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Maternal HIV Illness and its Impact on Children’s Well-being and Development in Haiti

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Abstract

Little is known about the impact of parental HIV illness on children’s well-being and development in the island nations of the Caribbean. Study objectives were to examine mothers’ experiences of impact of HIV illness on their children’s well-being and development in Haiti. Baseline interviews were conducted between 2006 and 2007 with 25 HIV-positive mothers as part of a larger study that examined the feasibility of a psychosocial support group intervention for HIV-affected youth and their caregivers in central Haiti. Interviews were transcribed verbatim and coded for topical themes by two investigators. Main themes related to impact of maternal HIV illness on children’s well-being were the lack of mothers’ physical strength to take care of their children, and difficulties in providing housing and food for their children. Children’s school enrollment, attendance, and performance were also affected by their mother’s illness. Mothers reported that although their children were HIV-negative, children were distressed by HIV-related stigma that they and their mothers experienced. Findings suggest that children living in HIV-affected families in this region face disadvantages in nutritional, educational, and psychological outcomes. These considerations should be taken into account when designing interventions to support children living in HIV-affected families in this setting.

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References

  • Boeije, H. (2002). A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Quality and Quantity, 36(4), 391–409.

    Article  Google Scholar 

  • Bronfenbrenner, U. (1979). The ecology of human development: Experiments by design and nature. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Bunn, J. E. (2009). Severe acute malnutrition and HIV in African children. HIV Therapy, 3(6), 595–611.

    Article  Google Scholar 

  • Castro, A., & Farmer, P. (2005). Understanding and addressing AIDS-related stigma: From anthropological theory to clinical practice in Haiti. American Journal of Public Health, 95(1), 53–59.

    Article  PubMed Central  PubMed  Google Scholar 

  • Chi, P., & Li, X. (2013). Impact of parental HIV/AIDS on children’s psychological well-being: A systematic review of global literature. AIDS and Behavior, 17(7), 2554–2574.

  • Conserve, D. F., Eustache, E., Oswald, C. M., Louis, E., King, G., Scanlan, F., Mukherjee, J. S., Surkan, P. J. (2014). Disclosure and impact of maternal HIV+ serostatus on mothers and children in rural Haiti. Maternal and child health journal, 18(10), 2309–2315.

  • Corbin, J., & Strauss, A. (2008). Basics of qualitative research: Techniques and procedures for developing grounded theory. Beverly Hills: Sage.

    Google Scholar 

  • Deschamps, M. M., Noel, F., Bonhomme, J., Dévieux, J. G., Saint-Jean, G., Zhu, Y., et al. (2009). Prevention of mother-to-child transmission of HIV in Haiti. Revista panamericana de salud pública, 25(1), 24–30.

    Article  PubMed  Google Scholar 

  • Dévieux, J. G., Rosenberg, R., Saint-Jean, G., Bryant, V. E., & Malow, R. M. (2013). The continuing challenge of reducing HIV risk among haitian youth: The need for intervention. Journal of the International Association of Providers of AIDS Care (JIAPAC). doi:10.1177/2325957411418119.

  • Fostera, G., & Williamsonb, J. (2000). A review of current literature of the impact of HIV/AIDS on children in sub-Saharan Africa. AIDS, 14(suppl 3), S275–S284.

    Google Scholar 

  • Fraser, H. S. F., Jazayeri, D., Nevil, P., Karacaoglu, Y., Farmer, P. E., Lyon, E., et al. (2004). An information system and medical record to support HIV treatment in rural Haiti. BMJ, 329(7475), 1142–1146.

    Article  PubMed Central  PubMed  Google Scholar 

  • Gage, A. J., & Hutchinson, P. L. (2006). Power, control, and intimate partner sexual violence in Haiti. Archives of Sexual Behavior, 35(1), 11–24.

    Article  PubMed  Google Scholar 

  • Gaillard, E., Boulos, L., Cayemittes, M. P. A., Eustache, L., Van Onacker, J., Duval, N., et al. (2006). Understanding the reasons for decline of HIV prevalence in Haiti. Sexually Transmitted Infections, 82(suppl 1), i14–i20.

    Article  PubMed Central  PubMed  Google Scholar 

  • Guo, Y., Li, X., & Sherr, L. (2012). The impact of HIV/AIDS on children’s educational outcome: A critical review of global literature. AIDS care, 24(8), 993–1012.

