My life as Mae Tid Chua [mothers who contracted HIV disease]: Motherhood and women living with HIV/AIDS in central Thailand
Introduction
Thailand is one of the Asian countries that have been hit hard by the epidemic of HIV/AIDS. Currently, about half a million (530,000) Thai people are living with HIV/AIDS (UNAIDS, 2012). Although Thailand has successfully reduced the spread of HIV among female and male sex workers and their clients, HIV seroprevalence among pregnant women has steadily increased (Thiangtham and Bennett, 2009, Liamputtong et al., 2012). In 2012, there are 210,000 women living with HIV/AIDS, aged 15 and over, living in Thailand (UNAIDS, 2012). Similarly to women in other parts of Asia, the majority of Thai women contracted HIV from having sex within monogamous relationships with partners who engaged in high-risk behaviour (Ainsworth et al., 2003, Liamputtong et al., 2012).
Literature suggests that many women living with HIV/AIDS desire to become mothers and indeed many of them have done so (Thiangtham and Bennett, 2009, Barnes, 2013, Cogna et al., 2013, Lazarus et al., 2013, Ross, 2013, Yeatman and Trinitapoli, 2013). Literature also suggests that women who are living with HIV/AIDS and who are mothers carry a triple burden of being HIV-infected; they are mothers of children who may or may not be positive themselves, and often are also caregivers to their partners who live with HIV/AIDS (Thomas, 2006, Hejoaka, 2009, Thomas et al., 2009). When a woman is labelled as having HIV, she is treated with suspicion, her morality is questioned, and often, blame is placed on her (Cullinane, 2007, Liamputtong et al., 2009, Thomas et al., 2009). Japanese women living with HIV/AIDS, for example, ‘are blamed for eschewing marriage and motherhood in favor of material pursuits’ (Cullinane, 2007: 255).
In this paper, we explored the experiences of pregnancy and birth, motherhood, and infant feeding practices among women living with HIV/AIDS in Thailand. Specifically, we investigated how these women perceived themselves as mothers, what experiences they had regarding their reproductive rights, and how they coped with infant feeding practices in their everyday life.
Section snippets
Methodology
This article is based on our larger project on the experiences of women living with HIV/AIDS in Thailand (Liamputtong et al., 2009, Liamputtong et al., 2012). A qualitative approach was adopted because qualitative researchers accept that, to understand people׳s behaviour, we must attempt to understand the meanings and interpretations that people give to their behaviour (Bryman, 2012, Creswell, 2012). This approach is particularly useful when we have little knowledge of the participants and
Participants characteristics
The majority of the women were aged between 31 and 40 years. Four were under 30 years of age and five were over 40. Most (25) were Buddhist and one was Muslim. Nineteen women were living with their new partners at the time of the interview, one was married, two were divorced, two widowed and another two were single mothers. Twelve women had primary school education, 11 finished secondary school education, and three had vocational college training. At the time of the interview, seven women
Discussion
Significant progress in HIV antiretroviral treatment (ARV) in recent years has improved the quality of life of many women living with HIV/AIDS (Liamputtong, 2013b, Liamputtong et al., 2014). These advances have allowed women with HIV/AIDS to change their expectations about motherhood and indeed, many of these women have children (Cooper et al., 2007, Hebling and Hardy, 2007, Agadjanian and Hayford, 2009, Nduna and Farlane, 2009, Thiangtham and Bennett, 2009, Cliffe et al., 2011, Cogna et al.,
Conclusion and implications for midwives
This paper contributes to conceptual understanding about the lived experiences of motherhood among women living with HIV/AIDS in Thailand. Motherhood was perceived as an important part of their lives, but because of their health status and other social circumstances, future childbearing was problematic for them.
Our study was based on a qualitative research with small number of participants. The findings cannot be generalised to all women living with HIV/AIDS in Thailand (Bryman, 2012, Creswell,
Acknowledgements
We are grateful to all the women who participated in this study. We thank Frances Happ who edited the paper for us. This paper is based on a collaboration research grant provided by the Faculty of Health Sciences, La Trobe University (Project No. 3.1).
References (54)
- et al.
AIDS and public policy: the lesson and challenges of ‘success’ in Thailand
Health Policy
(2003) - et al.
‘Life is still going on’: reproductive intentions among HIV-positive women and men in South Africa
Soc. Sci. Med.
(2007) - et al.
Counseling and choosing between infant-feeding options: overall limits and local interpretations by health care providers and women living with HIV in resource-poor countries (Burkina Faso, Cambodia, Cameroon)
Soc. Sci. Med.
(2009) - et al.
Safer sex and reproductive choice: findings from ‘Positive Women: Voices and Choices’ in Zimbabwe
Reprod. Health Matters
(2003) Care and secrecy: being a mother of children living with HIV in Burkina Faso
Soc. Sci. Med.
(2009)- et al.
Cambodian immigrant women’s postpartum experiences in Victoria
Australia. Midwifery
(2013) - et al.
HIV-positive women׳s experiences of a PMTCT programme in rural Malawi
Midwifery
(2010) - et al.
HIV and AIDS, stigma and AIDS support groups: perspectives from women living with HIV and AIDS in central Thailand
Soc. Sci. Med.
(2009) - et al.
Mothers on the margins: implications for eradicating perinatal HIV
Soc. Sci. Med.
(2006) - et al.
Joy, struggle and support: postpartum experiences of first-time mothers in a Tanzanian suburb
Women Birth
(2011)
Stigma, fatigue and social breakdown: exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia
Soc. Sci. Med.
PMTCT, HAART, and childbearing in Mozambique: an institutional perspective
AIDS Behav.
‘I will not let my HIV status stand in the way’. Decisions on motherhood among women on ART in a slum in Kenya – a qualitative study
BMC Womens Health
‘I always wanted to see my babies grow up’: motherhood experiences for women living longer than expected with HIV/AIDS
Social support: proposing a conceptual model for application to midwifery practice
Women Birth
Using thematic analysis in psychology
Qual. Res. Psychol.
Social Research Methods
Phenomenology and rehabilitation research
Fertility intentions of HIV-infected women in the United Kingdom
AIDS Care
Pregnancy and motherhood in the narratives of women with HIV infection living in the metropolitan area of Buenos Aires, Argentina
Qualitative Inquiry and Research Design: Choosing Among Five Approaches
The domestication of AIDS: stigma, gender, and the body politic in Japan
Med. Anthropol.
MOMS: formative evaluation and subsequent intervention for mothers living with HIV
AIDS Care
The MOMS (Making Our Mothers Stronger) project: a culturally tailored parenting intervention for mothers living with HIV in the Southern USA
A feeding education program to prevent mother-to-child transmission of HIV in Haiti
AIDS Care
Infant feeding in the era of HIV: challenges and opportunities
Understanding high fertility desires and intentions among a sample of urban women living with HIV in the United States
AIDS Behav.
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