developmental surveillance program: the ‘Watch Me Grow’ study. BMC Pediatr 2014; 14 234
| 25241772PubMed |

[16]  Woolfenden S, Eapen V, Axelsson E, Hendry A, Jalaludin B, Dissanayake C, Overs B, Descallar J, Eastwood J, Einfeld S, Silove N, Short K, Beasley D, Črnčec R, Murphy E, Williams K. Who is our cohort: recruitment, representativeness, baseline risk and retention in the ‘Watch Me Grow’ study? BMC Pediatr 2016; 16 46
| 27013220PubMed |

[17]  Edwards B. Growing up in Australia: The Longitudinal Study of Australian Children – the first decade of life. Fam Matters 2012; 91 7–17.

[18]  Comino E, Craig P, Harris E, McDermott D, Harris M, Henry R, Pulver LJ, Kemp L, Knight J. The Gudaga Study: establishing an Aboriginal birth cohort in an urban community. Aust N Z J Public Health 2010; 34 S9–17.
The Gudaga Study: establishing an Aboriginal birth cohort in an urban community.Crossref | GoogleScholarGoogle Scholar | 20618303PubMed |

[19]  Bronfenbrenner U. The ecology of human development: experiments by nature and design. Cambridge, MA: Harvard University Press; 1979.

[20]  Australian Bureau of Statistics (ABS). Census of population and housing: Socio-Economic Indexes for Areas (SEIFA), Australia, 2011. 2011. Available at: https://www.abs.gov.au/ausstats/abs@.nsf/Lookup/by%20Subject/2033.0.55.001~2011~Main%20Features~Main%20Page~1 [verified 24 July 2019].

[21]  SAS Institute Inc. SAS Enterprise Guide software version 7.15. Cary, NC: SAS Institute Inc.; 2017.

[22]  Fort Harris M, Harris E, Roland M. Access to primary health care: three challenges to equity. Aust J Primary Health 2004; 10 21–9.
Access to primary health care: three challenges to equity.Crossref | GoogleScholarGoogle Scholar |

[23]  Comino EJ, Harris E. Maternal and infant services: examination of access in a culturally diverse community. J Paediatr Child Health 2003; 39 95–9.
Maternal and infant services: examination of access in a culturally diverse community.Crossref | GoogleScholarGoogle Scholar | 12603796PubMed |

[24]  Sen G, Östlin P, George A. Unequal, unfair, ineffective and inefficient gender inequity in health: why it exists and how we can change it. Final report to the WHO Commission on Social Determinants of Health. 2007. Available at: http://www.who.int/social_determinants/resources/csdh_media/wgekn_final_report_07.pdf [verified 27 April 2020].

[25]  Najman JM, Bor W, Morrison J, Andersen M, Williams G. Child developmental delay and socio-economic disadvantage in Australia: a longitudinal study. Soc Sci Med 1992; 34 829–35.
Child developmental delay and socio-economic disadvantage in Australia: a longitudinal study.Crossref | GoogleScholarGoogle Scholar | 1376498PubMed |

[26]  Woolfenden S, Eapen V, Williams K, Hayen A, Spencer N, Kemp L. A systematic review of the prevalence of parental concerns measured by the Parents’ Evaluation of Developmental Status (PEDS) indicating developmental risk. BMC Pediatr 2014; 14 231
| 25218133PubMed |

[27]  Woolfenden S, Posada N, Krchnakova R, Crawford J, Gilbert J, Jursik B, Sarkozy V, Perkins D, Kemp L. Equitable access to developmental surveillance and early intervention – understanding the barriers for children from culturally and linguistically diverse (CALD) backgrounds. Health Expect 2015; 18 3286–301.
Equitable access to developmental surveillance and early intervention – understanding the barriers for children from culturally and linguistically diverse (CALD) backgrounds.Crossref | GoogleScholarGoogle Scholar | 25510182PubMed |

[28]  Carbone S, Fraser A, Ramburuth R, Nelms L. Breaking cycles, building futures. Promoting inclusion of vulnerable families in antenatal and universal early childhood services: a report on the first three stages of the project. Melbourne: Department of Human Services, Victorian Government; 2004.