    Article  PubMed  Google Scholar 

  • Hallett, T. B., Aberle-Grasse, J., Bello, G., Boulos, L., Cayemittes, M., Cheluget, B., et al. (2006). Declines in HIV prevalence can be associated with changing sexual behaviour in Uganda, urban Kenya, Zimbabwe, and urban Haiti. Sexually Transmitted Infections, 82(suppl 1), i1–i8.

    Article  PubMed Central  PubMed  Google Scholar 

  • Hargreaves, J., Morison, L., Kim, J., Bonell, C., Porter, J., Watts, C., et al. (2008). The association between school attendance, HIV infection and sexual behaviour among young people in rural South Africa. Journal of Epidemiology and Community Health, 62(2), 113–119.

    Article  PubMed  Google Scholar 

  • Ji, G., Li, L., Lin, C., & Sun, S. (2007). The impact of HIV/AIDS on families and children: A study in China. AIDS London England, 21(Suppl 8), S157.

    Article  Google Scholar 

  • Koenig, S. P., Leandre, F., & Farmer, P. E. (2004). Scaling-up HIV treatment programmes in resource-limited settings: The rural Haiti experience. Aids, 18, S21–S25.

    Article  PubMed  Google Scholar 

  • Kotchick, B. A., Forehand, R., Brody, G., Armistead, L., Simon, P., Morse, E., & Clark, L. (1997). The impact of maternal HIV infection on parenting in inner-city African American families. Journal of Family Psychology, 11(4), 447.

    Article  Google Scholar 

  • Magadi, M. A. (2011). Household and community HIV/AIDS status and child malnutrition in sub-Saharan Africa: Evidence from the demographic and health surveys. Social Science and Medicine, 73(3), 436–446.

    Article  PubMed Central  PubMed  Google Scholar 

  • Malow, R., Rosenberg, R., Lichtenstein, B., & Dévieux, J. G. (2010). The impact of disaster on HIV in Haiti and priority areas related to the Haitian crisis. The Journal of the Association of Nurses in AIDS Care: JANAC, 21(3), 283.

    Article  PubMed Central  PubMed  Google Scholar 

  • Mon, M. M., Saw, S., Nu-Oo, Y. T., San, K. O., Myint, W. W., Aye, S. S., & Nge, P. T. (2013). Threat of HIV/AIDS in children: Social, education and health consequences among HIV orphans and vulnerable children in Myanmar. WHO South-East Asia Journal of Public Health, 2(1), 41.

    Article  Google Scholar 

  • Morse, J. M. (1996). Nursing research: The application of qualitative approaches. Cheltenham: Nelson Thornes.

    Book  Google Scholar 

  • Nalwoga, A., Maher, D., Todd, J., Karabarinde, A., Biraro, S., & Grosskurth, H. (2010). Nutritional status of children living in a community with high HIV prevalence in rural Uganda: A cross-sectional population-based survey. Tropical Medicine and International Health, 15(4), 414–422.

    PubMed  Google Scholar 

  • Noel, F., Mehta, S., Zhu, Y., Rouzier, P. D. M., Marcelin, A., Shi, J. R., et al. (2008). Improving outcomes in infants of HIV-infected women in a developing country setting. PLoS One, 3(11), e3723.

    Article  PubMed Central  PubMed  Google Scholar 

  • Peck, R., Fitzgerald, D. W., Liautaud, B., Deschamps, M. M., Verdier, R. I., Beaulieu, M. E., et al. (2003). The feasibility, demand, and effect of integrating primary care services with HIV voluntary counseling and testing: Evaluation of a 15-year experience in Haiti, 1985–2000. JAIDS Journal of Acquired Immune Deficiency Syndromes, 33(4), 470–475.

    Article  PubMed  Google Scholar 

  • Sherr, L., Cluver, L., Betancourt, T., Kellerman, S., Richter, L., & Desmond, C. (2014). Evidence of impact: Health, psychological and social effects of adult HIV on children. AIDS, 28, S251–S259.

    Article  PubMed  Google Scholar 

  • Skovdal, M., Ogutu, V. O., Aoro, C., & Campbell, C. (2009). Young carers as social actors: Coping strategies of children caring for ailing or ageing guardians in Western Kenya. Social Science and Medicine, 69(4), 587–595.

    Article  PubMed  Google Scholar 

  • Smith Fawzi, M. C., Eustache, E., Oswald, C., Louis, E., Surkan, P. J., Scanlan, F., et al. (2012a). Psychosocial support intervention for HIV-affected families in Haiti: Implications for programs and policies for orphans and vulnerable children. Social Science and Medicine, 74(10), 1494–1503.

