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Effects of a Decision-Making Intervention to Help Decide Whether to Disclose HIV-Positive Status to Family Members on Well-Being and Sexual Behavior

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Abstract

An HIV diagnosis is often followed by uncertainty, questions over next steps, and concerns over how to share the diagnosis with others. The goal of the current study was to investigate the effects of an intervention designed to help people living with HIV decide whether or not they want to disclose their status to family members (i.e., decision-making process rather than actual disclosure) and the subsequent decision on their well-being and sexual behavior. Additionally, differences in outcomes among men who have sex with men (MSM), heterosexual men (HSM), and women were examined. A total of 346 women and men living in the Southeastern part of the United States. Participated in the study, which consisted of a baseline assessment, followed by randomization into either the disclosure intervention or attention control case management group. Both treatments consisted of seven sessions over a 12-month period. Results from repeated measures ANOVA indicated that although there was no significant intervention effect, participants in both groups reported some improvements in well-being and decreases in risky sexual behavior. However, no consistent differences in outcomes emerged among MSM, HSM, and women. Assisting with the disclosure decision-making process and reducing HIV transmission risk should continue to be an essential focus in future research endeavors and for frontline professionals dedicated to HIV-related care and prevention.

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References

  • AIDS Clinical Trials Group. (1999). ACTG QOL 601-602 (QOL 601-2) health survey manual. Retrieved February 12, 2019, from https://www.frontierscience.org/apps/cfmx/apps/common/QOLAdherenceForms/resources/actg/manualql601-2799.pdf.

  • Brown, J. L., Swartzendruber, A., & DiClemente, R. J. (2013). The application of audio computer-assisted self-interviews (ACASI) to collect self-reported health data: An overview. Caries Research,47, 40–45.

    Article  Google Scholar 

  • Centers for Disease Control and Prevention. (2015). Comprehensive risk counseling and services (CRCS). Retrieved January 12, 2019, from https://effectiveinterventions.cdc.gov/en/highimpactprevention/publichealthstrategies/CRCS.asp.

  • Centers for Disease Control and Prevention. (2018a). HIV and STD criminal laws. Retrieved January 12, 2019, from https://www.cdc.gov/hiv/policies/law/states/exposure.html.

  • Centers for Disease Control and Prevention. (2018b). Telling others. Am I legally required to share my HIV status with others? Retrieved January 12, 2019, from https://www.cdc.gov/hiv/basics/livingwithhiv/telling-others.html.

  • Centers for Disease Control and Prevention. (2018c). Anal sex and HIV risk. Retrieved January 12, 2019, from https://www.cdc.gov/hiv/risk/analsex.html.

  • Centers for Disease Control and Prevention. (2019). HIV in the United States and dependent areas. Retrieved March 28, 2019, from https://www.cdc.gov/hiv/statistics/overview/ataglance.html.

  • Costello, C. G., & Comrey, A. L. (1967). Scales for measuring depression and anxiety. Journal of Psychology,66, 303–313.

    Article  Google Scholar 

  • Derlega, V. J., Winstead, B. A., Greene, K., Serovich, J., & Elwood, W. N. (2004). Reasons for HIV disclosure/nondisclosure in close relationships: Testing a model of HIV-disclosure decision making. Journal of Social and Clinical Psychology,23, 747–767.

    Article  Google Scholar 

  • Des Jarlais, D. C., Paone, D., Milliken, J., Turner, C. F., Miller, H., Gribble, J., … Friedman, S. R. (1999). Audio-computer interviewing to measure risk behaviour for HIV among injecting drug users: A quasi-randomised trial. Lancet,353(9165), 1657–1661.

    Article  Google Scholar 

  • Fekete, E. M., Antoni, M. H., Duran, R., Stoelb, B. L., Kumar, M., & Schneiderman, N. (2009a). Disclosing HIV serostatus to family members: Effects on psychological and physiological health in minority women living with HIV. International Journal of Behavior Medicine,16, 367–376.

    Article  Google Scholar 

  • Fekete, E. M., Antoni, M. H., Lopez, C. R., Duran, R., Penedo, F. J., Bandiera, F. C., … Schneiderman, N. (2009b). Men’s serostatus disclosure to parents: Associations among social support, ethnicity, and disease status in men living with HIV. Brain, Behavior, and Immunity,23, 693–699.

    Article  Google Scholar 

  • Glick, S. N., Morris, M., Foxman, B., Aral, S. O., Manhart, L. E., Holmes, K. H., & Golden, M. R. (2013). A comparison of sexual behavior patterns among men who have sex with men and heterosexual men and women. Journal of Acquired Immune Deficiency Syndromes,60, 83–90.

    Article  Google Scholar 

  • Hewett, P. C., Mensch, B. S., & Erulkar, A. S. (2004). Consistency in the reporting of sexual behaviour by adolescent girls in Kenya: A comparison of interviewing methods. Sexually Transmitted Infections,80(Suppl.2), ii43–ii48.

    PubMed  PubMed Central  Google Scholar 

  • Hirshfield, S., Remien, R. H., Humerstone, M., Walavalkar, I., & Chiasson, M. A. (2004). Substance use and high-risk sex among men who have sex with men: A national online study in the USA. AIDS Care,16, 1036–1047.

    Article  Google Scholar 

  • Holt, R., Court, P., Vedhara, K., Nott, K. H., Holmes, J., & Snow, M. H. (1998). The role of disclosure in coping with HIV infection. AIDS Care,10, 49–60.

