Abstract
The literature reported several factors which could impact the quality of life of caregivers and patients with psychiatric illnesses. This study aimed to determine the level of quality of life among a sample of 532 of caregivers and patients with psychiatric illness at two out-patient mental health clinics in Northern Jordan, and to examine the relationships of sociodemographic characteristics, stigma and caregiver perceptions of burden with quality of life. A correlational descriptive design was utilized. Three self-administered questionnaires were used. Results indicated that patients had low to moderate QOL, and they suffered moderate to high stigma. Also, family caregivers perceived low to moderate QOL. Patients’ and family caregivers’ stigma perception correlated negatively and significantly with WHOQOL-BREF. Family caregivers’ burden correlated negatively and significantly with all domains of WHOQOL-BREF, total QOL-100, and self-reported general health. Health care providers should assure the importance of focusing more toward minimizing stigma and promoting physical and general health to maintain a good quality of life of caregivers and patients with mental illnesses.
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References
American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: American Psychiatric Association.
Barnes, A. L., Murphy, M. E., Fowler, C. A., & Rempfer, M. V. (2012). Health-related quality of life and overall life satisfaction in people with serious mental illness. Schisophrenia Research and Treatment. doi:10.1155/2012/245103.
Bastawrous, M. (2012). Caregiver burden—A critical discussion. International Journal of Nursing Studies, 50, 431–441.
Bauer, R., Koepke, F., Sterzinger, L., & Spiessl, H. (2012). Burden, rewards, and coping-the ups and downs of caregivers of people with mental illness. Journal of Nervous and Mental Disease, 200(11), 928–934.
Boyer, L., Millier, A., Perthame, E., Aballea, S., Auquier, P., & Toumi, M. (2013). Quality of life is predictive of relapse in schizophrenia. BMC Psychiatry, 9, 13–15.
Chan, S. (2011). Global perspective of burden of family caregivers for persons with schizophrenia. Archives of Psychiatric Nursing, 25(5), 339–349.
Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Hillsdale: Lawrence Erlbaum Associates.
Corrigan, P. W., & Miller, F. E. (2004). Shame, blame, and contamination: A review of the impact of mental illness stigma on family members. Journal of Mental Health, 13(6), 537–548.
Dalky, H. F. (2012a). Mental illness stigma reduction interventions: Review of intervention trials. Western Journal of Nursing Research, 34(4), 520–547.
Dalky, H. F. (2012b). Arabic translation and cultural adaptation of the stigma-devaluation scale in Jordan. Journal of Mental Health, 21(1), 72–82.
Eack, S. M., & Newhill, C. E. (2007). Psychiatric symptoms and quality of life in schizophrenia: A meta-analysis. Schizophrenia Bulletin, 33(5), 1225–1237.
Hanzawa, S., Bae, J. K., Tanaka, H., Bae, Y. J., Tanaka, G., Inadomi, H., et al. (2010). Caregiver burden and coping strategies for patients with schizophrenia: Comparison between Japan and Korea. Psychiatry and Clinical Neurosciences, 64(4), 377–386.
Kadri, N., Manoudi, F., Berrada, S., & Moussaoui, D. (2004). Stigma impact on Moroccan families of patients with schizophrenia. Canadian Journal of Psychiatry, 49(9), 625–629.
Kamel, A. A., Bond, A. E., & Froelicher, E. S. (2012). Depression and caregiver burden experienced by caregivers of Jordanian patients with stroke. International Journal of Nursing Practice, 18(2), 147–154.
Kate, N., Grover, S., Kulhara, P., & Nehra, R. (2013). Relationship of quality of life with coping and burden in primary caregivers of patients with schizophrenia. The Internaitonal Journal of Scoial Psychiatry, 60,107–116.
Kim, Y., van Ryn, M., Jensen, R. E., Griffin, J. M., Potosky, A., & Rowland, J. (2015). Effects of gender and depressive symptoms on quality of life among colorectal and lung cancer patients and their family caregivers. Psycho-Oncology, 24(1), 95–105.
Link, B., Struening, E., Cullen, F., Shrout, P., & Dohrenwend, B. (1989). A modified labeling theory approach to mental disorders: An empirical assessment. American Sociological Review, 52, 400–423.
Ohaeri, J., & Awadalla, A. W. (2009). The reliability and validity of the short version of the WHO Quality of Life Instrument in an Arab general population. Annals of Saudi Medicine, 29(2), 98–104.
Orley, J. (1996). WHOQOL-BREF: Introduction, adminstration, scoring, and generic version of the assessment: Field trial version. Geneva: World Health Organization.
Robinson, B. C. (1983). Validation of a Caregiver Strain Index. Journal of Gerentology, 38(3), 344–348.
Sartorius, N. (2012). Guidance on how to combat stigmatization of psychiatry and psychiatrists. World Psychiatry, 11(1), 61–62.
Seloilwe, E. S. (2006). Experiences and demands of families with mental ill people at home in Botswana. Journal of Nursing Scholarship, 38(3), 262–268.
Sidlova, M., Prasko, J., Jelenova, D., Kovacsova, A., Latalova, K., Sigmundova, Z., et al. (2011). The quality of life of patients suffering from schizophrenia—A comparison with healthy controls. Biomedical Paper, Medical Faculty of University of Palacky Olomouc Czech Republic, 155(2), 173-180.
Tan, S. C., Yeoh, A. L., Choo, I. B., Huang, A. P., Ong, S. H., Ismail, H., et al. (2012). Burden and coping strategies experienced by caregivers of persons with schizophrenia in the community. Journal of Clinical Nursing, 21(17–18), 2410–2418.
WHO. (2010). Mental health: Strengthening our response (Fact Sheet).
WHO. (2012). WHO Mental Health Gap Action Programme (mhGAP) (Report).
Zahid, M. A., & Ohaeri, J. U. (2010). Relationship of family caregiver burden with quality of care and psychopathology in a sample of Arab subjects with schizophrenia. BMC Psychiatry, 10, 71.
Acknowledgments
This study was funded by the Deanship of Research at Jordan University of Science and Technology (JD 4.500.00). The author would like to thank the staff at both clinics whose assistance is very much appreciated. A similar thank you is extended to all family caregivers for taking the time to fill out the questionnaires and assist the authors in achieving the goals of this study.
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The authors of this study have no known conflict of interests of any type.
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Dalky, H.F., Qandil, A.M., Natour, A.S. et al. Quality of Life, Stigma and Burden Perception Among Family Caregivers and Patients with Psychiatric Illnesses in Jordan. Community Ment Health J 53, 266–274 (2017). https://doi.org/10.1007/s10597-016-0028-0
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DOI: https://doi.org/10.1007/s10597-016-0028-0