Elsevier

Midwifery

Volume 30, Issue 12, December 2014, Pages 1166-1172
Midwifery

My life as Mae Tid Chua [mothers who contracted HIV disease]: Motherhood and women living with HIV/AIDS in central Thailand

https://doi.org/10.1016/j.midw.2014.04.003Get rights and content

Highlights

  • Becoming a mother permitted the women to have a meaningful life.

  • Motherhood prompted the women to stay alive for their children.

  • Reproductive needs of the women were questioned by health care providers.

  • Women were advised not to breast feed their newborn babies as this could transmit HIV to the child.

  • Women took into account their ability to care for their children in the future.

Abstract

Background

literature suggests that many women living with HIV/AIDS have a desire to become mothers and indeed many of them have done so (Thiangtham and Bennett, 2009, Barnes, 2013, Cogna et al., 2013, Lazarus et al., 2013, Ross, 2013, Yeatman and Trinitapoli, 2013). However, there is still a lack of knowledge about the lived experiences of Thai women living with HIV/AIDS who have become mothers. In this paper, we explored the experiences of pregnancy and birth, motherhood, and infant feeding practices among women living with HIV/AIDS in Thailand.

Method

in-depth interviews were conducted with 26 women living with HIV/AIDS in Thailand.

Findings

motherhood was considered desirable by women living with HIV/AIDS who participated in our study. Despite living with a serious illness, becoming a mother permitted them to have a meaningful life. Motherhood prompted the women to stay alive for their children. However, the women lived with constant anxiety about the condition of their infants. Reproductive needs of the women in our study were often questioned by their health care providers. Many were advised by their doctors and nurses not to breast feed their newborn babies as this could transmit HIV to the child. Most women took into account their ability to care for their children in the future and thus did not wish to have many children.

Conclusion

this paper contributes to conceptual understanding about the lived experiences of motherhood among women living with HIV/AIDS in Thailand. The findings have implications for midwifery care.

Introduction

Thailand is one of the Asian countries that have been hit hard by the epidemic of HIV/AIDS. Currently, about half a million (530,000) Thai people are living with HIV/AIDS (UNAIDS, 2012). Although Thailand has successfully reduced the spread of HIV among female and male sex workers and their clients, HIV seroprevalence among pregnant women has steadily increased (Thiangtham and Bennett, 2009, Liamputtong et al., 2012). In 2012, there are 210,000 women living with HIV/AIDS, aged 15 and over, living in Thailand (UNAIDS, 2012). Similarly to women in other parts of Asia, the majority of Thai women contracted HIV from having sex within monogamous relationships with partners who engaged in high-risk behaviour (Ainsworth et al., 2003, Liamputtong et al., 2012).

Literature suggests that many women living with HIV/AIDS desire to become mothers and indeed many of them have done so (Thiangtham and Bennett, 2009, Barnes, 2013, Cogna et al., 2013, Lazarus et al., 2013, Ross, 2013, Yeatman and Trinitapoli, 2013). Literature also suggests that women who are living with HIV/AIDS and who are mothers carry a triple burden of being HIV-infected; they are mothers of children who may or may not be positive themselves, and often are also caregivers to their partners who live with HIV/AIDS (Thomas, 2006, Hejoaka, 2009, Thomas et al., 2009). When a woman is labelled as having HIV, she is treated with suspicion, her morality is questioned, and often, blame is placed on her (Cullinane, 2007, Liamputtong et al., 2009, Thomas et al., 2009). Japanese women living with HIV/AIDS, for example, ‘are blamed for eschewing marriage and motherhood in favor of material pursuits’ (Cullinane, 2007: 255).

In this paper, we explored the experiences of pregnancy and birth, motherhood, and infant feeding practices among women living with HIV/AIDS in Thailand. Specifically, we investigated how these women perceived themselves as mothers, what experiences they had regarding their reproductive rights, and how they coped with infant feeding practices in their everyday life.