    Article  PubMed  Google Scholar 

  • Smith Fawzi, M. C., Eustache, E., Oswald, C., Louis, E., Surkan, P. J., Scanlan, F., Hook, S., Mancuso, A., Mukherjee, J. S. (2012b). Psychosocial support intervention for HIV-affected families in Haiti: Implications for programs and policies for orphans and vulnerable children. Social Science and Medicine. doi:10.1016/j.socscimed.2012.01.022.

  • Smith Fawzi, M. C., Eustache, E., Oswald, C., Surkan, P., Louis, E., Scanlan, F., et al. (2010). Psychosocial functioning among HIV-affected youth and their caregivers in Haiti: Implications for family-focused service provision in high HIV burden settings. AIDS patient care and STDs, 24(3), 147–158.

    Article  PubMed Central  PubMed  Google Scholar 

  • Speizer, I. S., Beauvais, H., Gómez, A. M., Outlaw, T. F., & Roussel, B. (2009). Using multiple sampling approaches to measure sexual risk-taking among young people in Haiti: Programmatic implications. Studies in Family Planning, 40(4), 277–288.

    Article  PubMed Central  PubMed  Google Scholar 

  • Surkan, P. J., Mukherjee, J. S., Williams, D. R., Eustache, E., Louis, E., Jean-Paul, T., et al. (2010). Perceived discrimination and stigma toward children affected by HIV/AIDS and their HIV-positive caregivers in central Haiti. AIDS care, 22(7), 803–815.

    Article  PubMed Central  PubMed  Google Scholar 

  • UNAIDS. (2010). The status of HIV in the Caribbean. 1–27.

  • Wagner, G., Ryan, G., Huynh, A., Kityo, C., & Mugyenyi, P. (2009). A qualitative analysis of the economic impact of HIV and antiretroviral therapy on individuals and households in Uganda. AIDS Patient Care and STDs, 23(9), 793–798.

    Article  PubMed  Google Scholar 

  • Walton, D. A., Farmer, P. E., Lambert, W., Leandre, F., Koenig, S. P., & Mukherjee, J. S. (2004). Integrated HIV prevention and care strengthens primary health care: Lessons from rural Haiti. Journal of Public Health Policy, 25(2), 137–158.

  • Xu, T., Wu, Z., Duan, S., Han, W., & Rou, K. (2010). The situation of children affected by HIV/AIDS in Southwest China: Schooling, physical health and interpersonal relationships. Journal of Acquired Immune Deficiency Syndromes (1999), 53(Suppl 1), S104.

    Article  Google Scholar 

  • Xu, T., Yan, Z., Duan, S., Wang, C., Rou, K., & Wu, Z. (2009). Psychosocial well-being of children in HIV/AIDS-affected families in Southwest China: A qualitative study. Journal of Child and Family Studies, 18(1), 21–30.

    Article  Google Scholar 

  • Yu, Y., Li, X., Zhang, L., Zhao, J., Zhao, G., Zheng, Y., & Stanton, B. (2013). Domestic chores workload and depressive symptoms among children affected by HIV/AIDS in China. AIDS care, 25(5), 632–639.

    Article  PubMed Central  PubMed  Google Scholar 

  • Zhang, L., Li, X., Kaljee, L., Fang, X., Lin, X., Zhao, G., & Hong, Y. (2009). ‘I felt I have grown up as an adult’: Caregiving experience of children affected by HIV/AIDS in China. Child: Care, Health and Development, 35(4), 542–550.

    Google Scholar 

Download references

Acknowledgments

This study was supported by a grant provided by the National Institute of Mental Health (R21 MH076447), a training grant from the Minority Health and Health Disparities International Research Training Program of National Institute of Minority Health and Health Disparities (T37TW00113-08), and a training grant from the National Institute of Health, National Institute of Allergy and Infectious Diseases (T32 AI007001). The HIV treatment program has been funded by the U.S. President’s Emergency Plan for AIDS Relief (PEPFAR) and the Global Fund to Fight AIDS, Tuberculosis, and Malaria (GFATM).

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Correspondence to Donaldson F. Conserve.

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Conserve, D.F., Eustache, E., Oswald, C.M. et al. Maternal HIV Illness and its Impact on Children’s Well-being and Development in Haiti. J Child Fam Stud 24, 2779–2785 (2015). https://doi.org/10.1007/s10826-014-0081-7

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