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Sense of Coherence and Coping with Stress Among Mothers and Fathers of Children with Autism

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Abstract

The purpose of the study was to compare the level of sense of coherence (SOC) in parents of children with autism and in parents of typically developing children, and to examine the association between SOC level and coping strategies. Two questionnaires were used: Sense of Coherence Scale (SOC-29) and Ways of Coping Questionnaire. Parents of children with autism had a lower level of the total SOC, meaningfulness, and manageability compared with controls, and used escape-avoidance coping more often. No differences in SOC level were found between mothers and fathers. In parents of children with autism the SOC level was positively associated with seeking social support and self-controlling, and negatively with accepting responsibility and positive reappraisal.

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References

  • Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237–254.

    Article  PubMed  Google Scholar 

  • Antonovsky, A. (1987). Unravelling the mystery of health: How people manage stress and stay well. San Francisco, CA: Jossey-Bass.

    Google Scholar 

  • Antonovsky, A. (1992). Can attitudes contribute to health? Advances: The Journal of Mind-Body Health, 8(4), 33–49.

    Google Scholar 

  • Antonovsky, A. (1998). The structure and properties of the sense of coherence scale. In H. McCubbin, E. Thompson, A. Thompson, & J. Fromer (Eds.), Stress, coping and health in families: Sense of coherence and resiliency (pp. 21–40). Thousand Oaks, CA: Sage. (Resiliency in Families Series).

    Google Scholar 

  • Austin, V., Shah, S., & Muncer, S. (2005). Teacher stress and coping strategies used to reduce stress. Occupational Therapy International, 12(2), 63–80.

    Article  PubMed  Google Scholar 

  • Bakér-Ericzen, M. J., Brookman-Frazee, L., & Stahmer, L. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research & Practice for Persons with Severe Disabilities, 30(4), 194–204.

    Article  Google Scholar 

  • Bishop, S. L., Richler, J., Cain, A. C., & Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation, 112(6), 450–461.

    Article  PubMed  Google Scholar 

  • Bölte, S., & Poustka, F. (2006). The broader cognitive phenotype of autism in parents: How specific is the tendency for local processing and executive dysfunction? Journal of Child Psychology and Psychiatry and Allied Disciplines, 47(6), 639–645.

    Article  Google Scholar 

  • Bolton, P., Pickles, A., Murphy, M., & Rutter, M. (1998). Autism, affective and other psychiatric disorders: Patterns of familial aggregation. Psychological Medicine, 28(2), 385–395.

    Article  PubMed  Google Scholar 

  • Briskman, J., Happé, F., & Frith, U. (2001). Exploring the cognitive phenotype of autism: Weak “central coherence’’ in parents and siblings of children with autism: II. Real-life skills and preferences. Journal of Child Psychology and Psychiatry, 42(3), 309–316.

    Article  PubMed  Google Scholar 

  • Cohen, O., & Dekel, R. (2000). Sense of coherence, ways of coping, and well being of married and divorced mothers. Contemporary Family Therapy, 22(4), 467–485.

    Article  Google Scholar 

  • Dąbrowska, A. (2003). Poczucie koherencji u rodziców dzieci z mózgowym porażeniem dziecięcym [Sense of coherence in parents of children with cerebral palsy]. Psychiatria Polska, 41(2), 189–201.

    Google Scholar 

  • Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427.

    Article  PubMed  Google Scholar 

  • Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39–52.

    Article  PubMed  Google Scholar 

  • Eriksson, M., & Lindstrom, B. (2005). Validity of Antonovsky’s sense of coherence scale: A systematic review. Journal of Epidemiology and Community Health, 59(6), 460–466.

    Article  PubMed  Google Scholar 

  • Feldman, M., McDonald, L., Serbin, L., Stack, D., Secco, M. L., & Yu, C. T. (2007). Predictors of depressive symptoms in primary caregivers of young children with or at risk for developmental delay. Journal of Intellectual Disability Research, 51(8), 606–619.

