Skip to main content
Log in

Lessons Learned from Community-Led Recruitment of Immigrants and Refugee Participants for a Randomized, Community-Based Participatory Research Study

  • Brief Communication
  • Published:
Journal of Immigrant and Minority Health Aims and scope Submit manuscript

An Erratum to this article was published on 01 October 2016

Abstract

Ethnic minorities remain underrepresented in clinical trials despite efforts to increase their enrollment. Although community-based participatory research (CBPR) approaches have been effective for conducting research studies in minority and socially disadvantaged populations, protocols for CBPR recruitment design and implementation among immigrants and refugees have not been well described. We used a community-led and community-implemented CBPR strategy for recruiting 45 Hispanic, Somali, and Sudanese families (160 individuals) to participate in a large, randomized, community-based trial aimed at evaluating a physical activity and nutrition intervention. We achieved 97.7 % of our recruitment goal for families and 94.4 % for individuals. Use of a CBPR approach is an effective strategy for recruiting immigrant and refugee participants for clinical trials. We believe the lessons we learned during the process of participatory recruitment design and implementation will be helpful for others working with these populations.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Fig. 1

Abbreviations

CBPR:

Community-based participatory research

FHP:

Family health promoters

HSPT:

Human subjects protection training

IRB:

Institutional review board

References

  1. U.S. Census Bureau: 2010 demographic profile data. American FactFinder, 2010. (cited 9 July 2015) https://doi.org/factfinder.census.gov/faces/tableservices/jsf/pages/productview.xhtml?pid=DEC_10_DP_DPDP1&src=pt.

  2. Grieco EM, Trevelyan E, Larsen L, Acosta YD, Gambino C, de la Cruz P, et al. The size, place of birth, and geographic distribution of the foreign-born population in the United States: 1960 to 2010. US Census Bureau. 2012 Oct, Population Division Working Paper No. 96.

  3. Hohmann AA, Parron DL. How the new NIH guidelines on inclusion of women and minorities apply: efficacy trials, effectiveness trials, and validity. J Consult Clin Psychol. 1996;64(5):851–5.

    CAS  PubMed  Google Scholar 

  4. Birman D. Ethical issues in research with immigrants and refugees. In: Trimble JE, Fisher CB, editors. The handbook of ethical research with ethnocultural populations and communities. Thousand Oaks (CA): SAGE Publications, Inc.; 2006. p. 155–77.

    Google Scholar 

  5. De las Nueces D, Hacker K, Di Girolamo A, Hicks LS. A systematic review of community-based participatory research to enhance clinical trials in racial and ethnic minority groups. Health Serv Res. 2012;47(3 Pt 2):1363–86.

    PubMed  Google Scholar 

  6. Horowitz CR, Brenner BL, Lachapelle S, Amara DA, Arniella G. Effective recruitment of minority populations through community-led strategies. Am J Prev Med. 2009;37(6 Suppl 1):S195–200.

    PubMed  PubMed Central  Google Scholar 

  7. de la Torre A, Sadeghi B, Green RD, Kaiser LL, Flores YG, Jackson CF, et al. Ninos Sanos, Familia Sana: Mexican immigrant study protocol for a multifaceted CBPR intervention to combat childhood obesity in two rural California towns. BMC Public Health. 2013;31(13):1033.

    Google Scholar 

  8. Ellis BH, Kia-Keating M, Yusuf SA, Lincoln A, Nur A. Ethical research in refugee communities and the use of community participatory methods. Transcult Psychiatry. 2007;44(3):459–81.

    PubMed  Google Scholar 

  9. Hawley NC, Wieland ML, Weis JA, Sia IG. Perceived impact of human subjects protection training on community partners in community-based participatory research. Prog Community Health Partnersh. 2014;8(2):241–8.

    Google Scholar 

  10. Cross J, Pickering K, Hickey M. Community-based participatory research, ethics, and institutional review boards: untying a Gordian knot. Crit Sociol 3 Jun 2014. [Epub ahead of print].

Download references

Acknowledgments

Withheld for anonymous review.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Marcelo M. Hanza.

Ethics declarations

Conflict of interest

None.

Ethics Review Statement

This study was reviewed and approved by our institutional review board.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Hanza, M.M., Goodson, M., Osman, A. et al. Lessons Learned from Community-Led Recruitment of Immigrants and Refugee Participants for a Randomized, Community-Based Participatory Research Study. J Immigrant Minority Health 18, 1241–1245 (2016). https://doi.org/10.1007/s10903-016-0394-2

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10903-016-0394-2

Keywords

Navigation