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Quality of life in women with lipoedema: a contextual behavioral approach

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Abstract

Purpose

Lipoedema is a chronic, progressive adipose disorder of unknown etiology, often underdiagnosed or misdiagnosed as obesity. It manifests itself with accumulation of the fat in lower parts of the body and associated edema and, due to numerous physical and psychological consequences, affects the quality of life (QOL) of those who suffer. The aim of this study was to investigate the psychological factors that might have an impact on the QOL of women with lipoedema from the contextual behavioral viewpoint.

Methods

In an Internet-based cross-sectional study, women suffering from lipoedema (N = 120) were asked to fill in questionnaires assessing: symptom severity, QOL (WHOQOL-BREF), satisfaction with life (SWLS), psychological flexibility (Acceptance and Action Questionnaire-II), social connectedness (Social Connectedness Scale-Revised) and other psychological factors. The majority of participants were from the USA, the UK, and Australia.

Results

Multiple hierarchical regression analyses showed that a higher level of QOL was predicted by higher levels of psychological flexibility and social connectedness, while controlling for symptom severity. Higher level of SWL was predicted only by higher level of social connectedness.

Conclusions

Acceptance and Commitment Therapy with psychological flexibility as the target of change and Functional Analytic Psychotherapy with social connectedness as the target of change might be useful in treating women with lipoedema; however, further research in this area is needed. The authors conclude that psychological and biomedical interventions for women with lipoedema and their QOL merit more attention from researchers and the medical community than is currently received.

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Notes

  1. http://groups.yahoo.com/neo/groups/lipedema_lipodema_lipoedema/info (current number of members is 1370).

  2. Other locations such as: Canada (N = 4), New Zealand (N = 3), Germany (N = 2), South Africa (N = 2), Peru (N = 2), Puerto Rico (N = 2), Egypt (N = 1) Greece (N = 1), Israel (N = 1), Portugal (N = 1), Isle of Man (N = 1), Norway (N = 1). Four participants did not provide their location.

  3. WHOQOL-BREF, Questionnaire, June 1997, Updated 1/10/2014 retrieved from http://depts.washington.edu/seaqol/WHOQOL-BREF.

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Authors and Affiliations

  1. University of Social Sciences and Humanities, Warsaw, Poland

    Joanna E. Dudek, Wojciech Białaszek & Paweł Ostaszewski

Authors
  1. Joanna E. Dudek
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  2. Wojciech Białaszek
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  3. Paweł Ostaszewski
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Correspondence to Joanna E. Dudek.

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The authors declare that they have no conflict of interest.

Ethical approval

This study has been approved by the relevant research ethics committee.

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Informed consent was obtained from all individual participants included in the study.

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Dudek, J.E., Białaszek, W. & Ostaszewski, P. Quality of life in women with lipoedema: a contextual behavioral approach. Qual Life Res 25, 401–408 (2016). https://doi.org/10.1007/s11136-015-1080-x

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