    Article  PubMed  Google Scholar 

  • Folkman, S., & Lazarus, R. S. (1988). Manual for the ways of coping questionnaire. Palo Alto, CA: Consulting Psychologists Press.

    Google Scholar 

  • Folkman, S., Lazarus, R. S., Dunkel-Schetter, C., DeLongis, A., & Gruen, R. (1986). Dynamics of stressful encounters: Cognitive appraisal, coping and encounter outcomes. Journal of Personality and Social Psychology, 50, 992–1003.

    Article  PubMed  Google Scholar 

  • Glidden, L. M., Billings, F. J., & Jobe, B. M. (2006). Personality, coping style and well-being of parents rearing children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 949–962.

    Article  PubMed  Google Scholar 

  • Goin-Kochel, R. P., & Myers, B. J. (2005). Parental report of early autistic symptoms: Differences in ages of detection and frequencies of characteristics among three autism-spectrum disorders. Journal on Developmental Disabilities, 11(2), 21–39.

    Google Scholar 

  • Gottlieb, A. (1998). Single mothers of children with disabilities: The role of sense of coherence in managing multiple challenges. In H. I. McCubbin, E. A. Thompson, A. I. Thompson, & J. E. Fromer (Eds.), Stress, coping, and health in families: Sense of coherence and resiliency (pp. 189–204). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Grøholt, E. K., Stigum, H., Nordhagen, R., & Köhler, L. (2003). Is parental sense of coherence associated with child health? European Journal of Public Health, 13(3), 195–201.

    Article  PubMed  Google Scholar 

  • Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47(4–5), 231–237.

    Article  PubMed  Google Scholar 

  • Hastings, R. P., & Johnson, E. (2001). Stress in UK families conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327–336.

    Article  PubMed  Google Scholar 

  • Hedov, G., Annerén, G., & Wikblad, K. (2000). Self-perceived health in Swedish parents of children with Down’s syndrome. Quality of Life Research, 9(4), 415–422.

    Article  PubMed  Google Scholar 

  • Herring, S., Gray, K., Taffe, J., Tonge, B., Seeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882.

    Article  PubMed  Google Scholar 

  • Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down’s syndrome and childhood autism. American Journal of Mental Deficiency, 80(4), 431–436.

    PubMed  Google Scholar 

  • Judge, S. L. (1998). Parental coping strategies and strengths in families of young children with disabilities. Family Relations, 47(3), 263–268.

    Article  Google Scholar 

  • Kano, Y., Ohta, M., Nagai, Y., Pauls, D. L., & Leckman, J. F. (2004). Obsessive-compulsive symptoms in parents of Tourette syndrome probands and autism spectrum disorder probands. Psychiatry and Clinical Neurosciences, 58(4), 348–352.

    Article  PubMed  Google Scholar 

  • King, G. A., Zwaigenbaum, L., King, S., Baxter, D., Rosenbaum, P., & Bates, A. (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome. Child: Care, Health and Development, 32(3), 353–369.

    Article  Google Scholar 

  • Klepp, O. M., Mastekaasa, A., Sørensen, T., Sandanger, I., & Kleiner, R. (2007). Structure analysis of Antonovsky’s sense of coherence from an epidemiological mental health survey with a brief nine-item sense of coherence scale. International Journal of Methods in Psychiatric Research, 16(1), 11–22.

    Article  PubMed  Google Scholar 

  • Koniarek, J., Dudek, B., & Makowska, Z. (1993). Kwestionariusz Orientacji Życiowej. Adaptacja The Sense of Coherence Questionnaire (SOC) A. Antonovsky’ego [Questionnaire of life orientation: Adaption of the sense of coherence questionnaire by A. Antonovsky]. Przegląd Psychologiczny, 36(4), 491–502.

    Google Scholar 

  • Konstantareas, M. M., & Papageorggiou, V. (2006). Effects of temperament, symptom severity and level of functioning on maternal stress in Greek children and youth with ASD. Autism, 10(6), 593–607.