    Article  Google Scholar 

  • Kalichman, S. C., DiMarco, M., Austin, J., Luke, W., & DiFonzo, K. (2003). Stress, social support, and HIV-status disclosure to family and friends among HIV-positive men and women. Journal of Behavioral Medicine,26, 315–332.

    Article  Google Scholar 

  • Kimberly, J. A., & Serovich, J. M. (1999). The role of family and friend support in reducing risk behaviors among HIV-positive gay men. AIDS Education and Prevention,11, 465–475.

    PubMed  Google Scholar 

  • Leask, C., Elford, J., Bor, R., Miller, R., & Johnson, M. (1997). Selective disclosure: A pilot investigation into changes in family relationships since HIV diagnosis. Journal of Family Therapy,19, 59–69.

    Article  Google Scholar 

  • Levin, E. M., Koopman, J. S., Aral, S. O., Holmes, K. K., & Foxman, B. (2009). Characteristics of men who have sex with men and women and women who have sex with women and men. Results from the 2003 Seattle Sex Survey. Sexually Transmitted Diseases,36, 541–546.

    Article  Google Scholar 

  • McDowell, T. L., & Serovich, J. M. (2007). The effect of perceived and actual social support on the mental health of HIV-positive persons. AIDS Care,19, 1223–1229.

    Article  Google Scholar 

  • Mustanski, B. (2008). Moderating effects of age on the alcohol and sexual risk taking association: An online daily diary study of men who have sex with men. AIDS and Behavior,12, 118–126.

    Article  Google Scholar 

  • Nanni, M. G., Caruso, R., Mitchell, A. J., Meggiolaro, E., & Grassi, L. (2015). Depression in HIV infected patients: A review. Current Psychiatry Reports,17, 530.

    Article  Google Scholar 

  • Office of National AIDS Policy. (2015). National HIV/AIDS strategy for the United States. Updated to 2020. Retrieved November 5, 2018, from https://files.hiv.gov/s3fs-public/nhas-update.pdf.

  • Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement,1, 385–401.

    Article  Google Scholar 

  • Reisner, S. L., Mimiaga, M. J., Skeer, M., Bright, D., Cranston, K., Isenberg, D., … Mayer, K. H. (2009). Clinically significant depressive symptoms as a risk factor for HIV infection among black MSM in Massachusetts. AIDS and Behavior,13, 798–810.

    Article  Google Scholar 

  • Rodkjaer, L., Sodemann, M., Ostergaard, L., & Lomborg, K. (2011). Disclosure decisions: HIV-positive persons coping with disease-related stressors. Qualitative Health Research,21, 1249–1259.

    Article  Google Scholar 

  • Serovich, J. M. (2001). A test of two HIV disclosure theories. AIDS Education and Prevention,13, 355–364.

    Article  Google Scholar 

  • Serovich, J. M., Kimberly, J. A., Mosack, K. E., & Lewis, T. L. (2001). The role of family and friend support in reducing emotional distress among HIV-positive women. AIDS Care,13, 335–341.

    Article  Google Scholar 

  • Serovich, J. M., Laschober, T. C., Brown, M. J., & Kimberly, J. A. (2018). Assessment of HIV disclosure and sexual behavior among Black men who have sex with men following a randomized controlled intervention. International Journal of STD and AIDS,29, 673–679.

    Article  Google Scholar 

  • Simoni, J. M., Mason, H. R. C., Marks, G., Ruiz, M. S., Reed, D., & Richardson, J. L. (1995). Women’s self-disclosure of HIV infection: Rates, reasons, and reactions. Journal of Consulting and Clinical Psychology,63, 474–478.

    Article  Google Scholar 

  • Stall, R., Paul, J. P., Greenwood, G., Pollack, L. M., Bein, E., Crosby, G. M., … Catania, J. A. (2001). Alcohol use, drug use and alcohol-related problems among men who have sex with men: The Urban Men’s Health Study. Addiction,96, 1589–1601.

    Article  Google Scholar 

  • US Department of Health and Human Services. (2019). Just diagnosed: Next steps after testing positive for HIV. Retrieved March 28, 2019, from https://aidsinfo.nih.gov/understanding-hiv-aids/fact-sheets/21/65/just-diagnosed–next-steps-after-testing-positive-for-hiv.

  • Uthman, O. A., Magidson, J. F., Safren, S. A., & Nachega, J. B. (2014). Depression and adherence to antiretroviral therapy in low-, middle- and high-income countries: A systematic review and meta-analysis. Current HIV/AIDS Report,11, 291–307.

    Article  Google Scholar 

  • Vyavaharkar, M., Moneyham, L., Murdaugh, C., & Tavakoli, A. (2011). Factors associated with quality of life among rural women with HIV disease. AIDS and Behavior,16, 295–303.

    Article  Google Scholar 

  • Zea, M. C., Reisen, C. A., Poppen, P. J., Bianchi, F. T., & Echeverry, J. J. (2005). Disclosure of HIV status and psychological well-being among Latino gay and bisexual men. AIDS and Behavior,9, 15–26.

    Article  Google Scholar 

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Funding

This study was supported by a grant from the National Institute of Mental Health (R01MH097486) awarded to the first author.

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Correspondence to Julianne M. Serovich.

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Serovich, J.M., Laschober, T.C., Brown, M.J. et al. Effects of a Decision-Making Intervention to Help Decide Whether to Disclose HIV-Positive Status to Family Members on Well-Being and Sexual Behavior. Arch Sex Behav 49, 2091–2101 (2020). https://doi.org/10.1007/s10508-020-01703-0

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