Clinical MethodsWhy isn't evidence based practice improving health care for minorities in the United States?
Introduction
According to the 2010 census data, minorities now account for approximately 37% of the United States' (U.S.) population, up from 12.5% in 1970; this figure is projected to increase to 40% by 2020 (U.S. Bureau of Census, 2011). Despite the fact that there have been advances in health science and medical technology as well as the introduction of evidence-based practice (EBP) over the past three decades, the continued racial/ethnic health and health care disparities are evident as both old and new references have shown the same patterns of health disparities (Agency for Healthcare Research and Quality, 2008, Institute of Medicine, 2001, Institute of Medicine, 2002, Institute of Medicine, 2010, U.S. Bureau of Census, 2011, Jemal et al., 2010, LaVeist et al., 2011, Lee and Baik, 2010; Smedley, Stith, & Nelson, 2003).
EBP originated in countries with national health systems (Evidence Based Medicine Working Group, 1992, Guyatt et al., 1995, Sackett, 1986). However, access to health care is not universal in the U.S. and more than 19% (48.1 million of people) of those under age 65 were without any form of health insurance in 2004 and most of the uninsured were (and still are) racial/ethnic minorities (Department of Health and Human Services, 2011, Rhoades, 2005). An individual in the U.S. who is able to pay for health services can select both the circumstances and quality of health care services, hence the patient's circumstance is not only influenced by cultural factors but also by predetermined socioeconomic factors imbedded in our health care financing system.
The National Institutes of Health (2004) has defined health disparities as diseases, disorders, and conditions that disproportionately afflict individuals who are members of racial and ethnic minority groups. The Institute of Medicine (2002) has provided empirical evidence of health and health care disparities among racial/ethnic minority groups. Cultural differences, lack of health care access, high rates of poverty, and unequal treatment by health care professionals contribute to substantial ethnic/racial health disparities. For example, the U.S. ranked 30th in the world in maternal mortality in 2000 (Tucker, Berg, Callaghan, & Hsia, 2007). One reason behind such a low ranking is the significant disparities between Black and White women; Black women consistently experience almost a fourfold greater risk of death from pregnancy complications, independent of age, parity, or education.
The racial/ethnic differences in cancer incidence and mortality are one of many areas that reflect the heterogeneity of the population and the quality of health care in the U.S. (Baquet et al., 2008, Jemal et al., 2010, Parker et al., 1998). Although overall cancer incidence rates appear to have stabilized over the last 10 years, incidence and mortality patterns differ across racial/ethnic groups (Tucker et al., 2007). Black men have a 25% higher incidence rate and a 43% higher death rate than White men for all cancer sites combined. White women have the highest incidence of breast cancer as well as a higher age-adjusted breast cancer rate than minority women, yet Black women have much higher mortality rates than White women (Baquet et al., 2008, Hirschman et al., 2007). Major cancer sites and higher mortality rates that are not common in the general population, especially among Whites, are often seen in minority groups, including liver, stomach, pancreatic, and cervical cancer (American Cancer Society [ACS], 2010). Interestingly, most of these cancers (e.g., liver and cervical cancers) are caused by infection, and are vaccine preventable. Yet these cancers are not ranked highest in other populations, and hence, Healthy People 2010 (Department of Health and Human Services, 2001) does not recognize these cancers as prioritized health disparities.
Numerous studies have documented that the quality of health care in the U.S. varies according to patients' race/ethnicity, income, education, and environment (Department of Health and Human Services, 2011, Institute of Medicine, 2001, Koh et al., 2010, LaVeist et al., 2011, Smedley et al., 2003). The midcourse review of Healthy People 2010 (Department of Health and Human Services, 2007) warned that reducing or eliminating health disparities remained a critical scientific challenge, as well as a moral and ethical dilemma for the nation. A blue ribbon panel convened by the IOM (Institute of Medicine, 2001, Smedley et al., 2003) noted in its report, Unequal treatment: confronting racial and ethnic disparities in health care, that racial/ethnic minorities (even when adjusted for access to health care) receive poorer quality care than White patients for many medical conditions. The IOM panel reviewed over 100 studies that assessed the quality of healthcare provided to various racial and ethnic minority groups and recommended the use of evidence based guidelines as an important means to achieve the consistency and equality of care among racial/ethnic minority populations (Nelson, 2002).