Section snippets

Methodology

This article is based on our larger project on the experiences of women living with HIV/AIDS in Thailand (Liamputtong et al., 2009, Liamputtong et al., 2012). A qualitative approach was adopted because qualitative researchers accept that, to understand people׳s behaviour, we must attempt to understand the meanings and interpretations that people give to their behaviour (Bryman, 2012, Creswell, 2012). This approach is particularly useful when we have little knowledge of the participants and

Participants characteristics

The majority of the women were aged between 31 and 40 years. Four were under 30 years of age and five were over 40. Most (25) were Buddhist and one was Muslim. Nineteen women were living with their new partners at the time of the interview, one was married, two were divorced, two widowed and another two were single mothers. Twelve women had primary school education, 11 finished secondary school education, and three had vocational college training. At the time of the interview, seven women

Discussion

Significant progress in HIV antiretroviral treatment (ARV) in recent years has improved the quality of life of many women living with HIV/AIDS (Liamputtong, 2013b, Liamputtong et al., 2014). These advances have allowed women with HIV/AIDS to change their expectations about motherhood and indeed, many of these women have children (Cooper et al., 2007, Hebling and Hardy, 2007, Agadjanian and Hayford, 2009, Nduna and Farlane, 2009, Thiangtham and Bennett, 2009, Cliffe et al., 2011, Cogna et al.,

Conclusion and implications for midwives

This paper contributes to conceptual understanding about the lived experiences of motherhood among women living with HIV/AIDS in Thailand. Motherhood was perceived as an important part of their lives, but because of their health status and other social circumstances, future childbearing was problematic for them.

Our study was based on a qualitative research with small number of participants. The findings cannot be generalised to all women living with HIV/AIDS in Thailand (Bryman, 2012, Creswell,

Acknowledgements

We are grateful to all the women who participated in this study. We thank Frances Happ who edited the paper for us. This paper is based on a collaboration research grant provided by the Faculty of Health Sciences, La Trobe University (Project No. 3.1).

References (54)

  • F. Thomas

    Stigma, fatigue and social breakdown: exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia

    Soc. Sci. Med.

    (2006)
  • V. Agadjanian et al.

    PMTCT, HAART, and childbearing in Mozambique: an institutional perspective

    AIDS Behav.

    (2009)
  • A. Awiti Ujiji et al.

    ‘I will not let my HIV status stand in the way’. Decisions on motherhood among women on ART in a slum in Kenya – a qualitative study

    BMC Womens Health

    (2010)
  • D.B. Barnes

    ‘I always wanted to see my babies grow up’: motherhood experiences for women living longer than expected with HIV/AIDS

  • F.E. Bogossian

    Social support: proposing a conceptual model for application to midwifery practice

    Women Birth

    (2007)
  • V. Braun et al.

    Using thematic analysis in psychology

    Qual. Res. Psychol.

    (2006)
  • A. Bryman

    Social Research Methods

    (2012)
  • C. Carpenter

    Phenomenology and rehabilitation research

  • S. Cliffe et al.

    Fertility intentions of HIV-infected women in the United Kingdom

    AIDS Care

    (2011)
  • M.L. Cogna et al.

    Pregnancy and motherhood in the narratives of women with HIV infection living in the metropolitan area of Buenos Aires, Argentina

  • J.W. Creswell

    Qualitative Inquiry and Research Design: Choosing Among Five Approaches

    (2012)
  • J. Cullinane

    The domestication of AIDS: stigma, gender, and the body politic in Japan

    Med. Anthropol.

    (2007)
  • S.L. Davies et al.

    MOMS: formative evaluation and subsequent intervention for mothers living with HIV

    AIDS Care

    (2009)
  • S.L. Davies et al.

    The MOMS (Making Our Mothers Stronger) project: a culturally tailored parenting intervention for mothers living with HIV in the Southern USA

  • M.-M. Deschamps et al.

    A feeding education program to prevent mother-to-child transmission of HIV in Haiti

    AIDS Care

    (2009)
  • T. Doherty

    Infant feeding in the era of HIV: challenges and opportunities

  • S. Finocchario-Kessler et al.

    Understanding high fertility desires and intentions among a sample of urban women living with HIV in the United States

    AIDS Behav.

    (2010)
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