Original ArticleDemographic and Clinical Correlates of Diabetes-Related Quality of Life among Youth with Type 1 Diabetes
Section snippets
Methods
SEARCH is a multicenter study that in 2001 began conducting population-based ascertainment of youth diagnosed with T1DM at age <20 years.8 SEARCH recruited youth from 4 geographically defined populations, Indian Health Service beneficiaries from 4 American Indian populations, and enrollees in several managed health care plans. Institutional review board(s) for each site approved the study protocol. All registered cases were asked to complete a brief initial survey; survey respondents were
Results
The study sample comprised 2602 youth (mean age, 13.6 ± 4.1 years) who had T1DM for a mean duration of 62.1 ± 47.0 months and had a mean HbA1c value of 8.5% ± 1.6%. Three-quarters were non-Hispanic white, 50% were male, and ≈80% had a parent with at least some college education and were privately insured. Approximately half of the youth in the cohort used multiple daily insulin injections, and 22% used an insulin pump.
Discussion
We found that the 5 original subscales of the PedsQL-T1DM module were not supported by our PCA. A 5-cluster solution explained only ∼43% of the total variation among item responses. Our conclusions are consistent with those of Nansel et al,21 who conducted a similar analysis on responses from 447 youth with T1DM using PCA with a promax rotation and concluded that the PedsQL-T1DM total score, but not the original subscales, was the most appropriate unit for analysis. Their 5-factor structure
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Funding information is available at www.jpeds.com (Appendix 2). The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the Centers for Disease Control and Prevention. The authors declare no conflicts of interest.
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A list of members of the SEARCH for Diabetes in Youth Study is available at www.jpeds.com (Appendix 1).