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Service Needs Across the Lifespan for Individuals with Autism

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Abstract

The goal of this research was to examine reported service needs among individuals with autism spectrum disorder (ASD) of all ages. Data were generated from a state survey that queried the needs of children, adolescents and adults with ASD. Logistic regression was used to compare service use and need among these age groups. Adults with ASD were less likely to be receiving multiple types of services, and more likely to have a need for services. These findings demonstrate that adults with ASD have more and different needs for services. These results can inform policy and program planning to put in place the services adults with ASD need.

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References

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.

    Google Scholar 

  • Autism Speaks. (2015). State initiatives. Retrieved from https://www.autismspeaks.org/state-initiatives.

  • Barnard, J., Harvey, V., Potter, D., & Prior, A. (2001). Ignored or ineligible? The reality for adults with autism spectrum disorders. Retrieved from London.

  • Bishop-Fitzpatrick, L., Minshew, N. J., & Eack, S. M. (2013). A systematic review of psychosocial interventions for adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43(3), 687–694. doi:10.1007/s10803-012-1615-8.

    Article  PubMed  PubMed Central  Google Scholar 

  • Bruder, M., Kerins, G., Mazzarella, C., Sims, J., & Stein, N. (2012). Brief report: The medical care of adults with autism spectrum disorders: identifying the needs. Journal of Autism and Developmental Disorders, 35(3), 323–330. doi:10.1007/s10803-012-1496-x.

    Google Scholar 

  • Buck, T. R., Viskochil, J., Farley, M., Coon, H., McMahon, W. M., Morgan, J., & Bilder, D. A. (2014). Psychiatric comorbidity and medication use in adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(12), 3063–3071. doi:10.1007/s10803-014-2170-2.

    Article  PubMed  PubMed Central  Google Scholar 

  • Burke, J. P., Jain, A., Yang, W., Kelly, J. P., Kaiser, M., Becker, L., & Newschaffer, C. J. (2014). Does a claims diagnosis of autism mean a true case? Autism, 18(3), 321–330. doi:10.1177/1362361312467709.

    Article  PubMed  Google Scholar 

  • Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal, 16(5), 1081–1091. doi:10.1007/s10995-011-0833-6.

    Article  PubMed  Google Scholar 

  • Cidav, Z., Lawer, L., Marcus, S. C., & Mandell, D. S. (2013). Age-related variation in health service use and associated expenditures among children with autism. Journal of Autism and Developmental Disorders, 43(4), 924–931. doi:10.1007/s10803-012-1637-2.

    Article  PubMed  PubMed Central  Google Scholar 

  • Corsello, C. (2005). Early intervention in autism. Infants and Young Children, 18(2), 74–85.

    Article  Google Scholar 

  • Dodds, L., Spencer, A., Shea, S., Fell, D., Armson, B. A., Allen, A. C., & Bryson, S. (2009). Validity of autism diagnoses using administrative health data. Chronic Diseases in Canada, 29(3), 102–107.

    PubMed  PubMed Central  Google Scholar 

  • Environmental Systems Research Institute. (2014). ArcGIS Desktop. Redlands, CA.

  • Eskow, K. G., Chasson, G. S., & Summers, J. A. (2015). A cross-sectional cohort study of a large, statewide Medicaid home and community-based services autism waiver program. Journal of Autism and Developmental Disorders, 45(3), 626–635. doi:10.1007/s10803-014-2217-4.

    Article  PubMed  Google Scholar 

  • Fombonne, E., Heavey, L., Smeeth, L., Rodrigues, L. C., Cook, C., Smith, P. G., & Hall, A. J. (2004). Validation of the diagnosis of autism in general practitioner records. BMC Public Health, 4, 5. doi:10.1186/1471-2458-4-5.

    Article  PubMed  PubMed Central  Google Scholar 

  • Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatrics and Adolescent Medicine, 161(4), 343–349. doi:10.1001/archpedi.161.4.343.

    Article  PubMed  Google Scholar 

  • Gerhardt, P. (Ed.). (2009). The current state of services for adults with autism. NJ: Advancing Futures for Adults with Autism.

    Google Scholar 

  • Gerhardt, P., & Lainer, I. (2011). Addressing the needs of adolescents and adults with autism: A crisis on the horizon. Journal of Contemporary Psychotherapy, 41(1), 37–45.

    Article  Google Scholar 

  • Gordon, D. (2009). Early intervention in autism. Neurology Now, 5(5), 23–26.

    Article  Google Scholar 

  • Gotham, K., Marvin, A. R., Taylor, J. L., Warren, Z., Anderson, C. M., Law, P. A., et al. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism,. doi:10.1177/1362361315583818.

    PubMed Central  Google Scholar 

  • Harris, P. A., Taylor, R., Thielke, R., Payne, J., Gonzalez, N., & Conde, J. G. (2009). Research electronic data capture (REDCap)—A metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Informatics, 42(2), 377–381.

    Article  PubMed  Google Scholar 

  • Havlicek, J., Bilaver, L., & Beldon, M. (2016). Barriers and facilitators of the transition to adulthood for foster youth with autism spectrum disorder: Perspectives of service providers in Illinois. Children and Youth Services Review, 60, 119–128.