    Article  PubMed  Google Scholar 

  • Lustig, D. C., Rosenthal, D. A., Strauser, D. R., & Haynes, K. (2000). The relationship between sense of coherence and adjustment in persons with disabilities. Rehabilitation Counseling Bulletin, 43(3), 134–141.

    Article  Google Scholar 

  • Madu, S. N., & Roos, J. J. (2006). Depression among mothers with preterm infants and their stress-coping strategies. Social Behavior and Personality, 34(7), 877–890.

    Article  Google Scholar 

  • Mak, W. W. S., Ho, A. H. Y., & Law, R. W. (2007). Sense of coherence, parenting attitudes and stress among mothers of children with autism in Hong Kong. Journal of Applied Research in Intellectual Disabilities, 20(2), 157–167.

    Article  Google Scholar 

  • Margalit, M., Leyser, Y., & Avraham, Y. (1988a). Subtypes of family climate among kibbutz mothers of disabled children. International Journal of Special Education, 3(2), 101–115.

    Google Scholar 

  • Margalit, M., Leyser, Y., & Avraham, Y. (1989). Classification and validation of family climate subtypes in kibbutz fathers of disabled and non-disabled children. Journal of Abnormal Child Psychology, 17(1), 91–107.

    Article  PubMed  Google Scholar 

  • Margalit, M., Leyser, Y., Avraham, Y., & Lewy-Osin, M. (1988b). Social-environmental characteristics (family climate) and sense of coherence in kibbutz families with disabled and non-disabled children. European Journal of Special Needs Education, 3, 87–98.

    Article  Google Scholar 

  • Margalit, M., Raviv, A., & Ankonina, D. (1992). Coping and coherence among parents with disabled children. Journal of Clinical Child Psychology, 21(3), 202–209.

    Article  Google Scholar 

  • Moes, D., Koegel, R. L., Schreibman, L., & Loos, L. M. (1992). Stress profiles for mothers and fathers of children with autism. Psychological Reports, 71(3), 1272–1274.

    Article  PubMed  Google Scholar 

  • Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers of children with autism: A population based study. Pediatrics, 119(5), e1040–e1046.

    Article  PubMed  Google Scholar 

  • Murphy, M., Bolton, P., Pickles, A., Fombonne, E., Piven, J., & Rutter, M. (2000). Personality traits of the relatives of autistic probands. Psychological Medicine, 30(6), 1411–1424.

    Article  PubMed  Google Scholar 

  • Oelofsen, N., & Richardson, P. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual & Developmental Disability, 31(1), 1–12.

    Article  Google Scholar 

  • Olsson, M., Hansson, K., Lundblad, A.-M., & Cederblad, M. (2006). Sense of coherence: Definition and explanation. International Journal of Social Welfare, 15(3), 219–229.

    Article  Google Scholar 

  • Olsson, M. B., & Hwang, C. P. (2002). Sense of coherence in parents of children with different developmental disabilities. Journal of Intellectual Disabilities Research, 46(7), 548–559.

    Article  Google Scholar 

  • Olsson, M. B., Larsman, P., & Hwang, P. C. (2008). Relationships among risk, sense of coherence, and well-being in parents of children with and without intellectual disabilities. Journal of Policy & Practice in Intellectual Disabilities, 5(4), 227–236.

    Article  Google Scholar 

  • Pallant, J., & Lae, L. (2002). Sense of coherence, well-being, coping and personality factors: Further evaluation of the sense of coherence scale. Personality and Individual Differences, 33(1), 39–48.

    Article  Google Scholar 

  • Pelchat, D., Lefebvre, H., & Perreault, M. (2003). Differences and similarities between mothers’ and fathers’ experiences of parenting a child with disability. Journal of Child Health Care, 7(4), 231–247.

    Article  PubMed  Google Scholar 

  • Pisula, E. (2007). A comparative study of stress profiles in mothers of children with autism and those of children with Down’s syndrome. Journal of Applied Research in Intellectual Disabilities, 20(3), 274–278.

