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Association of family characteristics with health status and needs among children with congenital heart disease

Published online by Cambridge University Press:  04 October 2021

Ashley Peterson ,
Elizabeth Cochran ,
Dmitry Tumin  and
Lauren A. Sarno Open the ORCID record for Lauren A. Sarno [Opens in a new window]
Ashley Peterson
Affiliation:
Department of Sociology, East Carolina University, Greenville, NC, USA
Elizabeth Cochran
Affiliation:
Brody School of Medicine, East Carolina University, Greenville, NC, USA
Dmitry Tumin
Affiliation:
Department of Pediatrics, Brody School of Medicine, East Carolina University, Greenville, NC, USA
Lauren A. Sarno*
Affiliation:
Department of Pediatrics, Pediatric Cardiology, Brody School of Medicine, East Carolina University, Greenville, NC, USA
*
Author for correspondence: L. A. Sarno, MD, Division of Pediatric Cardiology, Department of Pediatrics, Brody School of Medicine, East Carolina University, 115 Heart Drive, Greenville, NC27834-4354, USA. Tel: 252-744-5601; Fax: 252-744-3814. E-mail: sarnol18@ecu.edu
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Abstract

Introduction:

Low socio-economic status is associated with poorer quality of life among children with congenital heart disease (CHD), but this finding is based on disparities among children remaining under cardiology follow-up. We used a population-based health survey data set to analyse the impact of socio-economic status on health and functional status among children with CHD.

Materials and methods:

We used 2007–2018 National Health Interview Survey data, selecting children 2–17 years of age who had been diagnosed with CHD. Outcomes included caregiver-rated general health, presence of functional limitations, number of missed school days, need for special education, and need for special equipment related to the child’s health conditions. Socio-economic status measures included maternal educational attainment, food stamp programme participation, poverty status, and insurance coverage.

Results:

Based on a sample of 233 children with CHD, 10% had fair or poor health, 38% reported having any health-related limitation on their usual activities, 11% needed special equipment, and 27% received special education services. On multivariable analysis, lower maternal educational attainment was correlated with worse caregiver-rated health, and children without insurance were especially likely to experience functional limitations. Black children with CHD had significantly worse caregiver-rated health compared to White children (ordered logit odds ratio: 0.19; 95% confidence interval: 0.08, 0.45; p < 0.001).

Conclusions:

In a population-based survey of children with CHD, race and several measures of socio-economic status disadvantage were associated with worse health outcomes. Further evaluation of social determinants of health during cardiology follow-up may help improve outcomes for children with CHD in socio-economically disadvantaged families.

Keywords

Socio-economic statusimpactCHDhealth outcomes
Type
Original Article
Information
Cardiology in the Young , Volume 32 , Issue 8 , August 2022 , pp. 1276 - 1284
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Copyright
© The Author(s), 2021. Published by Cambridge University Press

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