Along with this impetus in a larger health care context, the term “evidence-based practice” has been enthusiastically accepted by nursing, and thus, has become embedded in nursing education, practice, and research (American Association of College of Nursing, 2007, Ingersoll, 2000). Within the past three decades, EBP has quickly become a mantra for nurses who would have otherwise rejected nursing practices that were based on evidence drawn from individual clinical experiences, interactions, or intuition (versus scientific research). EBP is now considered as the way to do things and the way to avoid harmful interventions for all.
Despite the enthusiastic acceptance and use of EBP to promote quality of care across populations over the past three decades, the gap in health disparities has not been reduced among most racial/ethnic groups (Department of Health and Human Services, 2007, Institute of Medicine, 2002). Our efforts to reduce health disparities by means of EBP may have overlooked the conceptualization of “evidence” and its application to “evidence-based” practice for ethnically/racially diverse populations.
While EBP has been defined as the conscientious explicit, and judicious use of the current best evidence in making decisions about the care of patients (Sackett, Rosenberg, Gray, & Richardson, 1996), there are different definitions of EBP with different emphasis. However, an early definition that was based on the hierarchy of evidence has promoted randomized controlled trials (RCTs) as the most valid source of evidence (Evidence Based Medicine Working Group, 1992, Guyatt et al., 1995, Sackett, 1986, Sackett et al., 2000, Sackett et al., 1996), deemed efficacious through systemic analysis of accumulated RCTs. The problems with current EBPs focused on reducing health disparities may stem from an overemphasis on research knowledge, that does not equally emphasize the patient's values and preference and the sociocultural situation in which the care is delivered as well as the clinicians' expertise. This assertion might have unintentionally led to a depreciation and misunderstanding of the role of the sociocultural context in which EBP is implemented. Along the same line, the application of existing evidence to racial/ethnic minority populations without considering sociocultural differences from which that existing data were generated can compound the problem.
Therefore, the purpose of this article is to respond to a question, “Why does EBP not improve health and health care for racial/ethnic minorities in the US?” The issues of the application of EBP with racial/ethnic minority populations will be discussed in three areas: (1) a lack of data for EBP with ethnic/racial minority population; (2) limited research evaluation of the generalizability of the evidence based on a European-American middle-class; and (3) sociocultural considerations in the context of EBP.
Section snippets
Data disparities and EBP
The nation's minority populations are rapidly increasing and by the year 2050, projections show that ethnic minorities will comprise over 50% of the U.S. (U.S. Bureau of Census, 2011). Therefore, it is imperative to generate data on which EBP can be based for these rapidly growing subpopulations. However, available evidence to date does not reflect this multicultural transformation; neither the generation of evidence nor the application or translation of generated evidence among these rapidly
Generalizability of evidence: evidence for whom?
The question to be addressed in this section is the relevance of evidence generated from predominantly White, middle-class, English-speakers for racial/ethnic minorities. A similar question, but in a reverse format, “Can an evidence-based protocol with efficacy in a predominantly racial/ethnic minority sample (i.e., Black or Korean) be considered EBP for the White population?”, would help readers to grasp the reality and significance of the issue of external validity. Generalizability is the
Sociocultural considerations in the context of EBP
The challenges associated with implementing EBP in the sociocultural context of racial/ethnic minorities is that both RCTs and practice guidelines often overlook the important role of sociocultural diversity that exists in reality. However, there are many reasons why sociocultural factors should be considered when implementing EBP. Nursing care itself is a sociocultural phenomenon. Also, there is evidence from studies to support the belief that sociocultural factors influence an individual's
Concluding remarks
The persistent disparities in health and health care among minority groups, in spite of enthusiastic adoption of EBPs, call for health professionals' keen appreciation of the major limitations of EBP in that only inadequate data are currently available to guide EBP for racial/ethnic minority groups. The U.S. has fast growing racial/ethnic minority groups and therefore, the health knowledge developed for professional health practice should reflect the diversity of the population. More studies
Acknowledgments
The conception of this article was based on a 1st and 2nd authors’ international seminar entitled, “Diverse ethnic groups in Korea: Embrace ethnic diversity in nursing practice, education, and research at Chunbuk National University and Chosun University in 2010. This international seminar aspired to challenge presenters and Korean nursing faculty, nurses, and students to be more focused on evidence /knowledge development with relevance to health disparities in Korea, in particular, in the
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