    Article  Google Scholar 

  • Piven, J. (1999). Genetic liability for autism: The behavioural expression in relatives. International Review of Psychiatry, 11, 299–308.

    Article  Google Scholar 

  • Piven, J., Palmer, P., Jacobi, D., Childress, D., & Arndt, S. (1997). Broader autism phenotype: Evidence from a family history study of multiple-incidence autism families. American Journal of Psychiatry, 154(2), 185–190.

    PubMed  Google Scholar 

  • Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22(6), 855–864.

    Article  PubMed  Google Scholar 

  • Renty, J., & Roeyers, H. (2006). Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health and Development, 32(3), 371–385.

    Article  Google Scholar 

  • Rodrigue, J. R., Morgan, S. B., & Geffken, G. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19, 371–379.

    Article  Google Scholar 

  • Roothman, B., Kirsten, D., & Wissing, M. (2003). Gender differences in aspects of psychological well-being. South African Journal of Psychology, 33(4), 212–218.

    Google Scholar 

  • Sakaguchi, M., & Beppu, S. (2007). Structure of stressors in mothers of preschool children with autism. Japanese Journal of Special Education, 45(3), 127–136.

    Google Scholar 

  • Saloviita, T., Itälinna, M., & Leinonen, E. (2003). Explaining the parental stress of fathers and mothers caring for a child with developmental disability: A double ABCX model. Journal of Intellectual Disability Research, 47(4–5), 300–312.

    Article  PubMed  Google Scholar 

  • Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(Suppl 1), 114–121.

    Article  Google Scholar 

  • Sharpley, C. F., Bitsika, V., & Efremidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety and depression among parents of children with autism. Journal of Intellectual and Developmental Disability, 22(1), 19–28.

    Article  Google Scholar 

  • Sivberg, B. (2002a). Coping strategies and parental attitudes. A comparison of parents with children with autistic spectrum disorders and parents with non-autistic children. International Journal of Circumpolar Health, 61(Suppl 2), 36–50.

    PubMed  Google Scholar 

  • Sivberg, B. (2002b). Family system and coping behaviors. Autism, 6(4), 397–409.

    Article  PubMed  Google Scholar 

  • Tobing, L. E., & Glenwick, D. S. (2006). Predictors and moderators of psychological distress in mothers of children with pervasive developmental disorders. Journal of Family Social Work, 10(4), 1–22.

    Article  Google Scholar 

  • Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviour exhibited by children with autism and maternal stress. Journal of Intellectual & Developmental Disability, 29(1), 16–26.

    Article  Google Scholar 

  • Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners, 19(5), 251–260.

    Article  PubMed  Google Scholar 

  • Wachtel, K., & Carter, A. S. (2008). Reaction to diagnosis and parenting styles among mothers of young children with ASDs. Autism, 12(5), 575–594.

    Article  PubMed  Google Scholar 

  • Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism and children with mental retardation. Autism, 6(1), 115–130.

    Article  PubMed  Google Scholar 

  • World Health Organization (1992). Manual of the international statistical classification of the diseases, and related health problems (10th ed.). Geneva: WHO.

  • Yamada, A., Suzuki, M., Kato, M., Suzuki, M., Tanaka, S., Shindo, T., et al. (2007). Emotional distress and its correlates among parents of children with pervasive developmental disorders. Psychiatry and Clinical Neurosciences, 61(6), 651–657.

    Article  PubMed  Google Scholar 

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Acknowledgments

This study was supported by a Grant 1069/30 from the Faculty of Psychology, University of Warsaw.

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Correspondence to Ewa Pisula.

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Pisula, E., Kossakowska, Z. Sense of Coherence and Coping with Stress Among Mothers and Fathers of Children with Autism. J Autism Dev Disord 40, 1485–1494 (2010). https://doi.org/10.1007/s10803-010-1001-3

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