    Article  Google Scholar 

  • Howlin, P. (2008). Redressing the balance in autism research. Nature Clinical Practice Neurology, 4(8), 407.

    Article  PubMed  Google Scholar 

  • Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45(2), 212–237.

    Article  PubMed  Google Scholar 

  • Howlin, P., & Moss, P. (2012). Adults with autism spectrum disorders. Canadian Journal of Psychiatry, 57(5), 275–283.

    PubMed  Google Scholar 

  • IBM Corp. (2013). IBM SPSS Statistics for Windows, Version 22.0. Armonk, NY: IBM Corp.

    Google Scholar 

  • Investigators, D. D. M. N. S. Y. P., & Centers for Disease Control and Prevention (CDC). (2014). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2010. MMWR Surveillance Summaries, 63(2), 1–21.

    Google Scholar 

  • Lawer, L., Brusilovskiy, E., Salzer, M. S., & Mandell, D. S. (2009). Use of vocational rehabilitative services among adults with autism. Journal of Autism and Developmental Disorders, 39(3), 487–494. doi:10.1007/s10803-008-0649-4.

    Article  PubMed  Google Scholar 

  • Lord, C., & Venter, A. (1992). Outcome and follow-up studies of high functioning autistic individuals. In E. Schopler & G. Mesibov (Eds.), High functioning individuals with autism. Boston, MA: Springer US.

    Google Scholar 

  • Mawhood, L., & Howlin, P. (1999). The outcome of a supported employment scheme for high-functioning adults with autism or Asperger syndrome. Autism, 3(3), 229–254.

    Article  Google Scholar 

  • Ng, T., Stone, J., & Harrington, C. (2015). Medicaid home and community-based services: How consumer access is restricted by state policies. Journal of Aging & Social Policy, 27(1), 21–46. doi:10.1080/08959420.2015.969078.

    Article  Google Scholar 

  • Nightingale, S. (2012). Autism spectrum disorders. Nature Reviews Drug Discovery, 11, 745–746.

    Article  PubMed  Google Scholar 

  • Ozonoff, S., Young, G. S., Carter, A., Messinger, D., Yirmiya, N., Zwaigenbaum, L., et al. (2011). Recurrence risk for autism spectrum disorders: A baby siblings research consortium study. Pediatrics, 128(3), e488–e495.

    PubMed  PubMed Central  Google Scholar 

  • Remington, B., Hastings, R., Kovshoff, H., Espinosa, F., Jahr, E., & Brown, T. (2007). Early intensive behavioral intervention: Outcomes for children with autism and their parents after two years. American Journal on Mental Retardation, 112, 418–438.

    Article  PubMed  Google Scholar 

  • Roux, A. M., Shattuck, P. T., Cooper, B. P., Anderson, K. A., Wagner, M., & Narendorf, S. C. (2013). Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 52(9), 931–939. doi:10.1016/j.jaac.2013.05.019.

    Article  PubMed  PubMed Central  Google Scholar 

  • Rural Pennsylvania Counties. (2010). Retrieved from http://www.rural.palegislature.us/ruralcounties.html.

  • SAS Institute Inc. Copyright, SAS Institute Inc. SAS and all other SAS Institute Inc. product or service names are registered trademarks or trademarks of SAS Institute Inc. Cary NC.

  • Shattuck, P., Roux, A., Hudson, L., Taylor, J., Maenner, M., & Trani, J. (2012). Services for adults with an autism spectrum disorder. Canadian Journal of Psychiatry, 57(5), 284–291.

    PubMed  PubMed Central  Google Scholar 

  • Shattuck, P., Wagner, M., Narendorf, S., Sterzing, P., & Hensley, M. (2011). Post-high school service use among young adults with an autism spectrum disorder. Archives of Pediatrics and Adolescent Medicine, 165(2), 141–146.

    Article  PubMed  PubMed Central  Google Scholar 

  • Shea, L. (2009). Pennsylvania autism needs assessment. Harrisburg, PA: Bureau of Autism Services, Pennsylvania Department of Human Services.

    Google Scholar 

  • Shea, L. (2014). Pennsylvania autism census update. Harrisburg, PA: Bureau of Autism Services, Pennsylvania Department of Human Services.

    Google Scholar 

  • Smith, T. (1999). Outcome of early intervention for children with autism. Clinical Psychology: Science and Practice, 6, 33–49.

    Google Scholar 

  • Taylor, J., & Seltzer, M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41(5), 566–574.

    Article  PubMed  PubMed Central  Google Scholar 

  • US Census. (2014). Pennsylvania Quick Facts. Retrieved from http://quickfacts.census.gov/qfd/states/42000.html.

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Acknowledgments

This study was funded through the Autism Services, Education, Resources, and Training (ASERT) Collaboration, under the Bureau of Autism Services, Office of Developmental Programs, Pennsylvania Department of Human Services.

Author contributions

LS and SN designed the research, LS and SN performed the research, EB and PT analyzed the data and LS, PT, and MM wrote the paper.

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Correspondence to Paul Turcotte.

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Turcotte, P., Mathew, M., Shea, L.L. et al. Service Needs Across the Lifespan for Individuals with Autism. J Autism Dev Disord 46, 2480–2489 (2016). https://doi.org/10.1007/s10803-016-2787-4

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