Summary
Objective. This project aimed to prepare a self complete patient satisfaction survey for patients who have undergone surgery for trigeminal neuralgia and then assess its reproducibility, validity and acceptability in one centre.
Methods. The questionnaire, for initial use in patients who had undergone posterior fossa surgery for trigeminal neuralgia, was designed after a systematic review of the surgical literature had been performed and discussions held at the US and UK Trigeminal Neuralgia Support group meetings. It underwent several changes after input from neurosurgeons, patients, copywriter and statistician and finally contained 44 questions, the SF12, Hospital Anxiety and Depression Scale (HAD), Brief Pain Inventory (BPI) and McGill Pain questionnaire (MPQ). From the total number of 413 patients in the database of one centre the questionnaire was sent with a covering letter to 305 patients, the rest had died (25), were lost to follow up (26) or did not meet the inclusion criteria (56). One patient had bilateral PSR. The completed questionnaires were evaluated by an independent physician, neurosurgeon and patient. A repeat questionnaire was sent to 10% of the patients to check reproducibility.
Results. The questionnaires were well completed with a final response rate of 92%. It appeared to be highly acceptable and reproducible but needed adjustment to improve its validity before being used in other centres and for all surgical procedures. A new questionnaire is proposed which could be used on an annual basis.
Conclusions. A questionnaire has been developed for use in patients who have undergone surgical management for trigeminal neuralgia and which is acceptable to patients.
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References
DPG Griffiths J Mitchell Noon FA Campbell CM Price (2003) ArticleTitleClinical governance and chronic pain: towards a practical solution. Anaesthesia 58 243–248 Occurrence Handle10.1046/j.1365-2044.2003.03088.x Occurrence Handle12603454
SN Kalkanis EN Eskandar BS Carter FG Barker (2003) ArticleTitleMicrovascular decompression surgery in the United States, 1996 to 2000: mortality rates, morbidity rates, and the effects of hospital and surgeon volumes. Neurosurgery 52 1251–1261 Occurrence Handle10.1227/01.NEU.0000065129.25359.EE Occurrence Handle12762870
E McColl A Jacoby L Thomas J Soutter C Bamford N Steen R Thomas E Harvey A Garratt J Bond (2001) ArticleTitleDesign and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients. Health Technol Assess 5 1–266
P McCulloch I Taylor M Sasako B Lovett D Griffin (2002) ArticleTitleRandomised trials in surgery: problems and possible solutions. BMJ 324 1448–1451 Occurrence Handle10.1136/bmj.324.7351.1448 Occurrence Handle12065273
R Melzack C Terrence G Fromm R Amsel (1986) ArticleTitleTrigeminal neuralgia and atypical facial pain: use of the McGill Pain Questionnaire for discrimination and diagnosis. Pain 27 297–302 Occurrence Handle10.1016/0304-3959(86)90157-0 Occurrence Handle3808740
B Mittal DG Thomas (1986) ArticleTitleControlled thermocoagulation in trigeminal neuralgia. Journal of Neurology, Neurosurgery & Psychiatry 49 932–936
Newton-John T (2002) Measurement of pain in adults. In: Zakrzewska JM, Harrison SD (eds) Assessment and management of orofacial pain. Elsevier Sciences, Amsterdam, pp 87–104
AB Oturai K Jensen J Eriksen F Madsen (1996) ArticleTitleNeurosurgery for trigeminal neuralgia: comparison of alcohol block, neurectomy, and radiofrequency coagulation. Clin J Pain 12 311–315 Occurrence Handle10.1097/00002508-199612000-00010 Occurrence Handle8969876
JH Petit JM Herman S Nagda SJ DiBiase LS Chin (2003) ArticleTitleRadiosurgical treatment of trigeminal neuralgia: evaluating quality of life and treatment outcomes. Int J Radiat Oncol Biol Phys 56 1147–1153 Occurrence Handle10.1016/S0360-3016(03)00264-5 Occurrence Handle12829153
CL Rogers AG Shetter JA Fiedler KA Smith PP Han BL Speiser (2000) ArticleTitleGamma knife radiosurgery for trigeminal neuralgia: the initial experience of The Barrow Neurological Institute. International Journal of Radiation Oncology, Biology, Physics 47 1013–1019
H Slettebo PK Eide (1997) ArticleTitleA prospective study of microvascular decompression for trigeminal neuralgia. Acta Neurochir (Wien) 139 421–425 Occurrence Handle10.1007/BF01808878
H Slettebo H Hirschberg KF Lindegaard (1993) ArticleTitleLong-term results after percutaneous retrogasserian glycerol rhizotomy in patients with trigeminal neuralgia. Acta Neurochir (Wien) 122 231–235 Occurrence Handle10.1007/BF01405534
MA Whooley AL Avins J Miranda WS Browner (1997) ArticleTitleCase-finding instruments for depression. Two questions are as good as many. J Gen Intern Med 12 439–445 Occurrence Handle10.1046/j.1525-1497.1997.00076.x Occurrence Handle9229283
KB Yoon JR Wiles JB Miles TJ Nurmikko (1999) ArticleTitleLong-term outcome of percutaneous thermocoagulation for trigeminal neuralgia. Anaesthesia 54 803–808 Occurrence Handle10.1046/j.1365-2044.1999.00905.x Occurrence Handle10460537
Zakrzewska JM (1995) Trigeminal Neuralgia. W.B. Saunders, London
Zakrzewska JM (2002) Trigeminal neuralgia. In: Zakrzewska JM, Harrison SD (eds) Assessment and management of orofacial pain. Elsevier Sciences, Amsterdam, pp 267–370
JM Zakrzewska S Jassim JS Bulman (1999) ArticleTitleA prospective, longitudinal study on patients with trigeminal neuralgia who underwent radiofrequency thermocoagulation of the Gasserian ganglion. Pain 79 51–58 Occurrence Handle10.1016/S0304-3959(98)00145-6 Occurrence Handle9928776
JM Zakrzewska BC Lopez (2003) ArticleTitleQuality of reporting in evaluations of surgical treatment of trigeminal neuralgia: recommendations for future reports. Neurosurgery 53 110–122 Occurrence Handle10.1227/01.NEU.0000068862.78930.EE Occurrence Handle12823880
JM Zakrzewska DG Thomas (1993) ArticleTitlePatient’s assessment of outcome after three surgical procedures for the management of trigeminal neuralgia. Acta Neurochir (Wien) 122 225–230 Occurrence Handle10.1007/BF01405533
JM Zakrzewska BC Lopez SE Kim HB Coakham (2005) ArticleTitlePatients’ reports of satisfaction following microvascular decompression and partial sensory rhizotomy for trigeminal neuralgia. Neurosurgery 56 1304–1312 Occurrence Handle10.1227/01.NEU.0000159883.35957.E0 Occurrence Handle15918947
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Zakrzewska, J., Lopez, B., Kim, S. et al. Patient satisfaction after surgery for trigeminal neuralgia – development of a questionnaire. Acta Neurochir (Wien) 147, 925–932 (2005). https://doi.org/10.1007/s00701-005-0575-6
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DOI: https://doi.org/10.1007/s00701-005-0575-6