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Versorgungsbedarf von Kindern und Jugendlichen mit einem Schädel-Hirn-Trauma

Health care needs of children and adolescents with a traumatic brain injury

  • Leitthema: Chronisch kranke Kinder
  • Published:
Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz Aims and scope

Zusammenfassung

Schädel-Hirn-Trauma ist eine der häufigsten Ursachen für funktionelle Beeinträchtigungen im Kindes- und Jugendalter. Im Rahmen eines Projektes zur Verbesserung der ambulanten Rehabilitation und Nachsorge wurden in 4 Städten Deutschlands Beratungsstellen für betroffene Familien geschaffen. Dargestellt werden die Ergebnisse zweier Teilstudien, die zum einen auf eine Prozessanalyse der Netzwerkarbeit und zum anderen auf eine prospektive Verlaufsuntersuchung abzielten. Die Prozessanalyse basierte auf der Auswertung einer Datenbank, die für diese Studie entwickelt wurde. Mit einer prospektiven Längsschnittuntersuchung, in die zum ersten Messzeitpunkt insgesamt 103 Familien eingeschlossen werden konnten, wurden an den 4 Projektstandorten Teilnehmer zu 3 Messzeitpunkten in einem Interview und per Fragebogen befragt. Erfasst wurden die gesundheitsbezogene Lebensqualität, Inanspruchnahme und Versorgungszufriedenheit. Mit einer Unterstichprobe wurde zusätzlich ein neuropsychologisches Kurzassessment durchgeführt. Insgesamt betrachtet, kann die Lebensqualität der Kinder und Jugendlichen als gut bezeichnet werden. Es wurden kaum Gesundheitsdienste in Anspruch genommen. Eine kindgerechte Versorgung war prädiktiv für die Versorgungszufriedenheit der Eltern. Das Kurzassessment erwies sich als praktikable Methode, um Kinder und Jugendliche mit speziellem Versorgungsbedürfnis zu identifizieren.

Abstract

Traumatic brain injury is a leading cause of acquired disability in childhood. Within a project to improve out-patient rehabilitation and aftercare advice, centres for families affected by traumatic brain injuries were implemented in four German cities. The results of two sub-studies are described which aimed on the one hand at a process analysis of the network operation and on the other hand at a prospective analysis of the network interaction. The process analysis was based on a database which was developed for this study. Within a prospective longitudinal study, 103 families could be included. At four project sites, families were questioned with an interview and questionnaire at three different time points. Health-related quality of life, utilisation and health care satisfaction were assessed. In addition, a neuropsychological assessment was conducted with a portion of the sample. Overall, quality of life of the children and adolescents can be described as good. Health care services were scarcely utilised. A childcentred health care was predictive for the health care satisfaction of the parents. The short assessment proved to be a feasible method for identifying children and adolescents with special health care needs.

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Authors and Affiliations

  1. Universitätsklinikum Hamburg-Eppendorf, BRD

    Corinna Petersen M.A., A. Scherwath, J. Fink & U. Koch

  2. Institut und Poliklinik für Medizinische Psychologie, Universitätsklinikum Hamburg-Eppendorf, Martinistraße 52 – S 35, 20246, Hamburg, BRD

    Corinna Petersen M.A.

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  1. Corinna Petersen M.A.
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  2. A. Scherwath
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  3. J. Fink
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  4. U. Koch
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Correspondence to Corinna Petersen M.A..

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Petersen, C., Scherwath, A., Fink, J. et al. Versorgungsbedarf von Kindern und Jugendlichen mit einem Schädel-Hirn-Trauma. Bundesgesundheitsbl. 51, 629–636 (2008). https://doi.org/10.1007/s00103-008-0536-3

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  • DOI: https://doi.org/10.1007/s00103-008-0536-3

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